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  • EADD Moderators: Pissed_and_messed | Shinji Ikari

The EADD Sickness and Pain Thread ver Pain of the Wrist & Cock

Be careful, Josh, that sounds like disc disc. Running does aggravate it. I had it in 2012. If it continues you may need to change to walking / swimming for a while until it eases up. There are stretching exercises on YouTube or you can see a chiropractor. NSAIDS like naproxon or iboprufen should help. Don't sit down too often n try to keep as active (ie walking) as possible. I was told not to do squats / plyometrics at the time, as it aggravates it.

Best to see a doctor if it continues for MRI (though it took ages for me to get one).

Please don't ignore this, Josh, n continue running. I made that mistake n ended up in a lot of pain for awhile. Hope it clears up soon.

Google sciatica n slip disc there's lots of information on them as well as how to recover. If you have one, you always have it, just a matter of getting the jelly stuff away from pressing on the sciatic nerve.

Evey
 
I shouldn't take NSAIDs as I have a bowel disease unfortunately. I've had my "stage 1" assessment with my gp so if it gets bad again I'll get an immediate referral. I wish I could take your advice about not sitting down too much! It's definitely the biggest cause of the problem but my job demands I do it for long hours most days.

By and large it's been fine though, I'm learning that the breaks between running are as important as running itself to my fitness and am giving myself more breaks to recover now. That said, I ran 40km last week, including one 15km at the weekend. Taking it easy this week though. Did intervals training for the first time at running club last night (I'm a real member with tops with my name on and everything now!) which was a killer. But I ran a couple of sub 4mins/kms as part of it, couldn't keep it up for long though!

I'm mildly annoyed with myself because I stopped smoking weed for the entirety of the last eighth I bought, and switched to using my vaporiser again. After a couple of weeks I really noticed the benefits in my breathing. But I also noticed how much quicker I got through the baggie, it's definitely not as efficient as smoking it! And weed is expensive, so I'm back on the pipe again. Tempted to throw it away in the hope that it forces me to use the vape, or maybe quit altogether - a daily toot of weed is about the only bad habit I have left now.

First local cross country league race in a couple of Sundays time, local 5km race on Boxing Day for a laugh, and Milton Keynes half in March, so plenty of running coming up to keep me motivated.
 
Smoking cannabis alone is apparently not that bad for the lungs I've been reading. Not compared with virtually anything else smokable anyway. The vaporizer isn't just wasteful it's missing the stoned effect for me. A friend bought one of those expensive things with the bags the taste is incredible but it only gets you high no stone off it.
 
Been a while since I posted in this thread (yay!), but if anyone is interested / more bored than imaginable (its 23,000 words), here is a pastebin of all the facebook posts I made relating to my illness over the last three years.

I think I managed to remove anything that might doxx me :/ Not really sure what to do with this, I trashed the facebook account for a new one a while back but didn't want to lose these. Good to save as a reminder of what my life was like for a while I guess.

http://pastebin.com/wRg3YDQy
 
If you'd like for them to be permanently here but entirely under your control then the blog feature may be helpful, or post them in a thread and I'll UA the OP so it's hidden to the forum until you PM me/another Mod to make the thread live again.

<3
 
SproutOnSmack said:
If you'd like for them to be permanently here but entirely under your control then the blog feature may be helpful, or post them in a thread and I'll UA the OP so it's hidden to the forum until you PM me/another Mod to make the thread live again.

<3
Click to expand...

Cheers, but I'm in control of it on pastebin, because I posted with an account rather than anonymously. I might want to use it elsewhere too, so it makes sense.

Raasyvibe said:
er... yer alright, thx.
Click to expand...

I said IF YOU ARE INTERESTED. Clearly you are not, so why the hell bother posting?
 
Josh said:
Been a while since I posted in this thread (yay!), but if anyone is interested / more bored than imaginable (its 23,000 words), here is a pastebin of all the facebook posts I made relating to my illness over the last three years.

I think I managed to remove anything that might doxx me :/ Not really sure what to do with this, I trashed the facebook account for a new one a while back but didn't want to lose these. Good to save as a reminder of what my life was like for a while I guess.

http://pastebin.com/wRg3YDQy
Click to expand...

I've had a quick glance and will deffo have a proper read when I can be arsed ;) How did your condition start though? I'm genuinely interested because my 11 year old son has had bowel problems for about 8 years now with recurrent fecal impaction and soiling etc. We're concerned that it may lead to more severe issues later in life.
 
About 5 years of bouts of diarrhoea every six months or so, that lasted 2 or 3 weeks, and became progressively more blood-laced. I always got better quickly l enough to not be properly diagnosed though, despite several trips to the doctor. Then the last time just got worse and worse, it was still only a month or so between the initial diarrhoea and the emergency surgery, it deteriorated that quickly.

Your sons age and symptoms are pretty rare for colitis (most commonly diagnosed in males in their 20s), but it's not impossible to rule out. As with everything, early diagnosis is key so keep pushing your doctor for a hospital referral if it continues to worsen. If it is colitis and is diagnosed early, it can be managed pretty well with steroids or immunosuppressant drugs, so don't take my case as an inevitable outcome!
 
Fubar, I have IBS, that would be the first port of call I would think with your physician. Painful, yeah! Can cause constipation or diarrhea. Yeah, I'm the latter but they can fluctuate between the two often for most. Sadly not for me.

Only thing you can do is to get your son looked at and see what they say. Have a look at IBS and see if those symptoms fit your sons. If not don't take that as an answer and push for more investigation.

