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  • TDS Moderators: AlphaMethylPhenyl | paranoid android

Mental Health Coming off Invega (paliperidone) injections, v 5.0

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Stormrage said:
I was, but I would advise you to pray a lot. Ask God for help, it always works for me. Alhemdullilah. We have a saying, as muslims, that prayers can change the tides of a battle... And they can also change your life and hasten recovery...

*Just my 2 cents on the matter, ty for listening...
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I've been praying to make the nights shorter but nothing. If it works for you so well please include me in your prayers. I do need it.
 
I'm really struggling with weight gain at 6 & half months off. I'm still putting on up to 1.5kg a week. I'm eating less than I used to I only have a coffee & healthy smoothie for breakfast then wait til 12 to eat a chicken salad for lunch. I try to drink lots of water. I've stopped exercising because I found it hard not to feel defeated since I was still putting on weight. I've read people say they lost weight around the 6 month mark but I'm starting to feel completely hopeless about ever losing weight. It's so frustrating because I should atleast no longer be putting on weight especially so much. Fair enough if I have to work to lose the weight but I just don't understand why it won't stop. My biggest struggle with recovery now is my weight & my appearance. I wouldn't even care so much about the anhedonia & everything else if I could just look like myself again. I'm hiding away & missing out on life because I look so hideous now. I don't even want my friends to see my like this. I literally hardly ever leave the house except for maybe once every 6 or 7 weeks to get my haircut. But even my hair is still horrible & I'm losing hope it will go back to the way it used to. The hardest part is dealing with the weight on my face & chin I have a really horrible noticeable double chin now I used to have almost no fat on my chin & a nice defined jawline. My cheeks are fat & my face is twice the size it used to be. I look obese now & my face looks like that of an obese person. I used to be 51-53kg. I'm scared about how much more weight I'm going to put on. I just don't understand why it won't atleast stop.
I got my prolactin levels checked again on Thursday. They're down to 828 although I did the test fasting & the woman even said to me you don't need to fast for prolactin which means my levels would be higher because one time I tested them with out fasting & they had only gone down 82 in 6 weeks whereas before that they had gone down 500. The next test I did they had gone down around 400 but that was fasting.
I also got my second period since invega on Thursday morning. It took almost 3 months for me to get my second period.
Anyway, I've put on 25kg now because of invega. Anyone who had lost weight what month did you stop putting on the weight?
 
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lau_rahxo said:
I'm really struggling with weight gain at 6 & half months off. I'm still putting on up to 1.5kg a week. I'm eating less than I used to I only have a coffee & healthy smoothie for breakfast then wait til 12 to eat a chicken salad for lunch. I try to drink lots of water. I've stopped exercising because I found it hard not to feel defeated since I was still putting on weight. I've read people say they lost weight around the 6 month mark but I'm starting to feel completely hopeless about ever losing weight. It's so frustrating because I should atleast no longer be putting on weight especially so much. Fair enough if I have to work to lose the weight but I just don't understand why it won't stop. My biggest struggle with recovery now is my weight & my appearance. I wouldn't even care so much about the anhedonia & everything else if I could just look like myself again. I'm hiding away & missing out on life because I look so hideous now. I don't even want my friends to see my like this. I literally hardly ever leave the house except for maybe once every 6 or 7 weeks to get my haircut. But even my hair is still horrible & I'm losing hope it will go back to the way it used to. The hardest part is dealing with the weight on my face & chin I have a really horrible noticeable double chin now I used to have almost no fat on my chin & a nice defined jawline. My cheeks are fat & my face is twice the size it used to be. I look obese now & my face looks like that of an obese person. I used to be 51-53kg. I'm scared about how much more weight I'm going to put on. I just don't understand why it won't atleast stop.
I got my prolactin levels checked again on Thursday. They're down to 828 although I did the test fasting & the woman even said to me you don't need to fast for prolactin which means my levels would be higher because one time I tested them with out fasting & they had only gone down 82 in 6 weeks whereas before that they had gone down 500. The next test I did they had gone down around 400 but that was fasting.
I also got my second period since invega on Thursday morning. It took almost 3 months for me to get my second period.
Anyway, I've put on 25kg now because of invega. Anyone who had lost weight what month did you stop putting on the weight?
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I'm sorry personally after 1 year I didn't lose weight either by eating little or normally. I have improved a little but I am afraid of being permanently damaged. I think I'm one of the few who took this shit
 
