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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) Version 5.0 ~ V

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I literally get anxious when I go to fill my scripts. You never know how the pharmacist is going to be and I'm not doing anything wrong. Last time I brought in my script the pharmacist said "you do know I have to check the states monitoring system". I was like "fine, go right ahead". Almost like by looking at me, he was sure there was an issue.
 
D4... Do I feel your pain.. Literally. I am not in the league of CP as you, but I have severe bowel disease complicated w inflammatory arthritis and muscle arthralgia etc. I hurt. All over and often.
For years I was untreated/ under treated. As a previous poster mentioned, they seem to think you're "too young" for ER pain meds but not too young to be writhing in agony.
They all seemed to be shocked after an exam that I wasn't on the heavy hitters BUT nobody seemed to want to prescribe them!
Finally found a compassionate dr and the first month he scripted me ER oxy I was relieved but SCARED TO DEATH of people finding out my dirty secret. For some reason, perks are socially acceptable but take 10mg OxyContin and you're a junky. Funny how the propaganda works.
They are just ignorant and believing the medias lies.
I'm on a higher dose of ER and nobody knows but family. Everyone stays out of it but mom who was and is always terrified of drug addiction to the point of leaving her stage 4 cancer pain untreated . She doesn't want to see me in pain but is afraid. So I don't bring it up much :)
Never been hassled at the border and I bring tons of meds w me when I travel. The XL slide loc bag chock full. My docs give me my antibiotics etc as a preventative measure to nip things in the bud of need be in a foreign country. But I make sure everything's in the original container so they can't say much. I also leave some home so if I'm going for a week I'm not bringing 200 oxy, though I will bring more than I need just in case.
I agree about the age thing. I believe half the time that I am prejudice-ly judged it is due to my age as I am still young. But as you said, pain doesn't care about your age so why should proper treatment? My doctor is very compassionate and caring as well, and his priority is my health and comfort - quality of life - above anything else. He has actually advised that if I am given trouble that I can refer the harasser to contact his office and he will set them straight. He always asks how my meds are working and about every other month or so he will ask if I need a dosing schedule or strength increase. At one point when we were talking about alternative extended-release opiates he described several to me, such as OxyContin, Hydromorph Contin, MS Contin, Duragesic, etc., and went over the various advantages/disadvantages of each. After, he asked which one would be the route I wanted to try first, and he would then determine an appropriate dosing strength and schedule. My concern was the number of pills I was already taking and the inconvenience of it, so we decided to try the Duragesic/Fentanyl patches based on the fact that they are applied every three days and I don't need to carry around another pill bottle everywhere I go. He has taken a very proactive and inclusive approach to my care which I appreciate tremendously. Mutual trust goes a long way when finding the care that works best.

I literally get anxious when I go to fill my scripts. You never know how the pharmacist is going to be and I'm not doing anything wrong. Last time I brought in my script the pharmacist said "you do know I have to check the states monitoring system". I was like "fine, go right ahead". Almost like by looking at me, he was sure there was an issue.
Yeah I used to get the same thing and here there is a Narcotics Monitoring Program and they always would say, "Are we going to see any flags for you?"

It's just so ignorant and rude and I believe that it is because of my age as I am still young. However, like Bliss26 said, pain doesn't care about your age. I've since switched pharmacies and the pharmacist owner as well as assistant pharmacy manager both know my story well at this point and have seen me at my worst during a severe episode of pain. They are incredibly compassionate and always ask how I am doing and wish me well. Even when my doctor makes an error on my scripts (which happens more than you'd think - his office is incredibly busy and he still hand writes all scripts) they fill it anyway and request him to fax a corrected script afterwards but without making me wait.

-----

Thank you both for your feedback and contribution. It's nice to know that we aren't alone. One day this media demonization needs to stop and I hope we don't continue to see doctor shaming for "over-prescribing" because sure there are those seeking drugs for abuse and diversion purposes but who is a doctor to tell a legitimate patient they are lying or deny them the care that they truly need? Pain is personal and only the one in pain knows what they go through every day.

Peace and love, and many pain free days ahead to you all.

Cheers,
D4
 
Honestly the people who go to pain management just as drug seekers are going to get something else somewhere else when they are denied by the drs so why be so up tight about it. The drs are not really saving anybody.
 
