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HELP! Visual Snow, possible HPPD...am i screwed!?

rollingregret

Bluelighter
Joined
Jan 25, 2007
Messages
49
I appologize for the length, i'm trying to be comprehensive...


Hi all. While i used to browse these boards for better rolling tips (5htp, stocking on amino acids like tyrosine, DLPA, vitamin C, etc.), i find myself in a different position nowdays. So here's the story:

Started dropping Feb 2005. did it pretty frequently (6 times) around then until April. Took a summer break (during that time i developped some pretty serious anxiety, waking in the middle on the night etc.) That all subsided and come labour day i was back in the habit. From Fall 05 until now i have been on an average of about once a month. Although i know i have been somewhere in between abusing and spacing it out a responsible time, it has now all caught up to me.

In October (06), went to a massive event (i should say my connection to dropping is intertwined with the EDM/rave scene), did way more than my usual of really strong ones (blue diamonds 3d), that being 4 over the course of about 10 hours. Obviously the next few days were shitty, but nothing out of the ordinary. Then around the weekend i started to feel an uncomfortable haze, as if the crackedness was not leaving. From then onwards i developed thesse symptoms:

-a feeling of dizziness, not so much that i will faint, but disorientation, ever so slight. Everytime i shifted my gaze, everything would shift momentarily, ever so slightly. depth perception was impaired. It was not just limited to a visual disturbance but rather a change in my body balance

-gradually i developped this crushing head pressure, as if it were filling up with fluid. I had alot of pain around my neck as if it were being pinched, and causing the head inflation.

-I also had this indescribable sense that there was something amiss, i couldnt describe it. I was sensitive to light, everythign seemed brighter. I also noticed towards the end, some visual strings in my field of view, which i now know very well to be FLOATERS.

Along the way, i had been many times to the doctor, done CTs, MRIs, blood tests, etc. As is the case with most people on these boards, everything looked fine, they couldnt find anything.

Finally I went for massage therapy for my aching back. It helped relieve tension, but the therapist said that i should have my neck checked out as my cervical vertebrae appeared misaligned.

I went to see a chiropractor (had no experience with them whatsoever). Got the X-ray back, and lo and behold there was a very visible kink in my neck: i had an atlas misalignment (where your head is not sitting on your spine straight, compressing important nerves).

check this site:
http://www.nucca.org/node/31

it appeared to be the only explanation for my symptoms. It held a lot of weight, since indeed if i had a weak atlas joint, raving for 10 hours could certainly take it to the tipping point. In any case, i followed up treatment (adjustments) and after about two weeks, my dizziness and balance loss actually cleared up. What remained was that "brightness" and the floaters, but since this process of healing is gradual, i considered myself on the path to recovery. I shoudl note that it was about 2 months after my binge and the onset of symtoms, that i sought chiropractic help, so about 3 months before I was in a state i deemed healthy. Perhaps it was the placebo, i cant be sure. I definitely have a misalignment and its correction will no doubt help, but i am now becoming certain that the majority of my issue is brain/mdma related. NOTE: i encourage you all to get your atlases checked; most people have dislodged it to some degree, it may alleviate some problems. Oddly enough, alot of people complain about neck/back pain with vs and hppd.

Anyway, the reason i accepted this answer was PRIMARILY because after searching DAY after DAY on the net for combinations like:
ecstasy/mdma, vision problems, balance, dizziness, etc. i found NOTHING. Just the usual, effects may last such as minor dizziness for a couple of weeks after. NOTHING to suggest such a profound delerium.

I thus fooled myself into thinking that this was not at all due to my e consumption, since i had never expereinced any long term effects. This led me to a foolish decision to pop again. It coincided with a pretty traumatic break up and so when I went out with my friends to another huge party, I definitely went beyond my means, consuming 4.5 (they were very clean, nothing weirf about them at all). In the following days, i was waiting to see if symtoms reappeared, since i expected by back/neck to be screwed up once again (but with the knowledge that it was easily fixable).

