Coming off Invega/Xeplion (paliperidone) injections v 12

Hey all,

I am not checking the forum anymore but I just wanted to do un update about how I am, since some people write me a DM to ask about it sometimes

It's been almost 5 years and a half since my last shot (got 6) and I am still really struggling so I really think I am one of the cases of people who have permanent brain damage from Paliperidone depot. I don't remember my last post in here and my memory is really damaged, so I don't know if I already wrote that I was accepted for assisted suicide in Switzerland. Even if it's nothing concrete I like to have that as an option if I can't hold on anymore. At least I deserve a peaceful death.

Before I die I would like to prove that I have brain damage but the only close thing to that is that I have abnormal results in a QEEG test. So I suggest other people to have a check at that.

Invega totally destroyed my ability to sleep so I can't be off psych meds. I am stuck at 37.5mg of Clozapine to sleep, which is tragic.

Regardless, it's been like a month now that I suffer quite a bit less. It just happened overnight, as it happens to most people. I believe that nothing helps healing besides time.

I also wanted to write here to share this article which I find very interesting, since psychiatrists always says that Paliperidone in out of the body after 4-5 months : https://pmc.ncbi.nlm.nih.gov/articles/PMC12122147/

And also, people, please join the Facebook group: "Invega Sustenna/Xeplion (Paliperidone Palmitate) Should Be Banned".

Hugs!
i wish there was an alternative but if you're set on this decision then i can't stop you. i remember your posts from when i was first here in 2024 on my original account but i was forced to delete it during hospitalization. your posts were helpful and thanks for your time here.
 
I'm sorry you didn't recover but at least you are able to find some closure. Even if it's not desirable. I hope you find peace at the afterlife.
Well, at this point assisted suicide is an option that gives me peace but I will wait longer since I am not as tortured.
 
Hey all,

I am not checking the forum anymore but I just wanted to do un update about how I am, since some people write me a DM to ask about it sometimes

It's been almost 4 years and a half since my last shot (got 6) and I am still really struggling so I really think I am one of the cases of people who have permanent brain damage from Paliperidone depot. I don't remember my last post in here and my memory is really damaged, so I don't know if I already wrote that I was accepted for assisted suicide in Switzerland. Even if it's nothing concrete I like to have that as an option if I can't hold on anymore. At least I deserve a peaceful death.

Before I die I would like to prove that I have brain damage but the only close thing to that is that I have abnormal results in a QEEG test. So I suggest other people to have a check at that.

Invega totally destroyed my ability to sleep so I can't be off psych meds. I am stuck at 37.5mg of Clozapine to sleep, which is tragic.

Regardless, it's been like a month now that I suffer quite a bit less. It just happened overnight, as it happens to most people. I believe that nothing helps healing besides time.

I also wanted to write here to share this article which I find very interesting, since psychiatrists always say that Paliperidone is out of the body after 4-5 months : https://pmc.ncbi.nlm.nih.gov/articles/PMC12122147/

And also, people, please join the Facebook group: "Invega Sustenna/Xeplion (Paliperidone Palmitate) Should Be Banned".

Hugs!
Dear Nina, I'm really sorry :( It's a delicate matter, but I really hope you can stay with us. All my prayers to you
 
On invega i put on a good 55 or 60lbs. Lost it all once i got off it though
I have a theory the weight gain is a result of the drug causing slower metabolism. Cant you guys just eat less?

Im planning to call some lawyers today about having penis problems and seeing if i can sue a pharmaceutical company. Wish me luck :)
 
What about me? 9 months and 11 days i think i didn't heal completely, still feel 10 IQ+ points lost.
I think invega did some lasting damage on me, i was ADHD/sluggish cognitive tempo so i had some disability before starting this. I definitely feel more of retarded now. It's hard for me to think or even remember names of people i met. I hope Vyvanse would heal me soon. And nootropics.
I hope by 1 year i heal
 
What about me? 9 months and 11 days i think i didn't heal completely, still feel 10 IQ+ points lost.
I think invega did some lasting damage on me, i was ADHD/sluggish cognitive tempo so i had some disability before starting this. I definitely feel more of retarded now. It's hard for me to think or even remember names of people i met. I hope Vyvanse would heal me soon. And nootropics.
I hope by 1 year i heal
I lost the ability to cry from being on an injection for a year. Was back when I was on a CTO
 
Hey all,

I am not checking the forum anymore but I just wanted to do un update about how I am, since some people write me a DM to ask about it sometimes

It's been almost 5 years and a half since my last shot (got 6) and I am still really struggling so I really think I am one of the cases of people who have permanent brain damage from Paliperidone depot. I don't remember my last post in here and my memory is really damaged, so I don't know if I already wrote that I was accepted for assisted suicide in Switzerland. Even if it's nothing concrete I like to have that as an option if I can't hold on anymore. At least I deserve a peaceful death.

