Mental Health Coming off Invega (Paliperidone, Xeplion) injections v. 7.0

[dirtyinvega]

How long are you off invega, when was your last dosage. Are you on any other medication and also how many injections did you have?

Feb March 2017 if I remember correctly I should look up my medical records online and get a exact date to be honest. I take 60mg of ritalin daily that is it ATM. 5 including loading dose.

 

[dirtyinvega]

All I’m saying is that this is a mental health forum and we were all injected with this drug for a reason. It’s not a surprise that people here have mood issues and I personally think it has something to so with mentality. I’m talking about long term sufferers. I get that the first months after the jab is tough. Not trying to insult anyone, but I think it needs to be said so future patients can get different perspectives.


This is clearly a side effect of invega, that sucks.

I’m more skeptical about the mood thing because I believe we can overcome it by staying positive, productive, ambitious, hard working, etc.

Regardless, I’m sorry some of you guys are suffering and I hope you find relief.

Invega most definitely effects your mood without any doubt mind over matter is no match for invega nightmare it put you into the darkest place you can think of that you wouldn't even put your worse enemy though. I still have very little memory of the first year off invega I only know because my partner told me what happened. The stiffness of muscles nausea dizziness drowsiness but can't sleep well confusion light sensitiveness everything all points again Parkinsons just look at the the symptoms of it. I still wonder what would be the outcome of using L-dopa precursor and flooding the brain with it aka dopamine. Mmmm.

 

[Baddream]

I take 60mg of ritalin daily that is it ATM. 5 including loading dose.

Don’t you think this is the reason for your current side effects?

 

[dirtyinvega]

Don’t you think this is the reason for your current side effects?

Not a chance ritalin is a dopamine reuptake inhibitor not a blocker mainly effects D2 receptor.

 

[Patrik133]

As far as physical side effects, I see that almost everybody recovers. Long term sufferers often complain about psychological issues like mood or low IQ, blank mind etc, which may or may not be because of invega. I’m saying there’s a possibility of it being due to some other reason.

One cannot create a "perfect society" by ignoring cases that disprove the theory of that society. By logic: just kick them out. And I think that all those who left the forum and didn't say they had recovered, actually didn't recover, but over time learned to accept their troubles and simply got tired of the forum and left. I remember when I noticed that Xeplion had taken away my abilities, I thought it was something permanent and it had a devastating effect on me. And then while researching online I found one person on youtube who gave me hope by telling me it was temporary. Later I found this forum which I rarely participate in but often read what is going on. And I would like it to be a rule that people recover after a maximum of 2 years, because then it would be easier to bear all this, but according to everything I see, that is not the rule. It's probably a 50:50 chance of recovery.

 

[dirtyinvega]

One cannot create a "perfect society" by ignoring cases that disprove the theory of that society. By logic: just kick them out. And I think that all those who left the forum and didn't say they had recovered, actually didn't recover, but over time learned to accept their troubles and simply got tired of the forum and left. I remember when I noticed that Xeplion had taken away my abilities, I thought it was something permanent and it had a devastating effect on me. And then while researching online I found one person on youtube who gave me hope by telling me it was temporary. Later I found this forum which I rarely participate in but often read what is going on. And I would like it to be a rule that people recover after a maximum of 2 years, because then it would be easier to bear all this, but according to everything I see, that is not the rule. It's probably a 50:50 chance of recovery.

I definitely agree with the 50/50 chance of recovery you hit the nail on the head mate well said. I agree if you don't recover by two year mark your kinda in a shitty place like me but like you said you just have to except for what it is and I definitely think that is the case in some people in this forum. I only post and still read this forum/thread because I said from the word go I started this on this nightmare rollercoaster ride I wouldn't leave if someone needed support and my word is my word.

 

[Baddream]

One cannot create a "perfect society" by ignoring cases that disprove the theory of that society.

I’m not sure what you mean exactly. But I definitely don’t feel like I’m ignoring anything. I make my opinion based on the research I gather and my own personal experience. I haven’t seen anything that makes me think side fx are permanent or even long term. I have my opinions on those who claim they never recover. Either they are on other drugs, are depressed, stay at home all day, or are just plain pessimists and have a negative outlook in general. I always read their previous posts to get some context.