Three days later they came back on. I noticde the floaters even more and this time,, miraculously when i googled "Mdma, floaters", i was made aware of this horrifying condition known as HPPD (those of you who have made it this far in my post prolly already know what this is). I was shocked and terrified to learn that my inexplicable fuckedupness was infact a disorder! Although the full-blown version is typical of LSD users, i learned that indeed, E abuse led to the symptoms i showed. Particularly floaters and static vision (the "brightness")!!!

I have been scouring the net for information and experiences abotu X and hppd. It has been a little more than 3 weeks, and my condition is BAD. When i say bad, i know that full blown hppders would be thnakful to have what i have, but in no way can i function on a daily basis. I have read countless posts like mine "I did a lot of E and now my vision is all staticy"

Even worse, most of these cases seem to last forever!!

I guess im looking for some advice, some similar experiences from some E users. I know this is extremely rare (making it all the more frustrating). I have obviously stopped all drugs, although ive been taking to a couple of pints of beer fairly often , which at least take my mind off it temporarily. I realise ill have to stop that too.

The most debilitating thing for me is this returned feeling tof imbalance. Reading a computer screen is hard, there is so mcuh radiation coming from it.

The glare is too much, scrolling makes me lose my place, my vision is darted. I cant focus on one spot, its like a constant flickering everywhere, nothing is perfectly still. Walls and flat monochrome surfaces are very staticy. My neck is extremely tense again. Im getting tension-headache-like symptoms. Reading is so hard! The pages just flicker like a screen. trying to pay attention to a powerpoint presentation on a projection screen (at work: insurance firm in nyc) is unbearable! I also have tinnitus when it is really quiet.

I know that anxiety and focusing on these issues make them worse. They are jsut overwhelming. If you guys could shed light on my problem and what my prognosis might be (i know visual snow is categorized differently than hppd, but is equally as debilitating), i'd appreciate it. If you had symptoms similar to mine, did they dissipate within months, or longer (i know alot of you have persistent visual snow that has lasted years after dosing). The most confusing symptom that i dont find alot of posts on is the dizziness factor, the darting vision, the feeling of not having fluid visual movements, accompanied by a synchronous head buzz.

Thanks alot and i really appreciate you taking the time to read.

p.s. im 25 and so far i dont have any emotional dp/dr-like symptoms
also, there REALLY needs to be more awareness of vs and hppd within the e community...i know a LOTTT abotu risks and mechanisms of pharmacology, but i never ever heard about this until it was too late
 
Ive had this happen after a weekend binge of 7 red !'s. It goes away - you need a break if you are getting brain zaps. Take 1 month off i did, it goes away, but it is scary! I believe it results from an OD to MDMA of somekind - I dont know if anyone knows the real answer - Ive rolled since then and am cutting down to once a month and maybe way more than that soon - Ive definately learned my limits

I didnt read your whole post btw, so I just am answering a your subject question
 
im pretty sure i have hppd but it doesnt really bother me.
ever since i had a bad shroom trip, i still get mild visuals and weird thought paterns in my head. ive just learned to get used to it....i dont know what to tell you though
 
well it couldn't help that the only 3D blue diamonds I've seen tested were composed mainly of Diphenhydramine (a deliriant).

http://www.ecstasydata.org/viewtablet.php?ID=1543

I would suggest trying to accept this as your natural state, you never know you may even be able to benefit from incorporating this into your life.Also I would suggest testing your XTC tablets and not taking so many in a short amount of time.
 
even after rolling for the last time a month ago (which was only my 2nd time) i still have visual distortions, thing appear to breathe slightly, accompanied by a very quiet sort of breathing noise that's very difficult to hear normally. ive got pretty bad visual snow in dark rooms but ive always had that

it doesnt bother me, its not bad enough to intefere with everyday life so i just accept it
 
As for the 3D blue diamonds, i was aware of the bad diphen batch going around. we did test them, thye were the clean batch (there infact were two). The effects were really pure MDMA-sh too, so i doubt its that as much as the doasge (foolish).

I notice that shroom and lsd-related hppd symptoms include tracers, breathing and patterns which i dont get. Its mostly the entire world buzzing.

