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  • TDS Moderators: AlphaMethylPhenyl | paranoid android

Coming off Invega/Xeplion (paliperidone) injections v 12

Hello All,
I dont come here often anymore maionly becuase invega is a distant thought (thank god) , but when i do come back its just to drop some wisdom and advice for anyone suffering, my heart breaks for you.
for 2 decades i have done DBT, CBT, Mindfulness and more in attempts to alleviate my "chronic" genralised anxiety disorder, at the end of 2024 i had gthe mis fortune of having a DRUG induced psychosis (snorted meth, masqerading as ketamine), i had a month ling pyschosis that remains a black hoe of memory followed by 2 x Shots of Invega in hospital.

My real problem in life is that i had Undiagnosed Austism and Ehlers Danlos Syndrome, These 2 conditions made it very hard for me to connect Mind and Body. What i perceived as ANXIETY was PAIN.

Anyways long story short ive been on a journey for over 2 years now to re connect myself BRAIN and BODY. Mental Health is an illusion. Its physical health you need to focus on, only once you understand that hte body drives mental illness can you heal. Having said that i understand some condtions like schizophremina may not be applicable here.

My advice is the WIM HOFF method of breathing, followed by sessions of Pranyama.

There was a use here YOGI RISING KUNDALINI,,,,, while i doubt this users experience of achiecving a Kundalini Awakening, i must say that it is a real thing....there is a lifeforce within you. it wants to help.

WIM HOFF METHOD - Is the solutionfor BODY and BRAIN. Thoughtrs END where the BREATH ENDS. GET HIGH OFF YOUR OWN SUPPLY.

ALL THE POWER - LET THE BODY DO WHAT THE BODY DOES.

God bless you all and i will Pray for all of you. I dont believe in RELIGION, im not CHRISTIAN im not MUSLIM. We are all one.... you need to re connect BRAIN and BODY.

You need to be kind to yourself and pray for others. Set your intention and visualise your hopes and dreams,

PEACE and Love to you all.

I pray this helps someone,, just know YOU HAVE THE POWER.

PEace

IOSIP.
 
The only thing that makes me "happy" nowadays is making it to 8pm so I can take Seroquel, then taking a shower and scrolling the phone until it's 10 and time for sleep. Just gotta make it through a few months of this...
 
invegaloner said:
Do you have anyone in your life that you’re comfortable around that you can talk to? Not in a therapeutic way necessarily, just someone who you can talk to freely. For a while after I was released from the hospital all I could think and talk about was my psychotic episode. I’ve been having almost daily conversations with my parent, it is important that you don’t fall into the negative spiral and only think and talk about invega. There’s nothing wrong with venting every once in a while, but if you turn every conversation into invega it will wear down the people you talk to. They can lend an ear, but that’s about the extent since they don’t fully understand what you’re going through because they haven’t experienced it, and they can’t do anything material to ease your symptoms. I am able to talk about my interests again, but if you can’t think of something to talk about search for something to talk about. At first I would just talk about news articles I came across or things I’ve seen on a walk. The more you isolate yourself the harder it will become to hold a conversation.
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Yeah I talk to my mom the most and then my dad, but yeah lately (the past few days or so) I've been talking too much about invega because it affects my sleep also so every hour of my life seems to be affected by it, I'd rather talk about something else but the amount of things that interest me have gone down too
 
KubiKook said:
It's crazy that your symptoms on Invega are similar to my symptoms from the withdrawal. Sorry for all your loss. Me too.
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Thanks Dan we're all going through some kind of invega torment here. Hope our recovery comes sooner than later, as this is unbearable. Btw I really liked your song titled "Starve the Beast". It's very creative and carries a poignant message!
 
InnerReturn said:
When I learned about her story, it broke my heart. It's especially painful to think about her children. This loss is such a profound injustice, and it reminds me how important it is for all of us to hold on to each other here while we're going through recovery
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Totally agree
 
I'm really frustrated/upset how I was getting better and my sleep pattern was going back to normal at the end of last month, then boom, as soon as they gave me my next dose on 30th June @50mg, I went back to having very light sleep with just a few hours of shut eye. Do you guys think it will reverse back again soon? I believe sleep is such an important part of recovery from invega, especially restorative sleep, as that is when the body is recovering the most.
 
Brendan Clark said:
Yeah I talk to my mom the most and then my dad, but yeah lately (the past few days or so) I've been talking too much about invega because it affects my sleep also so every hour of my life seems to be affected by it, I'd rather talk about something else but the amount of things that interest me have gone down too
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Over time, the need to talk about Invega fades on its own as your condition improves. At first, when I was feeling really bad, all my thoughts were consumed by Invega. I couldn’t even focus on what my friend was saying. I really wanted to talk about its effects on me as much as possible. In the end, it led to me closing myself off because I felt like I was burdening the people close to me with these conversations. So it’s good that you have someone to share your condition with. Soon, when you start feeling better, you’ll find many other topics to talk about. For now — don’t believe what your thoughts about Invega are telling you, because it can become a vicious circle
 
