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6 years of struggling, story and discussion

letstalkaboutthis

Greenlighter
Joined
Mar 1, 2015
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6
Hey guys,

Let me start this post by a somewhat brief summary of my own experience, and then share some knowledge that might be useful in the discussion on MDMA related problems. Since i ended up with quite a bit of text now i decided to bold the key parts.

Ive been browsing through this forum a bit and was interested to see some anecdotal stories about possibly MDMA related problems that inspired me to tell my story and ask a few questions. In the year of 2009, i did mdma (although not tested) exactly twice. I dont remember the amount per try but the actual trips where not problematic at all. But something changed afterwards. the aftereffects that probably everybody here know all too well didn't fade. instead it all went worse very rapidly until like one month later, i was experiencing what felt like utter insanity. No actual visual or auditory hallucinations, but such indescribable, meaningless desperation, crying spells, physical anxiety in legs and arms, pressure feelings on stomach and head, derealizations, shivers, it was unreal. And Oh how it all changed through the day so very rapidly. So often i was almost or even completely back to normal in the evening, but i went to sleep and boom i woke up in deepest hell, and then it was a massive rollercoaster through the day, trying to survive and not to give into the thought that's just so natural in that situation. One of the weirdest things where the occasional out of nowhere moments of reliefs that rarely even brought a sudden feeling of happiness and 'its all good now', only to be back down a few hours/minutes later.

That's what it was back then. After three months of surviving like this (and of course not being able to function at all), i went to see a psychiatrist, was diagnosed with a classical form of depression, started SSRI medication, and it saved my life. saved, yes, i can somewhat function. but i must also admit that i am not back to normal, six years in. And yes, i did do my fair share of staying healthy, not taking drugs, sports, seeing therapists etc., but at the end of the day, nothing really helped besides those pills, as sad as it is. Most symptoms are still there, and after so many years i have good reason to believe it might never revert by itself, although i must also acknowledge that i have not tried every treatment option available even after this long time, at times because i am afraid to lose what i have now and even go back deep down, and in better times because i believe i am able to bear with it for now and hope it solves itself, even after this long time (side effects and going on and off meds can be unpredictable). The thing is, its all so much on and off...the daytime related relief in the evening is almost universal, but even on a larger scale the symptoms appear to be rough at times for some time, and then rather mild at others.

Also, i do know the other end of the spectrum...sometimes, i get those kicks, just like when taking stimulants (except i didnt), those burst of energy and feelings of greatness, but i doesn't last. unlike in the classical bipolar disorder cases, its not like im really manic/hypomanic for weeks, its just those bursts, it can even mix with the depression part.

Now lets talk about whats actually happening, or might be here. So basically ive done my fair share of reading studies and talking to professionals in the last couple of years, moreso in the beginning than now where i mostly gave up (but sometimes i just cant help it).
In recent times, the term 'depression' seems to have been used quite inflationary, and my own experience just appears to be so very different than what most people describe when they talk about depression that its hart to actually relate. Now if you read up on this a bit more, you find that earlier in the research of affective disorders, the term 'melancholic (or endogeneous) depression' was used to denote a particular type of depression that is extremely similar to what people around here like to coin Long Term Comedown. In particular, this intensive change of severity with the time of day and the somatic symptoms (like physical anxiety etc.) are some of the things used to identify said subtype of depression. Historically, the differentiation between such a melancholic depression thought to be due to some cns (central nervous system) related issues (aka 'chemical imbalance', a term that sounds so cliche i like to avoid it), and reactionary depression (as in due to issues in life) was made much stronger than now. This was somewhat dropped for several reasons, but whether that was a good idea or not is not clear at all.
From the onset to now, i've seen several psychiatrists and while i am overall extremely disappointed and mostly doubt the integrity of the field due to the way the studies are done, where i ended i would say is about as good as it gets, as im in the ambulant care of a psych ward. When talking to my current doctor about what actually happened back then and if MDMA really was the issue even though the amount taken was extremely small, the answer is basically that there are no studies about this issue so far, but there is widespread anecdotal evidence that even small doses can lead to the outbreak of long lasting disorders if there is a predisposition, so the chance is there. However, not a single psychiatrist i have talked to considered to assume some 'LTC' syndrome unique to MDMA that's different from a clinical relevant depression that was caused by whatever reasons. But is that because studies are missing yet, or because it really is just classical depression? In the latter case, the question of 'permanent brain damage' feels ill asked. If MDMA can lead to the outbreak of chronic, clinical depression, well, the brain damage is obviously permanent if one considers the brain of such a patient 'damaged', but in that case anything that lead to the outbreak of such a depressive disorder is causing 'brain damage', and MDMA itself isn't toxic in the classical sense (and most people get away just fine). On the other hand, it just appears that the anecdotal stories on this board and others that complain about longlasting depression like symptoms after even modest use of MDMA are just so much more numerous than any other drug. Indeed, id like to ask a question: Are there any self reports of people suffering from these 'LTC' syndromes reporting only modest usage of other illicit drugs (what about coke or speed), and not secondary depression that's related to addiction or craving or whatever? that would be extremely interesting to me.