Im somehow hoping that it's more of a case like hzang123's, in that its residual after a binge but that fades with time. Maybe im being optimistic. Anyone else have a relatively short period (month, couple of months) of after-effects?
 
Most people have visual snow, they just don't notice it! Once you get use to it, you won't even notice it, well thats what happened for me, although I had it way before I took E. The human eye is far from perfect.
 
Hppd

rollingregret,
hang in there buddy. I've got the same symptoms too, and now I don't roll anymore. Therefore I don't post here much these days. I first rolled at the end of 2003, pure mdma. By the end of '04, I'd pretty much lost the magic, but early 2005 I began to notice problems. The MDMA I took throughout my experiences was all from the same lot of mdma crystals, and very pure (without getting into details).

Many people are experiencing what you're going through. I'm now in the process of rebuilding my career, and it is going well - but my symptoms (same as yours) make it more difficult than it would've been without all this distraction.
I've got the dreaded floaters too and noticable visual static. Which as you know, is depressing in itself since you're constantly reminded of it.
I am more sensitive to bright lights than I ever was, the night time glare from approaching headlights makes driving diffcult sometimes. Fatigue makes my symptoms noticably worse, I also suspect you've noticed that too.
My visual static is much worse than I've ever had (regardless of the "everyone has it, its normal" claims we always read about). Everything seems to be moving, not a lot, just a little twinkle in everything. Emotionally, I'm sure I'm recovering, although when I used to smoke I noticed that the morning nicotine buzz reminded me of how I used to feel (i.e normal) before I started taking recreational drugs. With MDMA, this all really creeps up on you, so slowly that you don't notice it until symptoms are relatively advanced. I certainly didn't.
Its difficult to quantify what HPPD is, since we can't plug a computer monitor to our senses to record the exact symptoms. But it exists, and it can always get worse.
I strongly suggest you give up all drugs for good. I used to roll all the time, I first noticed my symptoms after combining a little meth with my rolls.
In addition to said symptoms, I also have whats called "scheerer's phenomenon", also called blue field entoptic phenomenon, which is when a person can see the white blood cells in your field of vision - it is most annoying, and I wish it would go away. It looks like millions of moving little dots in your field of vision, which makes reading awkward if there is sunlight or bright lighting on the page whilst reading.
There is a culture of denial on bluelight with regards to the side effects of MDMA use/abuse. Let me just say I've never taken LSD, but there is no doubt in my mind that I have mild HPPD, as I'm sure you do too. Many people probably have milder forms without noticing. We don't notice, because they don't occur suddenly, except most notably with drugs such as LSD.
In time symptoms may decline, I think mine are on the decline. One thing is for sure, it will take many more months before my symptoms totally clear up, if ever.

One thing I can also suggest, is if you smoke cigarrettes, quit. For some reason it helps, though nicotine withdrawal makes my symptoms temporarily wose...
I also noticed that whenever I'd started smoking again, the HPPD symptoms become a little worse (or at least, far more noticable), but a week or so after I quit they subside a little.
Take up meditation, and regularly spend time meditating, it has really helped me. Excercise helps too.
I now tend to believe that the only way to fix medical conditions of this nature is probably from within.
Modern medical science cannot fix this, at least not yet. They can't even cure the darned floaters!
Prescribing drugs to alleviate these symptoms is just asking for trouble (since neuroscience is only vaguely understood at best), but thats just my opinion.

I've recently started a good engineering job, which has given me the motivation to work hard, and since starting I've found that the intellectual side effects (short term memory loss, fuzzy thinking etc) seems somewhat reversible, but it takes some work and determination. Slowly but surely, those effects are diminishing, what I'm left with are mostly the aforementioned visual side effects, which I'm hoping will continue to gradually diminish as time rolls on (no pun intended).

I hope it all works out well for you in the end, but in the mean time - take it easy and chill. Coming to terms with your condition will make it less noticable, and probably improve your chances of a full recovery.
Good luck!
 
