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Coming off Invega/Xeplion (paliperidone) injections v 12

I do believe antipsychotics and other psychiatric medications are useful and needed in some cases, it’s just so unfortunate that most people don’t get the correct care they need. Women’s symptoms aren’t taken as seriously by doctors, and they have a higher rate of misdiagnosis or not getting a diagnosis at all. I’ve seen my notes from my hospital visit and some things they wrote down were a misinterpretation of what I said, or incorrect entirely. It’s even worse if you live in an area where there are few options for a doctor. Some people really do go into medicine and are genuinely knowledgeable, but don’t care about the person they’re taking care of, it happens in so many areas of healthcare, and it’s even well known how nurses will mistreat patients.
I think part of it (in the United States at least) is also because of insurance companies, they give incentives to prescribe one med over the other with road blocks like prior authorization. If you're poor and don’t have insurance you aren’t able to get care at all if you need it.
In a perfect world healthcare would be based on the health of the patients and not money
 
InnerReturn said:
Now that I think back on it, I realize it probably wasn't just about the high blood pressure..
I think the reason I was kept in the hospital and put on antipsychotics is that I had arguments with my foster mother. To put it very briefly — I have a heavy background: I was in an orphanage at a very early age, and I also experienced SA when I was 12. The following years after that were hell. I often had misunderstandings with my foster family. I wanted to move far away from the place where it all happened, but no one helped me back then... Later, I started to realize that people often don’t so much destroy as they just don’t know how to build. Sometimes, close people just don’t fit together like puzzle pieces — their traumas start to clash, and it becomes unbearable to continue communicating. I came to this understanding recently, at 26. That’s how it was with my foster family. When the doctor found out about all this, she decided that antipsychotics were the best solution. Some women with anxiety or psychological trauma have also been prescribed antipsychotics. So, mistakes do happen in psychiatry. And that's deeply sad
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Not to compare myself to you, and I’m very sorry that you’ve gone though so much, but my hospitalization had a similar story. It wasn’t family related, but stress surrounding a relationship I had caused me to spiral and question everything about relationships and people’s intentions. This turned into persecutory delusions, I was trying to explain what I thought was going on to the doctors and nurses but I don’t think they understood what I was saying or taking me very seriously. I had to stay for 3 weeks… they took what I told them as depression and told me invega was to treat that, not any psychotic symptoms I had.
 
invegaloner said:
Not to compare myself to you, and I’m very sorry that you’ve gone though so much, but my hospitalization had a similar story. It wasn’t family related, but stress surrounding a relationship I had caused me to spiral and question everything about relationships and people’s intentions. This turned into persecutory delusions, I was trying to explain what I thought was going on to the doctors and nurses but I don’t think they understood what I was saying or taking me very seriously. I had to stay for 3 weeks… they took what I told them as depression and told me invega was to treat that, not any psychotic symptoms I had.
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Stories like this are one of the reasons why I believe psychiatry seriously needs to change. Too many vulnerable people are being treated in a cold and careless way instead of being truly understood
 
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Hello, I wondered if anyone had experienced a lack of adrenaline or anxiety and have recovered their anxiety or rush, I feel completely flat and nothing seems to change my mental state at all even watching awful things does nothing for me, has anyone else experienced this and had it changed over time?
 
blanch116 said:
Hello, I wondered if anyone had experienced a lack of adrenaline or anxiety and have recovered their anxiety or rush, I feel completely flat and nothing seems to change my mental state at all even watching awful things does nothing for me, has anyone else experienced this and had it changed over time?
Click to expand...
Yes, I’ve experienced something similar after Invega — it felt like my nervous system became emotionally “flat,” almost as if adrenaline and emotional intensity were muted. Even things that would normally trigger anxiety, excitement, or shock barely affected me.
Over time, though, I’ve started noticing small changes and brief emotional reactions returning little by little. Recovery doesn’t seem linear for many people, but I don’t think this state is necessarily permanent.
My anxiety is gradually starting to come back now. Sometimes it signals itself through my stomach, sometimes through a racing heartbeat, and sometimes it’s barely noticeable. For me, anxiety only started returning closer to the sixth month
 
My inner monologue is muffled . It’s like I can kind of hear my own voice in my head but there’s a hand over its mouth. How long did it take for that voice to return to normal for those who have recovered?
 
Hey all,

I am not checking the forum anymore but I just wanted to do un update about how I am, since some people write me a DM to ask about it sometimes

It's been almost 5 years and a half since my last shot (got 6) and I am still really struggling so I really think I am one of the cases of people who have permanent brain damage from Paliperidone depot. I don't remember my last post in here and my memory is really damaged, so I don't know if I already wrote that I was accepted for assisted suicide in Switzerland. Even if it's nothing concrete I like to have that as an option if I can't hold on anymore. At least I deserve a peaceful death.

Before I die I would like to prove that I have brain damage but the only close thing to that is that I have abnormal results in a QEEG test. So I suggest other people to have a check at that.