Honestly the people who go to pain management just as drug seekers are going to get something else somewhere else when they are denied by the drs so why be so up tight about it. The drs are not really saving anybody.
That's exactly it. Seekers, abusers, diverters... They will always find another source one way or another. And when they can't get it from doctors they get potentially degraded street drugs, so one could argue the risk of opiate related deaths may actually rise.

But the bottom line is that they will always abuse and will always find another source.
 
Developed type 1 CRPS (http://en.wikipedia.org/wiki/Complex_regional_pain_syndrome) about 2 years ago after shattering my heel into 14 pieces. Been getting progressively worse since then, but has thankfully stayed localized below the lower half of my left calf to the tips of my toes. I'm on 80mg of oxycodone a day (20mg every 6 hours) and 700mg carisoprodol, along with meloxicam, which I don't find all that effective, but take anyway per my doctor's orders. The oxycodone is actually pretty ineffectual directly, but I find that I still get some euphoria from it even after a year and a half, which is distracting in a good way.

I self-medicate with heroin (IV) when I can get my hands on some, which is generally once every 2-3 weeks, spread out over a 3-4 day binge. I've been using heroin that way for about 3 years now.

I found that the pain in my foot gradually precipitated bipolar mania, which I have a genetic predisposition for. Becoming manic generally means an increase in pain, so I take depakote, seroquel and mirtazapine daily.

I've found the best and most consistent treatment to be yoga and biofeedback techniques. Things that keep me relaxed and my heart rate and breathing regulated, which I imagine to be helpful for most painful conditions.

I've tried a large number of treatments for CRPS like topical anesthesia, topical ketamine, bisphosphonates, sympathectomy, mirror-box, gabapentin and lyrica, all to no effect. The one thing I haven't tried (due to it not being FDA approved in the USA) is ketamine infusion therapy, which I hope to get into a trial for at some point.

If anyone else has CRPS and wants to discuss, or just has questions feel free to ask
 
Sorry to see what majority are goung through. I have no other options but to see this pain dr. New York City is so quick to brandish you as an addict if you search for a dr that can help.

Im just going to be put on suboxone and be done with it. Tired of explaining this doesn't work. teah ive given up.
 
Well I broke my back in the Marines jumping out of a helicopter back in 2008 long story short was out on pain meds and it really got out of hand so rehabs, teen challenge, and lots of jail I got sober. Then on 1-20-14 I was in a really bad car accident after 1.5 yrs sober in which I broke my face, skull, neck, back, pelvis, and lots of internal injuries and a TBI. Whilst in the hospital I was on tons of meds all the way through all the rehab learning to walk etc. well cutting to the chase I took my meds as prescribed as I had to live with my parents because of medical issues and they also played the role of what my dad likes to call "pill monkey" and gave them to me as directed. We thought it would be best if I tried to live with out them so I have been completely off of them for like 5 months and it has been miserable. I am in so much pain that I literally spend 80% of my time in bed. It was super hard and only has gotten worse as I just had to have my last surgery repairing the damage that the seat belt did to my abdomen and was given a prescription for 120mg of oxy a day. I only took them for five days and even though I just had surgery I was in less pain overal than I've been in since I quit pain medicine all together. I've been back on my program of pain and hatred for life in general for five days and can't stop thinking why the hell do I deserve a life of bed ridden misery when there is medicine that can help me greatly. I bounce back an forth between you are an addict and I deserve this because I've done a lot of bad, back to no eff this I deserve to have pain control. But I am an addict. Idk what to do I keep thinking if I can't have my parents help me with my medicne intake I could do the the methadone clinic. I'm at the end of my rope here and I know I can't live like this but I also don't know if I can ever make opioid therapy work. I guess I'm just crying out for anyone's opinion on the subject and am curious if anyone out there has ever been in my shoes and what did they do? Has anyone been an addict and had to resume taking pain meds? How did they go about it? Thanks everyone for reading this.

1. Thank you for your service. (I think we might be from different countries, but we are all in this together)
2. Addict is a strong word. There are a lot of people out there who are in pain, need pain medicine. But they like their pain medicine a tad too much. IME these are people who have both physical and emotional pain. Opiates work for emotional pain, up to a point.
3. So, work with a psychologist or a spiritual guide of some kind on the emotional pain, and find a doctor who has some sense to manage your body pain. (Hint: if they are using short-acting opiates for chronic pain, the don't have any sense)
4. As to why you deserve to live in misery. That's not the point. The fact that you were injured has no moral value in itself; you know as well as I do that bad things happen to good people, and good things happen to bad people. There is no meaning in such things. Events do not have meaning, only people have meaning. We build meaning by the decisions we make. We don't get to decide what happens to us, but we do get to decide what kind of person we will be. Finish this sentence: "At the end of the day, I want to be the guy that...." Maybe you're young, and you don't know what the ultimate answer would be. Even at this point in your life, you could say, "At the end of the day, I want to be the kind of guy who had the guts to serve honorably and do what I knew I had to do." As you journey through life, you will be able to answer that question with more specificity and accuracy.
5. If people can't take you the way you are, fuck em. You deal with this by telling the doctor, "I have real pain but my problem is I like oxy's just a tad too much. What is your recommendation?" Find a doctor who listens to you, and you will find something.
 
