fadedandcozy
Bluelighter
To start off I’m a chronic pain patient that has hypermobile danlos syndrome, POTS, PNES/FND (psychogenic seizures and pain,) CPTSD, and a dissociative disorder.
Because of my HEDS my back is giving out and i have degenerative disc disease in c5-6 with bone spurs, as well as a bulging disc, compressed nerve, and modic end plate changes.
I am in severe pain all day every day. I’m constantly taking a combination of either gabapentin or lyrica, tylenol, flexoril, cymbalta, methocarbamol, ibuprofen, lidocaine, mmj,… and nothing seems to be able to help me like opiates can. Nothing. I cant live a normal life because im in so much pain every single day and doctors wont prescribe me opiates. I understand the addiction risk but i personally dint like being high, nodding off, anything like that. When i am offered opiates (percs, morphine, vics, occassionally dilaudid) im able to complete my daily tasks and actually get out of bed and function in society and i never take more than prescribed. Ive also cut myself off if i notice myself feeling dependent on them physically and suffer through the withdrawals which usually dont last long because its not like i use a ton anyways.
But now my all my doctors are refusing to give me any opiates. My pain specialist recommended to my primary (bc for some reason my pain soecialist doesnt prescribe medications they just send recommendations to my primary) that i be on belbuca or something similar and my primary flat out refused because he had “never heard of it” and “didnt feel comfortable prescribing it.” So i got an er doc to prescribe it, he did but my insurance wont cover it. I told the doctor that i see at the er (i go often from severe pain flares where i cant walk) and he prescribed me suboxone but it made me feel absolutely awful and didnt really work much for pain at all.
I cant fucking do it anymore. I need my life back. I dont care if i take a perc every day or every few days as needed for severe back pain. Im in bed most of the time from the pain and my pain specialist doesnt know what to do. My gabapentin only helps somewhat but if i do more that two hours of like anything ill start to flare and itll feel like i’m being stabbed and tased in my vertebrae in my lower back and my neck.
Im miserable.
I dont have access to street drugs other than xanax and that doesnt really help the pain, so im not sure what to do anymore.
I heard kratom has been helpful for some and something derived from it called 7OHM is helpful, but its apparently banned in my city so id have to travel out of my county to get it. At this point im so fucking desperate id do anything to stop this pain and get back to living my life.
I just need suggestions/experiences with kratom/70hm from people who also struggle with severe chronic pain.
Because of my HEDS my back is giving out and i have degenerative disc disease in c5-6 with bone spurs, as well as a bulging disc, compressed nerve, and modic end plate changes.
I am in severe pain all day every day. I’m constantly taking a combination of either gabapentin or lyrica, tylenol, flexoril, cymbalta, methocarbamol, ibuprofen, lidocaine, mmj,… and nothing seems to be able to help me like opiates can. Nothing. I cant live a normal life because im in so much pain every single day and doctors wont prescribe me opiates. I understand the addiction risk but i personally dint like being high, nodding off, anything like that. When i am offered opiates (percs, morphine, vics, occassionally dilaudid) im able to complete my daily tasks and actually get out of bed and function in society and i never take more than prescribed. Ive also cut myself off if i notice myself feeling dependent on them physically and suffer through the withdrawals which usually dont last long because its not like i use a ton anyways.
But now my all my doctors are refusing to give me any opiates. My pain specialist recommended to my primary (bc for some reason my pain soecialist doesnt prescribe medications they just send recommendations to my primary) that i be on belbuca or something similar and my primary flat out refused because he had “never heard of it” and “didnt feel comfortable prescribing it.” So i got an er doc to prescribe it, he did but my insurance wont cover it. I told the doctor that i see at the er (i go often from severe pain flares where i cant walk) and he prescribed me suboxone but it made me feel absolutely awful and didnt really work much for pain at all.
I cant fucking do it anymore. I need my life back. I dont care if i take a perc every day or every few days as needed for severe back pain. Im in bed most of the time from the pain and my pain specialist doesnt know what to do. My gabapentin only helps somewhat but if i do more that two hours of like anything ill start to flare and itll feel like i’m being stabbed and tased in my vertebrae in my lower back and my neck.
Im miserable.
I dont have access to street drugs other than xanax and that doesnt really help the pain, so im not sure what to do anymore.
I heard kratom has been helpful for some and something derived from it called 7OHM is helpful, but its apparently banned in my city so id have to travel out of my county to get it. At this point im so fucking desperate id do anything to stop this pain and get back to living my life.
I just need suggestions/experiences with kratom/70hm from people who also struggle with severe chronic pain.