And I think that all those who left the forum and didn't say they had recovered, actually didn't recover, but over time learned to accept their troubles and simply got tired of the forum and left.

This is what I mean by negative mindset. You see the glass as half empty. I believe they are not here because they recovered, otherwise we would have heard from them. People are much more inclined to vent negative frustration than they are to post positive comments. That’s life.

It's probably a 50:50 chance of recovery.

You can’t prove that, because we never hear from those who disappear. On the contrary, we hear positive stories all the time from those who return

I think you are wrong, but I respect your right to have your own opinion. Please don’t take any of this as an attack, it’s just my feelings on the subject.

 

[lurker689]

I still have sleep problems, depression, annedonia, akathisia no internal dialogue if that makes sense all related to dopamine blockage in the dopaminergic neurones most AP induce some sorta Parkinson's symptoms you cannot block dopamine receptors and not have "Parkinson's symptoms". maybe a improvement overall since nearly 7 years ago I would have to put at 60% improvement. I just dont think I'll ever fully recover it's just a fact for me and so many other people in the same vote sadly. It is what it is! I just gotta make the best of what I can do now and care for my son and daughter I could of "Knocked myself" but what would that do? Nothing!. that means invega beat me and I won't let that be me.

So it's impossible to heal from this nightmare.

I’m not sure what you mean exactly. But I definitely don’t feel like I’m ignoring anything. I make my opinion based on the research I gather and my own personal experience. I haven’t seen anything that makes me think side fx are permanent or even long term. I have my opinions on those who claim they never recover. Either they are on other drugs, are depressed, stay at home all day, or are just plain pessimists and have a negative outlook in general. I always read their previous posts to get some context.


This is what I mean by negative mindset. You see the glass as half empty. I believe they are not here because they recovered, otherwise we would have heard from them. People are much more inclined to vent negative frustration than they are to post positive comments. That’s life.


You can’t prove that, because we never hear from those who disappear. On the contrary, we hear positive stories all the time from those who return

I think you are wrong, but I respect your right to have your own opinion. Please don’t take any of this as an attack, it’s just my feelings on the subject.

Negative or positive mindset has nothing to do with healing, you either heal or you don't. Expecting people who are still suffering to be happy against their will is abuse and psychotic.

Again, there's a physical, objective nature to this that the mind can't control. It's not like you can make a cancer go away with this positive thinking nonsense, you gotta have chemo.

Also, baddream, anhedonia isn't psychological, it's a physical condition. I can definetely feel a difference between how i used to be pre-AP and how i'm now. Before then i used to love going to a shopping mall and drink coffe and i remember i'd always feel happy when i'd do it and now when i do it i don't feel anything. No amount of overexerting myself makes me replicate that feeling again, in fact, i don't feel pleasure doing anything and i'm lethargic all the time.

 

[Patrik133]

I've always preferred that people don't have the same opinion as me because it would encourage discussion in which I've always felt "at home". But now the discussion is almost impossible for me.

I have my opinions on those who claim they never recover. Either they are on other drugs, are depressed, stay at home all day, or are just plain pessimists and have a negative outlook in general. I always read their previous posts to get some context.

This is not something that is characteristic only of those who do not recover, and cases of recovery have gone through the same. And many of them were on other drugs and depressed and so on, and yet they recovered.

This is what I mean by negative mindset. You see the glass as half empty. I believe they are not here because they recovered, otherwise we would have heard from them. People are much more inclined to vent negative frustration than they are to post positive comments. That’s life.

If my abilities that were taken away were returned to me, I would consider it the happiest and most beautiful day of my life, as if I had won millions and millions in the lottery. It is not a day that can pass somehow unnoticed and without the desire to share that happiness with people who understand me and who listened to my struggles when it was the hardest. I myself know how much it means when even one person suddenly appears on the forum who recovered and wrote about his experience. I doubt that they are all so indifferent to their recovery and to those with whom they went through it all, so to speak.

