Which Disease/Condition Is The Hardest To Live With?

[jack v]

Hi everyone sorry if this thread has upset people.

The reason I made the thread is that I believe I may Crohn's Disease. No one believes me but I am showing many of the symptoms and I have become obsessed with reading about it online and many experiences are horrific.

I am considering suicide if I feel I cannot function with this incurable disease.

I am close to people who function with all the other conditions listed. They either function quite well or have gotten through treatment in the case of colon cancer.

I wanted to consider how debilitating Crohn's is in comparison to other conditions, which I know people can function well on. I wanted to see if I am able to manage if I end up with Crohn;s (which can take a long time to diagnose).

I'm sorry if I upset anyone and I could not find a forum where this would fit and I thought this was the closest fit (though not a very good one).

I feel worse because I feel I gave myself Crohn's disease in a round about way. (Though modern science would say this is impossible)

This was just an experiment on my part. I am sorry if I have offended anyone.

 

[Maya]

^ It's ok OP, you haven't upset me at all . Sorry as I understand, you are assuming that you have Crohn's disease? Have you been to the doctor to get a proper diagnosis? What are you currently doing to cope with it? (Diet, medication).

Please do not commit suicide, I know it is hard and I may not understand your way of suffering but please do not lose hope and the will to fight it.

 

[Morphling]

The hardest to deal with is...pretty obvious. That being, any disease you are suffering from.

 

[jack v]

I have had many tests: colonoscopy, gastroscopy, ultrasound, stool sample test, blood tests. All tests come back negative. Very afraid.

My cousin has ulcerative colitis and she says it took them 12 years to diagnose her.

I am taking Vitamin B-12 and a multi vitamin and trying to avoid sugar and alcohol. Not much else I can do for now.

I was having trouble enough coping before this happened now I feel I am shattered.

 

[Maya]

I am not sure what your diet includes with besides avoiding sugar and alcohol but these foods might be of benefit:

almond milk
scrambled eggs
oatmeal
salmon
vegetable soup
pureed beans
avocado
papaya
butter lettuce

 

[p-helix]

With the modern medication 100% preventable (even looking now or very soon, to be a possible 'functional cure') also can have children and live a normal life - so therefore why 'terrible' please expand on this?

Nationally and internationally, there's better treatment now than ever. I wasn't sure if HIV still results in AIDS in some cases even with full medical treatment but I appreciate this is no longer the case, the medications work reliably in this sense. However, I would hate to take antiviral medications for years and I sympathize with those like you who need to take them to stay alive.

With respect to this thread, all to often, people would rather not consider illness and death but there is nothing inherently wrong with doing so. It seems as if considering the prospect one's own death is still taboo, it reminds me of how a generation ago doctors would often tell the family of a cancer victim they were dying, like in my grandad's case, but withhold this fact from the patient themselves.

With respect to the OP, it's probable you don't have Crohn's Disease if all the various test results are negative. Stick to the appropriate diet in the meantime if you are showing symptoms but is it possible anxiety is the underlying issue? Hopefully you will know soon conclusively.

 

[Maya]

With respect to the OP, it's probable you don't have Crohn's Disease if all the various test results are negative. Stick to the appropriate diet in the meantime if you are showing symptoms but is it possible anxiety is the underlying issue? Hopefully you will know soon conclusively.

This might be the case OP, these symptoms that you are feeling might have been caused by anxiety through constant worrying. To be honest, I am a hypochondriac myself and a couple of years ago, through my constant trips to the GP I was sent to get an ultrasound and found out I have gall stones. I told the GP that I had constant stomach gas and pain and convinced that this might be not related to my gall stones. I was constantly stressed out about it and scared that I might have an underlying condition that the doctors ignore to pay attention to. After a couple of years, it was gone, it just disappeared out of the blue maybe because I am now thinking about some other condition which was a result of a comedown from an unknown substance. I know that you mentioned it took 12 years until your cousin was diagnosed but I don't think you should compare yourself to him as we are all different.