MatteM92 said:
Mi dispiace personalmente dopo 1 anno di non aver perso peso né mangiando poco né normalmente. Sono leggermente migliorato ma temo di essere danneggiato in modo permanente. Penso di essere uno dei pochi che ha preso questa merda
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Il mio prolactine is 0.8. Tnks dostinex cabergoline
 
lau_rahxo said:
I'm really struggling with weight gain at 6 & half months off. I'm still putting on up to 1.5kg a week. I'm eating less than I used to I only have a coffee & healthy smoothie for breakfast then wait til 12 to eat a chicken salad for lunch. I try to drink lots of water. I've stopped exercising because I found it hard not to feel defeated since I was still putting on weight. I've read people say they lost weight around the 6 month mark but I'm starting to feel completely hopeless about ever losing weight. It's so frustrating because I should atleast no longer be putting on weight especially so much. Fair enough if I have to work to lose the weight but I just don't understand why it won't stop. My biggest struggle with recovery now is my weight & my appearance. I wouldn't even care so much about the anhedonia & everything else if I could just look like myself again. I'm hiding away & missing out on life because I look so hideous now. I don't even want my friends to see my like this. I literally hardly ever leave the house except for maybe once every 6 or 7 weeks to get my haircut. But even my hair is still horrible & I'm losing hope it will go back to the way it used to. The hardest part is dealing with the weight on my face & chin I have a really horrible noticeable double chin now I used to have almost no fat on my chin & a nice defined jawline. My cheeks are fat & my face is twice the size it used to be. I look obese now & my face looks like that of an obese person. I used to be 51-53kg. I'm scared about how much more weight I'm going to put on. I just don't understand why it won't atleast stop.
I got my prolactin levels checked again on Thursday. They're down to 828 although I did the test fasting & the woman even said to me you don't need to fast for prolactin which means my levels would be higher because one time I tested them with out fasting & they had only gone down 82 in 6 weeks whereas before that they had gone down 500. The next test I did they had gone down around 400 but that was fasting.
I also got my second period since invega on Thursday morning. It took almost 3 months for me to get my second period.
Anyway, I've put on 25kg now because of invega. Anyone who had lost weight what month did you stop putting on the weight?
Click to expand...
I stopped at 6th month but I didn't get much weight. Maybe because I don't sleep. I have like 3 kg more. All in my belly though. The fat doesn't really distribute well.
 
Troubil said:
Invega sucks, we all know that. Ive taken 7 shots because I refused all medication under sectioning and thankfully Ive kept really active. Every day I go out exercising in some activity. My life is not the same, my football ability is much lower, my strength is lower, my mental cognition is lower. I make a point of getting outside every day, once you surrender to this medication you may never recover. Somedays, like today I get breakthroughs where I feel like my old cocky self again, this is a few times it has happened. Im am registered to do a software testing course and tiling course in september. I feel like I have to make effort to beat this thing, being idle is the enemy of recovery. I want to metabolize this stuff right out of my body and I believe exercise and nature play the important role in succeeding. I get my last 25mg shot on monday, then its fasting, zeolite detox, exercise and love all the way to recovery. Best of luck to everyone.
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I can't exercise because of neck issues. I can only walk.
 
Troubil said:
I sleep because I use High dose melatonin even then my sleep is disturbed. Most days I go out im tired, I live alone so I have to make an effort to go out. My marriage ended recently too. I have every reason to go under but ill try to survive and thrive as best I can.
I'll do intermittent fasting until I recover, followed by a detox protocol.
Exercise at your own speed, keeping up with others is just too difficult on invega.
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What do you consider exercise.
i was doing 10-15mile walks daily at first 6 months and now 5-10miles.
I was exercising for 3 months doing 20-30 pushups daily, 20 body rows. Before invega I used to do heavy workouts with up to 30 pullups and 30 chinups, 100-150 pushups.
 
n3ophy7e said:
Negative symptoms can be brought on by a psychotic break or by medications. It is thought that negative symptoms are caused by a decrease in dopamine in the cortical and mesocortical pathways in the brain (see https://www.frontiersin.org/articles/10.3389/fnins.2021.641047/full#B44 )
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I definitely have a decrease in dopamine in the cortical and mesocortical pathways in the brain but my psychiatrist would never admitted she just continues to give me Risperdal 6mg.it is all so wrong. They are really killing me with the sleep.
My family doesn't want to admit that the meds do damage though they have seen me with 2 shots and with 6 and they know before the 2 shots I was sleeping very well. People believe what they want to believe and it has ended up killing me and leaving me alone
 
Stormrage said:
As a survivor of Invega Sustenna poison for one year or even more, I can tell you it does get better, guys... No anhedonia for me anymore, nor any restlessness, akathesia, etc... Like I was before...

