Congratulations, it a tough descion to make, but from reading your other thread I think you are making the right choice.. i also had Fibro, irritable bowel, and sarcoidosis.. I went through so many doctors and specialists over the period of almost five years.. Then I got so fucking pissed and sick of being sick.. so I read through thousands or pages of my medical reports and thousands of pages of reports and medical texts.. I went into the doctor and ordered three tests.. all three came back as not normal.. after literally hundreds of tests many performed dozens of times, and seeing dozens of doctors.. it took me less than three weeks to identify three test that all came back off after hundreds had come back normal.. I then started to look at all the diseases as just symptoms of one disease.. i stopped all the garbage they had my on and said i wanted just three medications which the doctors allowed with out any questions even though one was ever really used to treat any of my conditions and it was not tried often. With in a week and a half I felt allot better, with in three weeks I was cured.. It has now been almost two years with total remission of all symptoms.
IMHO the doctors have missed the boat on whats going on with the fibro and the autoimmune and seem to want to treat then individually with a wide variety of medications.. the premise which I went off and allowed me to cure myself in less than a month when all those doctors were not able to help and often caused even more3 symptoms.. was the idea of pan hypothalamic dysregulation. Please take the time to find a really good link that explains all the things the hypothalamus controls.. I would bet that you will find everyone of you symtoms there and would be surprised if you find any that aren't right there.
Since you are in the hospital please ask them to perform a vitamin D level check on you. also I think I saw that you said you have a boyfriend but this does not indicate to me which sex you are though because of the fibro and this I going to guess female.. though im male and had the same shit your going through with little variances for years.. I know what you mean by constant pain because this is nerve pain there is never any position we can get into that lessen the pain.. it never goes away.. sending you my love as I have been where you are.. what I hated about trying to tell people about my condition was they never got the fact that I was in incredible non stop pain but if I could have had the choice I would gladly have kept the pain if I could have been relived of the absolutely awful fatigue.. man if I dropped my keys I would literally have to psych my self up to be able to reach down and pick them up..
I am not handing you a line.. I have made a full recovery when they said I would have fibro for the rest of my life and everything else is GONE.. I have to find a thread where I already posted so much information and what meds I was originally taking and what meds I had tried and the meds I eventually had the doctors prescribe me, in fact its pretty much a pretty conclusive history of how and why I cured myself. I will dig it up and give you a link so I hope you will check back.. since I shared it with other people I have had correspondence with another person who said you know what I looked over all the things you tried and it the same shit they are using to try and treat me and it is failing just like you said so she went to her doctor and said hey there is this crazy guy on the internet who is claiming to have cured himself of autoimmune and fibro and irritable bowel by using this approach and here is kinda his reasoning behind it and I want to try it.. she had pretty much the same experience as me.. I also had a person decide to try part of what I did and she contacted me saying with in a few weeks she was feeling better than she had ever felt the whole time since she had it..
Anyway I kinda get excited because i have been right where you are at.. totally addicted to opiates and often shooting them to try and relieve the awful pain.. and then when the irritable bowel kicked up I would throw up every five minutes for three days like twice a month.. yeah so easy to keep pain pills down when thats going on.. so hold out some hope when I find the thread I will post it here and you can look through it..
couple quick questions if you are willing to answer that may help
Do you or have you had sleep issues in the past.. circadian rhythm problems, sleep paralysis, night terrors, sleep walking, trouble falling asleep or difficulty waking up?
Did the fibro come on before or after the pain medication was started?
anxiety or depression in the past.. fi so were you on any longer term daily medications like ssri or benzos?
even of you dont feal comfortable answering the questions it wont really matter.. they are more for me to see any similarities we mare share and also see any differences we may have... this is just for me to be able to see if indeed if pan hypothalamic dysregulation continues to be a sound theory and if it presents itself in really similar of varied symptoms.. really it would only be useful if you ever decide to try what has now worked for me and at least one other person and a partial try provided significant results for another.
As i also said please ask for a vitamin D and a a testosterone check if you are a male would be two tests I think about requesting.
I will track down that thread and hopefully post it by tomorrow sometime..
Hang in there and dont give up.. I almost did and it would have been the worst descion of my life. Oh and dont worry to much about withdrawing from the opiates if you get better.. if you as sick as I was and get better.. kicking will be a walk in the park.. well sorta.:D
edit here is that thread.. you will have to read through it for awhile until the ideab come forth.. good luck and let me know what you think
http://www.bluelight.org/vb/threads...-by-the-Thomas-Recipe?highlight=THOMAS+RECIPE
opiates made my chronic pain much much worse..i would have never believed this had i not experiened it..i have much less pain now than im off opiates..
+1