 

[p-helix]

MS, I have always been a very physically active person and I have early MS. It scares me to think that one day my mobility will be so impaired that I won't be able to take care of myself. There are already some things I can no longer do that I used to (dirtbike riding, hiking any strenuous activity such as those I used to do without a second thought now is more difficult and even if I do it I know I will pay for it for days after with extreme exhaustation and pain).

missmeyet? how are you coping diet-wise? Maybe you can slow its progress by following a very low saturated fat diet.http://swankmsdiet.charityfinders.org/About The Diet, drinking lots of pineapple juice, taking evening primrose oil as a supplement and eating lots of blueberries. http://www.ncbi.nlm.nih.gov/pubmed/22243431.
Getting good sleep too. http://www.cleveland.com/healthfit/index.ssf/2013/09/researchers_find_possible_link.html

 

[Wobblier]

Ah, now we get to the reason behind this thread.

Good luck OP, chances are it will be a case of hypochondria (there's too many variables), if that is so creating a thread like this focusing on the negative ('whats the worse disease..') wont help at all (a masochistic need to feed your own pessimism and possible hypochondria or reassurance that it wont be so bad, maybe?).

If the worst happens deal with it when it happens (knowledge is key), worrying now wont accomplish anything. Chances are it wont be like you expect / read about anyway, things always look different and less dramatic when they are happening to yourself. There's always options.

Stay positive and find ways to reduce stress and anxiety.

Remember one day the worst will happen, one day you are going to die. Worrying about it will ruin the fun of life.

http://www.youtube.com/watch?v=TXFUaqMl3fc

Try and avoid any (negative) self fulfilling prophecies (if there is any science behind that).

Remember there very rarely is any big problems just lots of little ones, focus on one day at a time, step by step.

Talk to as many professionals as possible.

There's a lot to say for optimism.

Hold your head up. Keep smiling. I know I'm going out laughing at the absurdity of it all.

http://www.youtube.com/watch?v=osd15qNCUQY

http://i.telegraph.co.uk/multimedia/archive/01695/100-year-old-smoke_1695944i.jpg

http://www.youtube.com/watch?v=SJUhlRoBL8M

...

p.s.

The reason I made the thread is that I believe I may Crohn's Disease. No one believes me but I am showing many of the symptoms and I have become obsessed with reading about it online and many experiences are horrific. .

No one believes you, even the doctors? Remember most people who post on message boards are sick and suffering. You don't read about the people who have had remissions for years or decades or were diagnosed with not having it.

If you were to search your illness symptoms on-line even if you just suffering from a simple a headache you will find that the search result will show you are dying of cancer, meningitis, you have rabies and will soon be dead in the most horrific way (lol). If you can't help yourself from searching, use irrefutable sources (even these can be sketchy). However, as a rule I advise you on avoiding reading BS on-line (including my BS), think for yourself.

If you are going to read BS on-line why not subscribe to a more positive view point say: immortality, surely at least that is a much more happier 'reality tunnel' :

http://www.thedailybeast.com/newswe...rtality-plausible-or-is-it-quack-science.html

Maybe you haven't dealt with how you feel about your cousin. Possible counseling may help?

http://www.canada.com/story_print.html?id=9722e2b9-fd0d-41d2-9c8d-12f08a6f9485&sponsor=

http://www.caseyresearch.com/cm/death-of-cancer

http://community.babycenter.com/pos..._that_crohns_isnt_some_sort_of_death_sentence

http://www.crohnsandcolitis.org.uk/

http://www.nhs.uk/conditions/hypochondria/pages/introduction.aspx

(Funny how you put your possible (not probable) disease on a list (at least it is fourth, which is some what reassuring that there is some optimism in you), and my disease is second on the list, where I wouldn't put in on a list and even do away with lists altogether. Then again this is just my opinion / advice, I'm sure you'll find your own way)



(sorry for ranting, I have too much time on my hands at present)

You'll be fine. Good luck.

(being diagnosed HIV+ made me a stronger better person, believe it or not)

At risk of getting philosophical. Don't forget its just a ride, a perception, 'non-simultaneously interacting processing':
http://www.youtube.com/watch?v=iMUiwTubYu0
http://www.youtube.com/watch?v=GB6aC9JcyRo
http://wedietorememberwhatwelivetoforget.com/

With respect to this thread, all to often, people would rather not consider illness and death but there is nothing inherently wrong with doing so. It seems as if considering the prospect one's own death is still taboo, it reminds me of how a generation ago doctors would often tell the family of a cancer victim they were dying, like in my grandad's case, but withhold this fact from the patient themselves.

Sorry to here about your Grandad.

