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Mental Health Coming Off Invega Sustenna (Paliperidone) v.2

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Gdvffh said:
Here is a list of the negative symptoms of schizophrenia
Avoliton: lack of motivation Anhedonia: lack of pleasure in normally enjoyable activities Affect (blunted): lack of outward emotional expression Alogia: lack of verbal expressiveness Asociality: lack of social interaction

Ironically enough I possess all of these but I am not schizophrenic, maybe this whole time what they gave been attributing as negative symptoms of schizophrenia is actually side effects of the pills. It also says negative symptoms present themselves after a period of time. Which to me strongly suggest its the meds not the schizo. Wow these drug companies are so corrupt
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Yes, I believe this 100%. Using side effects of the drug and list them as symptoms of the illness in order to legitimize psychiatry and its drugs.

Watch this:

https://www.youtube.com/watch?v=II96QkZaz1E
 
Gdvffh said:
It might be possible that alot of us are simply in denial and the reality is that we are in fact schizophrenic, look at the negative symotoms of schizophrenia, and look at the symptoms we are displaying, is this a coincidence? Alot of us such as narshe are writing things like we were misdiagnosed as schizophrenic and the given the injection which gave us this result. Perhaps we were not misdiagnosed as schizophrenic but we simply refuse to believe we are schizophrenic. Just for the record. These negative and cognitive symptoms do not go away with time, there are no cure for negative symptoms.
A good amount of you guys such as bad robot have been on this thread for over a year and are still experiencing emotional bluntness and cognitive dulling, I strongly doubt the effects would still be in effect after a year. Maybe at this point it is time to accept that the state you are in now is simply the new you and you won't be going back to your oldself. Whether it's because of the meds or because you have schizophrenia the results are the same. Also there are pretty much no success stories online of ppl writing about how they had emotional blunting and then they got better, I can't find any. All I find are threads of ppl displaying the symptoms we have and then asking how long it takes to come back and say things like they hope the effects are not pernament.
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I have never had any of these symptoms before and two doctors I went to already said that it was a misdiagnose. I'm not schizophrenic, it was a stress induced psychosis coupled with marijuana use.

Tons of studies already proved that neuroleptic drugs can and do cause anhedonia, as well as some permanent brain damages (e.g. T.D.)

Your kind thinking is exactly what they want.
 
Gdvffh said:
Receptors dont regrow... If receptors regrew then we wouldn't have a problem with Parkinson's disease. I personally think that what happened was that these drugs attacked our receptors so much that it may have destroyed the receptor, I believe the throbbing pain in my head is the dead receptor.
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I've read that Invega Sustenna works by indiscriminately blocking dopamine and serotonin receptors. Those receptors that were blocked became atrophied and died out over time. The paper I read stated that the brain will regrow those receptors over time and they will be quite sensitive after you come off the drug hence some people get 'relapse' or another psychosis which resulted from neuroleptic withdrawal, but the pharmacutical companies have been trying to attribute the psychosis to the illness itself and get you to stay on the drug for the rest of your life.

That's another important thing people need to remember. If you are coming off this drug and say 5-7 months down the road you relapse, it's actually your receptors being hyper sensitive from not being blocked anymore.
 
I am on caffeine pills for metabolism but the effect is really weak. It was strong before invega, i had a whole day of rush.

I can get a buzz fron alcohol but not drunk.

Its just how any sustance wont have effect no more. At least i feel reduced effects and not just nothing. Optmism much?
 
PerplexedMan said:
I don't think that is true. I read somewhere that SJW makes it so that more invega is needed to have an effect. Therefore, it helps get rid of it or at least make it somewhat ineffective. The effect lasted for a few hours after I took two pills. I used to take one pill but that doesn't have an effect. Two pills does it.

Btw haven't you been off Invega for a long time now? How are you are feeling? I'm assuming from your words that you still have anhedonia? How can that be you must have been off for at least 2 years by now!
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I'm still suffering from it, yes, and anhedonia is one of the biggest issue for me. Never had any of these symptoms before getting the injections. Not going to waste time telling you that it's because of the injections since having read posts in this thread and the ones from v.1 should tell you what you need to know already.