Seriously, the parts of the CNS ecstasy works on are literally what is mostly suspected to be of key importance to affective disorders, even targeted by actual antidepressants. Unfortunately, that's all that is really known: There is serotonin (among others), and it somehow plays a role...its a shame really. But, is what we are experiencing really just the classical, most brutal form of depression? When you go and read up on anecdotal reports of people cold turkeying or unsuccessfully tapering off SSRI's, you get extremely similar descriptions to what people report here on LTC, and then there is this old subtype of depression, that also sounds so similar, thats also suspected to be related to something something serotonin.

As for my case, due to the infrequent phases of mixed symptomatic, there is a suspicion of this actually being a somewhat nasty bipolar disorder with mixed episodes, but i'm hesitant to try bipolar medication so far. So, let me also ask a question: To those that can relate with their symptoms (i have seen quite a few reports here reading of which is interesting considering i really find it hard to relate to most discussions about depression), Did you ever have those weird, stimulant like feelings during the time without actually taking stimulants at all?

Ultimately, it might very well be that MDMA wasn't even playing any role in my case, and it just happens to have happened at the same time. But believe me, the way it changes a person from the inside out...its unreal. This isn't your usual 'depression' people talk about. I always found it very hard, mostly impossible, to believe that this just happened by chance, or due to some life problem that ripped me apart the way it did initially without me recognizing it. But i must admit, i do still go out (its easy in the evening and when the phase is alright), and from when it started i kept to never touching MDMA or anything similar again. But when seeing others enjoy themselves rolling and without getting into any trouble, its tempting to just believe i might as well.

Edit: fixed too many typos
 
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Please forgive me for asking this I'm not trying to upset or irk you or anything, but did you test your MDMA/are you certain that's what it was? Simply cause I've read a lot of similar stories caused by weird RCs and the like, that's all. Also had you used MDMA before and if so, to what extent? Sorry if this is answered in your post but I'm on the go right now and just skim read, and those questions just popped into mind. I'll give your post a proper read later, I'm sorry to hear about the horrible experience you've had and agree that MDMA can fuck people up a lot, lot more than is let on (not in the tabloid 'take a pill and you'll die immediately' sense though)
 
Please forgive me for asking this I'm not trying to upset or irk you or anything, but did you test your MDMA/are you certain that's what it was? Simply cause I've read a lot of similar stories caused by weird RCs and the like, that's all. Also had you used MDMA before and if so, to what extent? Sorry if this is answered in your post but I'm on the go right now and just skim read, and those questions just popped into mind. I'll give your post a proper read later, I'm sorry to hear about the horrible experience you've had and agree that MDMA can fuck people up a lot, lot more than is let on (not in the tabloid 'take a pill and you'll die immediately' though)

No indeed, i didnt, and it was in the form of pills. First time was very much like people describe the MDMA effect though, and there was nothing unpleasant about it. Interestingly enough i barely felt anything the second time, although there were months in between the intakes. I do know several people who took from the same batch of pills, not showing any such issues. In the end, it is entirely possible that it was something different yes, i shall edit that piece of information in the opener. In the end though from what i've read there are several people around here that describe very similar problems, although the amount taken is usually higher and apparently some achieve recovery after a more reasonable amount of time
 
One thing I wonder about this outcome is why there isn't a single recorded case of this ever happening in research prior to mdma's scheduling.