Last edited:
-a feeling of dizziness, not so much that i will faint, but disorientation, ever so slight. Everytime i shifted my gaze, everything would shift momentarily, ever so slightly. depth perception was impaired. It was not just limited to a visual disturbance but rather a change in my body balance

-gradually i developped this crushing head pressure, as if it were filling up with fluid. I had alot of pain around my neck as if it were being pinched, and causing the head inflation.

I Have both of those problems, am I gonna get hppd? =o
 
You only technically have HPPD if you sustain from all drug usage for 6 months + and still have symptoms.

About a year ago (last April) I took a stupid amount of e's and ended up in the hospital (freaked out) I took a 4 month break (was scared away) but eventually started taking E's again. I still have all the symptoms. snow coming out of the lights, floaters, sleep paralysis, static air, objects enlarging/shrinking,etc..

You get used to it really, my symptoms have reduced a lot since then but are still noticeable if I think about it.
 
125mg said:
rollingregret,
hang in there buddy. I've got the same symptoms too, and now I don't roll anymore. Therefore I don't post here much these days. I first rolled at the end of 2003, pure mdma. By the end of '04, I'd pretty much lost the magic, but early 2005 I began to notice problems. The MDMA I took throughout my experiences was all from the same lot of mdma crystals, and very pure (without getting into details).

Many people are experiencing what you're going through. I'm now in the process of rebuilding my career, and it is going well - but my symptoms (same as yours) make it more difficult than it would've been without all this distraction.
I've got the dreaded floaters too and noticable visual static. Which as you know, is depressing in itself since you're constantly reminded of it.
I am more sensitive to bright lights than I ever was, the night time glare from approaching headlights makes driving diffcult sometimes. Fatigue makes my symptoms noticably worse, I also suspect you've noticed that too.
My visual static is much worse than I've ever had (regardless of the "everyone has it, its normal" claims we always read about). Everything seems to be moving, not a lot, just a little twinkle in everything. Emotionally, I'm sure I'm recovering, although when I used to smoke I noticed that the morning nicotine buzz reminded me of how I used to feel (i.e normal) before I started taking recreational drugs. With MDMA, this all really creeps up on you, so slowly that you don't notice it until symptoms are relatively advanced. I certainly didn't.
Its difficult to quantify what HPPD is, since we can't plug a computer monitor to our senses to record the exact symptoms. But it exists, and it can always get worse.
I strongly suggest you give up all drugs for good. I used to roll all the time, I first noticed my symptoms after combining a little meth with my rolls.
In addition to said symptoms, I also have whats called "scheerer's phenomenon", also called blue field entoptic phenomenon, which is when a person can see the white blood cells in your field of vision - it is most annoying, and I wish it would go away. It looks like millions of moving little dots in your field of vision, which makes reading awkward if there is sunlight or bright lighting on the page whilst reading.
There is a culture of denial on bluelight with regards to the side effects of MDMA use/abuse. Let me just say I've never taken LSD, but there is no doubt in my mind that I have mild HPPD, as I'm sure you do too. Many people probably have milder forms without noticing. We don't notice, because they don't occur suddenly, except most notably with drugs such as LSD.
In time symptoms may decline, I think mine are on the decline. One thing is for sure, it will take many more months before my symptoms totally clear up, if ever.

One thing I can also suggest, is if you smoke cigarrettes, quit. For some reason it helps, though nicotine withdrawal makes my symptoms temporarily wose...
I also noticed that whenever I'd started smoking again, the HPPD symptoms become a little worse (or at least, far more noticable), but a week or so after I quit they subside a little.
Take up meditation, and regularly spend time meditating, it has really helped me. Excercise helps too.
I now tend to believe that the only way to fix medical conditions of this nature is probably from within.
Modern medical science cannot fix this, at least not yet. They can't even cure the darned floaters!
Prescribing drugs to alleviate these symptoms is just asking for trouble (since neuroscience is only vaguely understood at best), but thats just my opinion.

I've recently started a good engineering job, which has given me the motivation to work hard, and since starting I've found that the intellectual side effects (short term memory loss, fuzzy thinking etc) seems somewhat reversible, but it takes some work and determination. Slowly but surely, those effects are diminishing, what I'm left with are mostly the aforementioned visual side effects, which I'm hoping will continue to gradually diminish as time rolls on (no pun intended).