Question regarding Pain MGT Dr.

Hi guys!

Please read this thoroughly before locking or deleting this post as this question is not what some may think it is. I know for a fact that we here at Blue do NOT answer questions regarding drug testing, but I believe that is mostly due to people asking ways of beating the test. None of that has anything to do with my question.

My question is that my Pain MGT Dr requires a test each month I believe to verify that what is being subscribed is in your system and or that that isn't anything in your urine like illicit drugs. I understand all that and that's nothing I would try to get around or anything, my problem is that I never can seem to go when they ask me to do the test. Thus far, my Dr has been cool about it because he never stocks the cheek swab tests kits, but I am getting a little worried that he thinks I am trying to avoid the test which could not be any further from the truth.

Has this problem ever happened to anyone here and how did you over come it? I one time sat in his office for over an hour drinking water because I could not go. For some reason my bladder hold an aweful lot and there is nothing I have found that I can do to force it out. Does it sound to anyone like I may have a problem with my renal system which is preventing me from creating a lot of urine? When I was recently hospitalized they said all my liver and kidney functions were great so it doesn't sound that that could be an issue.

Like I said, I am in no way asking about how to beat the test, I want to see what I can do to actually take the test.

Anyone have any ideas other then drinking tons of water which doesn't seem to help at all?

If this question falls under the no drug test question rules then please just let me know and go ahead and delete the post. I just didn't know where to ask people who may be in my predicament.
Thanks!

Pain
 
Hi guys!


Anyone have any ideas other then drinking tons of water which doesn't seem to help at all?

Opiates tighten up the sphincter. Being nervous and having too much adrenaline in your bloodstream does the same thing.

Things you can do:
1. Kegel exercises (look it up, boys can do it too) to increase awareness of, and control of pelvic floor muscles (and, learn how to squirt like a porn star)
2. Get meditation training. Practice your relaxation/meditation exercises whenever you pee, especially when you pee in a public space. Worked for me. Not that I, you know, pee against the side of Buckinham Palace or anything. Public restrooms.

What your doctor can do:
1. Give you tamsulosin. You don't have to take it every day but taking it on the day of your test should help.
 
A friend of mine had a similar issue regarding a urine screen for work. When he couldn't pee, the nurse ran the tap, c'mon we all know running water makes us want to urinate. Shame is he'd had a joint or two a cpl wks earlier & failed. Damn, I felt for him!!

Rtp
 
Again sorry you all going through these ordeals.

I think my pain dr has no clue on being a pain dr. Was going to be put on suboxone. I go in get a script at the end of the session. I look at it. Oxycodone 30mg? This dr swore he doesn't like prescribing powerful opioids.

I would like to take one pill daily. But am to afraid to ask if i can just be put on one. Or be put on methadone. New York City is such an awful state for actual pain sufferers. Because of all the abuse.

Have a great new year. And let's hope 2015 will bring us some sort of relief.
 
Pain Med Advice - Please Help Me

Hi Guys

I feel like I'm at the end of a very long road and about to find there is nowhere is to turn. To give you a brief outline, I've been on opioids for over 23 years for Chronic back pain after I had a serious RTA, in which I smashed almost every bone from my neck to my waist. I was also impaled by a fence post, which entered the car and then me through my back and out of my chest, ripping out my right lung in the process.

