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Coming off Invega/Xeplion (paliperidone) injections v 12

moerez said:
You are still dealing with problems even after 2.5 years passed right? Did you have sleep problems , memory issues and emotional blunting and now they all back? The thing is you guys don’t understand if I wait couple of years to get my sexuality and emotion back how can I cope everyday? What do I do to not think about being handicapped from athlete and happy person? Not everybody is same, maybe you had something to cope with in 6 months , I have a constant suicidal ideation, I can’t enjoy anything and everyday is a torture , were you same as me? Torturing and crying everyday 24/7?
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Yeah, I couldn't think of anything else. I have friends and I watched Star Trek, I took my dog for a walk (may he rest in peace, I just got a new dog and I'll be taking him for walks when the weather warms up) I'm an artist and I couldn't draw until last year. I'm as good as I used to be.

I have minor issues and the problem isn't really my emotions right now, it's my lower empathy and lower reactivity. But I still have empathy, just less than what I know I had and I really don't like it and I like myself less. I can feel emotions at will and be effected by art again. I have memory lapses and the days kind of blend together for me, but my memory is much better now even though I smoke a lot of weed. My sexual dysfunction is almost better and it's always fluctuating towards normalcy. I think I'm going to be pretty damn close to normal by the end of this summer. My life is livable and I'm grateful to have this gift.

I took even more Prozac than you, 10mg a day for six weeks.
 
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invegaloner said:
Dude I literally tried to kill myself because of psychosis and I still have to fight those negative thoughts even though I’m better now, I haven’t cried since I was discharged from the hospital a year ago and felt very flat until recently. My adhd medicine did nothing and the only effect I felt from weed and alcohol was nausea and dizzyness so I couldn’t use those things to escape anymore. I had sleep problems while inside of the hospital and them giving me Seroquel and Benadryl didn’t do anything for me. I still have some trouble going to bed because I don’t feel physically tired very often but I still manage to fall asleep and get at least 7 hours. I took a nap yesterday. I’ve had memory issues my whole life because of adhd, and the year I had psychosis I have a hard time putting things in a timeline, or just figuring out what was real at all. I have a job and I am not as social as I was before but just going outside to go to work helps me, and the people at my job like me. Do you think when I got my job I didn’t feel awful and wanted to quit everyday? Because I did, and I actually did end up quitting one job to get a less stressful one. How often did you go to the gym or go outside, because it sounds like you’re not doing any of those things currently. You need to stop thinking that you’re the only person in the world that has gone through something hard when literally everyone here has been in your shoes and is trying to help you.
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People can live without emotion and like robot and go to work and sleep, without emotion or anything, I’m not gonna cope with living like this that’s my difference, I had a great sexual life before , great work friends and everything, you can nap, you can sleep at least 7 hours,you have no sexual disfunction, me after 6 months still can’t have more than 5 hour sleep or take a nap, your problems are way less than me that’s why you can deal with it, or you want to live like this forever without being witty or emotion but I can’t , I really can’t
 
InvegaAnon said:
Yeah, I couldn't think of anything else. I have friends and I watched Star Trek, I took my dog for a walk (may he rest in peace, I just got a new dog and I'll be taking him for walks when the weather warms up) I'm an artist and I couldn't draw until last year. I'm as good as I used to be.

I have minor issues and the problem isn't really my emotions right now, it's my lower empathy and lower reactivity. But I still have empathy, just less than what I know I had and I really don't like it and I like myself less. I can feel emotions at will and be effected by art again. I have memory lapses and the days kind of blend together for me, but my memory is much better now even though I smoke a lot of weed. My sexual dysfunction is almost better and it's always fluctuating towards normalcy. I think I'm going to be pretty damn close to normal by the end of this summer. My life is livable and I'm grateful to have this gift.

I took even more Prozac than you, 10mg a day for six weeks.
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When did you notice difference? You couldn’t take a nap like me or your heart 24/7 was pounding ? Idk but I don’t believe it gets better , like you haven’t had any improvements after 6 months and you still cope with it ? I wanna ask you how! What would you do during your day?
 
InvegaAnon said:
I was exactly where you were and even worse and I got better.

I didn't forget who I was. I'm grateful for what I have gotten back and I'm aware of what is still faded out and coming back.

