• 💊 OTHER DRUGS 💊 Welcome Guest
    Posting Rules Bluelight Rules
    Notable Threads 1 Notable Threads 2
    Dangerous Combos Addiction Support
    Emergency Services Benzo Guide v.1
    Addiction Stories Scary Case Studies
    Biology, Pharmacology & Drugs 101
  • Select Your Topic Then Scroll Down
    Alcohol Bupe Benzos
    Cocaine Heroin Opioids
    RCs Stimulants Misc
    Harm Reduction All Topics Gabapentinoids
    Tired of your habit? Struggling to cope?
    Want to regain control or get sober?
    Visit our Recovery Support Forums

Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

Status
Not open for further replies.
^Hey, welcome. I have a central neuropathic pain sydrome that I have have had & have known many ppl to be admitted for ketamine infusions for. Whether it helps is really an individual response though.

In regards to the burning & numbness,- after suffering chronic pain for almost a decade, I now have burning/ pins & needles / numbness in my dominant hand. This is likely a result of of a more recent acute incident.

Lignocaine infusions may also be something you could look into. As is switching from Gabapentin to lyrica for a two or three mth trial to see if you benefit.

Cheers,

Rtp
 
Chatty gal, huh? lol =D

Thanks for asking about me, guys 'n gals. You're correct, RTP...not great news. GI team diagnosed small bowel obstruction and hiatal hernia, as if I needed more problems on my punch list.

As I remain awake way past bedtime (worried) I am sipping on my second pint of colon prep...not for scope...that's already been done. I'm forced to use Linzess 290 daily, softeners and colon prep when still no bowel activity. It feels as though my left side where small bowel empties into colon, is physically being twisted and contorted. The fecal matter is trapped above the splenic flexure, cannot make the transition into colon. I'm certain the adhesions from multiple surgeries to eradicate disease are also a culprit. Enemas don't work, as they can't reach the small bowel.

I remain in agony.

Stef...How are you doing? RTP...Do you have answers for your nerve pain yet? I thought from the beginning, the source of numbness will be radiating from your neck. Is this the case?

Sending healing vibes to all of our sick little gang here!
 
Wow, that's like we conjured u up like magicians,- "where's Dixi"?

Voila, she's back! Lol

Sorry to hear more gut issues Dixi. Neverending huh?

I'm sure you're frustrated, as am I. Neurosurgeon on the 17th march, not far away now, but it's been a long & difficult trek!! It's obviously my initial consult, so I'm not getting my hopes up that I'll be coming home with any answers :(

Rtp❤️
 
More like "Bubble, Bubble...Toil and Trouble!" Oh, never mind, that's my guts!

If/When I feel better, I'm offering FREE BROOM RIDES! :o

RTP, answers (or at least theories) should come swiftly if you are scheduled with a neuro. I certainly hope there is resolution without the need for cervical surgery. :\

I have herniations from C4-C7 and L4-L5 with annular tears and nerve compression. I know how frightening the numbness (and in my case, alternating "lightning strikes" in hands, arms and legs can feel. :|
 
I had my first ever fit seizure/convulsion last wk. it's absolutely never happened to me & thankfully I was with my good friend. she got the paramedics out & I was whisked away to ED.

Lasted so long I still today (tues) have sore abs.

But, like my girlfriend said,- u just can't kill me, I'll always bounce back...

Somehow :(
 
Last edited:
That is a great fear of mine because my anxiety is so bad I have been constantly on benzos for years or I start having extreme panic within hours. That I will lose my script on a flight or something and die of a grand mal. My body couldn't handle being off them for a day, not even before I was on them.

That is what I will try and control better after the opiates though. Since I started smoking weed again, I haven't abused opiates at all. Relatively speaking since I'm still on them, but no heroin no sniffing anything. Big change. All my money is going to weed instead, I am fiending the herb and I am much better off this way. I've had some cravings but it's like I completely stopped seeing dope as a means of getting high. Since smoking pot is so great amd fun and relaxing. And it's just something to keep the addict inside me busy. I have no qualms smoking herb compulsively if it's keeping me from abusing heroin. I was sniffing a gram a week which was really escalating fast, and I couldn't kick the compulsion to get more until weed said, hey remember me? Maybe I can help you out of this predicament!