After having read your post about St John's Wort this morning I went out and bought a bottle. I took 3x300mg caps and it didn't do anything after 1 hour so I took 2 more caps. Total of 5 caps and 4 hours later with no changes. I feel nothing.

Consider yourself lucky to have found something to help alleviate your time going through this. Many of us wish we have something to rely on too, like weed or cigs etc.

Right now nothing does anything for me. It's flat out torture. If I could enjoy cigs or weed then this whole experience won't be as bad, but damn it.

I had 10 shots at 100mg back in 2013. I then had a relapse from withdraw and had to get 3 more injections early this year because the doctor attributed the relapse to the illness which later came out to be false and it was from invega sustenna withdrawal (see other posts). I feel like I'm back to square one. So realistically speaking, I'm about a month and a half off my second round of Invega Sustenna.
 
This here is probably the single most important information everyone suffering from Invega Sustenna can find. It's the study of the prolonged elimination process of Invega Sustenna:

http://journals.lww.com/psychopharm...ged_Elimination_of_Paliperidone_After.21.aspx


Basically there's not much you can do aside from drinking a lot of water and drive it out via urine since it's the main way to eliminate this drug. Apparently drinking a lot of green tea is good since it will help you urinate more often thus eliminating more of the drug.

Another thing people here need to know is that after coming off this drug there is a high chance that you will have another psychotic episode/psychosis. From what I've read, it usually happens after 5-6 months. More often than not this is because the dopamine and serotonin receptors became hypersensitive after the drug has been eliminated from your body and therefore can cause psychosis. So know this and research more about it before you go back for another round of these injections. Not saying that all relapses are going to be caused by the drug, but it is something to be considered as well once you understand more about how the drug interacts with your receptors, how your body gets rid of it, and how your receptors heal afterward.


Good luck to all. You guys have became my only go-to during this whole ordeal. Consider yourselves lucky though since when I was first injected with this stuff there weren't any information about this drug at all since it was brand new. I was so scared and didn't know what was going on with me. It felt like it was going to be permanent until I found out about the 49 days half life approximation.

Back then it was just pure darkness with little to no information about this drug. My doctor also kept refusing to believe that the drug can cause anhedonia, permanent brain damage, lasts longer than a month, and prevents you from enjoying cigs, weed, or alcohol. I wish I had recorded the stuff he had told me about this drug because he truly didn't have a clue what he was talking about. Nothing he told me about this drug was true. Not one. He kept pushing me to get the injection and only later on I learned more about how psychiatry works and how doctors get stipend from big pharmaceutical companies that everything began to make more sense as to why he kept pushing me to get these injections.

It pisses me off so much whenever I recall the time I tried to explain to him how much I was suffering a month after I stopped the drug and he just told me that the drug was already out of my system after a month and that it was my illness that is causing the anhedonia, insomnia, lack of motivation, etc.


I read more and more cases of other people who were also lied to, either intentionally or lied by omission, about this drug. What did your doctor tell you about the drug when you were going to first get injected? What did he/she say about how long it will stay in your system? Did he/she try to pile more psychiatric drugs on you after you explained to him/her how you suffer? Welbrutin is a popular one they love to prescribe for anhedonia and I challenge you to research and find anyone who actually benefit from Welbrutin for anhedonia. NONE.
 
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Fuck this. I am going to stop believing and refreshing this page over and over.

I will never be able to sleep well again.

I am going to end like narshe81. I can feel it
 
Invegavictim said:
Fuck this. I am going to stop believing and refreshing this page over and over.

I will never be able to sleep well again.

I am going to end like narshe81. I can feel it
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How many months have you been off the drug? Don't forget that I had a second round of Invega Sustenna injections back 3 months ago from a psychosis resulted from the initial withdrawal from 2013. That being said, I am pretty much at the 1 and a half month mark right now, so it's understandable why I'm still suffering. I'm just pissed off since the last time I was almost fully recovered. I wish I found out about the receptors hypersensitivities post cessation before I got my second rounds of injection.