Before I die I would like to prove that I have brain damage but the only close thing to that is that I have abnormal results in a QEEG test. So I suggest other people to have a check at that.

Invega totally destroyed my ability to sleep so I can't be off psych meds. I am stuck at 37.5mg of Clozapine to sleep, which is tragic.

Regardless, it's been like a month now that I suffer quite a bit less. It just happened overnight, as it happens to most people. I believe that nothing helps healing besides time.

I also wanted to write here to share this article which I find very interesting, since psychiatrists always says that Paliperidone in out of the body after 4-5 months : https://pmc.ncbi.nlm.nih.gov/articles/PMC12122147/

And also, people, please join the Facebook group: "Invega Sustenna/Xeplion (Paliperidone Palmitate) Should Be Banned".

Hugs!
I'm really sorry you're going through this. Six years without recovery sounds absolutely devastating and tragic. I understand how hopeless it can feel, I had my last Invega injections 17 months ago, and the first 12 months were pure hell. I could barely think straight or remember anything. It was terrifying.
What has helped me cope is ketamine, it's the only drug that we can take. I discovered it after a long time struggling, and it’s made a real difference for me. The antidepressant effects last quite a while after using it, and it’s allowed me to function and actually enjoy life again. Without it, my days would have been empty and miserable. Weed also helps me manage symptoms.
Have you tried ketamine therapy (either clinical or otherwise) for the depression and emotional numbness? I’m not a doctor, so I’d strongly suggest talking to a knowledgeable psychiatrist or specialist about it, especially given what you’ve been through.
 
Can anyone who recovered tell me what month their anhedonia started to lift and what month was it completely gone
 
Hey all,

I am not checking the forum anymore but I just wanted to do un update about how I am, since some people write me a DM to ask about it sometimes

It's been almost 5 years and a half since my last shot (got 6) and I am still really struggling so I really think I am one of the cases of people who have permanent brain damage from Paliperidone depot. I don't remember my last post in here and my memory is really damaged, so I don't know if I already wrote that I was accepted for assisted suicide in Switzerland. Even if it's nothing concrete I like to have that as an option if I can't hold on anymore. At least I deserve a peaceful death.

Before I die I would like to prove that I have brain damage but the only close thing to that is that I have abnormal results in a QEEG test. So I suggest other people to have a check at that.

Invega totally destroyed my ability to sleep so I can't be off psych meds. I am stuck at 37.5mg of Clozapine to sleep, which is tragic.

Regardless, it's been like a month now that I suffer quite a bit less. It just happened overnight, as it happens to most people. I believe that nothing helps healing besides time.

I also wanted to write here to share this article which I find very interesting, since psychiatrists always says that Paliperidone in out of the body after 4-5 months : https://pmc.ncbi.nlm.nih.gov/articles/PMC12122147/

And also, people, please join the Facebook group: "Invega Sustenna/Xeplion (Paliperidone Palmitate) Should Be Banned".

Hugs!
@Nina2021 are you saying you got better recently?
Please i beg you to give up all psychiatric medications and give exercise a chance...the fitter you get, the easier and quicker it is for your body to recover. Exercise helps neurogenesis. Healing requires energy and exercise enhance your mitochondria giving you more energy to heal. Please do not underestimate the power of exercise, especially hard exercise.
 
After deciding to be alone for rest of my life, I can say I am totally happy that I am fullly recovered other than sexual ability.
I Have lost sexual function too. But i can still get erect even though it can never be continous. Libido fluctuates from being dead for most days to being higher one day. Have you lost all function completely?
 
I just took Adderall 9 months and 12 days and i don't feel anything. This drug is absolutely still blocking my brain and the half life is manufacturerd and not real.
 
