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The Pain Management Mega Thread v2.0

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I take Advil, Zantac, Norco 10/325mg, and Soma.

I have DDD, arthritis all over, bulging disks in 2 places, compressed nerves and muscle spasms middle back to my toes. I think some else I forgot. Oh and migraine too!! Day 4 with mine. Bone pain.
 
Your condition sounds similar to mine Zoey, if you throw a couple extra things in for good measure. I had a full blown panic attack yesterday (haven't had one in a while) so I've got 1mg Ativan added to my cocktail. And yes I am aware of side effects, interactions, and addictive properties ;) I'm not big on being groggy all day so I only take 2 rather than 3-4 a day. It's probably triggered from cutting my opiates in half so I should be able to stash them away for a rainy day as of the first week of Aug. Still sweating profusely :(
 
Skeeef said:
Just out of curiosity what are you guys suffering from that you need so many pain meds for?
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I have complex regional pain syndrome in both legs and my entire right side. I am in constant, severe agony with my meds, without them I would be in hell. Tried every medication thrown at me that arent narcotics. I have had nerve blocks which made the crps start moving up my right side. Next I am trying a device attached to my spine that send out electric shocks to try and disrupt the signals. not many have got success with it but im willing to try anything
 
Damn that really sucks Doomed2pain, have you tried nmda antagonists or other things that would block sodium channels like tetrodotoxin or something?
 
Skeeef said:
Just out of curiosity what are you guys suffering from that you need so many pain meds for?
Click to expand...

I have complex regional pain syndrome in 75% It is a degenerative and agony inducing neurological disorder. of my body. my brain fires pain signals all day for fun. Even on a good day my pain is usually an 8

Since my accident I suffer with my mental health with 5 comorbid conditions. Us cpp's come up against a mountinous wall when it comes to getting the correct treatment.
 
Doomed2pain said:
I have complex regional pain syndrome in 75% It is a degenerative and agony inducing neurological disorder. of my body. my brain fires pain signals all day for fun. Even on a good day my pain is usually an 8

Since my accident I suffer with my mental health with 5 comorbid conditions. Us cpp's come up against a mountinous wall when it comes to getting the correct treatment.
Click to expand...

have you tried nmda antagonists or other things that would block sodium channels like tetrodotoxin or something?
 
Hey guys - opinions needed! After being lulled into complacency by free flowing opiates from my primary doc and then getting "fired" by them because they were bought by the hospital system and I was no longer their type of patient, I am being brought back into reality by my back specialist who was PISSED by the amount I was getting and he really did bring me back to reality.

From this little life lesson I have learned that I no longer want to be physically dependent as I still am on opiates...I have also come to understand that I do have an element of severe chronic pain, but reallymy pain is more episodic in nature requiring intense treatment for shorter periods of time.

Tl:dr here is the question.....I am voluntarily tapering off my ms Contin....my doctor is not too incredibly sympathetic to this...last month he dropped me from 60mgs x 2 a day to 30 mgs x 2 a day.....it was hard at the time in that my legs ached and ached like I can't even describe for about two weeks. Now I have normalized to the dose and am proud that I have dropped my usage in half in a month. I see him tomorrow and I know he will want to drop to 15 mg x 2 a day....I was going to propose a kinder schedule, but now that the hell is behind me I just want off this shit....

Has anyone had this experience and am I less or more likely to feel the aches so badly as my dose gets lower and lower? I read somewhere that it was good for the bodie to experience the pain of withdrawal because that makes our receptors know they need to start producing whatever it is they produce? Thoughts or experiences? Not sure what to do.....also when would you jump off ms Contin....after maybe 15 mgs x once a day?
 
I think you will need a little more of a taper than 2 days. Tell him about your progress and how excited you are about the idea of being pain med free. Maybe 2 more weeks of a taper would be good.

I know in nursing homes they do a drawn out taper to ease the patient body back to "normal."
It really depends on the drug on how long they do the taper. Most pt were young 23-50.

When I taper I use Advil or another anti inflammatory to help relieve the pain. It works for me.

What were the pain meds prescribed for?
 
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Thanks zoey, you are awesome I like reading your posts....

