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Mental Health Coming Off Invega Sustenna (Paliperidone) v.2

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How long untill sexual dysfunction stops? I think my balls shrinked and all i can ejaculate is smelly water. Anyone else in this?
 
swisscurrie said:
I highly doubt that your friend on Risperdal Consta is "in a romantic relationship", " agile", or "emotional"
Risperdal consta makes you a fat, emotionless zombie. The opposite of agile and emotional. It eventually after long term use gives almost all men man tits and sever impotence. This is a fact.
They give that shit to severly "manic" patients and also people who experience vivid hallucinations. Giving Risperdal Consta to any human for any indication is in my opinion cruel and barbaric.

Also you have made it very clear that you are not recovering from invega, neuroleptics or any psychiatric drugs so why do you feel the need to continue posting here? This is not the right thread for you to express your views. You are only upsetting people who are severly suffering and have lost their lives to psychiatry, many of who are on the verge of suicide because of forced drugging
with the poisons you endorse.

Please post somewhere else.
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Because I have never seen such a one-sided thread as this one thread on bluelight. Demonizing one/two substances or even a whole class is plain ridiculous. I have been on many neuroleptics, have more than one friend who has been on risperidon, have seen plenty of patients on maintenance and have not seen a single one who showed the symptoms you are describing. I am convinced most (!) of the negative experiences are due to
A being prescribed neuroleptics when they were not indicated
B negative symptoms of schizophrenia (or bipolar depression in some cases)

Some patients have very good experiences with both risperidone and paliperidone, the internet is full of such reports. By the demonization of these meds you are influencing others who may or may not have a more positive reaction to the substance(s).


Regarding the person who has been my best friend for over a decade: What the actual fuck?! Are you calling me a liar? Do you think I am hallucinating/delusional?

I've known a lot of people who had their lives saved by modern psychopharmaceuticals, atypical antipsychotics in particular. I won't stand idly and accept the type of nonsense you are spreading. You have obviously lost touch with reality if you believe your own words. It's not that the information isn't available to you, it's that you don't want to believe it and are thereby spreading a whole lot of misinformation. That is the exact opposite of what this site is about. It is not an anti-psychiatry site either and the community has always managed to tolerate diverging opinions.

So yes, I will post somewhere else, but you will still see me drop in here time and again. Nobody who replied to my posts has even read them, let alone believes me, so why do you care? Are you afraid of being lead from delusion into reality? Are your views really so fragile that you need to call me a liar in order to maintain them? You should be curious about gaining new insights, but then that is not the nature of delusions.
 
You're the delusional one here. There are only two inherently highly toxic classes of pharnaceuticals: Chemotherapeutic drugs and Neuroleptics. Look up the presentations from the leader and founder of the Cochrane Center, Peter Goetsche, on Youtube and you will learn from a very well known and respected doctor about neuroleptics. He has been the leader of the most well known foundation for evidence based health care for over thirty years now. I think he knows a little more than you do. I have already posted all the links to his presentations but being delusional you have been resistant to looking further into the truth.

You hold the view that neuroleptics are safe an effective drugs for many different indications. Ask any reespectable neurologist what the risks of neureptics are. Neurologist deal daily with patiens who often are suffering long term mostly permanent harm from their consumption of neuroleptics such as Risperdal and Haldo. People posting here have been severly HARMED by these inherently toxic drugs and are here looking for support from others who share their pain. They are looking for advice and any way of recovering their level of functioning they had before their brains were tranquilized.

I am telling you to post somewhere else because I believe you are a troll. This is just my opinion and I can't prevent you from trolling this thread, that is up to the moderators to decide.
 
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@invegauser the wort does nothing. I am 4 months off. My hair is shit. Bowel movements are worse. Sometimes I hear voices when walking up in the middle of the night. Fuck, now the drug is cousing me this.
 
@Crook;

There is no reason to stir the hornets nest. This thread is for people who have had extreme adverse reactions to Invega. There is no reason to point out that not all people have the same reaction.

You have not been affected by this medication, and merely knowing of someone who has taken it is not grounds to speak in this thread. No offense but you are completely ignorant to what we are going through.

I haven't posted in a few days. I am doing well. I am still dealing with anhedonia, poor complexion and constant sweating. However it has been 8 and 1/2 months and I am slowly coming around.

Today also marks the 3rd week I have excersized daily. I am not seeing too much improvement from this but I will press on. I noticed all the early recovery stories share excersize as part of the recovery.

I hope you all are doing well, and I am glad we have this place to share our stories. I hope everyone recovers quickly. Try doing what I do and fill your days with work or school so that you are making progress in your life.

I recently graduated CDL school and I now have my Class A CDL. Monday I am starting a job driving a water truck in the oil fields. This has been the hardest tims of my life but I am accomplishing things and I will feel great when I finally come around.

