mav3rick
Bluelighter
Hey everyone! 
It’s that time again, yep, update time! Haha. The past 6 weeks or so have proved complex and interesting so there’ll be a bit to read probably, I can’t even remember the past 6 hours, so this will be a good chance to think back and piece together all the craziness!
I guess I’ll start with the most pressing issue. It’s been on my mind (literally as you’ll soon discover, haha) constantly and it’s all I’ve been thinking about which is fucked but I can’t help it. As per my previous post, I had appointments with neurologists and so forth to discuss this seizure situation. I was informed that I have a mass in my brain, which tests later confirmed to be a tumour.. A pretty nasty one at that.. The initial prognosis was good-ish, I was told a biopsy was a must to check what the deal was, so I underwent that procedure, came out unscathed and the report was in.. The position, type and size of the tumour wasn’t good then and is even worse now. After all the appointments and tests, I was given the treatment options and was told I had very limited time to make my decision. I could either have radiation to possibly shrink it, then have as much of it removed as possible (they can’t take it all due to position, too risky) or I could do nothing and my fate would be sealed in 12mths.. I initially chose option B, do nothing. I was then talked around by friends and the doctors and decided to try treatment and see how I’d go. I never felt comfortable with this decision, something just wasn’t sitting right, I had a consistently weird, unsettled feeling and it was affecting me quite badly. I went to 1 treatment session, hated every fucking second of it, was insanely ill and depressed as all fuck. I seriously thought at that point that death would be a godsend!
I didn’t return for more treatment and as I sit here typing this, I haven’t gone back.. I’ve decided I’m not going to. This decision was the toughest I’d ever made but it feels right, it truly does. I’ve already had friends abandon me because of what I’m doing, they can’t handle the fact that I will die, sooner rather than later. I completely understand where they are coming from, I can’t have ill-feeling toward them, it would be ridiculous of me to even try to get gruff with them for caring about me. I just wish that this wasn’t happening; I just wish the people I love most in this world could escape this and not have to be affected by it. That’s what gets me the most, the fact that it’s become apparent (since this happened) that I have a lot of people out there who care a whole lot about me (it’s hard to accept, humbling, scary and amazing all in one!) and will be affected by my death. I worry about a few in particular, I can’t help it. I just need to know that they will be alright. I was told by a good friend of mine to stop worrying about everyone else and focus on me for once, sounds rad in theory but I’m yet to really put it in to practice. I know what my fate is, I know how it’s going to end, everyone else has a life to live and life goes on..
Since this all happened, I’ve been abusing substances left and right!
I went through $1700 worth of speed in a week, drank more alcohol than I ever have and have just been leading quite a reckless existence. I think once boundaries are lifted, things go pretty haywire! I’ve kinda been given this free pass to do whatever I want with no consequences, for instance, why should I care about overdosing? I’m dying anyway. Why should I care about spending time in jail for committing a crime? I’ll be dead in 11 months and wouldn’t even see the inside of a prison.. It works in the negative sense, but it also works in the positive too, why should I hold back telling my dear friend that I care about her? Or telling the guy I love why I love him or moving states to spend time with the coolest person I know and staying awake for days at a time to enjoy every sunrise.. I know, I probably sound like a fucking lunatic but this is what’s going through my mind.. It’s a bit contradictory of me, I know, to not accept treatment yet have the ‘I want to live life everyday’ attitude. I can’t really explain it but having an expiry date has made me realise certain priorities that I’d not held validity in before, that’s all changed now. It’s weird, but things seem so much clearer than they ever have.. I know what I want to do, I know where I want to be and who I want to be with.
The symptoms are getting pretty fucked too. It started off as headaches and blurred vision, progressed to migraines and seizures, now it’s the aforementioned plus memory, speech and balance problems, nosebleeds, constant tremor in my hands and mood/personality issues. I guess I can’t really complain, this is what I signed up for after all.. I guess I was just hoping that it wouldn’t be so sudden, that the stuff the doctors said wouldn’t happen at all or would happen way down the track. If I look at it now though, I can kinda pick out definitive moments from the past 4-6 months that should have sent out warning bells. Maybe the signs were there all along, maybe I chose to ignore it, maybe my subconscious ignored it, maybe I blamed it on other stuff or discounted it all together, I don’t know, I guess I’ll never know.. I can’t dwell on stuff, I have to think about the moment, think about the present time, what today will hold. A wise friend of mine said to think of it in moments, because a moment is just that, one moment..