Except for the fact that I am taking Haldol injections for some reason, which has impaired my ability to excersize and function, as well as in reading... But that is something to discuss on another day. Hang in there, guys... It does get better.
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Such comments just make me more pesimistic about trusting people when they say they recovered, because you can't have no anhedonia when you are taking haldol injections.
 
Today I read an article in which they said that there should be applied the principle of not giving neuroleptics in a first case of psychosis. They have done all wrong with me. I was totally fine before the episode

My family can not stop believing in the meds to the point of saying I have psychosis to xeplion when what I don't have is dopamina because of xeplion. They would hospitalize me and give me more meds. I am trapped
 
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Dreeery said:
Are the so-called negative symptoms really caused by a psychotic break or by medication?
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Negative symptoms are a big pharma lie. Only thing you can get from those "negative symptoms" after psyhosis is depression which is not even close to invega induced chemical lobotomy. Example of depression induced by psyhosis: you realise all was fake about your delusion and then you can be depressed. I never had psyhosis and many people got invega for bipolar or unipolar conditions which don't have psyhosis and still got all "negative symptoms" from invega or similar antipsyhotics. Negative symptoms are invented as self protection mechanism for big pharma because they know people who get treated with their meds they get all those negative symptoms (sooner or later) so they say it's not from their meds. Some pdocs even perscribe antipsyhotics for insomnia which makes no sense, and lot of such people report with having all negative symptoms after few weeks or months of use.
 
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t_xeplionhell said:
What do you consider exercise.
i was doing 10-15mile walks daily at first 6 months and now 5-10miles.
I was exercising for 3 months doing 20-30 pushups daily, 20 body rows. Before invega I used to do heavy workouts with up to 30 pullups and 30 chinups, 100-150 pushups.
Click to expand...
it is very difficult to do pre-invega level workouts. if you get to around 60-70% pre invega levels you are doing well. do either

walking
running
sports
cycling
gym - weights

but get outside everyday if you can, being in nature really helps.
 
t_xeplionhell said:
Such comments just make me more pesimistic about trusting people when they say they recovered, because you can't have no anhedonia when you are taking haldol injections.
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Well, I don't 🤷 thank God for that; I guess my body just adapted to the invega and since then it has gotten a lot better... 0% anhedonia right now.

Plus not everyone has the same medication side-effects on these drugs, maybe I just got lucky :) thank God for that, again.
 
Dreeery said:
Are the so-called negative symptoms really caused by a psychotic break or by medication?
Click to expand...
n3ophy7e said:
Negative symptoms can be brought on by a psychotic break or by medications. It is thought that negative symptoms are caused by a decrease in dopamine in the cortical and mesocortical pathways in the brain (see https://www.frontiersin.org/articles/10.3389/fnins.2021.641047/full#B44 )
Click to expand...
t_xeplionhell said:
Negative symptoms are a big pharma lie. Only thing you can get from those "negative symptoms" after psyhosis is depression which is not even close to invega induced chemical lobotomy. Example of depression induced by psyhosis: you realise all was fake about your delusion and then you can be depressed. I never had psyhosis and many people got invega for bipolar or unipolar conditions which don't have psyhosis and still got all "negative symptoms" from invega or similar antipsyhotics. Negative symptoms are invented as self protection mechanism for big pharma because they know people who get treated with their meds they get all those negative symptoms (sooner or later) so they say it's not from their meds. Some pdocs even perscribe antipsyhotics for insomnia which makes no sense, and lot of such people report with having all negative symptoms after few weeks or months of use.
Click to expand...
Ahhh okay. I think we may have a bit of a confusion here.

@Dreeery did you mean the negative symptoms in the classical sense, negative as in the taking away of something e.g. anhedonia (taking away pleasure), social isolation (taking away socialisation), depression (taking away positive mood), etc.

Or did you mean negative symptoms as in bad side effects of the medications? Because I think @t_xeplionhell that's what you're talking about??

Either way, no they are most definitely not big pharma lies. They are definitely real symptoms that people experience. I'm not sure that I understand how you mean that they are a lie @t_xeplionhell
 
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