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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

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Closeau, I'm glad to hear your leg has improved! But worried about your shitty living situation.

You're right in saying stress can cause us to feel more pain, indeed.

I understand you can only do what u can within your means, but hvng to put on headphones each night surely can't help, sleep,- well quality sleep factors in too if u can get it!

Peace & well wishes to all,

Rtp
 
Hey RTP. Its not so bad and Pandora will pause after couple of hrs and by then its usually quiet. I actually sleep very well due to the latuda, lithium, and kolonopin. Waking up is a different matter. Freaking dogs. Pisses me off. Ive got the ball rolling on getting out. I know theres help out there but ive been job hunting and its tough. I made dentures for 17 yrs and know 4 people with labs here so i thought finding work would be easy but their all filled up so im scrambling. Im very behind financially and something needs to happen quick. This is why i said stress is terrible for pain. Once i get out of here and have a part time job and foodstamps or whatever to help my pain will drop 2-3 points. Thanks for your concearn. I made a bad decision moving here and now im paying. Such is life. Thanks again and i hope youre well today?
 
Oh Closeau,

That sucks. But if I remember correctly, you HAD to move to change your situation, right? I'm sorry things are so stressful. I'm sending positive vibes your way and will pray for you.
Sometimes these things happen so that new opportunities can present themselves. I didn't plan to be in my current job, I sort of fell into it, but I couldn't be happier, or think of anything else I'd rather do.

But I'm sorry you're stressed. Yup, stress doesn't help ANYONE. And I just don't get people who don't think about other people!?! Drives me crazy! I see it in young kids in school, and I want to shake the parents, and tell them that they are not helping their child. It was getting so bad with the entitled kids that I had to get out of the classroom.

Ah, well. Hope everyone else is okay, and having a peaceful evening. That is my wish for tonight. A quiet, peaceful evening for all.
 
Closeau thats shitty.. I wont live like that either hey? No, i know how stress and anxiety as well as insomnia can make pain much worse. Just dealing with the pain every day is bad enough to cripple you now you have to deal with other people too. All we cpp's want is some drugs to relieve the pain and bloody peace please!! Closeau im quite new so i dont exactly Knowr your story what conditions do you have again?
Oh yea ..that fucking pipe.. Who can love it? Hahahah
 
Hi stefx85. I have blood clots from my belly to my knees and completly blocked in groin where pain is. Makes it diffucult to walk. Last summer they removed my colon so i have an ostomy which i despise and still got abdomen pain. Im on ms contin 60mg every 8 hrs and dilauadid 8mg every 4 hrs. Yes, im stuck in a bad situation. Looking for a part time job to supplement disability. As soon as i get that im out of here. I live in a rough city so public housing really isnt an option. Sec 8 takes up to a year for approval. So im kinda stuck. I feel sorry for myself a lot and its like isnt it bad enough i have this pain and poop into a bag? I lost my mom to cancer end of Nov so im still dealing with that and when i see or have to deal with the extraordinary bullshit here it flares my pain. Also my mental pain. Im bipolar 1 and on lithium latuda and kolonopin. If it werent for the kolonopin i would be having panic attacks continually. Thats me, lol. Id like to welcome you to the thread. Its my favorite thread full of great supportive folks. Your turn. What brings you to the thread?
 
Oh Closeau,

I forgot about the bipolar. I'm so sorry you don't have someone to take care of you. My husband is bipolar 2 and ADHD. If I didn't help manage his meds and be there for him (help do things when he gets stressed out), I honestly don't know what he'd do. I'm not saying this to be conceited, I'm just aware of how much better his life functions when he has support, as do I.

Im still sending positive vibes your way, and hopefully you'll get a job opportunity that you like and are able to move into a better place, then you can focus on being you!

Happy Saturday, my friends. I love the support we all dial into on here!
 
Thanks banana. I also have ADHD too. Take Adderall for it. Quite frankly i dont know how i do it and quite frankly im getting very tired of doing it. Your husband is a lucky man!!! Its too late for me. Whos gonna want a 40yr old mentally and physically sick person with an ostomy bag? Its sad but very true.
 