There are a few things that helped me. Niacin in the form of nicotinic acid, it has to be the kind that causes flushing. It helped my emotional blunting, but I wasn't able to take it for more than a week because it lowers blood pressure a lot. Pelvic floor therapy. 2000mg of vitamin C for a month to demethylate genes and improve circulation. L-Citrulline for better circulation. Yohimbine and black maca root for sexual dysfunction. Maca root should be cycled or it loses its efficacy. Cialis to support penis tissue health and sexual function.

You should try ginko biloba, but I would only do it if your hormones have balanced out again because it messes with your hormones a bit. I think it's curing my genital numbness. I stopped taking it because it caused vaginal bleeding but it's not doing that since I started metformin for PCOS.
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did you slowly see improvements till 6 month mark for your anhedonia?
 
invegaloner said:
You know nothing about my sex life and it’s not something I’m going to talk about on a public forum. You’re calling me a robot for pushing forward and not letting my psychotic episode rule my life? You think I’m in therapy every week because I have no problems? Taking bupropion bc I’m not still depressed after everything? I literally said I still struggle with suicidal thoughts because of things I did in psychosis but am working on it. I’ve actually reached out to people that I feel like I’ve wronged while in psychosis and they were way nicer than I expected and they’re actually the ones telling me to keep pushing forward! There are days where I only sleep for 5 hours or less because of my lack of physical tiredness, it happens, having a consistent schedule is what made things better for me. You’re basically telling me I’m lying about struggling or that I shouldn’t be happy to be alive despite my struggles because YOU don’t want to get better. I’m working because I actually have goals for my career, even though I feel like I’m not adequate enough for it. Nothing is forever not even pain.
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I’m not saying you are lying but struggles for every person is different , you can take a nap , when I take a nap I almost get heart attack and I don’t know why is that and it’s probably side effect of invega, I get tremors randomly, all I said was you don’t have these, maybe you are stronger than me or can live without emotion or sexuality , but I can’t , for me life is enjoying and working hard, I have no energy to work and anhedonia and depression to be happy, I mean idk I don’t wanna get used to living like this but tell me about your symptoms got better at month 6 or no? You were just same as me? I’m suicidal not because what I did in psychosis , because I literally lost everything after that, everything you say, and now I’m just a broken robot who tries to survive and live with disability , but you never gonna understand why some people can’t take the struggle they feel way worse than you sometimes and you can’t never tell how each person feels
 
invegaloner said:
You’re saying struggles for everyone is different but keep telling me my struggles aren’t as great as yours so I can never understand when we are more similar than you think. When my sleep issues were at their worst during psychosis I had the exact same problem. I couldn’t sleep because of severe anxiety and felt my heart wasn’t acting normally, and if I did manage to fall asleep I would wake up 30 mins later without fail. We both have suicidal thoughts but you say I don’t get it bc I don’t have them for the exact same reason as you? Psychosis changed me and how I perceive life. I lost my job, ruined multiple relationships, didn’t work for months, and almost lost my house because of it. The only reason I didn’t is because I luckily had some savings but it’s all gone now. Even though I’m not in psychosis anymore those things will still follow me so of course I’m going to feel some negativity about it? It’s going to take me years to build up my savings again. I’m not going to talk to some of these people ever again even though we used to be close. This happens to people even without being in psychosis and injected with invega. Not working is not an option for me. I live alone and have to sustain myself. I didn’t want to work and felt like I wasn’t even hirable after my psychosis, but I still managed to get a job and be good at it. Like I said I ended up quitting one job and getting another because the stress was too great and I couldn’t motivate myself to do better. But now people tell me constantly I work well which keeps me motivated. You can’t just wait until you’re in the mood to do something to get better that’s just not how the world works. It’s been almost a year for me and I still feel somewhat blunted but I don’t feel as hollow as I did before. But it’s also silly to expect to be the exact same as you were after going something traumatic like psychosis, and especially so soon after? You really cant just sit around thinking about death all day expecting things to get better you need to do something.
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I get what you saying, I’m just saying after 6 months at least my sleep could be better than this, you had sleep problem in your psychosis not after that, you have no sexual problem for sure, you feel motivated and I never feel motivated I went to gym and I couldn’t exercise more than 2 weeks because I felt I’m not motivated and I do it for what? When I see no progress and I give up soon, I think I’m just hopeless and you are trying to say do whatever you can even if you are blunted or you don’t feel good , this is robotic life, living without emotion and joy and dealing with sleep problems it’s robotic for me, what were you doing at your month 6 may I know? You had good feelings and stuff? You were motivated? I wanna know if it’s just me or everybody was still struggling after 6 months
 
