ChemicallyEnhanced
Bluelighter
Yeah (on the 800mg Quetiapine)...I'd pretty much wake up, binge on sugary carbs on the sofa and then sleep for 16 hours. I hated it.
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Anxiety - UK Doctors Will Prescribe ANYTHING BUT Anti-Anxiety Meds
- Thread starter ChemicallyEnhanced
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Yeah (on the 800mg Quetiapine)...I'd pretty much wake up, binge on sugary carbs on the sofa and then sleep for 16 hours. I hated it.
ChemicallyEnhanced
Bluelighter
There isn't a cause for me (and some other suffers). I have "organic anxiety", meaning it's caused by a chemical imbalance and not life events or situations. So I have severe anxiety and get panic attacks, but without reason. Like I fully experience it, but there is no reason whatsoever behind it. So medication really is the only answer.
ChemicallyEnhanced
Bluelighter
I had one hang up on me when I was (politely) complaining. So I rang back and call her out on it, and then hung up on her while she was in the middle of apologising.
PETTY KING THAT I AM lol
I also have severe anxiety due to my condition (ehlers-danlos syndrome). My body produces way too much adrenaline and I’m constantly in flight or fight mode. When I was younger I was able to talk my way out of my anxiety attacks but that stopped working.
I have crippling anxiety at times, but with therapy I’ve learnt that I’m not dying and I’ve learnt to stop fighting it. Which I assure you is really hard. To just let that feeling take control over you is the hardest thing but when I just let go it’s over very quickly. I lay down, I do some breathing exercises and I take 30 mins to recenter myself.
It sucks but what would suck more is becoming dependent on benzos and then having to get off them and dealing with the rebound anxiety which would be 10 times worse.
Now I’m not saying you shouldn’t have some medication for those really bad attacks because you absolutely should speak to your Dr about what’s available. I’m just saying that using something all the time is only going to ruin your future when you will need medication as you get older. Does that make sense?
ChemicallyEnhanced
Bluelighter
Sorry to hear you have to go through severe anxiety, too 
Benzo's can definitely create a whole hell of their own. Running out or trying to stop them gives an even worse anxiety. Plus, I've been hospitalized twice due to massive grand mal seizures after having a Xanax script stopped.
Benzo's can definitely create a whole hell of their own. Running out or trying to stop them gives an even worse anxiety. Plus, I've been hospitalized twice due to massive grand mal seizures after having a Xanax script stopped.
I’m sorry to hear that. Honestly, it’s so hard to deal with. I can have an anxiety attack completely out of the blue and it’s scary as fuck. It can mimic all sorts of conditions, I had symptoms like a stroke once, then I felt like I was having a heart attack, sore arm, sore chest etc, then I had intense seizure like movements. All of it was anxiety.Sorry to hear you have to go through severe anxiety, too
Benzo's can definitely create a whole hell of their own. Running out or trying to stop them gives an even worse anxiety. Plus, I've been hospitalized twice due to massive grand mal seizures after having a Xanax script stopped.
Going to my therapist really helped me to find ways to get through it. When I used to get them I fought it so hard and it lasted for ages but now they only last 10-15 mins at the most and my therapist said over time I should get that number down.
I do hope you can find some treatment because it’s miserable. Do look into therapy though, if anything just do it so you know you’ve tried it all. You need to find the right therapist though, that’s a good start!
Sending my love to you.
ChemicallyEnhanced
Bluelighter
I’m sorry to hear that. Honestly, it’s so hard to deal with. I can have an anxiety attack completely out of the blue and it’s scary as fuck. It can mimic all sorts of conditions, I had symptoms like a stroke once, then I felt like I was having a heart attack, sore arm, sore chest etc, then I had intense seizure like movements. All of it was anxiety.
Going to my therapist really helped me to find ways to get through it. When I used to get them I fought it so hard and it lasted for ages but now they only last 10-15 mins at the most and my therapist said over time I should get that number down.
I do hope you can find some treatment because it’s miserable. Do look into therapy though, if anything just do it so you know you’ve tried it all. You need to find the right therapist though, that’s a good start!
Sending my love to you.