Brendan Clark said:
I'm really frustrated/upset how I was getting better and my sleep pattern was going back to normal at the end of last month, then boom, as soon as they gave me my next dose on 30th June @50mg, I went back to having very light sleep with just a few hours of shut eye. Do you guys think it will reverse back again soon? I believe sleep is such an important part of recovery from invega, especially restorative sleep, as that is when the body is recovering the most.
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I can understand why you're frustrated. It must be incredibly discouraging to feel like you're finally making progress, only to have it disappear after the next injection. From what I've read and from what I've experienced myself, every new dose can temporarily set recovery back because your brain is exposed to the drug again. That doesn't necessarily mean you've lost all the progress you made. Many people describe recovery as moving forward in waves rather than in a straight line. I agree that good-quality sleep is probably one of the most important parts of recovery. I really hope your sleep starts improving again over the next few weeks. Try not to lose hope just because of this setback
 
Brendan Clark said:
Thanks Dan we're all going through some kind of invega torment here. Hope our recovery comes sooner than later, as this is unbearable. Btw I really liked your song titled "Starve the Beast". It's very creative and carries a poignant message!
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Hey BC, thank you very much for the kudos on the song. Yeah, Invega has certainly become the worst word in the English language for me. Definitely a torment & much more, surely bordering on unbearable. Somehow, we're bearing it. I'm not sure how much more I can endure. Just don't know how I can end it all. You're really full of faith still, huh? I do very much wish I still had that. Peace.
 
invegaispain said:
Guys I’m gonna kill myself
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Dude nothing is worth killing yourself over. Please think of the long term you will get better from invega i did you will to. Just give it time

As long as your above ground there is hope. If you kill yourself you will never get better from this shit so please dont
 
invegaispain said:
Guys I’m gonna kill myself
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Please don't kill yourself. You are needed in this world—by your parents and your friends. Yes, Invega is undoubtedly an incredibly difficult experience for a person to go through (perhaps the hardest one), but please don't let these dark thoughts consume your mind. You just need to wait a few more months. I'm sure that one day you'll look back and be proud of yourself for making it through this. It will become nothing more than an experience. What is one year or even a year and a half compared to an entire lifetime? Many people are forced to step away from life for several years because of illness or other circumstances. Please don't let this consume you completely
 
Does this anhedonia ever go away? Does anybody have aversions like I do, simple stuff like showering & shaving & grooming, even changing my clothes, it's ridiculous, all of these things are so troubling & unappealing. I used to be so fastidious with my appearance. Now, I'm a disheveled mess. What the hell happened to my brain?! I don't cook or clean, read or write, do Crosswords, go for walks, even movies & TV shows I loved, I can't connect to anymore. I'm mostly emotionless, here & there I weep for the loss of the old me & old life. Basically, I do nothing, I'm just mired in misery all day, every day. I can't really explain what it is... I'm in a fog in the deepest bowels of hell. I'm going on 18 months of this Invega withdrawal. How could this last so long? Is there any reason to hope?
 
invegaispain said:
Guys I’m gonna kill myself
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I feel your pain. I'm right there with you. I just don't know how I can do it. I'm sorry you're as tortured as me. I don't wish for you to carry it out, but I surely understand your plan to end the suffering.
 
KubiKook said:
Does this anhedonia ever go away? Does anybody have aversions like I do, simple stuff like showering & shaving & grooming, even changing my clothes, it's ridiculous, all of these things are so troubling & unappealing. I used to be so fastidious with my appearance. Now, I'm a disheveled mess. What the hell happened to my brain?! I don't cook or clean, read or write, do Crosswords, go for walks, even movies & TV shows I loved, I can't connect to anymore. I'm mostly emotionless, here & there I weep for the loss of the old me & old life. Basically, I do nothing, I'm just mired in misery all day, every day. I can't really explain what it is... I'm in a fog in the deepest bowels of hell. I'm going on 18 months of this Invega withdrawal. How could this last so long? Is there any reason to hope?
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I had that on invega and abilify. I think it was partly anhedonia and partly being fat and just not caring how i looked. I stopped shaving and getting my hair cut and all that. Once i got off the injections and waited awile i was fine though. Dont worry everything goes back to normal. Im actually doing alot better now then i was pre invega. Im in way better shape then i was pre invega
 
The depression caused by Invega turned me into a dried-out tree bark, covered on all sides with cheap paint mixed with fungicide
 
paranoid android said:
I had that on invega and abilify. I think it was partly anhedonia and partly being fat and just not caring how i looked. I stopped shaving and getting my hair cut and all that. Once i got off the injections and waited awile i was fine though. Dont worry everything goes back to normal. Im actually doing alot better now then i was pre invega. Im in way better shape then i was pre invega
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You're extremely fortunate you recovered & even improved. I care how awful I look, just can't muster the ability to fix it. I'm more than worried. My brain has been horribly changed. I'm me but not me anymore. And there's absolutely no evidence to support a return to normal. Positivity ain't gonna make it so. Thank you for the feedback & encouragement though. Ciao for now, Dan
 
InnerReturn said:
The depression caused by Invega turned me into a dried-out tree bark, covered on all sides with cheap paint mixed with fungicide
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I like the metaphors. Surely not a rosy picture. I think you're moister now, right? And the paint & fungicide faded? Happy Wednesday, Lara ; ) -
 
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