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Mental Health Coming off Invega (paliperidone) injections, v 5.0

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Psychiatryisadictatorship said:
Hi, I would like to know if anyone recovered their fitness? I had 6 injections and after 12 months I have not been able to do any strenuous activity, this not being able to do anything other than sit around all day and waste my life away, not being able to do anything without becoming out of breath was an immediate effect of the drug and not something that has progressed with time. I was strong and fit before this, I could run or ride bike for hours if I wanted, now just walking a few steps is a major effort and puts me out of breath. I'm sure I have aged at the cellular level, antipsychotics cause epigentic changes( gene expression changes that turn genes off) , if you change the nerve cells function you affect how the whole body functions. I hope this is reversible, because I'd like to be as fit as I was before these dictators wanted to suppress me.
Click to expand...
It’s weird that you posted this and then posted a couple weeks later that you’re recovered and to hang in there.
 
invegaisgarbo said:
almost 2 years off of invega in 2 months lets get it

yeah I'm recovered I record music everyday and work full time I used to be bed ridden for a good 3 months, I had a really fast recovery, the only thing that I used during recovery was cbd and zoloft
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How many shots?
 
87 days since last injection and I suddenly feel the slight urge to find a job, not sure if it's another window or a sign of good things to come


also did an EEG scan today and as expected no anomalies came out, the only physical issue I have on paper is the high prolactin I checked the other day and hopefully I can get a prescription about it
 
So I'm always on the look out for alternative therapies for you guys to try, that will hopefully help to heal you faster from the side effects of Invega. And I've found something that might be worth trying.

Ice baths.

The study I've attached used water at 14 degrees Celsius (57 degrees F) for the bath. So it's not ICEY, but it's pretty damn cold. I don't think you would particularly benefit from going colder than this. For safety reasons do not immerse in water colder than 5 degrees C (40 degrees F).
You only need to sit in the cold water for a couple of minutes, once a day or even once every few days.
This has been shown to increase dopamine levels by a statistical significance.

This is a natural method that anyone can try at home, it's easy, it's free, and it just takes a few minutes a day. I would be very intrigued to hear if it helps any of you, if anyone is willing to give it a try.

(the info about dopamine is in the Discussion section towards the end of the article)
 
Im not going to try the ice bath idea as im not a fan of the cold. You guys can let me know if it works. It dosnt sound like it would work.

Anyways my sarcosine vitamins came through the mail today. Got 120 pills. Taking 2 a day so will last me 2 months. Some ppl say its good so ill let u know of it works. Any of you try sarcosine?
 
Gdvffh said:
Anyways my sarcosine vitamins came through the mail today. Got 120 pills. Taking 2 a day so will last me 2 months. Some ppl say its good so ill let u know of it works. Any of you try sarcosine?
Click to expand...
Cool that's another thing I'm intrigued to hear about! Keep us updated.
 
Nina2021 said:
I really think I am too damaged. I was bad at 2 and took 6. My family stills thinks I am delusional at what I tell them which makes me really sad. You just took one injection the damage could not be as big. I could never watch Netflix. My family thinks I am depressed and that I need a doctor. It is so heartbreaking. This is the 2nd night not sleeping because my psychiatrist forgot to prescribe me enough pills. I look for help everywhere but I don't find. And my family is my enemy, they blame me for being all day in bed. I would like someone to take me to assisted suicide I am scared they just wanna hurt me more with more medicine
Click to expand...

Do you have a tv in your room or do you share with family? What are your favourite tv shows or movies? I know it's hard but even if you start with just putting on your favourite tv shows or movies that way it's something you know you like & you don't have to take in anything new. Watch them while laying down even if you still feel miserable. I still have to watch tv laying on the couch it sucks because I used to be able to sit & watch & absorb & feel things. I actually have watched all new shows I've never watched before or Charmed which I watched years ago but never watched all of it so some of it it was still kinda new. For almost 2 months after my first proper injection of 75mg (I also had 2 loading doses) which was also my last injection I had very bad restlesness I couldn't even imagine watching tv I just couldn't concentrate on anything I tried to kill myself or thought about it & researched it many days. Then after about 2 months I was finally able to lay there & try to watch tv. I watched the whole series of Gossip Girl. It was still hard but it was better than nothing. Then I watched the whole series of Dawson's Creek. Then Charmed & it got a little better but not much. Then I watched the whole series of Vampire Diaries it got a little better. I even cried a little on the last episode because I was sad it was over. Now I'm watching The Originals & up to the last season. It might even be good for your family to see you trying to watch tv. Or ask to watch something with them & just lay there even though I know it's hard when you can't concentrate or process it.