With respect, its how illness and death (or even the possibility of it) is considered, that being with anxiety and fear or in a positive, progressive manner. Remember the OP hasn't been diagnosed with anything yet and is talking about suicide (emotional issues and perception might be an underlining problem here, CBT therapy initially springs to mind).

Also, when you refer to peoples perceptions and how they consider things including illness and death: I'm guessing you are referring to western cultures in your comment (that being it's as you say a 'taboo'). Interestingly, countries which are fundamentally Buddhist / Zen or Daoist which constantly meditate / focus on the: 'nothing is permanent, the transcendental nature of reality', tend to be the countries with the lowest suicide rate (save Japan, which is another story) and stress related diseases.

In Thailand for example they sometimes dig up dead relatives bones after a 100 days (which is definitely considering illness and death). Buddhist monks have a type of meditation where they focus on rotting dead bodies etc.

http://www.buddhanet.net/deathtib.htm

(So I guess 'morbid' threads like this can be of benefit in a cathartic way, though we are still doing it in a typically western way by trying to separate and label things ('Which is the worst disease..'), which is interesting. Personally, I find it quite futile to try and separate and label things like opinions on diseases as it is too subjective to the person.)

However, if you want to take religion out of the equation still looking at how cultures and groups consider things including illness and death and the ones which have low suicide rates and stress they tend to be cultures which lean towards: collectivism instead of individualism, 'being' instead of 'doing', public spacial concepts instead of private, high power distance instead of low power distance, hierarchical instead of egalitarian, circular concepts of time instead of linear and high context instead of low context (see Hofstede's cultural dimensions theory etc.). However, all these concepts are different and all cultures are expressed on different levels of course (pros and cons I guess)... anyway its how illness and death are considered which could more than likely could be the issue here with the OP... maybe? )

http://www.youtube.com/watch?v=XXi_ldNRNtM

In the end we are all going to die all the blueberries in the world ain't going to stop this.

https://www.youtube.com/watch?v=zT5KwhVq3Pc

https://www.youtube.com/watch?v=-Rz4ReNv6M8

http://www.youtube.com/watch?v=7YgEhvZDZVg

 

[thujone]

I have a friend with severe crohn's but he doesn't have to watch his diet as much as the celiac people. Though he does need to get IV drip every few weeks with a medication that actually lists SUDDEN DEATH as a fucking side effect.

 

[ilikestims]

In the end we are all going to die all the blueberries in the world ain't going to stop this.

Indeed

 

[Wobblier]

Though he does need to get IV drip every few weeks with a medication that actually lists SUDDEN DEATH as a fucking side effect.

Doesn't paracetamol list one of its side effects as 'death' ..I think it does...doesn't it? Don't pay too much concern to side effects listed with meds, pharm companies have to cover their backs.

(more unnecessary fear, for an already fragile place the OP's in)

 

[missmeyet?]

okay, okay, why you want to get into semantics on a thread which is so vague to begin with is beyond me, but here's my two cents reply (this is so tedious, I really have too much time on my hands today):

1% of people with HIV die in the UK and that is due to late diagnosis, not to mention other diseases, coininfection, age etc. In my book not even worth noting or putting into a list on BL (lol). More people die falling down stairs

http://www.nat.org.uk/HIV-Facts/Statistics/Latest-UK-statistics/Number-of-deaths.aspx

http://www.bhiva.org/NationalAuditReports.aspx

Then you have to take into account what country:

http://www.poz.com/articles/global_deaths_761_24467.shtml

Missmeyet? how many AIDS patients died in your care?

I have just returned to Cambodia and visited a 5 year old girl who was very lately diagnosed with HIV. The first time I visited 2 years ago she had a CD4 count of 1% and thrush was killing her. Now with HAART meds it is like nothing ever happen, she is running around playing football with the boys.

Tell these kids that you have made a list and they are on it, they would think you are mad:

http://www.baangerda.org/index.html

I promise it is not my intent to upset you or to be inflammatory in the slightest. But comments made about people now thinking that no one dies of AIDS or that it is 100% preventable (HIV infection developing into AIDS) based on what you have said is misinformation. I only speak forward about it because things like this, well, people need to be educated as you said yourself.