I hope it all works out well for you in the end, but in the mean time - take it easy and chill. Coming to terms with your condition will make it less noticable, and probably improve your chances of a full recovery.
Good luck!


I've always had this thing you call scheerer's phenomenon, never knew it had a name
 
Relax mate... static in the visual field is just a product of aging, but yes, it does seem to be heightened by use of drugs. MDMA is a PEA just like mescaline, 2C-I, etc so I suppose it would follow the same mechanisms by which to be a catalyst for persisting visual disturbances.

My eyes have always dilated to an extreme just naturally since I was young, and I think that has a lot do with my visual disturbances at night... I see tracers and light auras off of everything. I have to wear glare prevention glasses when I drive at night. Perhaps some of us are just more open to HPPD - like symptoms.

After my ventures with 2C-I, I thought I had irrepairable damage and would have visuals the rest of my life. For about 5 months everything persisted as it was....geometric patterning, white static so bad that I cannot see anything when it is close to pitch black,etc but eventually it started clearing up, even with use of MDMA on a monthly basis and some experimentation with piperazines.

It clears up eventually, just bear with it and try to stay calm. Getting aggitated about it when only make things worse for you right now.
 
Thanks 125mg for your response and everyone else. Its been awhile since ive been on here cuz for the most part ive slipped into that ajustment phase where its not compeltely debilitating and youre so used to it by now. Not to say youre not checking every few moments when you have the chance...a white wall here, a brike pattern there. But you are right, i have become accustomed to it. One other thing i should mention, that may help anyone else suffering. Visit this site:
http://www.nucca.org/node/31
it has made a substantial difference for me and may least speed up the healing process.

thanks again
 
wow, i did not proofread that for typos whatsoever...or perhaps its the static!

hmmm...ecstasy....ecstatic...static....physiological AND etymological link.
 
I don't have any of these symptoms permanently, though I believe I may have had them temporarily. Most common for me is usually an overbright/bleed problem the day after taking E. Usually it fades within 24 hours but one time I had it last almost a week.

As for the static and other things, you've probably become aware of things that were going on in your vision all the time. I've seen the static, I've been able to turn it on and off since I was a little kid. Still can, though it's easiest in a dark room at night. I'm fairly sure it has to do with the nerves firing in the retina. If you see a small region where the spots are bigger, that's the optic nerve. At least it corresponds to the blind spot in my vision so I assume that's what it is.

One thing I used to notice is that this effect is highly dependant on eye fluid pressure. If I'd press on the eye it'd change the pattern and sometimes produce colors. I think it may help if you get your pressure down. I'm not an optometrist but there are likely ways to do this. I know the eye readjusts fluid pressure every so often as you get older. It normally takes about 2 months to settle down. I had it happen to me in december, was getting bright flashes in my peripheral vision any time I was in bright light. It's completely gone now.

The white blood cells and floaters and such are on other layers, which I can also focus on and off at will. I can see how they'd be annoying if I couldn't ignore them. I don't really know how to make them less noticeable for others, I just know I can see them when I want to.

I can see where some of these other symptoms people describe must come from. I get ocular migraines once or twice a year. Got the first in my 20s, almost scared me to death (long before I started any drugs though)! However, I've learned to watch them when they happen (not much else to do as they screw up my ability to do anything else) and see how they work. Usually I can see the problem move through different parts of the vison system as it works its way out. As it expands it messes with different things like color processing, edge detection (vertical or horizontal), face/symbol recognition, peripheral motion detection, etc. So I'd imagine that a problem caused by MDMA in any of these neighboring regions would produce a similar visual problem.

I know it sounds corny but I think the best help may be to try and reduce stress. Start sleeping more, eat a bit healthier if you can, drink more water, exercise daily even a little. You'd be surprised what kind of difference even a little of that can make. I wish I could keep it up all the time but I don't have the will power.
 
I've had floaters and static all my life.