Happy Easter to all my pain peeps. I miss beimg a kid and looking for eggs and my big basket. Im not too sure how they got eggs and a big creepy bunny from Jesus resurection but its good to get the kids involved. One of the days i really miss my daughter tons. I wish we could skpe or something but my ex is poor and has no computer or smartphone. I didnt go to mass but i did pray this morning. Mostly giving thanks for giving me the strengthvto endure my life and i said prayers for all of you that yall be relieved of the crippling pain. Even if youre not Christian, its good to reflect and this is my favorite part of the day cause its quiet here. During week kids skip school and come over here to see kid here and they come at 7:30 and dogs go crazy. Not a good wayvto wake up. Anyway, you all have a wonderful day and if youre struggling just message me and well work thru it together. Bless you guys!!!
 
Hey Closeau,Don't ever think it's too late. Especially not at 40! You're lucky; for a single guy, there are tons of possibilities. I feel for my older single/divorced girlfriends. But even them, I tell them never to stop looking. As long as you are open and willing, the opportunity may present itself. Especially when you're down...a ray of hope may be all we hang on to.I know that this will pass, but I have trouble getting to the bathroom or kitchen these days. It really makes me appreciate that this will go away for me, but not for others. For those in terrible long term pain, I feel for you. I hope someone comes and does something nice for you. Like Dixie said, it's so nice to do something for someone in need. Thinking of my pain peeps today.
 
Hey closeau yea ive got chronic pancreatitis and also some mental problems but whats normal anyways nowadays ? Ive also been on lithium ect ive tried 8 different antidepressants depression s no joke. But back to the pain. Its terrible i get hospital duty about every 6months. Im currently on 40mg morphine 2x daily and 5mg ms ir every 4 hours i was on hydromorphone sr 4mg dly for my ball pain years ago and i wouldn't mind some dilaudid myself. I am undermedicated in my opinion cause the pain is worse now after my recent attack of acute on chronic pancreatitis but i havent been back at the pain clinic yet but im gonna tell em straight this time that their math must be out cause i was on 75ug fentanyl patches! Which on the package insert says is equivalent to 300mg to 400mg morphine dly? So i dunno? Now their giving me just that lil bit of morph.. Hows your pain control? Is it sufficient?
When i was in hospital my dad picked up my script from the pain clinic he's a bit drunk and admitted to asking them to reduce my dosage.... Im so fucking mad right now like you can't imagine!! Im on the couch since out of hospital and in terrible fucking pain. Going back to the clinic this week!!!
 
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Dam man, i hate to hear that. Ive been there. When they took out my colon i was in so much pain and was on a dilaudid pump but it was set so low i couldnt feel relief then the nurses after the pump kept bringing in 4mg dillies when my prescription was 8mg. When i got home i was lying on the couch, like you, in pain. The dosage im on now works good for chronic pain but when i was in acute pain it didnt help. Ive been on fentanyl shortly and it is strong. I remember being very tired but cant remember how the pain was. Sometimes its hard cause ill take my dose of dilaudid and still be in pain and wanna take another. For me its a curse. Its helped my pain but has led to other problems. Im not a huge fan of ms contin. Morphine just doesnt work on me but its the only extended release my insurance covers. When my pain dr went from 30mg to 60 it did make a difference. Thats messed up about your dad. I would be furious. When i asked nurse to up dilaudid pump in hospital my dad said you dont need anymore and i flipped and kicked him out of room then had to explain to him he dont know shit about my pain. People in my dads generation think painkillers are the devil. He just had colon surgery and wouldnt hit his pump so id do it for him and they gave him measley percocets but he hasnt taken one since being home. My mom God bless her soul hated getting on pk when she got cancer. Afraid of becoming addicted until the pain really kicked in and she had no problem. I miss her. Anyway, def sounds like youre undermedicated. I would try to get switched back to dilaudid. I think its the best ir. How is the ms ir? I guess not too good if your lying there in tons of pain. When do you see your pain dr again? Just explain how much pain youre in and usually they will try a different med and you had success in past with dilaudid. My dr wants me on Exalgo. Its er dilaudid. I want it too but its not covered and like 500$ month. Its crazy how expensive opiates are. Better than the street value but i pay 42$ for each pain med im on. Its a lot better than 120$ i was kicking out before insurance but now im behing in my payments so idk. I pay 60$ month for coverage and it dorsnt really help my other meds. Anyway, im rambling. Ive always found the ER a good option if your in that much pain and not only will they give you some iv meds but they can get you in to your pain dr next day. No reason to be dying on your couch. Thats what i would do. Whats your source of pain? Man, i wish you the best and relief. No one deserves to be in the pain youre in man. Think about the ER and if thats a no go then call your pain dr office and get in there quick. I gotta remember when i tell people shit that im spoiled here at Duke and all this advice ive given would work here but idk where youre at or how good the care is. Hang tough bud and keep me posted. Message me anytime. Good luck!!!
 
