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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

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Glad to hear rtp atleast you got a test done and the test confirmed your numb feelings you have. Meaning that it's for real and not just some figment of imagination.. Hahaha..
When do you get the results back tho? You should keep us posted I'm super curios as to what the problem might be? It's sorta weird territory hey? Just think if you didn't nodd out in front of that darn car !?! Hey rtp? You should lay off the buprenorphine..

But seriously all jokes aside I don't think it will be anything serious though keep well mate
S
 
Runtoparadise,
So glad you had your test. When I had mine for my legs and foot (my ankle went numb, out on me and I fell down the stairs two years ago), they were testing to see which nerves are impinged. Then they can determine which disks are pushing on the nerves. Hopefully they can pinpoint which disks in your neck are pinching nerves, and hopefully do a laminectomy to shave off the bit of disk protruding out. Just my theory.

Hope le everyone is safe and warm. I have a snow day!! I swear, us teachers get more excited than the kids.:D
 
Ive been using small bumps of heroin for pain relief. But someone told me to switch to Oxys for safety bc getting new batches of heroin is unsafe. So I got these APO Oxy 80's. I cut a small piece off of one of the 80's and did a couple small bumps. Felt nothing. then did a couple more a few hours later. Felt nothing. Then the next day I did some bigger bumps. Felt nothing.

Do I really have to grind and snort one whole quarter of the pill at once ? That's not a small bump. Ugggggg so frustrating

Are fake Oxy 80's green on the inside and out or are fakes white on the inside ?
 
^Swallow your crushed up/chewed up pills you'll get some 30-50% more from your Roxy.

Hey Pain Pals, sounds like we've all got shit going on whether it be tests trials, or rocking out and twisting dials.

If we can agree on a tempo and tuning etc, I would be more than happy to write drums for you guys and put a mix together. So Shroomy could send me some rhythm & Bass or just rhythm, I'll add the bass and drums then send it off to Closeau for a face melting solo - And I can lay down some vocals! Pain-Rock = POCK.....kill me now, but everything else is doable.

RTP - Hope they find a solution...I've had numb middle and ring finger on my right hand and funnily enough I have a patch of numb skin, circular bout 2 inches diameter on my forehead - Like WTF is that Doc? Seems to think it's my neck, and I've developed a seriously painful condition that is probably referred from my lumbar/sacrum are where i can barely stand with out the big 9-10/10 pass out pain.....It's by far the worst most painful condition I was yet to experience....it's a legit reason to catch monstrous H habit - maybe methadone. I won't be putting up with this for too long before I have to make (mis)guided decision!!!! No threats just gotta plan my survival!

Shout outs to all my regs, you guys ad Gals rock - Welcome aboard to any new posters here whether you're new to BL or not.

Hugz and Drugz folks. <3
 
I would be SO impressed if we could put together a song online! I can do vocals and some lyrics, too. My husband has both an acoustic and electric guitar. Let's rock, pain people!

Man, I sound old.
 
Yeah, and all I'm left with atm is air guitar :/

Just want my fucking right hand back ok god? Or whoever runs this show!

The complete numbness in the morning is ok, but by mid morn the inside of my elbow aches & pains run up the inside & outside of my upper arm to my bone at the back of my shoulder near my neck.

Sorry for the sook, it's been a month now & I know I'll get answers mon or tues as to what's wrong & what needs to be done, but now I'm getting RSI in my left hand from overuse too!!

Thank god. ( I'm actually not a god lover, just a turn of phrase), I'll soon have an answer and a plan!!!

Rtp
 
Well I'm very disappointed and upset that my nerve conduction test apparently came back normal. Though I've been told that about imaging results previously & then discovered that's incorrect.

My neurologist is on leave til Monday, & booked up for some time,-but his secretary's going to try to squeeze me in ASAP.

Apparently that's the most basic test, there's others including one with needles, MRIs, nuclear scans. So I'm not out of options yet.

I'm off to see a new physio as I was out to lunch with a friend and couldn't even hold my hamburger,- she had to cut it up for me. At her urging I'm off in a few moments to see if he can help.

