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Opioids New to pm and dr put me on dilaudid ER

Nicole86

Greenlighter
Joined
Oct 16, 2013
Messages
3
Hello everyone! I'm a newbie here and need some advice. I was diagnosed with bechets disease in May but my symptoms started in February since then I've been on Vicodin Percocet dilaudid OxyContin butran patches of course not ever all at once! I'm in pain management now for about 4 months today I saw him again and he's trying the extended release dilaudid 12mg plus 2 mg dilaudid every 4 hours as needed. My question is since not a lot of things have worked for me in the past will this help me? I know every one is different but it seems I have a high tolerance to everything they give me I was even in the ER on Saturday for excruciating pain and 2mg dilaudid helped for maybe 30 min! I'm at a complete loss! I don't drink ever! Nor have I ever done any other drugs I take all meds as prescribed but I'm going crazy since I can't sleep! I have two little ones who need me is there anyone out there with this same problem? Thanks in advance!
 
Bangem smurf


Mod Note: Promoting IV drug use is the furthest thing from cool and totally against the purpose of this forum. Please disregard this posters "advice".
 
Last edited by a moderator:
Bangem smurf

Umm..you do remember this is BL? A HR forum? It is extremely irresponsible to tell someone to IV their PM medications. She said nothing about abusing them or having any history of IVin anything! She has 2 little ones to tend and you are gonna just throw out there to shoot em up?

Hi Nicole..welcome to Bluelight. Please disregard the above post. It was an extremely irresponsible thing to say and very dangerous advice.

There is no way we will know if it will help. I would definitely give them a try as that's. Better than a lot of the other things you have been on. You will never know til you give it a whirl. Just make sure you don't get discouraged right off the bat. Just remember too (and your pain doc may or may not have told you this..I'm speaking from personal experience and as a nurse for 20 years)..it is always better to treat pain before it gets really bad. Once it has gotten severe it is much harder to get under control. Your extended release should help give you a baseline in which to work from. But if you start experiencing pain sont wait too long to treat with the PRN meds.

Good luck.
 
I'm defiantly not IVing ANY of my meds so no worries there! I can't believe he would even say that! I've been on these extended release diladid since Wednesday I think I'm going to call the office tomorrow even though he said to call in a week in getting some relief but not enough to make me at a comfortable level! Not to mention I have ZERO appetite since being on this and my husband can't stand me being sick anymore he's trying to be supportive but I feel like I'm alone
 
The best thing you can do is to let your doctor know if the medication is not cutting it.

There could be several possibilities. You might not be on the proper medication for you. Your dose may not be the correct dose to work on your pain. Its best to just let the doctor know that you are still in a lot of pain.

IME I tried several medications before I got on a combination of medications that work well on my pain. That being said, I still am in pain and will always be to some extent.

I have had doctors give me medications they knew were not going to work so to get prior authorization from the insurance to write the one they wanted to. I had to try about 3 or 4 different medications just to get my insurance to pay for the prescription I am on now. Along the way a few of the medications were absolutely useless and they pretty much told me that would be the case.

It takes while to get your dose and medication proper. Its very annoying as my pain came on pretty much instantly, but to relieve it, its taken literally years. It has definitely caused me some distress and held me back in life. I am surprised someone suggest that you abuse your medication. I can tell you right now that abusing your medication will only make it not work for you in the long run. Its a very bad idea.

If its a dosage issue and the doctor caps you off, you can get a second opinion. That's what I did. The clinic I am at is a lot better IMO. The apts. are rather quick if you schedule them at the right time. The staff is rather compassionate. I guess I felt like the doctor I had before didn't give a shit about me suffering and wouldn't up my dose even though I was struggling in school due to my pain. Well you never really speak to doctors, its always physicians assistants, but still the last thing you want is a PA who doesn't give a shit how people feel and just want to process you as fast as possible.

I had one PA and every time I would want to discuss something, he would say we could talk about it the next visit. That was very frustrating as you go in every two months and you have some concerns you want to address and basically the PA tells you he does not care and is too busy to have a five minute conversation. I'm thinking at a doctors apt. that they should actually speak to you and not just have you come in wait 3 or 4 hours to just get handed your RX and leave without speaking to a doctor or PA for more than 30 seconds. Its one thing if you tell them you are fine, but when you say you are not fine, well they should address the issue.