What season is it where you are? Do you get sunshine? Take some pillows & find a sunny spot & just lay in the sun. You might not feel it but atleast you'll be getting vitamin D & it's better to be laying in the sunshine than laying in bed. It might even help your sleep a little. It would also be good for your family to see you do that.

Can you cut some nice pictures from magazines or print some quotes off to stick on your walls to look at so even if your staring at the walls in bed atleast your looking at something nice. It would also look positive to your family that you're trying.

Have you tried chamomile tea? I know it probably won't do anything but still worth trying. I used to drink it before invega & it used to help me before bed & I still drink it every night now. Have you tried melatonin instead of sleeping pills? Could you get one of those star lamp things which project stars onto the roof I know they're kind of for kids but still would be something to look at. Could you even play some relaxing music? I know it's hard when you can't feel music but it would still be something. And atleast that way you can tell your family & psychiatrist you've tried these things.

What was the date of your last injection? For some reason I thought you were a month or so behind me. I'm 6 & half months off
 
@Nina2021
Also I can't feel proper tiredness or exhaustion & I can't nap. I usually go to bed around 11:30pm or 12 or sometimes a little later. But I can still sleep. It's not a deep restful sleep but I still dream & get about 8 hours sleep. I wake up through out the night but can always get back to sleep. When I was really bad & very restless I used to wake up in the morning have breakfast & then feel like going back to bed because there was no point I didn't feel like I could do anything it was torture. I tried to explain to my family but they didn't understand or care. I would go the bed around 5:30pm to 7:30pm & just lay there for hours staring at the walls wishing I was dead. That lasted for about 2 months then slowly started to improve. I'd say I'm about 40-50% recovered. I can do a bit of exercise but have lost motivation lately because I'm still putting on weight. I can watch tv/movies although I still have anhedonia & can't fully enjoy them but it passes the time & some days I even binge watch tv. But I have to be laying down.
I can only shower every second day which sounds gross. I used to shower everyday or twice a day before invega but I just don't have the energy to do it every day & get no joy out of it.
I do work from home which passes the time & I really like my job & love knowing I'm earning money. And I get a little bit of joy from food again but still can't feel coffee. I also get a little joy online shopping buying things for myself & my cats. That's why I suggested putting up some nice things on your wall because it does help. I like looking around at the nice things I've bought & all the things my cats have I even bought some fake vines to wrap around their new giant cat tree & some fake plants. I bought some nice new bedding. I bought a whole lot of gluten/dairy free chocolate bars that I like & bought a nice box to put them in as silly as that sounds.
I still have anhedonia when I listen to music but some nights I still listen to music & it helps a little. It's like I can remember how I used to feel listening to it or how I know I should feel but still feel numb.
Have you tried magnesium for sleep? Try taking the highest recommended dose. I take 2 tablets a day although I've been really bad at remembering or bothering lately but really want to start taking it everyday & taking the maximum amount.
From what I've read some of the people that recovered kept doing things until one day they finally felt them. And with the progress I've made it's kind of been the same where it's gradual & all of a sudden you kind of just realise you've gotten a little better
 
Gdvffh said:
Im not going to try the ice bath idea as im not a fan of the cold. You guys can let me know if it works. It dosnt sound like it would work.

Anyways my sarcosine vitamins came through the mail today. Got 120 pills. Taking 2 a day so will last me 2 months. Some ppl say its good so ill let u know of it works. Any of you try sarcosine?
Click to expand...
It works, I was doing cold showers around 9C temperature for 1 month but now I am stopping because it causes back issues for me.
 
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lau_rahxo said:
Do you have a tv in your room or do you share with family? What are your favourite tv shows or movies? I know it's hard but even if you start with just putting on your favourite tv shows or movies that way it's something you know you like & you don't have to take in anything new. Watch them while laying down even if you still feel miserable. I still have to watch tv laying on the couch it sucks because I used to be able to sit & watch & absorb & feel things. I actually have watched all new shows I've never watched before or Charmed which I watched years ago but never watched all of it so some of it it was still kinda new. For almost 2 months after my first proper injection of 75mg (I also had 2 loading doses) which was also my last injection I had very bad restlesness I couldn't even imagine watching tv I just couldn't concentrate on anything I tried to kill myself or thought about it & researched it many days. Then after about 2 months I was finally able to lay there & try to watch tv. I watched the whole series of Gossip Girl. It was still hard but it was better than nothing. Then I watched the whole series of Dawson's Creek. Then Charmed & it got a little better but not much. Then I watched the whole series of Vampire Diaries it got a little better. I even cried a little on the last episode because I was sad it was over. Now I'm watching The Originals & up to the last season. It might even be good for your family to see you trying to watch tv. Or ask to watch something with them & just lay there even though I know it's hard when you can't concentrate or process it.

