*Disclaimer!* = NO MEDICINE WORKS THE SAME FOR EVERYONE!!! What works for one person, won't work at all for the next. We are all different when it comes to the medicines that are effective!......
I feel so alone right now! Shaking, trembling, I can't eat/sleep!, I'm just upset! *Also it's that time of month!!!!! *Ouch!*
Okay... Here's my story (shortest version possible, hehe)
Years ago I started having major health issues. I spent a year or so on the couch having either seizures or the most unreal anxiety/panic attacks that I've ever seen.
I am supposed to be on generic somas @ 350mg/3x day and generic valium @ 10mg/3x day ....
Doctors don't really understand my issues so they switch me from one doc to the next. (I have fibromyalgia and scleroderma, to say the least.)
Well, my health issues are slowly killing me! I should weigh 125, I fluctuate between 80 pounds to 100. In a matter of 5 years my teeth have rotted away. I went from the girl who did everything, to the girl who can't do anything. I don't know what is worse, the pain or my severe anxiety! I'm going to say the anxiety because it makes my already diseased heart pound out of my chest.
When they switch me to another doctor because they have no clue what to do with me (sclero is rare and 50% of the medical community doesn't believe that fibro ((muscle pain)) is even real!
Basically every new doctor I go to see thinks I'm insane for asking for those meds. But! Before things got all *weird*, like in the 90's when I was a KID!!! They had me on these meds because after much trial and error, they were the only effective meds.
The records of that time are completely gone, I guess. But! Now they keep records! And these records of mine say "Drug Seeker, Will ask for Soma and Valium!" (I swear, my latest doc showed me!)
Anyway, I keep getting sent from one baffled and rude doctor to the next. And they always start out on square one. "Try this." or "Try that." They say. When I know the ONLY 2 medication that help. Ah, I am allergic to Gabapentin(sp?) and Lyrica. I only take those if I want to have a life threatening allergic reaction (haha, just kidding!) Once I realized I was allergic to them, I refuse them. Which only makes doctors more suspicious that I'm trying to get "the hard stuff".... Come on! Please! I'm really sick! I wouldn't overtake my meds! I'd be screwed at the end of the month!
So, I go from doctor to doctor only to get treated like a drug addict. which has made my social/anxiety even more crippling! I don't leave my bed! I'm wasting away! I never see the sun, feel the wind, watch the wildlife... I'm miserable. I can't even water my what-was-once a garden.
Okay, here is the issue : I have a friend who has the WORST scoliosis!!! (To say the least.) So, she gets Opana and Dilauded. (The strongest ones) not to mention she gets soma and valium! A truly sick person can not afford to share their meds. But she was nice enough to share pieces of her Opana and Dilauded with me. It's funny how a doctor will turn me away, but a sick person will do all that they can to help me. *like a real true medicine-man!
*
So, I finally found a doctor to put me on Valium and Soma (Thank Heavens!) She didn't give me the full dose sadly, so I'll have to work that out with my friend, until I can get the proper dosage! Also, the doctor wants to taper me off of the meds, that I need until I die! (I have serious issues = can't move, anxiety that keeps me in hiding, severe migraines, the list goes on and on.)
Anyway, this is the first time I've really came-down hard off of Opana and Dilauded. My body is aching beyond belief! I can't sleep, eat or be comfortable. I'm having to double dose my meds to function, but I still feel like I've died a million times over!
I'm so sick of the switching doctors, and one thinks fibro is fake, another tells me to go to a fibro clinic. After not working for years and having horrific to NO insurance. I just can't handle it anymore!
..................
So, not having enough of my "weapon of choice", I've had to supplement with little pieces of dilauded and opana. They are the strongest kind available, so they either gave me the comfy nods, put me to sleep or just made me so productive! I felt sort of back to normal! That's what made me LOVE them!
I was only on them for 6 months to a year. And I was SURE that WD from Benzos was THE WORST. (I still think it is.)
(Talk about all of my issues hitting me at once, magnified by 100!!!!)
...............
Getting to the point.... I got myself slowly weened off of opana and dilauded. It was so hard!!!! The only thing that got me through was cold wet washcloths, TV, waiting, crying, vomiting, headaches, oh and a bunch of flu medicine daytime and nighttime "soft"(pfffft)-gels. (I can barely swallow those!)