Rtp
 
I dunno RTP, with enough numbness I could see you somersault with your crutches right into the mosh pit of our rock group - we need a name lo. Aw fuck I feel for you RTP, the numbness in my right arm now includes my forearm, thumb and index finger to add to my previous numbness onset in the middle and ring finger. Either my back is becoming a real train wreck (highly likely) or it's medication related....sux either way. I've become a little more than a little attached to benzos since my switch to subs - 32-40mgs doesn't do anything different from half the amounts - medicinally opiate wise my options & receptors are shot. So I'm using benzos to make me care less about the pain......it's the wrong road which I will have to take the slow lane on and then detour to fucksville.

Should be great. Yay. Rock on pain pals!
 
^ive had to ditch the crutches or just use one as with the numbness & pain I couldn't possibly weight bear on my right hand/arm.

The physio I finally got in with, after googling and around 20 calls later are actually a big group. They claim to be the largest, best, most comprehensive etc in regional victoria.

He was lovely, but after hearing about my long history as a cpp as well as new symptoms from the car accident has referred me on to a colleague next week to specialises in chronic pain and acute. I stressed to him I'm covered by TAC for his services & made sure he was aware this was not a pre-existing complication.

He used some sort of cream and rubbed around the right shoulder, shoulder blade & neck. Very lightly though as he didn't want to exacerbate my symptoms.

He said to try to use my hand for things that, say, cause a 4/10 on the pain scale but not to go past that point. He asked me about driving, it's only just possible, but I have to start the ignition with my left hand then get in. Fortunately I have two companies currently funding cabs. One just to and back medical appts, the other for anything I like. Otherwise I'd be pretty much housebound!

I know on all the ct scans etc I'd had back in august last year there were new (to me), disc issues in my cervical spine but they we're put down as degenerative or arthritic changes, not trauma from being hit by a vehicle.

SKR, I don't think meds could cause (we're basically on the same I'm pretty sure, are u still taking lyrica?) what we both appear to be experiencing.

Do you have pain too? Nearly a month ago when I last saw my neuro I had no pain in my hand.

Gradually it's progressed from pins & needles in my fingers & a numb hand to pain mainly along the outside of my thumb through the fleshy part of my hand and palm, up my arm & shoulder, now halfway up the back of my skull!

Ice is the only thing that gives much relief.

Take care y'all. Btw was anyone in private contact with Dixi? She had so much to say, did I read she was going in for an OP?

Rtp
 
Hi Runtoparadise. I cant relate to your medical issues just wanted to say i feel fir you. Living with that must be terrible. Just know you have support out here. Hang tough?
 
In this election season...the opioid epidemic hysteria is huge. I've never seen it this big. Prescription opioids are being blamed for heroin addiction. I think its more likely due to the huge amounts of heroin pouring into the US.

Make no mistake, there are ARMIES of people out there advocating for reduced access to prescription opioids. I went on twitter and it was just fucking scary to see how many people want to ban opiate prescriptions for chronic pain (none of the MDs though). Cancer patients would be the only ppl that can have them...somehow cancer patients deserve sympathy while CP patients dont....its insane logic. Physical therapists are going really hard against opioid prescribing for some reason. Theyre all really fucking fit running 5Ks and snowboarding then get on twitter and advocate for crippled people to not get
medicine, its really upsetting.

There are some groups advocating on behalf of CP patients but the balance is against us and our voice is barely heard among the greater cry against opioids for chronic pain. There are organizations saying that opioids are not effective for long term chronic pain.

the CDC and now FDA are advocating for reduced opioid access. This is very fucking scary people. Before you know it you will be spending every cent you make on dangerous heroin because you can't get medication anymore.

I have been trying to get involved in pain patient advocacy and joined all the organiziiations but what good does joining an organization do? I feel like I'm not doing anything. I did write to ten of my state representatives about this and got one reply back from a republican shockingly. It was a positive response and he said that he has been fighting against this for a few years on behalf of people with chronic pain that have started losing their meds.