Hi all,

I have been trying to read through this thread to see if I can find an answer to my question but I haven't seen anything that fully answers my situation. So here is a quick summary of my history...
I was in an accident a while ago that left me in chronic pain. My first pain medication was Tramadol, which was to be taken as needed. It quickly became ineffective and I was then placed on Norco 10/325 by my PCP. After about a year, he suggested I start seeing a Pain Management specialist. My script was 120 Norco every month. I was holding up fine for a while but the Norco was not helping as much as before so my doctor added MS Contin 30mg 2x/day. I've been on this regimen for a couple years but I was recently in another accident where I was hit by a drunk driver one night while I was out on a bike ride. The Norco and MS Contin did not seem to help with the pain at all so my doctor switched me to OxyContin 40mg 2x/day and Percocet 10/325 6x/day.

The issue I am having is the relief I get from the Percocet is so short lived and not really all that effective. Before going on the Percocet my doctor gave me a choice between that and Dilaudid. I chose the Percocet because I read how low the oral BA of hydromorphone is. However, I've been starting to think I may have made the wrong choice by sticking with the Oxycodone. So my question is, given the Percocet provides such short relief, will I be better trying the hydromorphone? I know the half life is shorter but I am fine with that as long as it provides greater relief. If anyone can provide any input I would greatly appreciate it.
 
Hi Skittleszzz, and welcome!

I am a big believer of communication. I think it's totally fair to tell your doc that the percs aren't effective anymore and that you'd like to try the dilaudid he mentioned earlier. Personally, dilaudid doesn't work for me, but that's what pain management is; a lot of trial and error. I found the dilaudid to wear off extremely fast.

I hope you find some relief, and it's worth switching just to monitor the amount of Tylenol in your system.

Good luck!

Everyone else, I'm 5 days out from having my procedure and still in horrid pain. I'm hoping to get back to work on Wednesday. Ugh. Hopefully this will all have been worth it!
 
^Anna, did the surgeon give you any type of timeframe in regard letting the device settle in? What are you taking for relief whilst you recover? lol prob nothing as that's the stimulators job!

Skittles, I feel for you as, like Anna said, it is trial & error. PM takes a long time to get things right for each individual.

Talk with your dr as someone on your level, if you can't, you need to find one you can talk to without the feeling of being judged, stereotyped, branded etc. It's hard to find, but well worth it IMHO ;)

Stefx,- it's always shitty when generally a 'well meaning' relative becomes involved. I think they feel they're protecting us from the danger of 'Narcotics'. You're correct that they don't understand!!

Closeau, I'm sorry that you can't communicate with your daughter. Can you talk over the phone?

I can empathise with you as I lost my Father in a matter of weeks just six months ago yesterday.

Also, as Anna pointed out, don't feel you'll be on your own forever. I walk with one (used to be two) elbow crutches, & atm (hopefully) have a numb & painful pretty useless right hand/arm.

Im single by choice,but it doesn't have to be that way for you.

All Cpp's, love to you,

Rtp ❤️
 
Thanks RTP. Youre always so kind. Skittlezzzz, just my opinion but i think dilaudid is far superior to Oxy. Thats just me though. I usually get a couple hrs of relief and i take every 4 hrs. 8mg. Took me aehile to get her to go that high but if they gave you a choice just say youd like to try it. I wish i had oxycontin. Its not covered by my insurance so ms contin it is. I wish you the best man and try the dilaudid. Thank you to all my pain peeps and your kind words. One day at a time?
 
:\ Hello All!

Closeau...I sent you a lengthy pm. Did you get it? It breaks my heart to read that you're feeling so very down and suicidal. I can truly relate to those feelings. As other peeps have said, "this too shall pass". You've been through the valley of death. You're headed for the mountain top, my friend. Don't look back. Keep moving forward. We all care about you.

Anna...so sorry to hear about your continued suffering. I do hope this eases as your body adjusts to the stimulator. Maybe give yourself some more time off rather than pushing back to work on Wednesday. Is that a possibility?

RTP...Any improvement since consulting the neuro? Nerve pain is such a bitch to diagnose with pinpoint accuracy, even more so to treat. I sincerely hope that you can find some relief and regain the use of your hand/arm with some PT. Please keep us posted.

Skittlez...Sadly, it seems that your tolerance has increased. Have you tried other modalities in conjunction with your meds to relieve pain?

