SeroNegativeSpondoAthropy/Chronic PAIN/Med-MisHaps; the adventures of..2

it has been about a month since i went to the ER and was diagnosed with sacroiliitis and referred to a pain clinic, i figured i would of been in by the end of that week. since that diagnosis i got the AS diagnosis, and today while at the pain clinic they only had the MRI results for bi-lateral sacroiliitis.

i took my second shot of humira on the tenth, and have a grip of mmj lavender-chocolate chocolate-chip cookies, and other herbals, so her palpating and bending my legs and knees trying to aggravate my sacro-ligaments didnt bother me, nor did it when she put pressure around my L4&L5. i could feel her pressing and it didnt feel right but there was no pain, she was surprised, saying "that humira must really work...!" -she has nooo idea.

all she said they would do there was give me a local anesthetic, and steroid shot into the sacroiliac joints, NO T/Y! and other joints; knees, shoulders, hips, fuck that. the humira is like 30 units IM, piece of cake, an expensive one, but im not having some big ass needle dive into deep tissue on a regular basis...

so the appointment was totally uneventful, except i was given a 'general' referral to any physical therapist i wanted to see, and she suggested a particular practice. i though they did physical therapy there, i need a massage and some acupuncture damnit!

 

I am so glad to see you keeping up with your blog xoxo

 

Aw, but who wouldn't want a giant needle into one of the most sensitive and easily injured joints in the body? Sign me up!

Glad to hear that the pain management is working out better for you of late pip, expensive though the shots are.

 

the rheumatologist fax'd a script for the humira to them i need to call the pharm. and ask about it... they will be the ones who tell me if it is going to be covered or not, other wise, im in t r o u b l e !

/stomach drops

thanks for the thoughts dave im not needle shy in the least lol. but noo f'n way! the pain would be brief with an anesthetic, but still... i would of been begging for it before the humira, and now that i think about, i will be if im not able to continue the humira.

:-x

 

November 23 '09 i decided to try Remicaid, this was the worse decision ive made in my life thus far.

i stopped the Humira in late Febuary 2011. as i was having, and am still having an adverse reaction in the regular injection site...and i discovered you do not take either of these drugs with Lithium, which i was. the last three doctors ive spoken with all confirmed this as well, i casually asked them each, you dont combine Humira and Lithium - right?
"no, those two do not combine..."
me, okay, thats what i learned....

Lithium should not be taken in conjunction with any TNF-pain-blocker for that matter, such as Remicaid...


taking these drugs in combination, i was screaming for answers for 20 months, wondering why my ribs and shoulder-blades hurt like hell 24/7. i found out soon after stopping the Humira.

it says very un-clearly on the box, to not take this medication with Lithium; or what ever it is Lithium is called when it is used as a dermatological medication.


i never had any trouble with Lithium before, but i had also been pummeled by constant nausea, this stopped with its persistence when i slowly stopped taking the Lithium, i figured it was from the Humira as it can have this reaction in some people. i did start taking 300 mgs lithium despite my initial reactions to it. after several days i began to take another 300mgs, then the nausea came back...before i would never vomit, only wish i would in hopes of relief. now, i do vomit, and do vomit LOUHhDly.

its taken $300 worth of hash/hash oil/ and marijuana this week to keep this at bay, now im out and its coming back - keeping me out of bed and typing;-D ATM. so ill be stopping that ASAP, slowly again.
sorry but, to try and break up any chain-thinking is not worth this..!
hehe

so now im not reeling in pain as before, but can not fathom the thought of just -trying- TNF drugs again, in order to prevent fusion and fight and win against inflammation which the mmj can hardly touch, and opioids just dont...


i know my Doctors are not stupid people, but this shit is, and i sure am for continuing to see them.! haha
BUT, negligent, dismissive, judgmental, and so worried about their dollar, that my life as i knew it has been completely chewed up, partially digested, and just waiting to be pooped back out again - in a completely avoidable way...thats what bugs me, avoidable risk >< benefit of the patient(myself), honestly, the risks that all the other patients and i take everyday are not comparable to money - or peer review.


whats important here, what have i learned that is for keeps - well - one is the big bad Opioids are only as bad as we perceive and/or abuse them - the drugs us people make are only as bad as we create - and besides a poison used as a defense that occurs in nature, there isnt much that is in nature that will do what the stuff we feed each other and our children does.

 

~

my rheumy, kind of yeah!


lol
this shit is fucking finished

 

i feel

that the "junk" on my bladder ruptured and that is why i went to the ED, i also believe this is why ive been tasting copper, because they have been rupturing and i have been internally bleeding.

the "tumors" looked dead or dying. i give the growths on my colon 5 years, next october when i go in for the second colonoscopy, i imagine they will look the same as the ones on my bladder, then next time there will be scar tissue.

i actually only started farting again the past couple of weeks since taking the Remicade...sounds strange, but is kind of a big deal...!


there is a lot more happening, my lymphatic system, the glands in my torso and legs, forehead are going to want to do the same thing, and have been trying...my spine is coming to life again too, releasing pressure and lubricating.

 

if you have a raging auto-immune-system, there are many things you can do to avoid this - and it be used to your advantage.


just ask