I know you are all in pain, but you need to fight somehow, do not be ashamed that you take opioids. This is part of the problem they stigmatize us so much that we don't even speak up for ourselves. there is nothing to be ashamed of...please write letters to your elected officials and pour your heart out to them, the more peolpe do this the more they will realize there is another side to the coin in this opioid crisis.
 
Thanks Closeau, it really means a lot when someone on this forum says they can understand. Because I know they would.

Much more than ppl in the real world who attempt to empathise and placate me by saying how painful & difficult it must be for me, they've got no F'n idea!

Thanks also to the many others for their kind words over the weeks. (Well, always really, but this is an especially tough time).

I'll be calling my neuros rms first thing in the morning, he'll finally be back from leave!!

I know he's quite booked up, but as I mentioned his receptionist is going to try to fit me in as quickly as she's able. He's also a very kind as well as clever dr (can't say that about many drs IME anyway), so if at first I can't get in urgently, I'll call every day & make sure I'm also on his cancellation list.

I travel to see another dr quite frequently, which I'll be doing Tuesday. She's also a clever cookie so she may refer me on as she appears to be on a first name basis with many of the top specialists in her city. (My states capital).

Just seeking an answer. Even one of my friends has asked me if I'm prepared for the fact that there may not be one? & that I might have to learn to live with this?

I highly doubt that's the case, esp after the physio session. I feel it's coming from my neck.

Sending good vibes on this valentines day

Rtp❤️
 
Hello everyone,

I was hoping to get a question or two answered about pain management. I do not intend this to be sourcing , if it is I apologize. I had a back operation on L5-S1 and I have not been the same since. I am 35 years old and have been in pain management for 5 years. Yesterday , I went to my appointment and there was a sign on the door that said there was an emergency and that the office was closed. Phone has been disconnected as well. I heard this happened 3 weeks ago so I'm almost positive my PM Doctor is done. I'm not really sure where to go from here. I didn't have to do much searching for this doctor as he was referred to me. Now im starting this search from scratch. I was getting 30mg oxycodone 3x a day and 60mg OxyContin 2x per day. i know you can call any pain management place but how they treat you is a different story. Do pain management doctors generally have free consultations So I can get a feel for the treatment I will be given? I have been through everything and the pain meds give me relief. I also do ok with the injections but they don't help to much. I'm not sure I will ever get my chart/info from this doc so I don't know if that is a Problem as well. I know this has happened to a lot of people and it sucks. You get left last minute without any type of notice or a plan. I feel like I had more questions an hour ago. Maybe I will remember what I wanted to ask a little later.
 
That's terrible

ScoobySnax30 said:
Hello everyone,

I was hoping to get a question or two answered about pain management. I do not intend this to be sourcing , if it is I apologize. I had a back operation on L5-S1 and I have not been the same since. I am 35 years old and have been in pain management for 5 years. Yesterday , I went to my appointment and there was a sign on the door that said there was an emergency and that the office was closed. Phone has been disconnected as well. I heard this happened 3 weeks ago so I'm almost positive my PM Doctor is done. I'm not really sure where to go from here. I didn't have to do much searching for this doctor as he was referred to me. Now im starting this search from scratch. I was getting 30mg oxycodone 3x a day and 60mg OxyContin 2x per day. i know you can call any pain management place but how they treat you is a different story. Do pain management doctors generally have free consultations So I can get a feel for the treatment I will be given? I have been through everything and the pain meds give me relief. I also do ok with the injections but they don't help to much. I'm not sure I will ever get my chart/info from this doc so I don't know if that is a Problem as well. I know this has happened to a lot of people and it sucks. You get left last minute without any type of notice or a plan. I feel like I had more questions an hour ago. Maybe I will remember what I wanted to ask a little later.
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Hi Scooby,

That sucks. I feel for you. My advice is to get a referral from your primary care, if you have one. That's where I go, and that way, I know my place is legit. If you don't have a primary care, go to the ER in the meantime; if you go to the same places with your insurance, they should be able to see everything. Do you have the bottles from your prescriptions? I would bring those to your next appointment.