My gut pain is in overdrive today. Even though I had removal of uterus, ovaries and tubes 22 years ago, my body goes full throttle PMS for the first week of every month (sans period of course). Yep, go figure. I get abdominal distention and pelvic cramping, same as always.

I took a Toradol this morning for inflammation. It helps, but this isn't the answer. The Linzess 290 daily isn't really doing its job, although it does produce a partial, painful, liquid BM daily. I know, TMI, but REAL.

QUESTION? Do any of you have excessive internal inflammation? Do you know anything about cannabis oil to ease inflammation and gut issues? I've read until I'm totally confused with the CBD/THC (oh, fuck me) I'm ignorant on the subject all around. I've got to have some help from somewhere, somehow. It doesn't seem as though it's going to come from a doctor.
 
Hi Dixi. I got your message and wrote one back early this morning and fell asleep and it erased it so i will write another one. Thank you for your compassion. I saw my shrink today and were gonna keep things the same as im on high doses. We made a suicide plan and she made me promise to stick to it which i will. I was awoken at 2am and was very angry then went downstairs to get a Gatorade and someone drank my favorite flavor. Theres some kid here hanging out with the son and hes sketchy so he did it. Last 2 mornings hes come up to bum a cig. Bumming a cig from somebody you dont know. Anyway i had those nasty thoughts about 3am but fell back asleep and felt fine when i got up. My shrink is more med management. I see a seperate therapist and shrink called her and got me in Thursday so thats good. I really like her and respect her skills. Thats who i need to talk to.

Cannabis oil i heard is great for imflamation. Thats why my groin hurts cause i have hard krusty clot thats occlusive and very inflamed. Torodol works good on my groin but in your case i could see it not working. I have plenty of THC experience but never tried the oil but ive seen it. One of my buddys has internal inflamation and uses it for that. I would def investigate further. Whats Lizzess 290? Nothing seems to be working for you. Im an idiot but i dont see why they cant just go in and unblock it. Too complicated of a procedure. Its pretty bad when no surgeons wanna do it. I see this ending for you by summer. Its got too. You cant live in this pain. Anyway, ill write you that message now. Thanks for the kind words and def look into the oil. Im sure theyll know over in cannabis threads. Take care to all?
 
Thanks, closeau...No, you're not an idiot. I've asked for decades WTF? Can't you remove the flexure (crimp like a garden hose)?

I asked my cancer surgeon in 1994 "Did you remove the crimp in my intestine?" He said "NO...I wouldn't touch that with a 10 ft. pole". Both my husband and I cried like babies, considering I'd just spent 6 hours in surgery (open abdomen). Why, why, why...

My surgeon said that my previous GI surgeon had "mutilated" my GI tract. He said that none of his colleagues could make sense of the cutting, re-routing, etc. He said he did not want to touch the contorted bowel and cause my death. So...I SUFFER.

Yea, it's really bad when surgeons won't touch you, "let" you literally suffer to death. BTW, Linzess 290 mg is a prescription for chronic constipation. Right now, the stool is backed up in my left side, causing distention and pain.

I just read that actress Patty Duke has died @ 69 of sepsis due to bowel rupture. People are asking how this can happen in 2016? I've been SCREAMING for help since partial obstruction last October...I believe mine is going to rupture, too.

:) I am happy to hear that you are seeing your therapist often.
 
Oh Dixie,

I'm so sorry. I'm sure you've tried this, but does altering your diet help? Have you tried a liquid diet for a few days to clear things up?

Closeau, you can PM me anytime, too. I'm here for you.

My stimulator is not turned on yet; hopefully this weekend. They gave me more oxy and then more oxymorphone when that wasn't enough. I requested more sick days; the only reason I was going back tomorrow was because I was out of days, but I think I'm going to try for a half day.

love to all my pain peeps!
 
:) Anna, that sounds like a good plan...slow and easy back to work. I feel ya, contracts and deadlines see no limitations! But somehow, your health must come first. Please keep us posted on the progression of SCS...positive thoughts!

On the diet modification...YEP...You wouldn't believe the small amount of intake day to day. I take prenatal vitamins, iron and B12 to keep me upright. I go total clear liquid with one small meal per day. Because of the altered stomach pouch, I have to chew everything into a pulp or liquid. Otherwise I projectile vomit. Good times, huh?

It's good to have cyber sisters and brothers to talk to. My BIL just ask me again on Easter..."Why can't they just cut it out?".
 
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