Sending love to you, too
ChemicallyEnhanced
Bluelighter
Did he gets the diabeetus?*
Benzo's never did that to me, but alcohol did at first. Like, when I was (sober would be a lie...less drunk) I'd be DISGUSTED by what I'd eaten when seriously intoxicated. That went away after a few months, though. Alcohol is weird like that. For normal people it makes you eat a lot more, but once you alcohol DEPENDANT you pretty much stop eating. LIke when I was drinking a liter of vodka and 3 bottles of wine a day, I literally never ate. I remember occasionally I'd have a couple handfuls of doritos, mostly due to salt cravings, but I could go over a week without eating.
*I have diabetes (not that type) so I can say that
ChemicallyEnhanced
Bluelighter
^one time I ate my friends left over curry (I at least microwaved it) and it tasted kinda weird and minty so I didn't eat much. I mentioned that weird taste to her later and she was like "oh yeah, I stuck my gum in that", so I'd been eating her heated up gum and spit juices 
Or Rice I'd reheat once but a revolting amount of butter
Or Rice I'd reheat once but a revolting amount of butter
Forever Changes
Bluelighter
I've been diagnosed with EDS/hypermobile joints too and I'm a member of EDS UK. I've heard lectures from EDS researchers who are starting to join the dots together that there is a larger spectrum of related conditions that often go hand in hand - hypermobility/autism/Gastro-instestinal issues and of course anxiety and other mental health concerns.
My joint pains have been increasingly seriously impacting my ability to walk in recent years, it's why I was eventually referred to a pain consultant, but she didn't seem to know much about EDS or how to help. She wouldn't prescribe any analgesics - I don't know if that's because she didn't think any would work, or just the general reluctance the NHS has regarding painkillers. Instead she tried a capsacin patch, which unfortunately made no noticable difference
If you're in the UK, I'd advise you to look into getting a private appointment with Dr Hakim at the hyper mobility clinic in London, its around £250 and worth every penny. He can make recommendations to your Dr in regards to medication and what not. He is one of the experts in the field and he is incredibly nice. I have seen him a few times and I also attended a week at the hospital for intensive physio (that cost a lot more money but also worth it).
EDS is a multi systemic syndrome so it does indeed impact everything (to varying degrees). I have gastro issues as well as orthostatic hypotension, the anxiety is down to over production of adrenaline.
Forever Changes
Bluelighter
Thanks, I have heard of Hakim - I think I looked into him but he was on sabbatical or something. I've seen a foot and ankle specialist at UCLH and apparently they have a hypermobility clinic, so if I can get a referral to that, it will be a lot cheaper than privately . But I'll certainly keep Dr. Hakim in mind
axe battler
Bluelight Crew
Benzo munchies make weed seem like a diet pill.
@ChemicallyEnhanced I don't think low dose, every day benzo consumption to be very effective tbh. If you could go with a parent and said they'd look after them, PRN benzo use (probably with lorazepam here as AFAIK alprazolam is only available too private patients.
You would really need to show willing ans try al the SSRIs etc and therapy they'll throw at you.
It also highly depends on the doctor sadly; I've seen some right scallywags picking up their 120ml meth, then be give. Diazepam. I know another lad who's dis used cycle 1 week zopiclone, next weed pregabalin....not sure what that was about. He said it was to prevent addiction.
Bleaney
Bluelighter
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Yeah you're right, for the majority of cases.
What if you've tried CBT therapy and it didn't work though, because it's not set up to work for Autistic people. This is because it tries to invalidate your thoughts and perceptions as inaccurate and faulty, when in fact they are not. I'm not imagining that I'm weird and that people think I'm weird. It is a fact. I've only just grasped what "gaslighting" actually means and unfortunately that is exactly what CBT can do for Autistic people who attempt CBT, if it hasn't been tweaked for Autism. I don't think such a therapy exists, yet, although it really should. There's nof far off a million diagnosed Autistic people in the UK alone with no access to any workable therapies. What a dire situation. However I am still glad that I tried the therapy, I owed it to myself to try it, and at least it was the constant questioning, pusshing, prodding, and probing, as to the reasons why behind everything where what helped me to finally click that I probably have Autism. Many parts of it were so frustrating though, at one point descending into an argument about whether my perceptions were valid or not. But it lead to my Autism diagnosis and I now understand myself a great deal better. *
I have social anxiety off the scale due to the social difficulties my autism causes me. There is nothing to address that, except for benzos which help me massively. Overall My quality and richness of life, and life experiences has increased massively since I discovered benzos. They have allowed me to do things I could not otherwise have done, so socially crippled am I.