I don't want to flat out contradict you but I know what I have seen. I also know that at last official count (March of last year), there were officially 1.7 million deaths from AIDS for a years time. That is more than 1% and more than a drop in the bucket.

http://www.amfar.org/about-hiv-and-aids/facts-and-stats/statistics--worldwide/

Again, I want emphasize I am not trying to be argumentative..and you are in an awesome position to educate people. As a nurse and a person that just cares, I also am responsible for teaching and feel an obligation to everyone to understand such an epidemic. I truly wish you the best.great strides are being made and chances for a long life. People who are HIV positive that are receiving treatment are often even living longer than regular life expectancy due to regimented medical care they are receiving compared to an average person. But testing and prevention is still key. Even the article you linked states that a cure may be in the works, but they are saying 30 years from now. I do understand about a functional cure and I think that this is awesome news for everyone affected.

 

[p-helix]

Sorry to here about your Grandad.

That's okay, we all have to die. I was just illustrating my point.

With respect, its how illness and death (or even the possibility of it) is considered, that being with anxiety and fear or in a positive, progressive manner. Remember the OP hasn't been diagnosed with anything yet and is talking about suicide (emotional issues and perception might be an underlining problem here, CBT therapy initially springs to mind).

I think the OP needs to confront his fears and understand them. He is afraid.

Also, when you refer to peoples perceptions and how they consider things including illness and death: I'm guessing you are referring to western cultures in your comment (that being it's as you say a 'taboo'). Interestingly, countries which are fundamentally Buddhist / Zen or Daoist which constantly meditate / focus on the: 'nothing is permanent, the transcendental nature of reality', tend to be the countries with the lowest suicide rate (save Japan, which is another story) and stress related diseases.

There is a fight or flight tendency.

In the end we are all going to die all the blueberries in the world ain't going to stop this.

Blueberries can improve health or protect from worsening health in the case of auto-immune disorders so it is reasonable to conclude they stop dying. Food and herbs save lives continually, they're a blessing. Your drugs are toxic to some degree but blueberries are only good. What good your drugs do for you, blueberries are doing for somebody else. :D

You're over-defensive about HIV. HIV is a disease which by its nature spreads, hence the stigma. It's a huge industry, many millions of people depend on it to live, with the virus and without. Those who cannot get the drugs die. There is no cure, there is talk of 'turning the virus against itself'.

HIV metaphorically is a medium sized country; more than seven thousand people go there with their one-way tickets daily, because another person with an HIV passport gave it to them (which other people are paying for economically, regarding drugs and the drug industry, counselling, testing etc.) HIV is terrible in many ways.

 

[Wobblier]

What is this 'Gang up on a HIV+ person week'?

Well if you two are going to pick all my words to pieces, here's my jolly little, happy response: :D

(which other people are paying for economically, regarding drugs and the drug industry, counselling, testing etc.) HIV is terrible in many ways.

Oh, is that supposed to make me feel guilty. Shame on you. Do you also say fat people and smokers are a burned on healthcare and dance round people in wheel chairs? I have paid my taxes all my life, don't go there, please (this thread has been hijacked enough)…

https://www.youtube.com/watch?v=9_9NtA80qHg

That's okay, we all have to die. I was just illustrating my point.

That's okay, personally I try not to use the death of relatives to illustrate a trivial point on a forum.

-As you can see we can all have ago and pick each others comments apart, but where will that leave us? No offense meant to you regarding you using your Grandads death, I was just illustrating a point.

HIV metaphorically is a medium sized country; more than seven thousand people go there with their one-way tickets daily,

Oh, dear. What cloud are you on? Tell me what trials and facts you used to come up with this dribble? Actually don't bother thanks.

I promise it is not my intent to upset you or to be inflammatory in the slightest. But comments made about people now thinking that no one dies of AIDS or that it is 100% preventable (HIV infection developing into AIDS) based on what you have said is misinformation. I only speak forward about it because things like this, well, people need to be educated as you said yourself.

I see your point. I suppose I was over vigorous with the word 100% nothing is a 100% (dam close though for most people in the west). The last thing I want is for people to think is that HIV is a walk in the park and therefore not be safe. However, the lack of information out there is shocking. Or how misconstrue the information gets or the lack of knowledge the general public has is shocking.