I wish your son a speedy recovery <3
 
Thanks Josh and Sadie :) Yes, he's been under the 'care' of the continence clinic and a paediatric consultant for years. This consists of a repeat prescription for electrolytes (movicol) and fibre, along with 6 monthly appointments where they ask "How is he doing?". So they're obviously doing everything they can... :|
 
No bother, I love telling Bl that I poop a lot! ;)

In all seriousness don't take IBS as the be all and end all answer. Look it up. You know your child better than anyone or any doctor. These kind of infliction's can often be mis-diagnosed. Just keep an eye on him and push for further investigation. I hope he feels better. This kind of pain is not fun. :( Poor baby. PM me if you have any questions or concerns <3
 
Thank you :) I get the distinct impression that they think we're just bad parents and he's attention seeking - but he doesn't eat properly as he's a fussy little fucker. But it also doesn't help that he keeps getting put under different continence nurses who all say different things - the only constant is that they expect to 'cure' him by getting us to log his logs (or lack of) and telling him to eat more vegetables. When that doesn't work within a month, they seem to get bored and stop bothering, so we obviously ARE bad parents - so bad that he's won the 'Pupil of the year' award for 4 out of his 6 years at school, and 'the most helpful pupil' award the other 2 years :\
 
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Not a fun thing but logging the logs is best! Keep your own record. Also any cramps etc.

His diet could be a main factor! You never know. I couldn't eat tuna or drink coffee for years!!!! You never know what will trigger things like that! A diary of his diet would be very helpful too!

As an aside, if he doesn't eat veggies then he's gonna get worse before he gets better if he's being made to eat them. Be prepared for a lot of farting! Then, he's a boy, farting is expected!

I know it's not from the bum but I had to ask my son the other day why it smelled like pickles and baked bread, He told me he took his shoes off! GAWD DAMN!!!!!!!!!!!!!! The smell was so strong!
 
Sadie said:
In all seriousness don't take IBS as the be all and end all answer.
Click to expand...

This. Tons of people I know in various IBD and stoma groups got fobbed off with an IBS diagnosis for years effort getting the proper treatment they needed.
 
Hey Y'all...I'm reading all of your posts, after Josh's story caught my attention. It hurts my heart to read of people (so many) who were misdiagnosed or under-diagnosed with diseases of the GI tract. Josh, your post just before this is SO on point...at least in my personal experience. I am so sorry for the utter hell you have been through. Admittedly, my worst fears are being faced yet again.

My story, too, is LONG and complicated...documented ad nausea in my posts and threads. My IBD became IBC after many years of diarrhea, treated with Lomotil. The chronic deadly constipation "could" be a result of years of Lomotil or complications from GI surgeries or disease and adhesions. Doctors, for the most part, have always blown me off...resulting in rampant disease and extensive surgery and chemotherapy.

I have lifelong cramps, as early as pre-school, then referred to as "nervous stomach". I missed so much school due to belly aches and diarrhea. Then period started at age 11, horrendous cramps and hemorrhage grade bleeding. I was put on BC pills to regulate, which caused a 50 lb. weight gain. I had gastric bypass in 1987, was finally diagnosed with stage 4 endometriosis in 1993.

I've hit the wall as of October with partial bowel obstruction. I spent the last part of October in hospital. I then saw 2 new GI docs who said "constipation, take Linzess 290". I have, yet I continue to feel bloated and distended, tremendous upper belly gas (not the fart kind). It's more of a post-surgical chest/shoulder ripping agony of pain. I'm taking Gas-X, Phazyme, charcoal caps just to swallow and draw a deep breath into my diaphragm. The Linzess 290 is only "relieving" the balance of my bank account, not moving my bowels much. I have little to no appetite. I know I have a severe bladder infection, caused by a full colon compressing by bladder. I'm unable to fully empty my bladder...Again, ALL part of this dreadful disease that went undetected for decades.

I apologize for the WHINE. I'm scared shitless (pun intended) that apathy of the medical community is going to be the death of my colon. I don't know what else I can do. I can't get these doctors to listen. Both my lifelong GP and cancer surgeon have died within the past 5 years. My case is far too complicated for new doctors, who have no clue.

SO...Any of your thoughts or suggestions would be appreciated. Just please be gentle.

:! Shout out to Sadie, and to Fubar. My parents were a big source of anxiety for me as a child. They were extremely abusive, yet I had separation anxiety. Go figure. As Sadie said, seek answers for your child rather than allowing doctors to blame or intimidate you. He needs an advocate. We all do.
 
Awww darlin' I hope things get better. The only thing I can advise is that you push for proper treatment. Proper answers. You have to keep pushing, explain everything in every detail possible. They can't get a proper picture if they don't know all the details but I'm sure this should all be down in your medical records. TBH Josh is probably better equipped to answer your query.

Speaking of being scared shitless, ( funny ) Don't be, there are people to hold your hand either virtually or physically.

I actually screamed the other day at a co-worker who scared me, Although I was laughing I yelled, I have IBS, I could have really shit myself! I really could have! So close, so so close!
 
=D Laughter is good like a medicine!

My case is BEYOND complicated. In 2013 alone, I saw 8 or 9 specialists across 3 states. All any of them would say is "there's nothing more we can do...seek pain management. Well, duh, guess what THAT does for your bound up guts? :!
 
I have a much less serious but damn painful issue at the moment - kidney stones. I have to piss through a tea strainer to try and catch one of the fuckers!
 
:o My sincere condolences, Jed. My husband says it feels like a shard of glass ripping through his ureter, with pain beginning in his back and side. He's had kidney stones twice, but thankfully was able to pass without laser intervention. I hope you can, too. I also hope you have something to take for pain!
 
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