SOme emotions are back, others come and go, and some emotions are still missing. I would say 70% is back.
Thank you for answering. Honestly, hearing that some emotions came back for you — even partially — gives me hope. The fact that they can return gradually, even if inconsistently, is really encouraging to hear.
My experience has been somewhat similar so far — some emotions seem to come back in waves, while others still feel distant or muted
 
Well I was already diagnosed as mentally ill with the ADHD lol, when I was in PHP I just told the program’s psychiatrist I take vyvanse, and he could see my medical records to verify so he filled my script along with the invega shots. I got all of them in my arm. I had been taking vyvanse for over a year before my psychotic episode, and before that I was on adderall for a year so they weren’t really worried about me abusing them, and since I was taking an antipsychotic with it they weren’t concerned about psychosis either.
Months 5-8 I noticed it working only occasionally, my usual signs that it’s working were the physical symptoms like heart rate. My psychiatrist actually raised my dose to 70mg, the largest dose allowed to be prescribed and I still didn’t feel much, so it was lowered back down to 50mg. I was prescribed bupropion 3 months ago as well, I’m not sure if this contributed to me feeling vyvanse again though.
My job doesn’t deal with computers or math at all, it’s all hands on but requires me to focus on one task for over an hour at a time (was really hard for me before without feeling like I was being tortured mentally), and doing multiple things at once while keeping track of the timing of everything (helps me not feel overwhelmed with the amount of things I’m doing).
I’ve always done a lot of research on things though, and even though I may not know how to code, I’m able to do complex things on the computer if I find instructions, learned from playing Minecraft as a child lol.
I’m autistic as well, wasn’t diagnosed until I was an adult and only after my ADHD diagnosis though. I can’t speak for dyslexia since I don’t have it, but I know it’s not curable and you aren’t dumb :( your brain just works differently. When you’re able to feel vyvanse again though, please don’t abuse it. I’ve been there too, taking an extra dose for the extra boost, taking extra just to be better at video games, or mixing it with weed. It’s just not worth it in the long run. It feels great in the moment, but the crashes just become more severe because you’re pushing your mind and body to their limits. We all know that taking too much can cause psychosis, but the withdrawals can also cause psychosis! I feel more stable just taking it on weekdays, you can’t fully rely on the meds you have to change your habits and mindset as well.
I just took Adderall and i still don't feel anything 9 months and 12 days, what you think could it mean?
Maybe my body take longer to heal?
 
Hey all,

I am not checking the forum anymore but I just wanted to do un update about how I am, since some people write me a DM to ask about it sometimes

It's been almost 5 years and a half since my last shot (got 6) and I am still really struggling so I really think I am one of the cases of people who have permanent brain damage from Paliperidone depot. I don't remember my last post in here and my memory is really damaged, so I don't know if I already wrote that I was accepted for assisted suicide in Switzerland. Even if it's nothing concrete I like to have that as an option if I can't hold on anymore. At least I deserve a peaceful death.

Before I die I would like to prove that I have brain damage but the only close thing to that is that I have abnormal results in a QEEG test. So I suggest other people to have a check at that.

Invega totally destroyed my ability to sleep so I can't be off psych meds. I am stuck at 37.5mg of Clozapine to sleep, which is tragic.

Regardless, it's been like a month now that I suffer quite a bit less. It just happened overnight, as it happens to most people. I believe that nothing helps healing besides time.

I also wanted to write here to share this article which I find very interesting, since psychiatrists always says that Paliperidone in out of the body after 4-5 months : https://pmc.ncbi.nlm.nih.gov/articles/PMC12122147/

And also, people, please join the Facebook group: "Invega Sustenna/Xeplion (Paliperidone Palmitate) Should Be Banned".

Hugs!
I’m really sorry that you’ve had to suffer for such a long time. Even reading your post, it’s obvious how exhausting and painful this journey has been for you.
Your post affected me deeply, because I also sometimes struggle with hopeless thoughts and fears about my own recovery. But I want you to know that you are a very strong and resilient person, and an example to many people here. The fact that you’ve kept going for so long despite everything is genuinely inspiring.
I truly hope that this is not the end of your story, and that happiness and health are still possible for you
 
I just took Adderall and i still don't feel anything 9 months and 12 days, what you think could it mean?
Maybe my body take longer to heal?
I’m not sure, adderall for me was always more hit or miss than vyvanse since adderall enters your bloodstream in a different way. Are you eating before taking your dose? Something high in protein? Are you sure you’re feeling nothing? Not feeling euphoria doesn’t mean the medicine isn’t working. I feel like for me the ability to feel vyvanse was gradual since it was something I only noticed working over time
 
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