I want to be off of dilauded and opana forever. So, each day I took a smaller dose. Each day was getting worse! I'd been constipated for what felt like months! A few hours after taking my last piece of opana and dilauded, I was in HELL!!!! I went from vomiting to watery diarrhea that burned! Rinse, repeat.... All while I was exhausted. I suffered so badly!
I almost choked in my sleep, which was a wake up call!!!!!
Now that I'm 5 hours away from the 48 hour point, I still feel so awful!
I have had to double my dose (it's okay, I'm aware of my limits with S's and V's) and Stay Sleeping! Because I just can't handle it! I have withdrawn off of all 4 of them, monthly, at higher doses and survived, but I just feel like I can't make it this time! My spine pain is KILLING me! My legs, they are useless!
I have all of these responsibilities (paint the HOUSE! cut down two huge trees! Completely clean up 4 super-messy rooms! Level the yard, and lay down bricks, Water my yard, daily... etc.)
I can't stop this feeling of "I need to go to the bathroom! NOW", but I'm so constipated! Also, if something does come out its burning, watery diarrhea.
Oh and the RLS(crawling legs), hot/cold flashes and hot/cold/wet clammy skin is so much worse than I'd imagined!!!!!!! Not to mention that I can't sleep, no energy, really bummed out, I feel helpless! All because a stranger doctor thinks they know *My Body*, better than I do! -sigh-
It's 4 AM, I can't sleep. My back/neck/head are aching beyond the point that I can't just "ride it out". I'm pretty scared! I was never a heavy user. My friend gets the highest doses and I'd only take little pieces if possible. I didn't think it would be this bad!!!! Although, I also didn't think the manufacturer that I prefer would go out of business! o.o now I'm in BIG trouble!!!!!
I feel so hopeless. I've had a pretty rough life, but I didn't expect the roughness to last. I worked so hard to prepare for a great future and now I'm just wasting away. Mostly because the majority of doctors are too uneducated about my disorders and I've got one heck of a combo of disorders.
*I heard Norway has free healthcare. Aaaah, if only it was the same here!!!!*
Thanks for letting me rant!!! I'd love to chat with someone, anyone!
Thank you! - Amikins
(PS: I'm positive that the brands of S's and V's that I NEED, are being phased out! I can't find the right kind Anywhere in my city! Could it be any worse? I feel like they are sugar pills!)
I feel so alone right now! Shaking, trembling, I can't eat/sleep!, I'm just upset! *Also it's that time of month!!!!! *Ouch!*
Okay... Here's my story (shortest version possible, hehe)
Years ago I started having major health issues. I spent a year or so on the couch having either seizures or the most unreal anxiety/panic attacks that I've ever seen.
I am supposed to be on generic somas @ 350mg/3x day and generic valium @ 10mg/3x day ....
Doctors don't really understand my issues so they switch me from one doc to the next. (I have fibromyalgia and scleroderma, to say the least.)
Well, my health issues are slowly killing me! I should weigh 125, I fluctuate between 80 pounds to 100. In a matter of 5 years my teeth have rotted away. I went from the girl who did everything, to the girl who can't do anything. I don't know what is worse, the pain or my severe anxiety! I'm going to say the anxiety because it makes my already diseased heart pound out of my chest.
When they switch me to another doctor because they have no clue what to do with me (sclero is rare and 50% of the medical community doesn't believe that fibro ((muscle pain)) is even real!
Basically every new doctor I go to see thinks I'm insane for asking for those meds. But! Before things got all *weird*, like in the 90's when I was a KID!!! They had me on these meds because after much trial and error, they were the only effective meds.
The records of that time are completely gone, I guess. But! Now they keep records! And these records of mine say "Drug Seeker, Will ask for Soma and Valium!" (I swear, my latest doc showed me!)
Anyway, I keep getting sent from one baffled and rude doctor to the next. And they always start out on square one. "Try this." or "Try that." They say. When I know the ONLY 2 medication that help. Ah, I am allergic to Gabapentin(sp?) and Lyrica. I only take those if I want to have a life threatening allergic reaction (haha, just kidding!) Once I realized I was allergic to them, I refuse them. Which only makes doctors more suspicious that I'm trying to get "the hard stuff".... Come on! Please! I'm really sick! I wouldn't overtake my meds! I'd be screwed at the end of the month!
So, I go from doctor to doctor only to get treated like a drug addict. which has made my social/anxiety even more crippling! I don't leave my bed! I'm wasting away! I never see the sun, feel the wind, watch the wildlife... I'm miserable. I can't even water my what-was-once a garden.