You would think because I have heard of this many times, that it would have happened in a therapy session, or other professional setting.

Which makes me think that it is not mdma to blame for this but rather a different chemical, or, that the experience brought to the surface an underlying condition that was there but not pronounced.
 
One thing I wonder about this outcome is why there isn't a single recorded case of this ever happening in research prior to mdma's scheduling.

You would think because I have heard of this many times, that it would have happened in a therapy session, or other professional setting.

Which makes me think that it is not mdma to blame for this but rather a different chemical.

Thats actually very interesting. Of all the cases where people where given MDMA (or even other drugs for that matter) in a clinical setting, have there never been any cases of disorders emerging afterwards recorded? I cant find anything, but i doubt there where never any such problems. They have also been testing psychedelic drugs in the past, there must have been people whose latent psychosis broke out shortly afterwards? I cant believe this subject is so underdeveloped
 
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Dont you think this whole issue is related to depersonalization disorder. Symptoms: anxiety, no excitement, better in evening, obsessive thinking, brain fog, feeling of detachment.

People get this also from smoking cannabis, panic attacks or other stress factors
 
Yeah the period I went through that I briefly mentioned above was after using MDMA a little over once a month for 4 months, and using psychedelics heavily, at least every 1-2 weeks, for the same period, on top of chronic daily cannabis use. I just kind of cracked and felt as you described just then kracke, wondering for around 6 months whether I was going mad, whether it was from MD, whether it was HPPD, from cannabis, or some kind of combo of that. Ultimately it faded though and I realised it was just a dp/dr initiated period of anxiety circles. Feel much better now and can use drugs fine as long as I don't overdo it (one drug experience per month max whether tripping or rolling or w/e, max 6 times doing MDMA in a year preferably 4 or less), have basically quit weed though as it still made me anxious and was causing the slow foggy thinking that stopped me seeing the problem properly in the first place, and made me dumb enough to use drugs too heavily for that period in the first place too
 
Have you considered the ssri prevent you from truly feeling normal? imo no one should live on them. Plus what the doctor said about triggering underlying conditions can be said for lsd and even cannabis..... Speaking of which have you tried cannabis?
 
Have you considered the ssri prevent you from truly feeling normal? imo no one should live on them. Plus what the doctor said about triggering underlying conditions can be said for lsd and even cannabis..... Speaking of which have you tried cannabis?

the ssri restored me back to remotely feeling normal. it was either that or jumping the ship. its entirely possible they still delay the 'recovery' process, but unfortunately i doubt i'm able to test that. Also, of course the triggering mechanic is true for every single psychoactive drug, its just that it appears to me people report problems resembling affective disorders after trying mdma much more often than say lsd, where people usually describe something similar to psychosis more often. but of course, all there is are case reports, nothing more.

i tried some other drugs yes, but none of which in the immediate chronological past of the outbreak. in the end this isn't meant as a general 'warning', countless amounts of people use MDMA much more heavily and nothing happens i know that, but it appears the triggering of psychic problems other than addiction which can potentially affect anyone is a possible risk of drugs thats mostly ignored, and this form of depression is struggling extremely hard to be recognized as an actual physical disorder because the term depression is overused beyond hope.
 
Thank you for a great post. Very informative and interesting, long term stories are always welcome even if they are not necessarily sunshine stories.