I digress, its a process. Its a long one and its not comfortable. I had failed to mention that sometimes when you switch medications that you may go into a bit of withdrawal from the last medication and the transition can be a bit rough. Its usually not pleasant to switch medications unless you are going onto something stronger. I find switching medication families can be a bit rough. When I switched from Morphine to Opana I got quite ill. It was not a pleasant transition. But in the long run it worked out better for me. So like I said its a process. Its a bit trial and error and some of the stuff just takes time.

I would address my concerns with my doctor (if you are actually lucky enough to have a doctor treat your pain) or PA. Just tell them your pain levels, and the things you are having trouble doing. You are only 4 months into CPM and it sounds like you are getting to try a lot of different medications rather quick and that is good. It really does take time and communication.
 
Ok so now I have a new problem and idk what to do on oct 8 my pm dr wrote a script for 168 percocet 10/325 6 a day then after the whole er visit and all that I saw my pm dr on the 16 he put me on exalgo 12mg one a day plus 2 mg dilaudid every 4 hours as needed well I wanted to call him tomorrow because he said if I need the exalgo bumped up to just call and he would write a script well my problem is it that now my perocet is GONE idk where it is family and friends have been helping me all weekend so who knows! So should I call pain management and tell them about the percocet? I'd like to be honest with them but I'm afraid that there going to throw me out of the practice! They've always been very accommodating and very compassionate! I've never called early for a refill or did anything to break the rules I follow them to the exact T! But now I'm really worried! My gut tells me to call & be honest with what's happened since I'm not even taking the percocet anyway! Please tell me advice from personal experience I really appreciate it!
 
What do you mean you are prescribed 168 percocets a month and you don't take them. Does your pain doctor know that? That really does not make sense. How are you prescribed all this shit? You said dilaudid, exalgo, and Percocet. That's one too many. Doesn't really add up. Also just your 3rd post.

Well if you want tips on how to trick your doctor your at the wrong place or at least talking to the wrong guy.

I never lost any pills and didn't get them back. I will take my medication back by force from a junkie thief.

As far as dropping the dime on your own family: your call.

You may or may not get a refill. Its kind of against most doctors policies but some are more compassionate than others. You could just tell him you lost them as you don't have any proof.

I personally wouldn't want to tell a doctor I dropped the ball and put 170 perk 10s on the street by accident, but that's just me. Dude is probably gonna drug screen you and straight up ask you if you sold your pills. Its best not to get put in the file of "problem" patients.

If you are in pain, your gonna still be in pain for the rest of your life and chronic pain management sucks and you really don't want any strikes or flags in your file. The doctors and rules are rather strict, so play it straight.

Get a lock box and don't tell people you have prescription drugs. You will have a lot more "friends" and "family" coming by, but they just want your RX.

I am not trying to be a dick, but your post isn't exactly adding up. Care to clarify?
 
That really isn't a lot of dilaudid, tbh. It's a good med though, if it works, it works well, typically!

Well for your stolen/misplaced meds, it's up to the doctor whether or not he'll replace them, he might want a police report, but if you don't have a history of non-compliance I doubt you'd get kicked out. But if you weren't taking it anyway, I don't see why you would bother, tbh, although I don't know why the heck you weren't taking them if you were in pain, oxy is mg for mg a lot weaker than hydromorph but it sort of *feels* stronger.

Gl!
 
Best not to as trust is gained already, and you technically broke narcotic contract by not taking controlled meds as directed. They not only drug test you, the test you to see if the drugs prescribed are in your system , they see it's not in your system, very possibly get kicked out, I can see u there 5+ yrs and them being flexible. You will be flagged and labeled .

I was stupid and tried to fool my doctor due to my addiction , I was only seeing him 5 months and was prescribed Xanax, 1mg three times day...made emergency appt that I lost it in process of moving to apartment---whether he believed me or doesn't like people suffering or justified my reason he only switched me to klonopin 4mg daily..



it's so humiliating now, I have burned bridges with so many doctors and slot of them are at all different branches, I have addiction on my jacket..
 
