I am 24 and suffor horribly from ankylosing spondylitis with uvitis which is an extreamly painfull inflamatory eye condition. I first got pains in my lower back and leg at around 12/13 but while they were very bad they were extramly rareand didn't last long like maybe a few days. When I was 17/18 it became chronic in my hips and lower back. Once I became 20 it started spreading to joint in my body; hips, legs, feet, back, neck, sholder, arms hands, chest, ect There are days when I can barely move.
When the new laws in fl made me have me have to switch to a pain specialist I was getting worried at first but it ended up working out for me. She kept my hydrocodone script at the same dosage but switched them to ones with less apap and replaced my garbage tramadol with morphine. Right now my daily dose for my AS is 4x10mg hydrocodone, 3x30mg morphine er, 3x800mg gabbapentin, 4x500mg sulfasalazine(2 500mg pills twice), 5mg prednisone, and 4mg tizanidine. It does not eliminate it and I am still in pain all the time but it does make it bearable. I was put on humira in the past but ended up 10x worse instead of better.
In combination with my opiates weed works wonders for my pain and allows me to go down on them. It also helps with my axiety, depression, and very bad insomnia. It is such a shame I get drug tested. Even though I don't get tested every time I still play it safe and only smoke for a week then stop since I don't want to fail another test.
When I failed with my previous doc even though she knew about my insomnia and was complety aware that at the time my uvitis acting up which made my eye feel like it was litterly on fire, unable to take the tiniest bit of light, and made me unable to see out of it she still had the fucking nerve to call me 9 am to tell me I failed and bitch at me. My mom answerd the phone and tried to tell her I was sleeping and sick but she demanded to speak to me. When I got on the phone I tried to hand it to my mom since I was too tired and sick to take her verbal abuse and judgement; I had just fallen asleep at 7 am yet she refused to speak to my mom. That call caused me to have a full fledged panic attack and nervous breakdown and my eye condition which was starting to improve got even worse than it was the prevous week. I made an apointment the next day to straighten shit out shit her. She spat out a bunch of the stereotyepical DARE bs. When I told her it helped me sleep her exact words were " it helps you sleep because other peoples says it does; tobaco used to be advertised as something to relax you but is actualy a stimulent". I didn't even bother responding to it since i was so sick I didn't have the strengh. She was going to drop me as a patient but I was able to get her to keep perscribing me opietes by seeing a psycologist for a pain managment evaluation. Luckly the psycologist I saw was pretty chill. Funny that after I had to quit weed for 4 months I was put on benzos for sleep so I wouldn't have to drop out of college which are 100x worse than weed.
I will write some more stuff about my condition and current doctor in better detail when I am not so tired; I just wanted to get this off my chest.
