yeah yeah...
no, that does work, it has to to some degree. the longer you can hold ....it!
but, the fusion, i believe the Humira is supposed to help by crashing the immune system so it will stop gnawing at my tendons, and then filling in with calcium
What the humira does is binds to the receptor site of TNF. TNF kind of regulates the production of Igs(antibodies) and, you having an autoimmune disease, the humira would be used to downregulate your production of antibodies that are ultimately attacking your healthy cells
but, as i said i have f'n leukocytosis(neutro's, and myo's), my lymph system is fine, but my reds have been dropping, i supposed from my whites attacking them. my rhumitalogist(sp) seemed interested when i mentioned that my elevated wbc's are free radicals! if they where attacking my sacro's, spine, and other areas, they shouldnt register, or are they attacking, well yeah, and the others are just waiting their turn and now, going after my reds?
My guess is that either there's something wrong with your marrow and you're not producing enough RBCs or there's been a mutation where some of your cell surface proteins (could be different sugar groups added or missing) seem foreign to your immune system, thus the antibodies attacking them, thus the humira to downregulate production of antibodies (which leaves you immunodepressed and open to infection)
have my reds been mutating, and the more they mutate the more they get gobbled?!?
the radial wbc's attacking the reds seems more likely. my wbcs have elevated a while, long before i began lithium, and long before i was diagnosed with AS, they believe it has been progressing for 15-16 years... i have been to the ER for arthritic type pain as long as i can remember, and all that happened was i got sent home with some vic's or perc's.
still no one will prescribe me narco's... i have to laugh, because i have a # of docs and specialists, and they all send me to each other, or some one else for opioids, which is the only thing, besides mmj that alleviates this 24/7 pain. and no, everyone is scared to start me. there is no way in hell i would abuse that, i mean, my god im serious about this pain, if i didnt have poppy pods...
It sucks when you actually have a need for the drug but due to your past or for whatever reason they won't Rx you them
i go to a major university pain clinic at the end of the month, but something tells me nothing is going to happen. ive tried so many drugs, and many at my expense, i could deal with the AS, but the remicaid reaction... i can not, i need some opioids. i eat like 2-3 pods a day, and that has kept me sane for months now, i dont have to raise my dose, ive used op's for a long while, and once my tolerance gets up, i make it go down... whats the point of your meds not working? i would never dare run out abusing them, withdrawal, and go back into pain, thats the last thing i want.
Really, the college clinic charges you? I find that odd, as usually academic clinical trials are usually paid for, as they're used for research purposes
* im trying to avoid that...
ive never gone to the street, and the thought makes me laugh. i grow my mmj, take the humira(
i feel guilty doing so, its so damn expensive and doesnt seem to be doing much of anything), try new shit, develop new shit, wonder and wait. it seems taking the pods is screwing me, because my pain levels as
they leave them, are more then i could bare. its so maddening, i would black out and bang my head until i was unconscious, sounds idiotic... lol, that or go to a psych ward, say my schizoeffective is so crazy! and get immediate "help" in the form of
mind numbing antipsychotics, that is, if i didnt have a reaction like i did to the last three. risperdol worked, i took that for years.
If the humira isn't doing what its supposed to, then why do your docs keep you on a regimen? I can only imagine having to go through that pain where anything to stop it seems logical.
thats my
bright idea, thats what the easiest route seems to be and most likely will be, my pcp would give me risperdol today.
i guess they think im a seeker or something, i mean, i have literally a pile of evidence, evidence of terrible pain, sickness, diagnosis's, treatments, and many many odd, serious, physiological progressions and morphing occurrences.
what more do i need? anymore and id be in a hospital, i should be... i could give them a list of tests to run, they would be any fun for me! but im sure curious and tired.
Well, the only other thing I can say is keep your docs informed about how you're feeling and how you're reacting to the meds, and its also important not to self diagnose