Thanks again,

-Benjamin
 
HELP how long does it take for invega sustenna to get out of my system?

i was on 234 mg monthly for 6 months

please help
 
Has anyone developed racing thoughts from this drug?

I keep failing at breathing meditation where you focus on your breathing to clear thoughts. I always get a random thought popped in my head or am conversing with myself even when I don't want to. Pretty sure I wasn't like this before the drug. It gets ten times worse whe I tried to stop taking the drug. Endless racing thoughts.

Anyone know what I can do?

Willl this go away if I get off the drug for a few months?
 
LookingForSelf said:
Has anyone developed racing thoughts from this drug?

I keep failing at breathing meditation where you focus on your breathing to clear thoughts. I always get a random thought popped in my head or am conversing with myself even when I don't want to. Pretty sure I wasn't like this before the drug. It gets ten times worse whe I tried to stop taking the drug. Endless racing thoughts.

Anyone know what I can do?

Willl this go away if I get off the drug for a few months?
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Yes. This is by far the most distressing effect I experience - even worse than testicle shrinkage. Because it makes it near-impossible to live my usual life... How can I have a meaningful conversation with someone, for example, when I'm always preoccupied thinking of pointless shit?

Try auditory or guided meditations. YouTube has plenty. It's difficult to meditate in general on drugs designed to induce non-meditative states; but, at least for me, focusing on listening to something is far easier than focusing on shutting my mind up. I also experience the conversations... relentlessly, day in, day out... I can confirm, we weren't like this before the drug. It got worse when I came off the neuroleptics the first time, but after 8 or so months, I did experience happiness and was overall more chill. The racing thoughts/mind chatter subsides.

Yeah, it goes away but for me got worse before it got better.

- ZM
 
Just a quick update...
Things got a bit rough and I lost my job two days ago. Now I'm back on disability and just going to take it easy for now. I will still hit the gym and stuff and that's slowly getting better.

About the racing thoughts, I never had that but I do have this issue where I have a song stuck in my head all day, and I mean it stucks in my head like I can hear it from a radio or something. It's really distracting. I think it's similiar to what you guys are talking about here. I didn't get this problem the first round, so I'm confused as hell here.

@InvegaUser - You are absolutely right. Akathisia is killing me here. I'm suffering every single minute, it's driving me insane. It's really hard to explain how it feels.
 
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ZombieMode said:
Yes. This is by far the most distressing effect I experience - even worse than testicle shrinkage. Because it makes it near-impossible to live my usual life... How can I have a meaningful conversation with someone, for example, when I'm always preoccupied thinking of pointless shit?

Try auditory or guided meditations. YouTube has plenty. It's difficult to meditate in general on drugs designed to induce non-meditative states; but, at least for me, focusing on listening to something is far easier than focusing on shutting my mind up. I also experience the conversations... relentlessly, day in, day out... I can confirm, we weren't like this before the drug. It got worse when I came off the neuroleptics the first time, but after 8 or so months, I did experience happiness and was overall more chill. The racing thoughts/mind chatter subsides.

Yeah, it goes away but for me got worse before it got better.

- ZM
Click to expand...

Thanks for the reply! How long have you been off invega? Are you taking any other neuroleptics? If I'm not mistaken, weren't you the guy who was required by the government to stay on invega? I'm so happy you got off if that's the case. We're you on the pill form of invega?
 
hello everyone!

@invegauser, thank you for asking about me and for your concern. Finally after over 8 months my heart rate is completely normal in the range of 65 to 75. Because this medicine it literally was in the 90s and above for 8 months solid. The first couple months my resting heart rate would not go below 100.

This has been the 23rd day that I have excercised every day and I have to say I think I can finally see a little bit of benefit. I am more fit than I have been in my life and I weigh less than I did after invega. I think I am possibly coming around.

Since Invega I had only had 2 good days in 8 months. To my surprise I have actually had 2 good days in a row. Now I have had 4 good days in 8 an a half months, and I hope there are many more. I am definitely not totally healed, but I have had a lot of moments lately where I was almost like my old self.

Thank you guys for all the support and I will keep you updated. Please PM me if you need to talk, I will give my number if needed.

Thanks again;

-Benjamin
 
copperdome said:
@Crook;

There is no reason to stir the hornets nest. This thread is for people who have had extreme adverse reactions to Invega. There is no reason to point out that not all people have the same reaction.

You have not been affected by this medication, and merely knowing of someone who has taken it is not grounds to speak in this thread. No offense but you are completely ignorant to what we are going through.

I haven't posted in a few days. I am doing well. I am still dealing with anhedonia, poor complexion and constant sweating. However it has been 8 and 1/2 months and I am slowly coming around.

Today also marks the 3rd week I have excersized daily. I am not seeing too much improvement from this but I will press on. I noticed all the early recovery stories share excersize as part of the recovery.

I hope you all are doing well, and I am glad we have this place to share our stories. I hope everyone recovers quickly. Try doing what I do and fill your days with work or school so that you are making progress in your life.