Also.. Looks like there's going to be a v.3 of this thread from the way things look.
 
poisoned_veins said:
@invegavictim at least you're 2 months closer than me, have you improved at all or doing pretty much same as month 1 ? Do you get hungry or thirsty my mum has to keep reminding me to drink water and all
There's some hope for you, close to 6 months .. I'm no where near
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The consensus is 8 months or more. I pretty much feel like month 1, but i am deceived by things like a drop of regular sperm only to not have it again. I get hungry and thirsty but cant feel sleepy
 
poisoned_veins said:
Narshe_81 hang in there, the first time you stopped your injections how many months did it take for you to regain memory and emotions ? We'll get through this together
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The first time around I suffered a lot. For the first 3 months I felt like complete hell and did nothing but stayed home and researched online about the drug. Eventually I got fed up and just started going to the gym like crazy and got really fit. Invega Sustenna didn't give me the weight gain that most people get which I really envy since I do want to gain weight. Gym and work was mainly my reasons for having stopped posting in v.1 of this thread. I went on with life and before I knew it, a year had passed. At that time before I relapsed and had another psychosis, I only regained maybe 60% of my previous self. I still couldn't enjoy weed or cigs the way I used to, but sleeping and sexual desire got better.
 
poisoned_veins said:
@narshe81_return why didn't you take tablets instead of injections the second time around
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Wasn't up to me. Was court ordered and the genius doctor said it was from the illness only to say it was from withdrawal 3 months and 4 more injections later. Now I'm back to 1 month and a half mark....
 
Thanks I learned a lot from you guys as well. Not to mention the much needed emotional supports.

On a side note I really wish I got the weight gain side effect like many of you did. That would really help me bulk for gym. I have to force myself to eat because I don't feel hungry nor do I get a sense of satisfaction from it.
 
And I smiled like a frigging clown when I read about Decisive, Bad Robot, and the other recovery stories.


There is still hope.
 
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Thinking of hiking the Appalachian trail to recover. Suspect it would help my body become vigorous and my mind flow again.

Hike with my supplements and get better!

What do you all think?
 
Atleast be thankful you're off the medicine. Some of us are still recieving injections...

Hi, Im Sky Stormrage btw,

Recieved the initial 2 injections a year ago, stopped, got crazy sexual fantasies at month 6, and I mean it was crazy, like, it wasn't fantasizing or anything, it was just like in a dream, except this time I was awake and it lasted more then 3 seconds.

I believe that's due to the hypersensitivity you guy's were talking about. Man it was hot...

I can't believe Im on this poison again.
Been taking it for 6 months now at 150 mg. ( Something happened that caused me to be hospitilized and instead of asking questions like what was wrong they stuck me with another one of those things, this time at 150mg not 100 as before )


At first while on this poison, and Im still on it, I couldn't engage with movies like I used to, but then it got better... Im enjoying The Tribe series like there's no tommorow, it's so fun... and this is while im still getting 150 mg shots of this stuff.

The Sexual dysfunction is up though, Before, I used to have a wet-dream everyday for 3 days per week ( Dopamine Hypersensitivity ). Now , I have one once every two months. This is crazy. I hope I get better soon.



No Anhedonia so far, except for the begginging. Things are really starting to improve. Though I am getting bouts of pain every once in a while, but they're bearable.

I take Levo-Tyrosine and 5Htp, to make dopamine and Serotonin in the brain. I don't know if these have helped. I didn't notice a change in the beggining, but who knows... Peace.

I wish you all the best of luck, oh yeah and gained like 15 kg over 1-2 months.

Best of luck
Peace

I really appreciate this thread
Thanks guys, for everything...
 
invegauser said:
@PerplexedMan: would you mind stating how many injections you had and whether or not you have taken the pill form of invega please? i see you started it six months ago and then say you did it for 4 more months. it's just confusing to me as far as the timeline goes. not trying to be rude just clarifying.