I wonder if this is the new pain med their going to be giving out more? I've seen a shitload of threads about exaglo threads lately. For harm reduction plug it if your not into IV...

Honestly I would not plug ur exalgo. First off its dangerous as it releases all the medication ast once. Secondly its good way to increase ur tolerance and therefore dependence. I speak from experience. Pm me for more info.
If ur medication was stolen u need to report it to the police. I've had this happen to me. My doc did replace my script but I had to pay for it out of pocket as my insurance wouldn't cover it.
 
Are the exlago the ones in the capsules? I have been hearing about it a lot lately also and I've only ever seen
The generic and name brand diladids that come in 1mg 2mg 4 mg and 8mg and they crush up easy and probably the easiest pill I've ever injected. I've seen on TV hydromorphone capsule's that say 16 mg on them mabye that's exlago? Those looked pretty easy to shoot tho just put the tiny balls in a pill crusher and pour into a spoon add water filter and voila.
To the OP I would tell the truth I mean you mist be in some serious pain to get all that medication prescribed and you sound responsible its not like you have track marks all over and are all strung out. And don't listen to anyone telling you to put em up your ass, snort them or to inject them(especially not I.V.)
 
Really? Just plug em for harm reduction.

LOL.

There is no harm reduction value in telling someone to abuse exalgo, I'm sorry. The typical dose of hydromorphone given to someone IV at the hospital is .5 mgs. Exalgo are released over 24 hours, not twelve, like most ER meds. So IVing or plugging that much hydromorphone is very dangerous to someone who doesn't already abuse opioids.

Get your shit together before you recommend some shit like that, TY.
 
Sorry, it came out wrong...She said she was in pain 30 mins after taking the 2mg Dillie, so I was thinking since plugging has a higher bioavailability with plugging(or,well seems to work better) that may help her not be in pain 30 mins later? I could be wrong, but was just trying to help her not go through them since she said she had a high tolerance to everything and maybe it would help her pain for a longer peroid of time so she's not going through all her break-through medication and running out? Sorry about that!
 
Nicole86: Through the years I have been prescribed pretty much everything under sun. That being said, I really liked the 16mg Exalgo pills for when I would sleep. As long as my pain had not flared up before I laid down they would keep me comfortable all night.

During the day however, if I experienced a flare up I was shit out of luck. I am currently trying to work with my Dr to dial it in so that I have jumpers for flare ups or break through pain.

As far as the missing pills goes. For your own safety or at the very least self preservation, I will definitely fill a police report having lost that many. I am not saying to burn bridges by pointing fingers but her are a couple WCS.

1) whoever actually takes the pills potentially could overdose. Your going to have a hard explaining why your pill bottle was found in their possession.

2) every time I go to the Dr they piss test me. Now most people assume they are testing for hard core drugs they are actually screening you to make sure your taking what they give you. If they question you as to why your not riding dirty, you can always explain that the pills were stolen, here is the proof and I suffered all month rather than potentially get labeled as an abuser. I know plenty of people who have been "kicked out" for pissin clean. But as someone else stated, that is up to the individual Dr/Clinic.

Filing a report is just a good way to cover your bases.


*Sent from my iPhone
 
^^^^^ no...they don't have any balls inside...I dunno wat u saw??? Do u mean like adderall capsules only dilaudid??

Never done adderal before so I don't know about that but they were like those extended release morphine capsules I used to take the capsule of morphine and dump the tiny beads out put em in a pill crusher and crush em up the extended release diladids ive seen were the same way
 
Yes exalgo has a time release mechanism like concerta, however exalgo is a 24hr delayed release pill ---it strikes me odd by 24 hrs wouldn't the exalgo be in your intensities preventing release? Causing blockage from the shit?
 
Yes exalgo has a time release mechanism like concerta, however exalgo is a 24hr delayed release pill ---it strikes me odd by 24 hrs wouldn't the exalgo be in your intensities preventing release? Causing blockage from the shit?

Really?
My doctor told me that exalgo was released in 12 hrs. I don't doubt u.
In fact I've found most of us are more knowledgeable about meds than the majority of doctors I've run into anyway!
 
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