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Coming off Invega/Xeplion (paliperidone) injections v 12

KubiKook said:
That's awesome, Lara. Feeling sleepy is a big deal. Such nice & thoughtful gifts... Did you enjoy the whole process? I' sure your friends will be thrilled. I hope you all have a wonderful visit.
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Brendan Clark said:
Actually I just checked and there are universities that do dopamine D2 receptor occupancy PET scans and serotonin occupancy PET scans. They inject you with a tracker and it can show whether the brain lights up or not to determine if it's binding correctly or if it's been blocked by invega. Unfortunately you can't purchase a scan like that as they're only conducted for research purposes in universities. The only option would be to write to a university to be involved in a clinical trial where they're checking the influence of antipsychotics on the brain
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Are you considering trying some type of dopamine-boosting meds? Or something for serotonin? Maybe both. I know Weebutrin works on both. I'm not sure if that's worth a try...
 
KubiKook said:
That's awesome, Lara. Feeling sleepy is a big deal. Such nice & thoughtful gifts... Did you enjoy the whole process? I'm sure your friends will be thrilled. I hope you all have a wonderful visit.
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KubiKook said:
If you don't mind me asking, which one(s) did you use? Knowing my condition a bit, would you recommend me trying them? I'm desperate as can be to 'activate' some change in my brain.
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Thank you! Yes, the whole process of choosing and preparing the gifts felt really nice. It reminded me that I still like being the reason for my friends' smiles.
About the dopamine agonists — I was prescribed them for a very specific reason: my prolactin was abnormally high due to the Invega injections. The medication (cabergoline) helped bring my levels down, my cycle returned, and my sleep improved. But I don't have any underlying psychiatric condition, so I didn't experience the psychiatric side effects that can sometimes happen with these drugs. I can't recommend anything for you because I'm not a doctor, and your situation is different from mine. Dopamine agonists can trigger mania or psychosis in people who are vulnerable to those states, and you mentioned having had manic episodes in 2019 and 2025. That would make me very cautious. It might be worth asking your doctor whether prolactin testing is relevant for you and whether there are any options that would be safe given your history. I really wish I had an easy answer. You deserve a break after everything you've been through
 
One other negative side effect of this drug for me is that it makes my concentration too good in a bad way. In the past when walking outside I would get distracted in a natural way by things around me. Now I focus too much on one thing with a fixed gaze and have to consciously shift my focus elsewhere, not in a spontaneous, natural way if you know what I mean. I've noticed this when walking outside when I'm able to stare at people or objects for long bouts while I see them get distracted by the things around them. I'm neurodivergent so I used to have lots of thoughts and ideas rushing through my head, but this invega has made my mind too quiet and I don't have that same spark I used to have. The thing is that my neurodivergency was what made me me, so it's like this has stolen an authentic part of who I am. It's horrible that such a drug could exist, that changes someone so drastically. Again I was getting better towards the end of June but the shot I got two weeks ago set me back to a place I've never been familiar with.
 
Brendan Clark said:
One other negative side effect of this drug for me is that it makes my concentration too good in a bad way. In the past when walking outside I would get distracted in a natural way by things around me. Now I focus too much on one thing with a fixed gaze and have to consciously shift my focus elsewhere, not in a spontaneous, natural way if you know what I mean. I've noticed this when walking outside when I'm able to stare at people or objects for long bouts while I see them get distracted by the things around them. I'm neurodivergent so I used to have lots of thoughts and ideas rushing through my head, but this invega has made my mind too quiet and I don't have that same spark I used to have. The thing is that my neurodivergency was what made me me, so it's like this has stolen an authentic part of who I am. It's horrible that such a drug could exist, that changes someone so drastically. Again I was getting better towards the end of June but the shot I got two weeks ago set me back to a place I've never been familiar with.
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It's apparently called "cognitive rigidity"
 
I also learned and can testify to the fact that invega caused me "robotic monotropism". Us neurodivergent people usually focus on one thing at a time, but apparently "invega can amplify this to an extreme, stripping away the natural, lateral thoughts that usually keep your mind dynamic and flexible." So it takes our focus to an extreme.
 