I don't take more than a percocet at a time (4 at once wasn't having me ferl shit before) and I've been very useless but starting to get ,y emergy back. I slowly tapered my daily dose (starting by tapering off the last of the heroin i had amd ever will have... Weed gives me magical powers, i noticed nothing whem I ran out, and never ever coukd have tapered like that without weed... I LOVE good quality #4) to a quarter of what it was and didn't really suffer that much. I was too busy giggling in the midst of laugh attacks after a 3 year break from pot. It doesnt really help my back pain, just my perception of it. Which is preferable to the pills which I find are a lot more depressing to be overusing. I still have to cut my current dose in half but my goal is to be on that target, very reasonable dose of oxy by the summertime without feeling the rebound depression and lethargy from tapering. And to be working by then or sooner. So when it gets warm I can start blazing outside again and cycling around like the good old days. Instead of being bedridden depressed thinking about heroin. I'm taking care of that now while the weather is frigid and windy

I did mdma the other day and I am trying nit to feel guilty about it because I won't feel right for about a week after. And I've had ,y fun with that back in the day, was just a slip up. There's no need for me to be harming myself like that and I'm prone to nasty comedowns with that. I'm despise hangovers or withdrawals of any sort since I am already on the verge of flipping out all the time. The past couple days I have felt as crappy as I used to feel after a liquor bender. Anyways, I think once every 3 months is much too frequent for me to be using Md. Yet there has been a continuous pattern of random, quarterly use. Oh well. I just don't like feeling stupid after, as good as it felt at the time.

it took a few weeks of tapering but my sex drive is back too. I had none at all before i tapered now it's rebound intense. Like how weed suppresses dream recall (a benefit and curse) but then I get insane freaky vivid dreams for a while when I stop. By that same logic, opiates will exacerbate my spinal issues for a while perceptually, if I start using less of them, let alone quit.
 
Last edited:
Whats up peeps? Sorry bout your bad news Dixi. I hope they fix it soon. Youre one tough cookie!!! Just to update, ive been thru 3 weeks of hell. Trying to get off my pain meds was a horrible idea. I went thru awful withdrawl then took my suboxone and it didnt really help much but on the 2-3 day after stopping opiates my pain came rushing back full force. I had 3 ms contins so i waited after the suboxone and took them 8 hrs apart and helped slightly. It was just intense pain until yesterday when i broke down and went to ER. They juiced me up and got my appt at pain clinic moved to today but they cant write scripts for chronic pain. Thats pain clinics job so about 8pm i was back in pain and about 2am withdrawl kicked in. Awful. In intense pain and withdrawl. Made it to clinic and my dr was really cool. She put me back on my regimin. Now my withdrawl is gone and pain is better. Ill never do that again. My meds, all of them work well and i need them all. The weed thing is oh well. It didnt help at all these past weeks so im done. Anyway, Shroomy, get that referal from pcp and def bring your old bottles so the new place can see what you were on. I wish everyone well especially Dixi. Good luck. Peace
 
Shroomy, I didn't have convulsions due to any drug wd or anxiety at the time.

I've been under so much pressure as well as chronic & acute pain.

I'd had a lovely lunch with a girl
Friend & as we were leaving I suddenly felt I was about to black out. This led to tremors & then convulsions, luckily my friend called the paramedics.

Too much stress for so long can lead to a physical response.

Good on you for keeping from away from H, even if weed is your crutch!!

@closeau, so u stopped opiates, - pain meds, didn't wrk out with subs so you're back on full agonists?

Wow, who was it stuffing you around so much? Pain clinic?

