Mental Health Coming Off Invega Sustenna (Paliperidone) v.2

[Spiralspider]

One thing that has been bothering me and maybe you guys can give me an answer; Is swollen stomach with no weight gain a sideefect of invega and it will disappear when it wears off? I'm gaining a lots of fat on my body even on my tighs but my weight seems the same- thank you guys

 

[Spiralspider]

Has anyone ever experienced another psychosis after receiving the Invega shot?

Or do you know of anyone who has received a shot of Invega and then experienced another psychosis at some point in the future? Even if it was years down the road.

I'm trying to do some research to figure out if Invega causes some sort of permanent neurological alterations to the brain which permanently prevents individuals from achieving the necessary levels of neurotransmitters required to induce a psychotic state. If so, then that would mean I might not have to remain on a mood stabilizer. I have no issues with being on a mood stabilizer for the rest of my life if that's what I have to do to never experience a psychosis again...but they come with a ton of side effects, at least for me. Hair loss, weight gain, lethargy/fatigue, and the list goes on. So I'd like to find an answer to this question so I know if it's safe to come off my mood stabilizer. I know my Psychiatrist will never go for it cause he insists the Invega was out of my system completely after 3 weeks and has no long-term effects. And my Primary care physician has absolutely zero background knowledge on Invega. When I told her I was put on it in the hospital, she told me that she had never even heard of Invega Sustenna before. This is sad for multiple reasons, but mainly because she is one doctor who actually listens to what I have to say and we have a good relationship. If there was one doctor that would do everything they could to help me, it would be her.

Anyway, up to this point I haven't found one piece of research literature or anecdotal evidence which states that a user experienced another psychosis even after receiving a shot of Invega Sustenna up to this point. Has anyone else heard of this occurring?

Any input people could offer would be greatly appreciated.

From what i've read invega only blocs the dopamine serotonin receptors so the rest of the neurotransmitter remain untouched and its common fact that the effects are temporary and you should go to normality when you first take them.. But why some people only take one injection while other take multiple suggests that some need more time and potency so they can sort the things out until you get off the invega. I read mostly online people talking that after they got off the psychosis didn't come back but I saw someone which was pro-meds saying that he was better wiith the meds not sure if because of psychosis or for other issues that are handled well by invega.
To me is a rare thing.. im taking pills and when I make "holidays" my old head comes back in lesser potency reminding me my personal misguidances and im sure thats not a symptom of psychosis or schizophrenia. thats why I dont know if I wanna be off-meds.. and yeah..~~~~~~~~~~I really dont remember what it's like to be off-meds, I dont even know what I did last week.

In the best case scenario psychosis will not resist and after the period that all of us have to wait it will be worth it, it was really only one case that said things weren't good after the treatment and not for psychosis#
Thats my input. best luck for you

 

[Invegaman]

It's been 5 months for me and still no progress in my case you just kinda get used to being a below average guy, I was previously employees as a computer engineer with a long term girlfriend with a good body, pre-invega. On the other hand post-invega I've lost my girlfriend and I'm now claiming benefits off the government and have gained weight but the problem is I don't have the physical capacity to exercise to burn it off and people around me assume I choose to be lazy but I know it's because of the insidious poison, I know it is. The best way to describe it is I'm missing that spark, that hunger for life. I'm just a soulless sloth going through days with no achievements or any accomplishments. It's a tragedy. I got diagnosed bipolar but since Invega I believe my manic receptors have been ultimately switched off which some may assume is a good thing but it's dreadful. I forgot who I was and I still dread what I am becoming.

 

[Joey2358]

I am over year off this injection and i havent recovered a bit... the drug may be out of my system but the side effects arent...today a pharamacist told me that side effects are a different thing that the injection itself.... ((((...... i suffer from crying attacks, body pain and death fears...its hell..it may never go away...my life is over

@Tina have you checked to see if it was in your blood? There may be a little more. How many shots did you get? I talked to Janssens and they said it takes 343 to 393 days before it comes out of the system. Has it been 393 days? Also, you could cry so that's a good sign. I can't cry and have no emotion.

 

[Jmorin]

10 month check in im doing real good i did have some major withdrawal at the 6th half life which i was deppressed felt like i couldnt breath which i have experienced this on the other half life but this time it was a little harder to get through but it has passed and now im feeling real good I've worked in my garage did brake job on my truck and car I've noticed the numb feeling that my body had is now lifting and im getting feeling back for example a back scratching feeling real good noticed the feeling of being hungry and thirsty came back. Motivation real good sex life is getting back on track and im starting to get my sense of humor back.I have lost another 5# and got some of my muscle back and strength! everyday i seem to be getting better.At month 5 i started what they call windows and waves a window is when you feel good and a wave is when you feel like shit or is feeling a withdrawal. At month 5 it seemed like i would get 1 or 2 days where i felt good then i would have weeks i felt like shit this happen threw 5 month untill now good days where good but the bad days kick my ass i think its when the drug cuts in half your body goes threw major withdrawal wich are real hard but when you make it threw it you gain a little bit so its like you are on a roller coaster ride up and down the more half life that pass the bigger the window get and the shorter the waves get but for me the waves where more intense and then the window got bigger and longer so just keep battling through it cause the wave will go away and you will have a window if that make any sense and hope this will help all of you.