I can relate 100% to your exact descriptions. The extreme first month, the violent fluctuating states, the dissociation, etc. Going from an indescribable all engulfing depression, straight to euphoria and back again. It is so eerily similar, as it is for so many of us, that disregarding MDMA as the culprit seems very far fetched. In addition to this shared culprit I also believe that we share a sensitivity, or predisposition for suffering the damage that we did.

Did you ever have those weird, stimulant like feelings during the time without actually taking stimulants at all?

Yes, I experience this very frequently still, over 15 months into this journey. I experience the occasional rush, the over stimulation, the come down, etc. I've also been hypomanic one or two times for approximately a week. The one time it really freaked me out I was able to end it with a first gen anti-histamine after about a week.

This being said, I am now on an atypical antidepressant called Tianeptine, and it is really helping. Despite this I still get bouts of all the symptoms, with periods of respite some times lasting weeks. Actually I do not suffer all the symptoms, it seems the anxiety is totally gone. I'm left with depression, fatigue, a reduced general condition and a great number of food and chemical sensitivities/intolerance.

Would you care to elaborate on whether you've suffered any sensitivities/become intolerant to certain foods or drugs etc? Also, how do you react to alcohol now?
 
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Thank you for a great post. Very informative and interesting, long term stories is always welcome even if they are not necessarily sunshine stories.
In addition to this shared culprit I also believe that we share a sensitivity, or predisposition for suffering the damage that we did.

Absolutely. Considering my two amounts of rolling is virtually nothing to what other people do without lasting problems, there can be no question that its all about predisposition, provided it was indeed the drug that caused the outbreak. Its just that it appears knowing before hand if one is predisposed or not is virtually impossible as of yet


Yes, I experience this very frequently still, over 15 months into this journey. I experience the occasional rush, the over stimulation, the come down, etc. I've also been hypomanic one or two times for approximately a week. The one time it really freaked me out I was able to end it with a first gen anti-histamine after about a week.

This being said, I am now on an atypical antidepressant called Tianeptine, and it is really helping. Despite this I still get bouts of all the symptoms, with periods of respite some times lasting weeks. Actually I do not suffer all the symptoms, it seems the anxiety is totally gone. I'm left with depression, fatigue, a reduced general condition and a great number of food and chemical sensitivities/intolerance.

Would you care to elaborate on whether you've suffered any sensitivities/become intolerant to certain foods or drugs etc? Also, how do you react to alcohol now?

At first i stayed away form alcohol, even caffeine, but at some point without improvement i pretty much thought fuck it i might aswell and honestly, i dont feel its affecting me in any way different than before. i only ever drink in the evening where its almost always much more manageable. i must also admit that last year the 'fuck it' attitude also brought me to trying weed (in the evening) which also wasnt particularly problematic, and also using ketamine every now and then, which, as you may know, is currently studied for its apparently extremely powerful antidepressant properties. this was partly a try at self medication, and partly because its acute effect is actually somewhat nice when going out. i dont think it had an effect lasting longer than those few hours on me and i wasnt amazed by the idea to follow through with a self medication regime for a few weeks. I did overdo the dosis to where its no longer pleasant and more of a psychedelic experience a few times. was no big deal at all, but im not sure how i would have reacted to that if it wouldnt have been in the evening (and me being pretty ok).

I read some anecdotal reports on tianeptine helping depression in mdma users, and its something ill discuss next time with my doc. It also appears ECT can help (http://jop.sagepub.com/content/20/6/860.abstract), which is something else i have in mind, especially since it also appears to be vastly superior to any drug in the treatment of bipolar disorders with mixed states (http://www.ncbi.nlm.nih.gov/pubmed/18191551). Usually the problem with studies is that its hard to know their value without being a bit more informed on who financed them (but to be sure, the value of anecdotal reports is also pretty low lets not fool ourselves)..I am not particularly fond of trying some Bipolar Medication although this was actually what was discussed, and i'm going to stay the hell away from any antipsychotics. Currently i am on Mirtazapine and Venlaflaxine.
 
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