‘Nobody should have to die of HIV with early diagnosis and free access to care and anti-retroviral drugs’.
http://www.bhiva.org/documents/Conf...osters/Epidemiology-and-Surveillance/P134.pdf (the only website recommended by doctor)

Let us read that quote again:

‘Nobody should have to die of HIV with early diagnosis and free access to care and anti-retroviral drugs’. :D

Good news yeah? Why not focus on something possitive, if not you must have quite a depressing life. I'm happy as Larry :D

I don't want to flat out contradict you

(But you will :D )

but I know what I have seen. I also know that at last official count (March of last year), there were officially 1.7 million deaths from AIDS for a years time. That is more than 1% and more than a drop in the bucket.
http://www.amfar.org/about-hiv-and-aids/facts-and-stats/statistics--worldwide/

Amfar.org??! (oh, dear and this is from a nurse)

The site is heavily focused on research grants and getting them (more funding / money), of course they are going to throw massaged stats around to sensationalize and get more funds. On a similar topic: you are also aware on how evil the pharm' companies can be right? Please do some research. Maybe talk to the head nurse or a doctor at your hospital?

They also say this: http://amfar.org/amfar-researcher-r...rus-wake-stem-cell-transplants-cure-research/

Anyway, you’re looking at worldwide statistics. Seriously (can't you see the problem with this and the topic of this thread ergo it is all subjective)? I know the a manager director of this site http://www.aides.org/ and he advises against using statistics from Amfar.org in this context. However, you are correct, the fact is lots of people all round the world die of AIDS. Lots of people all over the world die from unclean drinking water, lots of people die even from even chicken pox, even in the US, to name just a few things.http://www.cdc.gov/Features/preventchickenpox/.

Why constantly focus on negativity and death, what a miserable existence~ people who do that have.(take the OP as example he's thinking of suicide and he hasn't even been diagnosed with anything. Oh dear)

You're over-defensive about HIV.

Yes I am somewhat (I could say the same about you and blueberries lol :D ). I am newly diagnosed and trying to get my head around it. All the doctors and nurses are advising me that it is now a chronic illness (like diabetes, I would hate to have to inject myself everyday to say alive) and my situation (newly diagnosed, no other diseases, non-injecting drug user etc.), means my mortality rate should be normal or even higher than someone who is HIV-. Heck I was ignorant myself, just like you, only 4 months ago I found out HIV+ people can have children.

(incidentally why didn't you put diabetes on your silly list as you already say HIV is bad because you would hate to take drugs everyday to stay alive?)

Blueberries can improve health or protect from worsening health in the case of auto-immune disorders so it is reasonable to conclude they stop dying.

Wow, they never die! Cool! LOL

......................

I apologise to the OP for people (including myself) who have hijacked this tread.

We could all look at negative harrowing statistics all week long (which it seems the OP is doing) or we can look at it for a more positive angle, which I strongly recommend the OP does. Missmeyet? Surely as a nurse you can see this is beneficial to him? Did you give the silly world-wide death rate statistics to all your patients who had HIV in your hospital? (what a grim nurse) As a nurse do you think it is helpful for me (and the OP) to read these or do you just want to selfishly argue your point? Think of your professional responsibility of duty of care as a nurse, the guy is suicidal.

The OP is considering suicide for an illness he has not been diagnosed with . He is in a fragile state of mind and these nonconstructive arguments, even if it isn't about his suspected illness is not constructive and can’t be helpful to his frame of mind, can it? Please look at the bigger picture and think about other people. Think back to your training as a nurse.

I mean this in the politest way possible, please don't get riled up and upset again.

OP, please don’t do anything rash like suicide, talk to professionals, the world really isn't as bad as you think or read online. Maybe BL isn’t the place for this conversation. Stay strong, be positive, chin-up, my friend. I have argued my point to show you that, well: look at me I’m newly diagnosed with HIV (second on your list) and I don’t think it’s the end of the world. Stay positive. PM me anytime :D

The world is what you make. Make it something special to you.

….
And to anyone who might misconstrued my comments to be ‘riled up’ or ‘upset’, I write this with the biggest smile on my face, :D content on a tropical island, just in range of the wifi from my hotel, watching comedy shows, killing time, on the beach, sand between my toes looking at the big beautiful turquoise blue sea, not a cloud in the sky. :D :D :D :D :D

….
You can look at life through eyes of fear or through eyes of joy and love. I know which one I’m choosing:
https://www.youtube.com/watch?v=mCUOEoPucJ8

missmeyet? I’m still waiting to hear how many people have died of HIV related illness in your care?
…nevermind, it’s a bit negative, I won’t bother, cheers.

optimists have more fun!
http://www.youtube.com/watch?v=osd15qNCUQY
Good luck everyone :D

 

[missmeyet?]