invegaloner said:
You keep saying I don’t have any problems, you say you understand but I don’t think you do really. I just worked through them? My sleep problems started in psychosis and persisted until after I was discharged from the hospital. They prescribed seroquel and Benadryl and it did not help me fall or stay asleep. My sleep issues went away after awhile only after having a consistent schedule because of work. People have loved ones die and have to continue on with their life despite grieving heavily. No one suddenly feels great one day and then turns their life around. You need to make the choice of getting better even if you feel like shit that’s what therapy is for… my motivation came out of necessity, I could’ve just not gotten a job and lost my house and put myself in a worse position which would definitely lead to my suicide but I didn’t. And I definitely didn’t feel motivated once I did get a job, it was only after people recognized my abilities I felt better. I said I didn’t want to talk about my sex life but if you really must know I almost completely lost my libido because of the trauma, antipsychotics, and antidepressants but like I said before sex isn’t the only thing in life and there are people older than us who can’t or choose not to have sex. If I’m still struggling with things almost a year out what makes you think I wasn’t struggling at 6 months? The difference is what you do about it
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My question from you is, would you live in this current situation you have forever if you stuck in this phase? Would you live with brain fog and all the problems you are dealing with for rest of your life?
If your answer is yes so we are really different, if you have hope to heal after one year that’s different, I might wait more to see if I get better, but I won’t just live to survive if I don’t find any emotion or meaning in life
 
Why argue about how fucked up you are?
Having a wet dream means your sexual function is returning; also means you are having some REM sleep.
Yeah it causes sexual disfunction, taking Prozac can make anyone anorgasmic; it is a well known side effect of SSRI meds.
Wellbutrin is much better on that front.
Sounds like you really are pouring all your energy defending your suicidal ideations. It could help you to keep trying different things or medications.
But you do you....some accept the sexual side effects of Prozac as a trade off but if it ain't for you try something else..
 
moerez said:
My question from you is, would you live in this current situation you have forever if you stuck in this phase? Would you live with brain fog and all the problems you are dealing with for rest of your life?
If your answer is yes so we are really different, if you have hope to heal after one year that’s different, I might wait more to see if I get better, but I won’t just live to survive if I don’t find any emotion or meaning in life
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invega raised my prolactin a lot, and that can actually make some of the side effects worse. things like restlessness, sexual dysfunction, anxiety, depression, vision issues, and even anhedonia can be tied into that. might be worth getting your prolactin levels checked to see if that’s playing a role for you.
 
InvegaAnon said:
Yeah, I couldn't think of anything else. I have friends and I watched Star Trek, I took my dog for a walk (may he rest in peace, I just got a new dog and I'll be taking him for walks when the weather warms up) I'm an artist and I couldn't draw until last year. I'm as good as I used to be.

I have minor issues and the problem isn't really my emotions right now, it's my lower empathy and lower reactivity. But I still have empathy, just less than what I know I had and I really don't like it and I like myself less. I can feel emotions at will and be effected by art again. I have memory lapses and the days kind of blend together for me, but my memory is much better now even though I smoke a lot of weed. My sexual dysfunction is almost better and it's always fluctuating towards normalcy. I think I'm going to be pretty damn close to normal by the end of this summer. My life is livable and I'm grateful to have this gift.

I took even more Prozac than you, 10mg a day for six weeks.
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Lots of good news here- remind me again how long it's been for you? :) Really hoping that you get close to normal by the end of the summer x
 
11injections said:
invega raised my prolactin a lot, and that can actually make some of the side effects worse. things like restlessness, sexual dysfunction, anxiety, depression, vision issues, and even anhedonia can be tied into that. might be worth getting your prolactin levels checked to see if that’s playing a role for you.
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I checked it was normal , it fucked up my brain
 
When I put my feet in certain positions it uncontrollably shakes what is that ? Tardive Dyskinesia? Or something else?
 
moerez said:
When I put my feet in certain positions it uncontrollably shakes what is that ? Tardive Dyskinesia? Or something else?
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could be just a position-triggered tremor. certain angles put more strain on small stabilizing muscles which can cause them to shake. common in the feet and calves. i wouldn't worry.
 
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