I’d just like to say, that I recognise that there’s a bunch of people out there who absolutely disagree with my decision, that’s totally understandable. The whole ‘fight for your fucking life, don’t give up, life is sacred, it’s a battle you can win’ thing is very valid, I would never discount someone’s point of view; all I’m asking for is respect. I’ve made the right choice for me, in my situation and yeah, maybe I’ll regret it, maybe I’ll wake up one day and wish that I’d fought harder or stuck with treatment but at the end of the day, I have to live with myself, my thoughts and my actions. I’m okay with that because I know I've made the right one..
I’ll keep posting updates as things happen..
Much love everyone
Mav
It’s that time again, yep, update time! Haha. The past 6 weeks or so have proved complex and interesting so there’ll be a bit to read probably, I can’t even remember the past 6 hours, so this will be a good chance to think back and piece together all the craziness!
I guess I’ll start with the most pressing issue. It’s been on my mind (literally as you’ll soon discover, haha) constantly and it’s all I’ve been thinking about which is fucked but I can’t help it. As per my previous post, I had appointments with neurologists and so forth to discuss this seizure situation. I was informed that I have a mass in my brain, which tests later confirmed to be a tumour.. A pretty nasty one at that.. The initial prognosis was good-ish, I was told a biopsy was a must to check what the deal was, so I underwent that procedure, came out unscathed and the report was in.. The position, type and size of the tumour wasn’t good then and is even worse now. After all the appointments and tests, I was given the treatment options and was told I had very limited time to make my decision. I could either have radiation to possibly shrink it, then have as much of it removed as possible (they can’t take it all due to position, too risky) or I could do nothing and my fate would be sealed in 12mths.. I initially chose option B, do nothing. I was then talked around by friends and the doctors and decided to try treatment and see how I’d go. I never felt comfortable with this decision, something just wasn’t sitting right, I had a consistently weird, unsettled feeling and it was affecting me quite badly. I went to 1 treatment session, hated every fucking second of it, was insanely ill and depressed as all fuck. I seriously thought at that point that death would be a godsend!
I didn’t return for more treatment and as I sit here typing this, I haven’t gone back.. I’ve decided I’m not going to. This decision was the toughest I’d ever made but it feels right, it truly does. I’ve already had friends abandon me because of what I’m doing, they can’t handle the fact that I will die, sooner rather than later. I completely understand where they are coming from, I can’t have ill-feeling toward them, it would be ridiculous of me to even try to get gruff with them for caring about me. I just wish that this wasn’t happening; I just wish the people I love most in this world could escape this and not have to be affected by it. That’s what gets me the most, the fact that it’s become apparent (since this happened) that I have a lot of people out there who care a whole lot about me (it’s hard to accept, humbling, scary and amazing all in one!) and will be affected by my death. I worry about a few in particular, I can’t help it. I just need to know that they will be alright. I was told by a good friend of mine to stop worrying about everyone else and focus on me for once, sounds rad in theory but I’m yet to really put it in to practice. I know what my fate is, I know how it’s going to end, everyone else has a life to live and life goes on..
Since this all happened, I’ve been abusing substances left and right!
The symptoms are getting pretty fucked too. It started off as headaches and blurred vision, progressed to migraines and seizures, now it’s the aforementioned plus memory, speech and balance problems, nosebleeds, constant tremor in my hands and mood/personality issues. I guess I can’t really complain, this is what I signed up for after all.. I guess I was just hoping that it wouldn’t be so sudden, that the stuff the doctors said wouldn’t happen at all or would happen way down the track. If I look at it now though, I can kinda pick out definitive moments from the past 4-6 months that should have sent out warning bells. Maybe the signs were there all along, maybe I chose to ignore it, maybe my subconscious ignored it, maybe I blamed it on other stuff or discounted it all together, I don’t know, I guess I’ll never know.. I can’t dwell on stuff, I have to think about the moment, think about the present time, what today will hold. A wise friend of mine said to think of it in moments, because a moment is just that, one moment..
I’d just like to say, that I recognise that there’s a bunch of people out there who absolutely disagree with my decision, that’s totally understandable. The whole ‘fight for your fucking life, don’t give up, life is sacred, it’s a battle you can win’ thing is very valid, I would never discount someone’s point of view; all I’m asking for is respect. I’ve made the right choice for me, in my situation and yeah, maybe I’ll regret it, maybe I’ll wake up one day and wish that I’d fought harder or stuck with treatment but at the end of the day, I have to live with myself, my thoughts and my actions. I’m okay with that because I know I've made the right one..
I’ll keep posting updates as things happen..
Much love everyone
Mav


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