You can’t prove that, because we never hear from those who disappear. On the contrary, we hear positive stories all the time from those who return

Yes, we hear stories of recovery from those 50 percent, but not from the other 50 percent who left the forum or said they still haven't recovered after a long time. I know that I could not commit suicide, if 2 years pass and I do not recover, my case will not be able to serve as an encouragement to people who are suffering (and they probably don't want you on the forum because your case spreads negativity). 2 years is a long time, sometimes enough to come to terms with the situation. And if I were to leave the forum, it would be because the forum no longer provides me with comfort and hope, I realized what reality is, life goes on and I have to accept it.

 

[bowandsparrow]

So it's impossible to heal from this nightmare.

I'm off 7 months and have almost none of those issues, but believe what you want I suppose.

 

[Baddream]

Expecting people who are still suffering to be happy against their will is abuse and psychotic.

I don’t mean to undermine anybody’s suffering. I just think some people need to stop thinking they are ill, or it becomes your reality. We got to push ourselves to socialize, to exercise, take care of ourselves and our family. It starts with the mind, it’s not nonsense.

Before then i used to love going to a shopping mall and drink coffe and i remember i'd always feel happy when i'd do it and now when i do it i don't feel anything.

I feel the same to some degree. But you have had improvements right? What makes you think the progress will suddenly stop? Just give it time.

Start questioning the people behind negative comments. Just look at their other posts to get the full picture. @dirtyinvega is calm and polite, but I get the feeling that he’s being too hard on himself and caught up in a negative spiral of thinking. He may be a severe case with the sides, it’s impossible for me to know for sure. I hope he feels better either way.

This is not something that is characteristic only of those who do not recover, and cases of recovery have gone through the same. And many of them were on other drugs and depressed and so on, and yet they recovered.

You are right on this one, well said.

Yes, we hear stories of recovery from those 50 percent, but not from the other 50 percent who left the forum or said they still haven't recovered after a long time.

The recovery stories after 2+ years far outweigh the negative ones. It’s not a 1:1 ratio.

I guess you feel like recovery is like a lottery, or 50% you just have to be lucky. Me, I think we will all recover with different timelines and suffer common side effects for the most part. I also believe some people are making it worse than it needs to be by giving into the negativity. Remember that most «negative» comments are during the first year or two.

Conclusion: Show me the people who came back with bad news and compare it with the list of recoveries.

I don’t mean to call out people who write about their suffering as jerks or anything, I get that it’s how they feel and I feel sorry for them. I just offer my own opinion because I think it’s an important counterbalance. People have their own right to believe what they want and refute what they don’t agree with. Let the people decide

 

[InvegaAnon]

I'm still taking a break from this place, but I just want to report that I'm really happy today and feeling engaged with stuff I'm watching. I feel almost normal. Yesterday I dunked myself in really cold water. I'm also enjoying weed more again, I couldn't for a few days, I was too anxious. I'm glad that's not permanent.

The mental chastity belt is off and my genitals are still returning to normal, but I could still be more sensitive and more aroused. My orgasms are almost normal. Stuff is coming back after the other drugs left my system. I'm very relieved.

My memory lapses a little still and I wish I could feel music like I did. I'm still somewhat out of touch with my emotions. As far as recovery goes, I feel like I'm halfway there.

I drew a quick portrait of Seven of Nine from Star Trek: Voyager to make sure I can still ink with a brush. I have a slight tremor and it's harder than before, but I'm sure if I practiced and the tremor went away I'll get back to my perfect line control. If it never goes away, I think I can still ink with pens. I should really do more studies of blond hair in ink, I know I didn't quite get it right.

 

[Invegatorture]

I had a severe reaction where within 24 hours it hit my brain like a truck and it completely lobotomised me. I’m not exaggerating. I slurred all my speech and could hardly do anything, brain went to mush. I walked around with a hunched back, my arms straight down my sides, my mouth wide open and giving everyone blank stares. I’m certain I won’t recover from this. My reaction was not normal. I feel like the only one who reacted this way. I felt nothing from my first injection, it was the second one that killed me. Almost 3.5 months off i still struggle speaking clearly and cannot socialise at all. And every morning my legs tremble when i get out of bed and when i walk down the stairs. Stil have headaches everyday and head pressure. I’m never gonna be the same ffs.