 

[NotAPsycho]

8 and a half months off the venom with an update. I was feeling like complete shit, and mustered up enough strength to half ass some crunches on the couch yesterday. Today, I felt 10 times better, just partially shitty. Coincidence? I think not. The only weight I've gained since the injection is in my stomach. So it's obvious that's where the venom is hiding. Now I must destroy what's remaining.

Also, I've been taking intramax for a few months. It has over 400 vitamins and minerals. That might have had something to do with it. You can buy it online. In addition to fruit wheat grass smoothies.

To elaborate on how I felt better, I was speaking almost like I normally would pre-venum, coming up with witty remarks, thinking about my future, laughing and smiling more, and slightly more clear headed. Still don't feel close to 100%, but I'm going to continue to bust out crunches every day until I get back my 8 pack, and the last bit of venum dissolves away.

It's much easier to just do crunches on the couch, focusing the desired area of effect. I encourage everyone here to source where you gained any fat(where the invega is stored). Figure out an excersize for that specific region, or regions, that you can do in or around the house. Let's burn off this shit for good!

 

[NotAPsycho]

I am over year off this injection and i havent recovered a bit... the drug may be out of my system but the side effects arent...today a pharamacist told me that side effects are a different thing that the injection itself.... ((((...... i suffer from crying attacks, body pain and death fears...its hell..it may never go away...my life is over

Tina, you need to order some cbd oil, 5000mg. Any time I feel pain, wherever it may be, I take a dropper full. The pain disappears after a few hours, and stays gone. Seriously, it's amazing! It's also known to relieve sleep apnea, anxiety and pretty much anything you can think of. High cbd strains of marijuana do the same thing. Just be wary of the miniscule level of thc, if you have a drug test coming up. Takes a week or two to rid your system.

 

[Babylon5]

I received neuroleptics - first, Abilify, then Zyprexa, and now Risperdal - and since taking Zyprexa, I've been having the same problems as everyone else in this thread, i.e. loss of motivation, anhedonia, apathy, and cognitive impairments. And I feel stuck because I want to quit taking antipsychotics completely but if I do, my psychiatrist said she will stop prescribing stimulants for me, and I can't fathom not taking them again. I remember I was taken off of them for a month and fuck that. But, what I don't understand is how people quit their antipsychotic medication, and not relapse into illness.

 

[Joey2358]

10 month check in im doing real good i did have some major withdrawal at the 6th half life which i was deppressed felt like i couldnt breath which i have experienced this on the other half life but this time it was a little harder to get through but it has passed and now im feeling real good I've worked in my garage did brake job on my truck and car I've noticed the numb feeling that my body had is now lifting and im getting feeling back for example a back scratching feeling real good noticed the feeling of being hungry and thirsty came back. Motivation real good sex life is getting back on track and im starting to get my sense of humor back.I have lost another 5# and got some of my muscle back and strength! everyday i seem to be getting better.At month 5 i started what they call windows and waves a window is when you feel good and a wave is when you feel like shit or is feeling a withdrawal. At month 5 it seemed like i would get 1 or 2 days where i felt good then i would have weeks i felt like shit this happen threw 5 month untill now good days where good but the bad days kick my ass i think its when the drug cuts in half your body goes threw major withdrawal wich are real hard but when you make it threw it you gain a little bit so its like you are on a roller coaster ride up and down the more half life that pass the bigger the window get and the shorter the waves get but for me the waves where more intense and then the window got bigger and longer so just keep battling through it cause the wave will go away and you will have a window if that make any sense and hope this will help all of you.

Hey Jmorin is there any still in your blood. Janssens says it takes 343 to 393 days to fully come out of the system... Is your sex drive and libido back to normal?

 

[Jmorin]

Im going today to see my psychiatrist going to ask to get my blood check and i will let you no sex drive not a 100% but it like 98% i think alot of the problem is your body numm so you have no feeling down there the last couple weeks my feeling been coming back.

 

[Spiralspider]

Jmorin Its great that you are recovering and seeing some improvements in your condition, congratulations, hope we all improve.

I finally reduced my dosage of invega from 9 to 6 and actually it feels a lot better mentally, I can even feel my forehead. As the time goes by I'm getting used to the medication's effects but I know I'm without emotions and feelings and pleasure and the reduction didn't improve any of these conditions.

As I said in a previous post, my weight is still the same as before when I started meds but my stomach area /belly it's very upfront like its swollen.. or as if I got fat. Anybody has an explanation for this?

Now I'm just thinking that if I can get to 6mg it gets easier to go cold turkey, maybe I will try 3mgs before.

Wish you luck to you all

 

[Jmorin]

I accidentally delete my last post and it really piss me off! another emotion i have now lol

 

[Jmorin]

Jmorin Its great that you are recovering and seeing some improvements in your condition, congratulations, hope we all improve.