Best of luck.
 
So, I am going to ask a couple questions that may have been asked before (sorry)...
first, how much ibuprofen does one have to take in order to overdose? My doctors have been having me take 800mg every 8 hours, and supposed to only take it for 3-5 days, but I keep not taking it every 8 hours so it's been quite longer.

Other question....for chronic pain relief, what are non-opiate options? I have a lot of painful conditions and my doctors have said in order to prevent me from ever having to go to the er for pain management, I should take pain medicine to keep my inflammation at bay. I am just curious of my options before I see the doctor, as that is weeks away and I hate not knowing side effects and such. I am also worried about tolerance levels. Not sure if it matters, but one time I took like 28 500-mg pills of ibuprofen when I was 14. Evidently my body's fine from it? idk.
 
Hard to really control chronic pain without pain meds. I wish i had idea but i dont know about herbal stuff just Tylenol. I know some people have success with Kratom. Their like bali red or something red or white might help you pain. Very opiate like effects with that. I appauded your searching options. Pain pills are a big step. Once your on, your on. Hard as hell to get off. Im personally going theu horrible withdrawl. All day yesterday and last night and this morning. My bones ache. Very painful. 3 hrs til my suboxone. If i could just feel normal. Every sec seems like a min. As people know here i got off opites to smoke weed but a much more personal reason. I just forgot how bad this hurts. Dread. Hopefully the subs will work. She gave me 15 4's. Real fast detox and get off before im hooked on sub. I just wanna feel normal again.n So these are the things pne must consider before taking opiates. Im gonna hate if something happens and i need that shit again. Long journey with anything. Good luck to you.
 
^dude, so sorry to hear you're going through wds. Thankfully I haven't had to worry about such things in months!!

Feel better when you start subs, & if the quick induction & then taper is what you feel is best, all the more power to you mate!

Best of luck,

Rtp
 
Hi pain people!

Been a while since I've posted.
It's now been over a year since my back issues started and I had to stop working.

A quick rundown on my situation: Jan 2015 started getting back pain, was told it was from bone spurs on my t10/t11 vertebrae and might get better with time. Physiotherapist has told me I've also got bulging discs in my lumbar region as well. Saw a spinal specialist in August, who advised that on top of the spurs and the bulging discs I've also got a partially collapsed disc at t10/11 and something was going on with my lower back but he didn't specify what.

I'm still on the same medication schedule that I've been on for the last year. 10/5 targin in the morning, 5/2.5 targin at around 3-4 and zaldiar (37.5mg tramadol) 2-3 times a day.

It's really starting to be less effective than it should be, waking up in pain at 3-4am, and my morning dose which I try not to take until at least 6am wearing off by 2pm..

I would have been comfortable asking my old GP to increase my medication a little but she's left the practice (and the country for that matter) and my new gp is very hesitant because I'm "so young" and I have a feeling she's going to make me wait until I've been to the persistent pain clinic that she's supposed to be referring me to when ever that may be.

I feel like I'm really unlucky with non opiate alternatives for pain management and that's one of the reasons she seems like she doesn't want to change anything.

I ended up in hospital on lyrica as I had a bit of reaction to it, rash and my sinuses were that inflamed I was having problems breathing normally and swallowing, apparently it can make chronic sinusitis worse.. Ended up with suicidal thoughts on endep, and I tend to react poorly to most SSRI treatment (rapid cycling bipolar, no thanks!)

I really feel like I've lost so much of who I am over the last year, half the time I'm lucky to be able to string together a coherent conversation!
 
Greetings brothers and sisters. My chronic pain issue is Polyneuropathy. Lots of symptoms from burning pain to numbness and several others. I was wondering if any others with this nasty disease are having good success with their methods and meds. What works for you? I'm currently on Gabapentin and Oxycodone along with some topical creams. The thing that helps most is the Oxy but I'm kind of worried about tolerance and addiction and new laws prohibiting docs from prescribing them, so I'm wondering if there is something I'm missing???
 
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