I recently graduated CDL school and I now have my Class A CDL. Monday I am starting a job driving a water truck in the oil fields. This has been the hardest tims of my life but I am accomplishing things and I will feel great when I finally come around.

Thanks again,

-Benjamin
Click to expand...

I can see your point, but I have explained multiple times why I keep posting. I have seen countless patients during and after treatment with risperidone, some during and after paliperidone treatment, not just my best buddy. As long as no one is willing to take on an educated, differentiated opinion on the substance I will keep posting. I don't give a damn how much I am being insulted. It's not trolling, it's about misrepresented information by some posters here which to me is unacceptable.

It's absolutely absurd that so many people here go as far as blaming the substance for further psychotic episodes when it is most likely an underlying disorder causing them. Neuroleptics save lives (and have taken a lot of them, too) and by misrepresenting information it may be you who is to blame for a person's decision not to go on meds. *claps*

I have never seen so many irrational statements within a single thread as this one on bluelight.

So yes, there IS reason to state that not everyone shows such negative reactions, because nobody else is doing it which is a crying shame. Aside from that I am convinced that plenty of people are wrongfully attributing their symptoms to the substance instead of e.g. negative symptoms of schizophrenia. Most of the symptoms described here fit the bill of those negative symptoms and neuroleptics can indeed exacerbate them which is well-known! It's not easy to admit one has a chronic psychiatric disorder.

Other issues are wrongfully prescribed neuroleptics due to the patient denying drug abuse and therefore being wrongfully diagnosed with schizophrenia. Also, the doses prescribed are usually MUCH higher than necessary to resolve a psychotic episode. Many people here do not seem to be aware that DOSIS FACIT VENENUM!

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4977821/ said:
Tolerability and Safety of Paliperidone Palmitate for Schizoaffective Disorder

Interpreting differences in tolerability outcomes versus placebo in the randomized phase is complicated because subjects with tolerability problems may have dropped out during the prior open-label treatment phase. In the paliperidone palmitate relapse prevention study, 28.2% of the placebo group discontinued treatment during the double-blind phase, compared with 23.8% of those in the paliperidone group. Higher rates of subjects discontinued because of withdrawal of consent and being lost to follow-up in the control groups, but 5.5% of subjects in the paliperidone group discontinued due to an adverse event, as opposed to 1.8% on placebo (NNH 27). There were 2 deaths in the paliperidone group during the double-blind phase, as well, one by overdose of sleeping medication and one due to coronary artery disease, neither judged by the investigator as caused by the investigational product.

The common (≥5%) treatment-emergent adverse events (TEAEs) reported more frequently in the paliperidone group than in the placebo group were: weight increased (8.5% paliperidone, 4.7% placebo, NNH 27), nasopharyngitis (5.5% paliperidone, 3.5% placebo, NNH 50), and headache (5.5% paliperidone, 3.5% placebo, NNH 50). Extrapyramidal symptom-related TEAEs were reported in 8.5% of the paliperidone group, compared with 7.1% of the placebo group (NNH 72). Prolactin-related TEAEs occurred in 13.9% of women in the paliperidone group, compared with 5.8% of women in the placebo group (NNH 13). Thirteen percent of paliperidone-treated compared with only 6% of placebo-treated subjects gained ≥7% of their weight during the study (NNH 15), although there was only minimal mean weight change reported for both groups.
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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3383636/ said:
Treatment of schizophrenia in patients with comorbid substance use (alcohol/illicit drug use, abuse or dependence) presents challenges for public health systems. Substance use in people with schizophrenia is up to four times greater than the general population and is associated with medication nonadherence and poor outcomes. Therefore, continuous antipsychotic treatment in this population may pose more of a challenge than for those with schizophrenia alone. Many clinical trials and treatment recommendations in schizophrenia do not take into consideration substance use as people with comorbid substance use have typically been excluded from most antipsychotic trials. Nonetheless, antipsychotic treatment appears to be as efficacious in this population, although treatment discontinuation remains high. The objective of this review was to highlight the importance and utility of considering long-acting injectable antipsychotics for patients with schizophrenia and comorbid substance use.
Click to expand...

Next to nobody here mentions whether or not he kept using other drugs recreationally, despite how problematic they can be to both mental and somatic health. Go figure.
 
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Is it normal to have no improvement at all at 4 months?
I had 3 inj, shouldnt I be having progress?

I must be fucked up
 
invegauser said:
@cr00k: are you currently taking or recovering from invega, invega sustenna, paliperidone, invega trinza, xeplion or trevicta?
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No, not at the time. I've been on numerous other neuroleptic drugs though and take olanzapine as needed. Most of the people I know are struggling with mental illness and some have seen the worst side psychiatric treatment.
 
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Can anyone explain to me what does it feel like to quit abilify injections, how do you feel afterwards what are the benefits, I've been forced this drug for so long now that I can't imagine the difference anymore
 
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