I finally reduced my dosage of invega from 9 to 6 and actually it feels a lot better mentally, I can even feel my forehead. As the time goes by I'm getting used to the medication's effects but I know I'm without emotions and feelings and pleasure and the reduction didn't improve any of these conditions.

As I said in a previous post, my weight is still the same as before when I started meds but my stomach area /belly it's very upfront like its swollen.. or as if I got fat. Anybody has an explanation for this?

Now I'm just thinking that if I can get to 6mg it gets easier to go cold turkey, maybe I will try 3mgs before.

Wish you luck to you all

Its because your thyriod is not working because are recptors are messed up because dopamine and serotonin are blocked i was the same way. at month 8 i started getting better

 

[Jmorin]

Im sorry my grammer sucks and im not very good at using this thread but just tring to help out

 

[Jmorin]

There is a you tube videio look up thyriod and dopamine there is two videios that explain it if dopamine and soretonine are block it messes up your brain receptors and thing dont work

 

[Invegaman]

How's everyone doing now?

 

[Joey2358]

I'm not doing good. It's my 4 month off and I still can't get a natural erection, no libido, and I can't run. When will this nightmare end. What scares me is Tina hasn't recovered and it's been over a year for her.

 

[Koz26]

I'm not doing good. It's my 4 month off and I still can't get a natural erection, no libido, and I can't run. When will this nightmare end. What scares me is Tina hasn't recovered and it's been over a year for her.

Yet three people have told you they felt better in less than a year. If you choose to focus on ONLY the negative posts then it's only going to make your recovery more difficult.

 

[unexpected175]

Hey everyone I've been following this thread for the past 3 months since i got shot up with Invega Sustenna Three times in Feb, March, and April, 234, 156 and 117 mg, so I feel like a decent amount of time has passed to where I can i relate to what everyone else is going through on here. The constipation the never-ending appetite the watery semen the low sex drive the low energy and so on. Going on this forum and being able to hear about people recovering has been really inspiring and uplifting. I have to say that even though its only been exactly 100 days I can already feel like I'm regaining my drive my energy and other crucial things i thought were lost forever after being shot up with this stuff, my memory my creativity my cognition my motivation etc, although i Know at 3 months and 1 week in Im still a long way from where I wanna be. I was a college rugby player, a college graduate and i was preparing to become a personal trainer to pay for my grad school.

I obviously had to put those aspirations on hold after i got shot up with the invega sustenna I also took like 3 months worth of pills at 1.5 and 6 mg from November to January. So i can say from having experienced both theres a night and day difference from the pills and the injectable and as soon as i was upped from 1.5 to 6 mg the side effects were almost immediate like a couple weeks later. I have to say that i really agree with Koz26 though, that the pills being administered for short term relief of a psychosis can be beneficial. I was smoking way too much cannabis (I live in Cali) and it was making me manic and my thought and speech patterns had become irrational. I checked my self into the hospital and the P-Doc I met there gave me the pills and we noticed mild improvements.

But I live at home and Im 26 and my parents didn't feel they saw enough of an improvement and they wanted something drastic and drastic they got. they sought out a "2nd opinion" and the bad doctor (cuz not all doctors are bad you just gotta find the right one for you) changed my manic depressive diagnosis to schezoaffective, which was clearly nonsense my good P-Doc went into the DSM to look at the criterion for skitzoeffective or skitzo and I simply didn't meet the criterion. The shot is absolutely a drastic measure for depression or anyone going through a tough time unless someone seriously exhibits serve skitzophrenic and dangerous behavior, i mean this shit knocked me on my ass.

But I agree with all the people that seem to be recovering by remaining optimistic, exercising and sweating, getting sunshine (its summer time!)eating healthy and drinking SO MUCH WATER (go refill a gallon at your gym if you have to) get vitamin C Vitamin D magnesium and definitely don't drink or smoke for a very long time, because whats the point if you can feel it while were on this stuff? and Make sure to go for a walk at least 20-25 minutes everyday so that our bodies and minds don't become stagnant.

Anyway I hope everyone's having a good day, remain optimistic and try to fight through it,find something to occupy your time, Im going back to school in sept at CC to relearn Spanish because I used to speak it semi fluently, so I'm just gonna focus on getting an A in spanish 1 to boost my self esteem and do something useful with my life... good luck everyone!!

 

[Koz26]

@joey

I wasn't trying to be a jerk. I always focused on the people who said they never got better when I was in the early stages of recovery too. And I'd be lying if I said that seeing stories like Tina's didn't get me a little demoralized. But you just have to try and remember that there are individual factors that play a role in each person's recovery. It IS possible that SOME people who received the Invega shot really do have schizophrenia or schizoaffective disorder. In which case even once the Invega wore off there is still the possibility of that person experiencing the negative symptoms of schizophrenia. I know some people on here are saying things like "mental illnesses aren't real" but it's in my opinion that they most certainly are. And they can't simply be discounted when judging ones status in their recovery.

Keep your head up man. You'll get through this.