I don't think anybody on this thread has gotten riled or upset except for you. I can understand your attitude comes from being newly diagnosed, it is a scary thing. Yes, you should be positive as well as the OP (though I think he is probably overly worrying himself) as this is beneficial to everyones health for the most part. But being positive and giving false information because you hope it to be true are two different things.

If you believe that the stats from amfar are unacceptable, the exact same numbers were quoted on every site that I looked it including WHO.
WHO
http://www.who.int/gho/hiv/en/

Shows latest statistics of UNAIDS, WHO and UNICEF
http://www.avert.org/worldstats.htm

http://aids.gov/hiv-aids-basics/hiv-aids-101/global-statistics/index.html

http://www.unaids.org/en/media/unaids/contentassets/documents/epidemiology/2012/gr2012/jc2434_worldaidsday_results_en.pdf

I don't know how much more clear it could be made that it was not anyones intention to "pick on the HIV+ guy" nor to pick your comments apart as you said. I don't think the other poster was trying to make you feel guilty about being HIV positive and the potential costs involved in it as you stated. You are so defensive that you are completely missing the points that are being made. I was only concerned that the "facts" you were posting were so completely incorrect and that was not to "show you up" or try to prove you wrong for any other reason except I believe people should be educated as I said before. It is dangerous for everyone's health and future.

I know that it was important to me to try to be very sensitive to your position as an HIV+ person but you can only tip toe around it so much when stating facts. I have a huge amount of empathy for you even when you make it difficult to. I'm sure it is very hard issue to come to terms with. That being said, no matter how much you wish to deny the facts that are there, 1.7 million people did die from AIDS in a one year period (most recent years statistics which was released last year).

People do still develop AIDS from being HIV positive. Though nobody should have to die of aids with access to drugs and early diagnosis it doesn't change the facts that people are still dying, a lot of people. The facts also state that the majority of people who are infected do not have access to adequate medical care or drugs. Yes, as I said over and over, things have greatly improved. It is not the for sure death sentence that it once was. Many HIV positive people are living even longer than the average life expectancy with good medical care.

I just don't understand how you are in so much denial that you stated that all of this is misinformation and just being misconstrued and that it is all subjective. It is what it is...period.

I won't make any more comments as any type of further argument because I think the point has been made. I only wanted it to be clear what the facts were and was concerned about any misinformation...I think at this point anyone can google or hit the links with the statistics from the major organizations such as WHO and the CDC or whoever they wish to believe (since they all have the same facts listed) and figure it out for themselves now that it has been brought to light. It just really concerned me that after you stated that no one dies of AIDS anymore that some people took that as a fact.

You have kinda turned this into somewhat of a personal attack on myself and another whereas I'm pretty sure I respectfully disagreed with you. I don't mind it though if eases your feelings. At no point was I ever upset or mad, just concerned. As far as hearing back from me about how many AIDS patients I have taken care of that died, I had already sent you a very detailed PM (the same day that you asked) where I also offered my concern and genuine caring.

I truly wish you the best.

 

[Wobblier]

^ again your your twisting things and stating world wide facts, when that is not the point I was making. 3.4 million people a year die worldwide from unsafe drinking water, but I doubt that is in the USA or the UK, that was the point the analogy I was making.

http://water.org/water-crisis/water-facts/water/ (should I be scared of water?)

1.7 million people did die from AIDS in a one year period (most recent years statistics which was released last year).

That is extremely sad and shocking. I am well aware that lots of people die and I am not making light of HIV sorry if you feel that has been the case.

Lets have a look at those figures again. 34 million know there status, 14.8 million people are eligible for treatment however only 8 million are getting treatment, it is then no guess that 1.7 million people die of AIDS a year. SO sad. I am so lucky to live in a developed country with access to treatment.

http://www.unaids.org/en/media/unai...012/gr2012/jc2434_worldaidsday_results_en.pdf