Rtp
 
Yeah, it was me. I wanted off of them cause i felt fine but suboxone sucks and my chronic pain came back at me like a hockey puck. Horrible pain so yeah, she put me back on my meds yesterday and i feel much better. Yes, its a pain clinic but its Duke, one of the best in the country. She even skipped the urine test cause she knew id been smoking weed. I stopped that over a week ago so ill be good and clean next time i go. Im very lucky to live near Duke. They were awesome in the ER Tuesday but i had to again endure withdrawl from what they gave me there so Yesterday was horrible till i got my meds filled and felt better an hr later. My abdomen from my surgery and my imflamed clots in my groin require pain meds and i accept that now. Just like my other meds. Anyway, thats the deal. I havent realu read posts. How are you doing?
 
I was wondering same thing Rtp. I guess everybody is good. I worry about Dixi. How are you doing with your stuff? Im doing much better. Meds really help and getting off weed has given me motivation again. I still think weed is a good alternative for sick people but i dont care what anyone says, it kills your motivation and ambition. Ive gotten more done writing my music in last week than 3 months on weed. Anyway, i go in pain clinic Friday for check up and more dilaudid. She gave me 4mg instead of 8 to see if i could get away with lower dose from my time off opiates. She wrote it that i can take 8mg if needed. I took 4 for a bout 3 days and pain was still prety prevelant so i started taking 8mg Saturday. She gave me 90 instead of my usual 180 for month so she said shed write more Friday. Im just glad im out of that pain and withdrawl. That was absolutley miserable. Anyway, im still out here so let me know how you are.
 
Ugh so I've had chronic kidney stones and infections for a while now, but this one hasn't responded to 3 rounds of antibiotics. I'm on the 4th now and next step is hospital. No doctor will give me anything because I'm young and fit the profile of a drug seeker and I'm in so much pain I can get out of bed. I really feel for those of you who have been dealing with chronic pain for decades, this is so awful.

Would it be weird for a 20 year old to go to a pain clinic? I'm getting to that point. I can't take it anymore, even really good h doesn't completely eliminate the pain.
 
Hey all,

I'm still here. STILL waiting for my implant, in two weeks. Am still on oxymorphone, which I feel makes me grouchy. It does kill the pain, though.

Dixie, we were so happy to hear from you, but not happy to hear about your bowels. I hope they get sorted out.

RtP, are you okay?

I know a lot of us struggle with the pain, meds, and juggling. I wish us all well.

Hugs and drugs, all.
 
Hey morphine dreams. Thats a terrible shame about your stones and they wont give you anything. I know Drs need to be careful cause DEA but dam, you gotta legitimate need for them. Def try a pain clinic. If you normally go to hospital see if they have a pain clinic and go there to save time. If you go to another one they will need your transcripts so that can take awhile. Most pain clinics pee test every month for everything. But if youre clean youll be good. I was getting bullshit doses of pain meds from my pcp until i went tobpain clinic. I have a great Dr who is compassionate and works with me. I have documented history of drug and alcohol abuse and weed but they still treated me. As long as i stay good i will get care from there. I would def look into going to one. I absolutley hate to hear someone is in horrible pain and isnt getting meds. Fight back and youll be suprissed. A lot of times if you go to ER they will get you in to pain clinic sooner or even call your Dr and ask whats up. Ive heard those things are excruciating!!! I wish you best of luck and please take care of yourself. Relief may be closer than you think. Stay sstrong?!!
 
Hi DixiChik. I have the same issue with opiate constipation. Have you tried enemas? It takes just a little getting used to but they work like magic for me. Takes just a few minutes and I'm good for the day . No pain involved in any way.
 
I just got my tonsils out and it's day 3 now and I'm in severe pain, I had my mom call and ask if I could be switched from codeine/apap to hydrocodone/apap and he said no ); luckily my mom has about 7 x 5/325 hydro apaps. And I've been alternating between the two and the hydrocodone helps way better, I need a higher dose though but my mom won't give me 2 she knows that I have an addictive personality so she won't but 1 isn't cutting it so I've been taking both at the same time is this safe? I get another refill on my codeine on Friday and I'm really pissed that he wouldn't switch my mess though I read most doctors are usually pretty flexible with tonsilectomies but he said he ONLY prescribes codeine -.- clonazepam seems to enhance the pain killing effects of the two and I know it's not safe to mix them but my klonopin tolerance is extremely high 6+ mg at a time to feel it and I only took 2 mg and it seemed to help a lot but maybe it just helped distract me.

im getting another surgery on my nose in a few months because I have a deviated septum so I'm going somewhere else for that because codeine just isn't cutting it the pain has been at a constant 7 going up to 10 every time I fall asleep and wake up, and when I take the hydro and codeine and klonopin together that pain goes to about a 4 but still it sucks ): any advice?
 