I've been on lots of different pain meds and had lots of operations, I've been prescribed everything from oxy to fent, my question is basically out of desperation for some kind of pain relief, I'm currently on Palladone (Hydromorphone Hydrochloride) and take 112mg of slow release per 24 hrs, I then use anything from another 20 - 40+ mg of 2.6mg breakthrough capsules, but! I'm getting very little pain relief at all, I'm also taking Gabapentin and anti-depressants which should be working in conjunction with the opioids. My GP isn't the most knowledgable about pain meds, infact im the only person she has ever prescribed palladone too and I was already on these when she became my GP, so I'm pleading with anyone out there who is also wracked with Chronic pain to please take the time to reply to me with any advice on which pain meds have worked for them. To put it in perspective im bed ridden for 75% of my week with pain and at 43 yrs old with two kids, that's really tough, I miss out on so much just because I'm in so much pain, I know I won't ever be pain free, 9 operations have taught me that, but I just want some relief, however small, I'm also an insomniac and take Zolpidem, which to be fair is a waste of time as it doesn't work. Anyone who takes the time to reply with advice has my deepest thanks, as I don't know where to turn anymore, I'm just in so much pain that it's getting to the stage after 23 yrs that eternal sleep seems to be the only time that I will get any pain relief. So before I take anymore steps towards that, I'm reaching out to anyone that knows of any combinations of meds that I can suggest or ask my GP for, I've been on Palladone for 3 yrs now.

My current pain/sleep meds are:-

Palladone
Diclofenac
Gabapentin
Prozac
Zolpidem

Deepest thanks

Steve x
 
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By the way. Great name! As im a steven!

Im on 30mg of oxycodone/roxicodone - instant release. Lyrica, seroquel xr. Depakote, lamactil, Xanax, diazepam, plus a bunch of heart meds, due to heart failure. Also below.

Come next week im going on methadone. Ive heard great things about methadone from a lot of patients, and a friend who pased away from cancer. also i take valotren gel, soma; mobic. This mix have worked wonders for me.

The methadone will be the typical pain management dose. You can akso try the actiq of fentanyl. It worked for a great friend of mine scotty d. he was hugely opioid tolerant.

He was prescribed a ned called actiq. Its a lollipop you move around ya gums and cheek. Powerful stuff, it helped with my pain. As he gave me two ;) But at this time in your life for being on opiates for a very long time. I would ask your doctor or pain management dr for that med.

Im also opioid tolerant. So i need to be put on something high dose, just like you. It sucks but a positive attitude some hiw will wirk. Jyst gotta believe in yourself! !!

I brought my pain dr a print out of meds that, is used for pain. And also the prescribing infomation. He was very impressed and said thank you. Cause i did all the leg work.

Im also a chronic insomanic. Ambien, lunesta, and a illegal barbiturate. My psych dr prescribed me Seroquel xr and diazepam. Which worked wonders for me. Sleep and schizophrenia, muscle relaxer.. Low dosages of seroquel worked for my insomnia
So my list is :

Seroquel XR
oxycodone
Lyrica
soma
Mobic
diazepam
xanax aswell (most drs dont prescribe 2 benzos, but he did)
Voltaren gel
Depakote
lamactil

I hope any meds you get works for you. I was bed ridden as well. Add diabetes and neuropathy, plus psychological issues. And you got a good mix.

As always talk to ya doc. Good luck and come back abd tell us what transpired.
 
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Tolerance

I've had parenteral 48 mg hydromorphone and 40 mg oxymorphone within 24 hr's and I can still type! What can I do about my tolerance? I have chronic severe pain since the 80s. I cannot go on like this. I'm serious! It's all legit.
 
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Blofeld- you said you were on all sorts of different ones. Do you remember which ones were the closest to helping you?
 
rant coming

I just saw a third primary doc in as many months. The pain today is so bad I can't stand up straight and still nobody seems to want to help me. I've been through two pain clinics, done all the injections. I'm trying to get into a new one but one of the old pain clinics won't send records (they say they haven't gotten the numerous requests) so I have been without pain meds for two months.
FUUUCCCKKK Im so frustrated and in so much pain I just want to hit everything and scream
 
I'm about to start using heroin again simply so I can get put on methadone because I am so tired of all the pain and I was stupid enough to admit I had problems with drugs in the past to my doctor so now I have problems getting the meds I need.

I am strongly considering this
 
Blofeld..holy smokes, 112mg Palladone from a GP? Nice GP.

That dosage of breakthrough med is like...yeah, useless. What I would suggest trying is having your breakthrough med changed to something else, as being on two different kinds of opioids can have a greater effect on pain than one single drug.

Wez.. your old clinic people are being idiots. Tell them to send them to the new clinic you're trying to go to, or have them contact them by phone, and fax in the goddamn signed request form. They know what the deal is. Tell them if they don't you're filing a complaint with the state medical board. Jesus.
 
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