@Narshe81: that is a great piece of information. first off please don't take anymore of the SJW today, don't want you to over do it buddy. it does work for some but not others and we have found that out here in the past like you mentioned about a lot of things. there's a lot of crap to sift through and it is daunting to do so while on the poison. the great piece of information is you said you had 3 more injections early this year. your timeline has now been re-established. as you know those who take a few injections are looking at the "average" healing time of 8-10 months. i know it is a small comfort and you still have a ways to go but this is more definitive for you now. seeing as you have already gone a few rounds with invega you might even heal faster this time or have an easier go of it. you have now brought up an interesting case. a small consolation but hopefully you can work with it. i'm going to watch the video you suggested here in a minute and get back to you.

totally agree with you on the relapse. this poison actually gives us the symptoms of schizophrenia for a brief period of time during the psychotic episode on the comedown and it is something we should all watch out for towards the end of healing. it passes but reacting to it instead of staying calm and carrying on will only make our current situation worse, like what you have gone through.

all the doctors lied to all of us. we are the ones finding out what it does to us and how this poison works. if it wasn't for you we wouldn't have this thread and all the useful information and success stories. thank you for your courage, need to find comfort in distress and your endurance to spread the word.
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I have never taken the pill form but I have been on risperidone pills for 2 months before I switched to Invega. I was briefly put on Abilify but had a very bad reaction to it which led to my suicide attempt. It made me even more paranoid than I was at the time and I started believing the government sent ninja commandos to murder me and that the whole psych ward was just a front for this covert operation. I had initially been to the hospital because I became paranoid. I completely lost my mind after not sleeping for 4 days straight. I had some emotional problems and was very angry and hurt. Then I started to hallucinate and have paranoid delusions. I heard demons one night and people making fun of me. Then the next day I heard the television talking about me and saying I was a terrorist. A friend was trying to help me and get me to see a psychiatrist but I ended up punching him in the face. I thought at one point the whole world was against me. It was crazy and I ran away after that. As I was running I see a lady standing at a bus stop. I start shouting at her because I was paranoid that she was wired and wanted to record me. I shouted to her to show me her phone. She calls the police thinking I was trying to mug her. That's how I ended up in a cell then they realised I was insane and put me in the hospital.

I received risperidone pills along with clonazepam. Then I briefly switched to Abilify and tried to kill myself. Then was switched to respiradone then quickly to Invega. I was on Invega for 4 months then I decided to quit. I stopped for 2 months then I resumed the treatment and received a booster shot plus 100 mg shot. Now I am due for another shot but I will not take it. Also I am moving away from the UK to be with my family so I will no longer have the whole system to rely on. I hope that I don't have a relapse though.
 
Narshe81_return said:
I'm still suffering from it, yes, and anhedonia is one of the biggest issue for me. Never had any of these symptoms before getting the injections. Not going to waste time telling you that it's because of the injections since having read posts in this thread and the ones from v.1 should tell you what you need to know already.

After having read your post about St John's Wort this morning I went out and bought a bottle. I took 3x300mg caps and it didn't do anything after 1 hour so I took 2 more caps. Total of 5 caps and 4 hours later with no changes. I feel nothing.

Consider yourself lucky to have found something to help alleviate your time going through this. Many of us wish we have something to rely on too, like weed or cigs etc.

Right now nothing does anything for me. It's flat out torture. If I could enjoy cigs or weed then this whole experience won't be as bad, but damn it.

I had 10 shots at 100mg back in 2013. I then had a relapse from withdraw and had to get 3 more injections early this year because the doctor attributed the relapse to the illness which later came out to be false and it was from invega sustenna withdrawal (see other posts). I feel like I'm back to square one. So realistically speaking, I'm about a month and a half off my second round of Invega Sustenna.
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So it sounds like you recovered briefly before going psychotic and going back on the Invega. I mean you say that you started going to the gym that sounds like quite an achievement on Invega. I mean if I was able to work out as I used to before I would feel much better than I do now.

Regarding the smoking, it's true. I don't get much of a buzz from cigarettes anymore although I was smoking very heavily when I was hospitalised. The smoking would at least give me some energy so that was good but now I quit it. It's a very unhealthy habit. I hear some people say that alcohol has no effect on them. This is not true for me. I do feel tipsy when I drink so I still enjoy that stuff.

Sorry SJW didn't work for you man. Keep trying it maybe some day it will. At least you would be getting rid of some of the Invega this way. Even if you don't feel anything at first.
 
I just thought about something. Wouldn't it be possible to donate some blood to try and get rid of some the Invega?
 
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