Brendan Clark said:
One other negative side effect of this drug for me is that it makes my concentration too good in a bad way. In the past when walking outside I would get distracted in a natural way by things around me. Now I focus too much on one thing with a fixed gaze and have to consciously shift my focus elsewhere, not in a spontaneous, natural way if you know what I mean. I've noticed this when walking outside when I'm able to stare at people or objects for long bouts while I see them get distracted by the things around them. I'm neurodivergent so I used to have lots of thoughts and ideas rushing through my head, but this invega has made my mind too quiet and I don't have that same spark I used to have. The thing is that my neurodivergency was what made me me, so it's like this has stolen an authentic part of who I am. It's horrible that such a drug could exist, that changes someone so drastically. Again I was getting better towards the end of June but the shot I got two weeks ago set me back to a place I've never been familiar with.
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This explains why I don't enjoy watching tv or reading anymore like I used to
 
InnerReturn said:
Thank you! Yes, the whole process of choosing and preparing the gifts felt really nice. It reminded me that I still like being the reason for my friends' smiles.
About the dopamine agonists — I was prescribed them for a very specific reason: my prolactin was abnormally high due to the Invega injections. The medication (cabergoline) helped bring my levels down, my cycle returned, and my sleep improved. But I don't have any underlying psychiatric condition, so I didn't experience the psychiatric side effects that can sometimes happen with these drugs. I can't recommend anything for you because I'm not a doctor, and your situation is different from mine. Dopamine agonists can trigger mania or psychosis in people who are vulnerable to those states, and you mentioned having had manic episodes in 2019 and 2025. That would make me very cautious. It might be worth asking your doctor whether prolactin testing is relevant for you and whether there are any options that would be safe given your history. I really wish I had an easy answer. You deserve a break after everything you've been through
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Yeah, I definitely used to enjoy that stuff too, making someone's day, sometimes just sending family or friends something as simple as an out-of-the-blue heartfelt handwritten card or even maybe just an 'emotive' email... I loved being creative. I know it sounds bad, but it's so hard now to see other people going about their lives while I'm stagnating in this wretched state of being.
 
HEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEELP!!! F**k y'all, this condition is too brutal! I don't know what the hell to do. Sorry, for the complaining, just gotta 'scream out' somewhere...
 
KubiKook said:
You think the meds caused the 'concrete' nose? That would be weird. Sounds awful though. Yea, I wish I still had faith in the Lord. Lost that completely. Definitely a bummer.
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they don’t consider anything here they even said before i get discharged i need another injection and this sounds awful, im scared for my life cause im losing joy in things i used to do my body feels a constant fight or flight mode
 
KubiKook said:
HEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEELP!!! F**k y'all, this condition is too brutal! I don't know what the hell to do. Sorry, for the complaining, just gotta 'scream out' somewhere...
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Brother all we can do is wait and then try with outside services, I feel sick as well . i’m searching everywhere no help
 
Invegatorment said:
3 doses, the two loading doses and a final third one before I figured out the shots were the reason I felt awful.

Try to keep in mind that a lot of what you read will be disproportionately biased towards negative experiences and we don't always know the final outcomes. The data leans more towards full recovery from what I have seen, but it will just take a really long time in comparison to where you're at now.
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Yes long time is like 4-6 months roughly from 1-2 injections … it’s long and hard ride !
 
paranoid android said:
It helps anhedonia and depression. Of course it has risks all stims do but ritalin isnt as tweaky as amphetamines atleast for me. Doesent affect my appetite or sleep as much
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Do you know any help for finding joy in what I once had joy in but mainly disabling this chemical poisoning
 
flystr8 said:
Do you know any help for finding joy in what I once had joy in but mainly disabling this chemical poisoning
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Not a second of joy in my life. I've tried many things. Music in particular. Some walks in Nature. Nothing lifts me. Now, I'm lifeless. Hopefully, you have better luck plugging in to some pleasure.
 
people’s my main concern is knowing i’ll have a BLOCKED nose for 4 months plus once im out of here and then i have to fight rejecting injections on the outside of this ward when discharged. i’m waiting for them to find me housing as well when im supposed to be discharged on the 17th my life has gotten so painful, i don’t know where to help myself … all AI shows me the truth i can’t help myself nothing will help, it’s the dark truth … ive really lost it coming here im still on the section as well in UK im getting allergic reactions nasal block is the worse and doctors and nurses can’t and won’t dk anything
 
Brendan Clark said:
Time feels like it's dragging along so slowly due to this drug
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Tick-Tick-Ticking... Toward what? For what? Ugh. I wish marking time meant something... Just more of the same MISERY for me. I try but I die, over & over again each day. Sorry for the morosity.
 
KubiKook said:
Tick-Tick-Ticking... Toward what? For what? Ugh. I wish marking time meant something... Just more of the same MISERY for me. I try but I die, over & over again each day. Sorry for the morosity.
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I once felt like you before it’ll be fine buddy
 
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