 

[Robchanna]

I had a marijuana edible and was really high last night. I only had 10mg of thc.

Did you ever lose the ability to feel it? If so when did it come back

 

[Robchanna]

well i had my severe manic episode that prompted the invega prescription in 2021, was on invega for 7 or 8 months, & have now been off of it for 13 months now. this is all ballpark due to the fact that my memory is pretty fuzzy when it comes to timelines though.

Did you feel marijuana? If not when did it come back

 

[InvegaAnon]

I had a severe reaction where within 24 hours it hit my brain like a truck and it completely lobotomised me. I’m not exaggerating. I slurred all my speech and could hardly do anything, brain went to mush. I walked around with a hunched back, my arms straight down my sides, my mouth wide open and giving everyone blank stares. I’m certain I won’t recover from this. My reaction was not normal. I feel like the only one who reacted this way. I felt nothing from my first injection, it was the second one that killed me. Almost 3.5 months off i still struggle speaking clearly and cannot socialise at all. And every morning my legs tremble when i get out of bed and when i walk down the stairs. I’m never gonna be the same ffs.

I went to highschool with someone who is married to someone who went to the very same mental hospital as me, who was misdiagnosed and forcefully injected with invega three times. He was in a zombie like state for 6 whole months, and today he's completely normal other than some extra anxiety and PTSD from the whole ordeal. You are very early in your recovery still.

 

[Patrik133]

The recovery stories after 2+ years far outweigh the negative ones. It’s not a 1:1 ratio.

I guess you feel like recovery is like a lottery, or 50% you just have to be lucky. Me, I think we will all recover with different timelines and suffer common side effects for the most part. I also believe some people are making it worse than it needs to be by giving into the negativity. Remember that most «negative» comments are during the first year or two.

Conclusion: Show me the people who came back with bad news and compare it with the list of recoveries.

I don’t mean to call out people who write about their suffering as jerks or anything, I get that it’s how they feel and I am sorry for that. I just offer my own opinion because I think it’s an important counterbalance. People have their own right to believe what they want.

All the negative stories are after 2+ years, because people usually wait that long because the thinking is that after that time it's probably permanent. That's why they just leave the forum.

I don't think recovery is something like a lottery. Many factors play a role here, which are difficult to talk about because they are not known for now.

People don't come back here to say bad news, they just don't come back because they probably can't say anything positive.

There's a reason people who suffer talk about it, because it's a form of fighting for their lives because it's easier to endure despair if you find compassion. It is precisely the negative effect that is achieved if they are forbidden to do so.

 

[Baddream]

All the negative stories are after 2+ years, because people usually wait that long because the thinking is that after that time it's probably permanent. That's why they just leave the forum.

That’s one way of looking at it. Truth is we can’t know for sure. Therefore, it’s up to us to view the glass as half empty or full.

From what I can see, people mostly complain in the early stages because that’s when they suffer the most. Maybe they got used to it and realized it’s the new baseline, idk.

People don't come back here to say bad news, they just don't come back because they probably can't say anything positive.

I guess we’ll never know for sure. I just judge from the ones that have come back.

There's a reason people who suffer talk about it, because it's a form of fighting for their lives because it's easier to endure despair if you find compassion. It is precisely the negative effect that is achieved if they are forbidden to do so.

Everybody should be allowed to post positive or negative.

I appreciate the discussion and wish you the best of luck.

 

[Patrik133]

Maybe this could be useful:

 

[InvegaAnon]

Maybe this could be useful:

I'm not even 5 minutes in and this is the dumbest thing I've ever seen. Palipedrone leaves the body through urine, you're gonna want to drink MORE water if anything.

Edit: I just watched more and uh, no, you can't make your own water what the fuck.

I'm recovering kinda fast and I drink hella water.

Fasting, dehydration and nofap are all bullshit/harmful ways to deal with invega poisoning as far as I can tell.