Sometimes it's very noticeable, sometimes not. Occasionally, I'll also see very strange tunnel like distortions... distortions moving towards the center of my vision from around a small area... Again, had them all my life.

Never have they interfered with anything I've had to do.

Sometimes after taking some diphenhydramine to sleep, the next day my eyes will be super sensitive to the light. This also happens seemingly for no reason though.

Unless there is some extraordinary evidence to suggest it is caused by MDMA usage, I would not worry. If it persists, obviously your best bet would be to see a specialist.

To me, the static and distortions are best seen when I'm staring at the sky, or looking at some bright, light colored canvas. For some reason it rarely happens on a white computer screen though. Funny how the body works. :D
 
I've had Scheerer's Phenomenon since I was 8-years-old and looked up at a total eclipse (or at least, thats when I remember it showing up :D). I have never been a heavy roller, or hell, a moderate roller. I always took one pill every 4-6 weeks and was very careful to drink enough water, not move around too much, don't mix drugs, etc.

However, I notice I have other symptoms you've mentioned since I stopped rolling (I haven't touched anything in 9 months and they are still just as strong) such as: the pressure in the head; constant dizzy feeling and the small suspicion that something was amiss. I also have this constant 'trapped in my head' feeling, almost as though my awareness was confined to a box it were too small for and is pushing to get out. I have horrible short term memory (then again I can also remember things -- hmm. Who knows) and fuzzy feeling. Generally I live in the allergy capital of the US so that could be it as well...I am starting to notice I'm allergic to more stuff than when I was a kid.

Most that bothers me is the constant 'out of it' and 'fuzzy' feeling, along with something being amiss.

However, I also know I've had the same prescription in my glasses for the last six years, so perhaps that could be making it worse (I have noticed a decrease in my vision in the last year). The negative after images, one of the symptoms I've had since looking at the eclipse as is the same when I focus on something and 'snow' will appear around it.

As I said, its been nine months, and some days are worse (especially when I don't sleep) but I'm generally getting over it. Who knows, I may even drop a roll again; I mean, if its permanent, might as well enjoy myself, right?
 
The Spiritual Side
If we're harvesting the seeds we sow then we shouldn't be surprised. Dabbling with the unknown produces unknown crops. Those crops are, of course, a surprise to us. :)

Are they damage? Is aging damage? Is life damage? Very few want to die earlier than they have to. We work to preserve our lives. It sometimes feels like the purpose of life is simply to continue living until that appointed day of ending.

So then should you feel damaged? Should you call yourself "Mr. Damaged" in your mind and when you speak to others? No, you are worth more than that. You are still highly functional and beautiful. You still have life to live. Allow this harvest to show you how to love the unlovely.

We are all consequences of our world and of ourselves. Perhaps you will find grace and your brain will readjust back to it's original state. Then again, why would you want to go back if the nausea is gone? What is more beautiful about the old way of living? What is so highly coveted about how everyone else lives?

Deal with the spiritual side of this equation as you deal with the physical and emotional side. From those of us who will never be the same, we say be strong.

I remember when I was done with all the maddness, I had migraines and visual things. I abused my body and my mind. I slipped into moments of madness and self-loathing. I didn't care about 83-year-old-me. All I cared about was right-now-me. Anyways, Grace was given to me and healed my migraines. Never had them since that moment of healing. It's been years. There is hope, but it's beyond our bodies and beyond the chemicals!

Enjoy your life as your heart still beats.
 
beautifully said, pyro. I have visual snow or whatever you want to call it, but i am proud of the person i am today. In fact i couldent imagine being any other way. I have overcome many things in my life, serious childhood illness, heroin addict brother, residual pain from my damaged joints... this is just another challenge, never let anything hold you back, never count yourself out no matter the circumstances, say fuck you to any one who tries to hold you back and you will find yourself strong once more, remember the world is alot bigger than any of us understand, and life is made up of surprises. Btw, i dont feel it should make you quit drugs, maybe hard drugs, and maybe even less of the softer drugs, but many plants, even and especially psychoactive ones are healing. Oh and one last thing, ive done research and many people have these symptoms whove never touched a drug in their life.
 
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