I know being pro benzo use isn't conventional wisdom, or what you are supposed to say. But is true in my case. Benzos do work for me when nothing else does and they help me fit in and act normal enough to get along with people and hold down a job etc.. I've managed to keep my doses low by abstaining on certain days. Yes it is difficult to manage, but it can be done.
I am very intrigued about what you meant regarding ruining your medications in the future? Did you mean concerning the prescription of benzos which I understand can sometimes be offered to terminally ill patients who are in great distress about being terminally ill?
THis post has been a bit rushed so I fear I haven't got the tone right, as it's more blunt and direct than I'd ideally like but it contains the main points I wanted to make.
(*I have a pending ADHD assessment coming up too. As if it's not hard enough just to have Autism., I'd have to have ADHD too. At least I strongly suspect that I do. I was 95% sure I had Autism and that turned out correct. I'm 99% sure about my ADHD. If not for likely ADHD I might have been able to benefit from some of the positives of Autism, like the intense focus, but my suspected ADHD generally wipes that out. Autism and ADHD cancel out many aspects of each other but yet they commonly co-occur in 30-70% cases of Autism)
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I actually don’t really rate CBT for the majority of people, have you ever had EDMR therapy?
To clarify what I meant in regards to “ruining your medications for the future”, it is due to tolerance. You build tolerance fast on benzos, they should be last resort and really used PRN. If you spent everyday taking benzos and you’re only 30, what’s going to help you when you’re 50/60? You’ll have no options left in the bank, to put it simply.
I’m not saying finding the therapy that would work for you would be an easy task but there are many types of therapy out there and it’s worth time researching what those are and what could help.
Getting your ADHD diagnosis will definitely be a great starting point and I hope things will fall into place after that.
Also like I mentioned to you before, please do try to find some support groups for those with autism and ADHD. You will find people who’ve been through the same issues you’re having and you might find some really good resources and of course support from people who’ve been there and understand exactly what you’re going through.
Bleaney
Bluelighter
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@MsDiz Thanks for the above.
I have been looking, and I shall continue my search. I do have the ability to focus on things that are of interest to me, or that concern me in some way, and I can be extremely persistent, dogged, and determined when I put my mind to something. So that should put me in good stead, as long as I'm more often directing that attention to things that will be of long term benefit to me, rather than in pursuing too many of the short term fixes that many Bluelight members are very familiar with, too much of the time. I tend to have more self awareness now as to when to put the breaks on, if there are too many 'danger beware' signals of various forms going off in my head.
I have been looking, and I shall continue my search. I do have the ability to focus on things that are of interest to me, or that concern me in some way, and I can be extremely persistent, dogged, and determined when I put my mind to something. So that should put me in good stead, as long as I'm more often directing that attention to things that will be of long term benefit to me, rather than in pursuing too many of the short term fixes that many Bluelight members are very familiar with, too much of the time. I tend to have more self awareness now as to when to put the breaks on, if there are too many 'danger beware' signals of various forms going off in my head.
I know you'll find something eventually just don't give up the search. I believe in ye!
gordonliddy
Bluelighter
Dude I've heard other people say this. I know nothing about it, but I wish that more information was available.
foodcrisis
Bluelighter
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- Jan 2, 2014
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i was on the reddit schizophrenia page and there was a post with adam lanza and like five other people that were mass shooters and it said they were all forced to take meds. i think it's pretty fucked if that's the reason for it, like it wouldn't cross my mind to kill people because of being forced to take meds i'd probably kill myself first if it were that bad i don't really have the heart to kill, BUT i totally get that they found it in themselves to torture other people through their mass shootings because they were being tortured... i find when i'm in the psychward, they will put a person on any meds, but they send me to doctors when i get out they will wean me off the meds and trust me that i don't think i should be takinh them. i've had pretty good experience with the mental health system, but it's just fucked that doctors torture some people and lead them to do such terrible stuff. i hate hearing about shootings all the time now. it's like an every day thing.