Invega totally destroyed my ability to sleep so I can't be off psych meds. I am stuck at 37.5mg of Clozapine to sleep, which is tragic.

Regardless, it's been like a month now that I suffer quite a bit less. It just happened overnight, as it happens to most people. I believe that nothing helps healing besides time.

I also wanted to write here to share this article which I find very interesting, since psychiatrists always says that Paliperidone in out of the body after 4-5 months : https://pmc.ncbi.nlm.nih.gov/articles/PMC12122147/

And also, people, please join the Facebook group: "Invega Sustenna/Xeplion (Paliperidone Palmitate) Should Be Banned".

Hugs!
 
Hey all,

I am not checking the forum anymore but I just wanted to do un update about how I am, since some people write me a DM to ask about it sometimes

It's been almost 4 years and a half since my last shot (got 6) and I am still really struggling so I really think I am one of the cases of people who have permanent brain damage from Paliperidone depot. I don't remember my last post in here and my memory is really damaged, so I don't know if I already wrote that I was accepted for assisted suicide in Switzerland. Even if it's nothing concrete I like to have that as an option if I can't hold on anymore. At least I deserve a peaceful death.

Before I die I would like to prove that I have brain damage but the only close thing to that is that I have abnormal results in a QEEG test. So I suggest other people to have a check at that.

Invega totally destroyed my ability to sleep so I can't be off psych meds. I am stuck at 37.5mg of Clozapine to sleep, which is tragic.

Regardless, it's been like a month now that I suffer quite a bit less. It just happened overnight, as it happens to most people. I believe that nothing helps healing besides time.

I also wanted to write here to share this article which I find very interesting, since psychiatrists always say that Paliperidone is out of the body after 4-5 months : https://pmc.ncbi.nlm.nih.gov/articles/PMC12122147/

And also, people, please join the Facebook group: "Invega Sustenna/Xeplion (Paliperidone Palmitate) Should Be Banned".

Hugs!
 
Last edited:
Nina2021 said:
Hey all,

I am not checking the forum anymore but I just wanted to do un update about how I am, since some people write me a DM to ask about it sometimes

It's been almost 5 years and a half since my last shot (got 6) and I am still really struggling so I really think I am one of the cases of people who have permanent brain damage from Paliperidone depot. I don't remember my last post in here and my memory is really damaged, so I don't know if I already wrote that I was accepted for assisted suicide in Switzerland. Even if it's nothing concrete I like to have that as an option if I can't hold on anymore. At least I deserve a peaceful death.

Before I die I would like to prove that I have brain damage but the only close thing to that is that I have abnormal results in a QEEG test. So I suggest other people to have a check at that.

Invega totally destroyed my ability to sleep so I can't be off psych meds. I am stuck at 37.5mg of Clozapine to sleep, which is tragic.

Regardless, it's been like a month now that I suffer quite a bit less. It just happened overnight, as it happens to most people. I believe that nothing helps healing besides time.

I also wanted to write here to share this article which I find very interesting, since psychiatrists always say that Paliperidone is out of the body after 4-5 months : https://pmc.ncbi.nlm.nih.gov/articles/PMC12122147/

And also, people, please join the Facebook group: "Invega Sustenna/Xeplion (Paliperidone Palmitate) Should Be Banned".

Hugs!
Click to expand...
I'm sorry you didn't recover but at least you are able to find some closure. Even if it's not desirable. I hope you find peace at the afterlife.
 
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Nina2021 said:
Hey all,

I am not checking the forum anymore but I just wanted to do un update about how I am, since some people write me a DM to ask about it sometimes

It's been almost 5 years and a half since my last shot (got 6) and I am still really struggling so I really think I am one of the cases of people who have permanent brain damage from Paliperidone depot. I don't remember my last post in here and my memory is really damaged, so I don't know if I already wrote that I was accepted for assisted suicide in Switzerland. Even if it's nothing concrete I like to have that as an option if I can't hold on anymore. At least I deserve a peaceful death.

Before I die I would like to prove that I have brain damage but the only close thing to that is that I have abnormal results in a QEEG test. So I suggest other people to have a check at that.

Invega totally destroyed my ability to sleep so I can't be off psych meds. I am stuck at 37.5mg of Clozapine to sleep, which is tragic.

Regardless, it's been like a month now that I suffer quite a bit less. It just happened overnight, as it happens to most people. I believe that nothing helps healing besides time.

I also wanted to write here to share this article which I find very interesting, since psychiatrists always say that Paliperidone is out of the body after 4-5 months : https://pmc.ncbi.nlm.nih.gov/articles/PMC12122147/

And also, people, please join the Facebook group: "Invega Sustenna/Xeplion (Paliperidone Palmitate) Should Be Banned".

Hugs!
Click to expand...
Thank you for checking in. I'm interested in hearing about stories about those getting/applying for assisted suicide/MAID in other countries. I'm in a similar situation and was leaning more towards the Netherlands because they give people the option to donate their organs when terminating their life through a program.

I'm sorry it's come to this but I sincerely hope you find peace somehow.
 
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