Also please let me educate you a little, what can be termed as AIDS in one country might not be AIDS in another, its just a long list of illnesses and levels of CD4, some countries use some, some countries others, at different degrees, its a grey area. Some people say it's all do do with 'catching and inflating the number of people who have AIDS to receive more funding'. For example in the beginning in Africa they didn't have HIV tests and they devised a short list of symptoms and if you had these you were diagnosed with HIV. The list was something like weight lost and a fever (totally ridiculous). This of course resulted in a huge inflation of figures (due to incorrect prognosis) which then resulted in a huge amount of money and funding. Funny that, huh? Any way, I'm well aware that in the world lots of people are dying of AIDS, I've even seen it on my travels (very little now) in third world countries (but this was not my point). I don't know we can look at stats all day...

https://www.youtube.com/watch?v=xCZVYvKUQ2o

I have already corrected any mis-use of words I made and anything that could have been termed misinformation and become more specific to ease your concerns, again I am sorry, please don't get too riled over a forum. I never said people don't die of AIDS world-wide, that was not the point (also I initially meant a comment regarding the western world). I have a friend who has had HIV for ten years so I see what she has went through with the old-school meds that were full of side-effects.

Anyway the point is how we look at things and at life. I have a optimistic world view you have a pessimistic world view. You say I am in denial I say I am being positive .Lets agree to disagree. At no time ever have I said people don't die of AIDS in the whole world and that my meds wont bring side effects (however, the new generation of meds little to none in most people and me so far, touch wood), I know all this, I'm not going to become suicidal and spend the rest of my days crying about this, this is my choice, I don't know why this is so hard to believe. Its all about how we accept the facts and move on or just generally the way we look at things and life

Re-read my previous post.

Sorry if I got you riled and upset again. I constantly posted throughout all my comments that this is nothing personal, I was just concerned with your grim world view which might affect a suicidal OP. My point was not to argue or get you upset, but to show the OP that the world isn't such a bad place, suicide is not the option. Please try and relax. Look at the bigger picture.

I just wanted to inject an amount of Positivity in a bleak thread, think of the OP, suicide is no joke I have two close friends who have had made multiple suicide attempts. I never meant to make light of any disease. I sorry if you feel like I did. Please use your professional judgement.

(I'm repeating myself, your just not getting it....never mind)

Thank you for you kind wishes. I truly have strong sympathies for someone with MS, it must be very hard for you and I wish you all the best in your profession, remember to always keep learning, you're never too old :D

Remember when someone is suicidal in the future in your hospital, try and talk positively to them or get someone who is trained to do so.

Good luck OP, don't do anything rash, stay positive, PM me if you want to talk

Sorry no PM from missmeyet?, just BL welcome wagon message - never mind, lets try and not get personal
Goodbye and good luck - I've got some more traveling to do

>>> http://www.bluelight.ru/vb/threads/690158-HIV-thoughts-and-Information <<<

 

[missmeyet?]

^ again your your twisting things and stating world wide facts, when that is not the point I was making. 3.4 million people a year die worldwide from unsafe drinking water, but I doubt that is in the USA of the UK, that was the point the anology I was making.

http://water.org/water-crisis/water-facts/water/ (should I be scared of water?)

I have already corrected any mis-use of words I made and anything that could have been termed misinformation, again I am sorry, please don't get too riled over a forum. I never said people don't die of AIDS world-wide, that was not the point. The point is how we look at things and at life. I have a optimistic world view you have a pessimistic world view. You say I am in denial I say I am being positive. Lets agree to disagree. (I'm repeating myself, your just not getting it....yawn)

Re-read my previous post.

Sorry if I got you riled and upset again. Please try and relax. Look at the bigger picture, it's just a forum.

Thank you for you kind wishes. I truly wish you all the best in your profession, remember to always keep learning, you're never too old :D

Remember when someone is suicidal in the future in your hospital, try and talk positively to them or get someone who is trained to do so.

Good luck OP PM me if you want to talk

Goodbye - I've got some more traveling to do

You are just very passive aggressive.

 

[Morphling]

Excluding data or interpreting it in a way that favors what you want to believe is called confirmation bias. It's great to have a positive attitude towards life, generally, but doing it in this particular way....mmmm.

I have two friends who were infected with HIV during the first major waves in the early eighties. They're doing well, but acknowledge the fact that the medications can well cause as many problems as they solve. Then you get prescribed another pill to deal with the side-effects.

Keep reading, because the more you know, the better you'll be equipped to deal with things.

 

[Wobblier]

You are just very passive aggressive.

My God, we sound like a married couple. Maybe we should just get a room

Take care missmeyet? you have been great fun