Sorry, when I put x 2 I meant that I take it twice a day...so far I have gone a month on each decreasing dose, so if I drop to 15 mgs tomorrow I will take 15 mgs twice a day for a month....

It is prescribed for severe rupture L5-S1 with compression of nerve root, I have a bony growth at T4-t5 compression of spinal cord and I have 8 other discs that are bulging, protruded or ruptured, as well as severe migraine.....
 
Skeeef said:
Just out of curiosity what are you guys suffering from that you need so many pain meds for?
Click to expand...

Lumbar stenosis >>>>>>>>> 3 Spinal Fusions, L4-5
Bulging Discs >>>>>>>>> More Titanium then Robocop LOL
Extensive Nerve Damage >>>>>>>>> Started 2/25/11-1/31/12-5/1/12
 
Beachcat said:
Thanks zoey, you are awesome I like reading your posts....

Sorry, when I put x 2 I meant that I take it twice a day...so far I have gone a month on each decreasing dose, so if I drop to 15 mgs tomorrow I will take 15 mgs twice a day for a month....

It is prescribed for severe rupture L5-S1 with compression of nerve root, I have a bony growth at T4-t5 compression of spinal cord and I have 8 other discs that are bulging, protruded or ruptured, as well as severe migraine.....
Click to expand...

It sounds like you have a good reason to be on pain meds. I don't know why he would freak out. I hope you can manage the pain after the taper is complete. Does he have a plan for pain control after you stop? You might might not need it but if you require treatment does he have a plan?
 
Skeeef said:
have you tried nmda antagonists or other things that would block sodium channels like tetrodotoxin or something?
Click to expand...

I havent tried those specific meds but I have tried many things from anti convulsants like gabapentin and pregablin to amitriptyline and others. There is no cure for my condition and no research is being done so i set up my own charity. It is on hold for now as my mental and physical health have been dreadful but i am hoping to start it back up again soon.
 
Doomed2pain said:
I havent tried those specific meds but I have tried many things from anti convulsants like gabapentin and pregablin to amitriptyline and others. There is no cure for my condition and no research is being done so i set up my own charity. It is on hold for now as my mental and physical health have been dreadful but i am hoping to start it back up again soon.
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Do yourself a favor and try MXE its a nmda antagonist it can help with pain A LOT
 
Please don't use an untested, unregulated and possibly dangerous drug from an unknown supplier for any kind of self-medication. Its dangerous, stupid, and counterproductive.
 
muvolution said:
Please don't use an untested, unregulated and possibly dangerous drug from an unknown supplier for any kind of self-medication. Its dangerous, stupid, and counterproductive.
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Well Im not saying that he use a dangerous, unregulated drug from an unknown supplier, that would be stupid. Im just saying there are options out there. There are a lot of different mechanisms involved in pain and NMDA antagonists like MXE or Ketamine can be VERY effective in treating pain. Especially when things like pregabalin haven't worked. They both basically work by calming down signals between nerves just in different areas and in different ways. You may actually be able to get a ketamine perscription if your doctor is intelligent and open and you haven't had much success with opiates. But most doctors won't consider that an option so you may have to find your own routes to NMDA antagonists that can help make your life worth living. They are also safe to combine with opiates and make them even more effective.

If you want to talk to your doctor about ketamine and CRPS print this article out and give it to him: http://www.rsds.org/pdfsall/Gustin_Pain_2010.pdf (Notice the SIGNIFICANT decrease in movement pain in Fig. 2 with nmda antagonist+morphine compared to just morphine)
 
I have nothing against Ketamine, but why would a doctor prescribe that when they could go for methadone, which also has NMDA agonism?

And although MXE may be designed to mimic Ketamine, it does not have identical effects, and until it is researched properly, I would not recommend taking it as a medication.
 
Personally, I would shoot cherry kool aid if there was a chance it would help me. And Doomed is in a much worse prison of pain than myself. While I can appreciate the expected warnings, I also appreciate Skeeef giving a reasonable suggestion. That's what we are here for... a sounding board. Government tested, regulated or not, I don't give a shit. I would do ANYTHING to not be in pain every day of my life so thank you skeeef for your input for Doomed.
 
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