:\ Hello Pain Peeps...To my "old" chronic pain pals and some newbies that have joined the club nobody wants to enter!

WISH I were on a good roll, but unfortunately it feels more like I've rolled into a ditch. Someone please throw some dirt over me before the buzzards show up!

:o I've submitted surgical records to endometriosis surgeon in St. Louis, which was my last best hope. He seems to think that GI issues are due to adhesions from multiple surgeries...duh?

FFS, endometriosis causes uterine cells to mutate throughout the abdominal/peritoneal cavity. Those lesions BLEED monthly. The body makes every effort to heal those lesions, by forming scar tissue. The scar tissue contorts the pelvic/abdominal organs, literally "clumping them" together.

Think Super Glue poured into your gut, causing organs to become one large mass. It chokes bowels, bladder, rectal/vaginal canal.

Because my FSH level is 136, he discounts new disease (I have stage 4). He recommended I see a general surgeon locally for my bowel obstruction issues. I would never allow a "general surgeon" surgical access. I was not eager to submit to laparoscopy with St. Louis specialist, but feared for my so-called life, if next bowel obstruction were total.

Devastation and darkness do not skim the surface of what I am feeling right now. I had such hopes that HE would help me, somehow. It brings up some memories of the years I tried to conceive, but couldn't. I begged OB/GYNs to help me, they wouldn't. I suffered more than any human deserved for YEARS before diagnosis of stage 4. The surgeries/treatments were as brutal as the disease. My bones have the density of a 90 year old because the chemo devoured them. I tell myself to quityerbitchin' and get on with it...I have for DECADES, actually.

Cosmic...Thank you for asking. Lord, yes, I've used enemas when the blockage was in the lower colon. I still do, when that's the case. The OTC bottles don't do the job for me. I have to use the hospital issue quart bag enemas, repeatedly while lying in the floor writhing in agony.

TMI (always with me) but this disease ain't pretty. Recent CTs with/without contrast/barium have shown that the current partial obstruction is above my left splenic flexure. The stool cannot make the transition from transverse colon due to a crimped effect (think crimped garden hose...water can't pass). It builds up in my left side, distending my intestines like a helium balloon.

Words cannot describe the pain. Enemas won't reach the blockage when it's that high up.

Linzess 290 isn't really working, as I still MUST take softeners and/or stimulants. What's the point? Plus, Linzess is CRAZY expensive!

Funny thing, though I'm not laughing, is that I'm not taking the Oxycodone. It's not the opioid that's causing the slow bowel. So...I continue to suffer with the pelvic/vaginal/rectal pain that is mind-bending, along with the bowel pain, oh and extensive spinal/bone/joint pain. I'm taking Toradol since hospitalization, which helps with internal inflammation. However, it's not a permanent solution.

:| I think it's time to brew a pot of Hemlock tea and take a nice, long nap. :|

My sincere gratitude to all of you for your care and concern.

Closeau, RTP, Anna, SKR, Steph, etal...I think of you often! My wish for all of us is for better or forget it!
 
Last edited:
Oh Dixie, I am so sorry... I wish I could wave a wand and heal your insides. As if you don't have enough pain everywhere else, I can't imagine shit on top of a pain cake.

Where is that fountain of youth? Or of morphine?..we can all go swimming...

Thinking that all of this is long term is what gets me sometimes. I think, this weekend wasn't so bad, but then I realize that I have to wait five more days until that break again...makes me consider going on disability leave. My husband says I wouldn't be happy, but I don't know...
 
Status
Not open for further replies.
Top