What season is it where you are? Do you get sunshine? Take some pillows & find a sunny spot & just lay in the sun. You might not feel it but atleast you'll be getting vitamin D & it's better to be laying in the sunshine than laying in bed. It might even help your sleep a little. It would also be good for your family to see you do that.

Can you cut some nice pictures from magazines or print some quotes off to stick on your walls to look at so even if your staring at the walls in bed atleast your looking at something nice. It would also look positive to your family that you're trying.

Have you tried chamomile tea? I know it probably won't do anything but still worth trying. I used to drink it before invega & it used to help me before bed & I still drink it every night now. Have you tried melatonin instead of sleeping pills? Could you get one of those star lamp things which project stars onto the roof I know they're kind of for kids but still would be something to look at. Could you even play some relaxing music? I know it's hard when you can't feel music but it would still be something. And atleast that way you can tell your family & psychiatrist you've tried these things.

What was the date of your last injection? For some reason I thought you were a month or so behind me. I'm 6 & half months off
Click to expand...
Thanks for the support but I can really watch nothing. It is too painful. I am not recovering. The opposite. Now I cannot sleep at all. I had tried camomile and melatonine. They didn't work. There is nothing that I can do more than at the beginning unfortunately It is really horrible. I got too many injections. My family still thinks it was a good idea I got 2 loading doses +100+3x75. It has been 7 months and 3 days.
 
Nina2021 said:
Thanks for the support but I can really watch nothing. It is too painful. I am not recovering. The opposite. Now I cannot sleep at all. I had tried camomile and melatonine. They didn't work. There is nothing that I can do more than at the beginning unfortunately It is really horrible. I got too many injections. My family still thinks it was a good idea I got 2 loading doses +100+3x75. It has been 7 months and 3 days.
Click to expand...
Your story sounds similar to @Mick04-s, she now notices a big difference but isn't recovered. Almost all invega sufferers are recovering very slowly that it's hard to notice progress. But at 8-10 months off you should notice some good differences.
 
lau_rahxo said:
@Nina2021
Also I can't feel proper tiredness or exhaustion & I can't nap. I usually go to bed around 11:30pm or 12 or sometimes a little later. But I can still sleep. It's not a deep restful sleep but I still dream & get about 8 hours sleep. I wake up through out the night but can always get back to sleep. When I was really bad & very restless I used to wake up in the morning have breakfast & then feel like going back to bed because there was no point I didn't feel like I could do anything it was torture. I tried to explain to my family but they didn't understand or care. I would go the bed around 5:30pm to 7:30pm & just lay there for hours staring at the walls wishing I was dead. That lasted for about 2 months then slowly started to improve. I'd say I'm about 40-50% recovered. I can do a bit of exercise but have lost motivation lately because I'm still putting on weight. I can watch tv/movies although I still have anhedonia & can't fully enjoy them but it passes the time & some days I even binge watch tv. But I have to be laying down.
I can only shower every second day which sounds gross. I used to shower everyday or twice a day before invega but I just don't have the energy to do it every day & get no joy out of it.
I do work from home which passes the time & I really like my job & love knowing I'm earning money. And I get a little bit of joy from food again but still can't feel coffee. I also get a little joy online shopping buying things for myself & my cats. That's why I suggested putting up some nice things on your wall because it does help. I like looking around at the nice things I've bought & all the things my cats have I even bought some fake vines to wrap around their new giant cat tree & some fake plants. I bought some nice new bedding. I bought a whole lot of gluten/dairy free chocolate bars that I like & bought a nice box to put them in as silly as that sounds.
I still have anhedonia when I listen to music but some nights I still listen to music & it helps a little. It's like I can remember how I used to feel listening to it or how I know I should feel but still feel numb.
Have you tried magnesium for sleep? Try taking the highest recommended dose. I take 2 tablets a day although I've been really bad at remembering or bothering lately but really want to start taking it everyday & taking the maximum amount.
From what I've read some of the people that recovered kept doing things until one day they finally felt them. And with the progress I've made it's kind of been the same where it's gradual & all of a sudden you kind of just realise you've gotten a little better
Click to expand...
I can really not. I was feeling already bad with 2 shots and the 4th really killed my sleep and I still took 2 more. I am really not recovering. I think recovery has a lot to do with sleeping and I can not sleep at all
 
t_xeplionhell said:
Your story sounds similar to @Mick04-s, she now notices a big difference but isn't recovered. Almost all invega sufferers are recovering very slowly that it's hard to notice progress. But at 8-10 months off you should notice some good differences.
Click to expand...
I think I am not recovering at all because I don't sleep. I am passed the 7th month it should get better but it is not. The pills don't even work anymore
 
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