Okay, here is the issue : I have a friend who has the WORST scoliosis!!! (To say the least.) So, she gets Opana and Dilauded. (The strongest ones) not to mention she gets soma and valium! A truly sick person can not afford to share their meds. But she was nice enough to share pieces of her Opana and Dilauded with me. It's funny how a doctor will turn me away, but a sick person will do all that they can to help me. *like a real true medicine-man!
So, I finally found a doctor to put me on Valium and Soma (Thank Heavens!) She didn't give me the full dose sadly, so I'll have to work that out with my friend, until I can get the proper dosage! Also, the doctor wants to taper me off of the meds, that I need until I die! (I have serious issues = can't move, anxiety that keeps me in hiding, severe migraines, the list goes on and on.)
Anyway, this is the first time I've really came-down hard off of Opana and Dilauded. My body is aching beyond belief! I can't sleep, eat or be comfortable. I'm having to double dose my meds to function, but I still feel like I've died a million times over!
I'm so sick of the switching doctors, and one thinks fibro is fake, another tells me to go to a fibro clinic. After not working for years and having horrific to NO insurance. I just can't handle it anymore!
..................
So, not having enough of my "weapon of choice", I've had to supplement with little pieces of dilauded and opana. They are the strongest kind available, so they either gave me the comfy nods, put me to sleep or just made me so productive! I felt sort of back to normal! That's what made me LOVE them!
I was only on them for 6 months to a year. And I was SURE that WD from Benzos was THE WORST. (I still think it is.)
(Talk about all of my issues hitting me at once, magnified by 100!!!!)
...............
Getting to the point.... I got myself slowly weened off of opana and dilauded. It was so hard!!!! The only thing that got me through was cold wet washcloths, TV, waiting, crying, vomiting, headaches, oh and a bunch of flu medicine daytime and nighttime "soft"(pfffft)-gels. (I can barely swallow those!)
I want to be off of dilauded and opana forever. So, each day I took a smaller dose. Each day was getting worse! I'd been constipated for what felt like months! A few hours after taking my last piece of opana and dilauded, I was in HELL!!!! I went from vomiting to watery diarrhea that burned! Rinse, repeat.... All while I was exhausted. I suffered so badly!
I almost choked in my sleep, which was a wake up call!!!!!
Now that I'm 5 hours away from the 48 hour point, I still feel so awful!
I have had to double my dose (it's okay, I'm aware of my limits with S's and V's) and Stay Sleeping! Because I just can't handle it! I have withdrawn off of all 4 of them, monthly, at higher doses and survived, but I just feel like I can't make it this time! My spine pain is KILLING me! My legs, they are useless!
I have all of these responsibilities (paint the HOUSE! cut down two huge trees! Completely clean up 4 super-messy rooms! Level the yard, and lay down bricks, Water my yard, daily... etc.)
I can't stop this feeling of "I need to go to the bathroom! NOW", but I'm so constipated! Also, if something does come out its burning, watery diarrhea.
It's 4 AM, I can't sleep. My back/neck/head are aching beyond the point that I can't just "ride it out". I'm pretty scared! I was never a heavy user. My friend gets the highest doses and I'd only take little pieces if possible. I didn't think it would be this bad!!!! Although, I also didn't think the manufacturer that I prefer would go out of business! o.o now I'm in BIG trouble!!!!!
I feel so hopeless. I've had a pretty rough life, but I didn't expect the roughness to last. I worked so hard to prepare for a great future and now I'm just wasting away. Mostly because the majority of doctors are too uneducated about my disorders and I've got one heck of a combo of disorders.
*I heard Norway has free healthcare. Aaaah, if only it was the same here!!!!*
Thanks for letting me rant!!! I'd love to chat with someone, anyone!
Thank you! - Amikins
(PS: I'm positive that the brands of S's and V's that I NEED, are being phased out! I can't find the right kind Anywhere in my city! Could it be any worse? I feel like they are sugar pills!)

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... If it comes up in a conversation, and it usually does, I tell people that I'm starving and how bad it hurts, but all they can think about is losing weight. There is another side to the weight coin. And I'm having such a hard time keeping any weight on! o.o I guess, I mentioned that, because it was a main reason that I couldn't seek help, I usually always had some measurable amount of marijuana in me. So, for now, I guess that's good news too.