MDMA Recovery (Stories & Support - 2)

[ro4eva]

Definitely. I have ups and downs a lot. Some days I'm even convinced I'm over it, and then it gets dark again.

Other than a very noticeable and visible heartbeat most of the time, most of my physical symptoms have declined. I figure that I'll keep having the emotional ups and downs untill my adrenaline/hormones (or whatever it is doing this to my heart) has rectified itself. (An ecg and doctors check up has ruled out heart damage)

The good news is that the good periods get better and the bad periods less intense. I've not had E in nearly 7 weeks now, tapering off from a period of heavy usage. The longest I've gone without it since may last year. I easily feel the best in myself since August when I went crazy with it.

If this heart thing would go, I'd feel so much better for sure. It's weird, like I'm constantly stimulated. Must be adrenal glands or something. Doesn't mess with me as much as it used to, but it's still there

Along with 19 other symptoms, I used to experience what I noted as "an uncomfortable awareness of heartbeat" during my 'LTC,' and it was chronic, and it was at its worst whenever I'd try to get some sleep. It was also the last symptom to go away for good.

I too saw two different cardiologists for extensive heart testing because for a time I was convinced that I had done damage to the aforementioned muscle. And after at least 8 tests in total, which all came back as 'negative,' I finally had the peace of mind I needed to accept that my heart was functioning properly and without any damage.

Should you wish to accept it, I have some advice for you: I know you're probably going through what may be the most difficult health-related issue in your life, however, it sounds like you're making good progress towards 'normal' (whatever your 'normal' is). And so, I urge you to maintain a healthy lifestyle consisting of a healthy diet, adequate cardio-based exercise daily, avoidance of stressful situations as much as possible, avoidance of friends or places which would compel you to consume some more recreational drugs (including alcohol), plenty of rest, and above all, lots of patience.

Should you wish to partake in the future, know that there will always be another party; another rave; another good batch of your drug(s) of choice.

In contrast, your body will not regenerate a damaged vital organ (with the exception of the liver to a certain point). Your health always should come first - fuck the partying/clubbing/etc. for now.

I apologize if I sound like your parents, or condescending in general, but the goal is to get you back to normal more than anything else.

In the end, it's your choice what you decide to do, and I have no right to challenge that, and I don't mean to.

Best wishes for a speedy recovery and also that you do not recover and then experience a 2nd so called 'LTC' - take care.

 

[nnzo]

Good news and bad news... Pain in my left arm, that numbness feeling has gone (for now) badnews... pains in chest and rib areas persist, left head pressure now fuck tbh, im probs one of the worst LTC'ers here, i smoked weed twice and had two bad effects (racing heart) brought back the pains, drink and smoke consistently, feel spaced 24/7, feels like my psyche is getting worse ..ffs unis starting soon gunna quit the booze and weed for a while now! , cigarettes are hard and especially not good on my heart, i know ive not done any damage but fuck me its a pain... these pains dont only come from my heart if feels like the bones are aching..wtf? anyways im going better now though everyone, as much pain as im in ive learned to except this hell, and its gunna make me a stronger person once i reach the light at the end of the tunnel

Not condoning the use of drugs in LTC state, but has anyone tried Mushrooms or anything after their LTC / during. My perception is it would make everything worse (obviously) just genuinely curious.

EDIT: very noticable heart beat as well! cant sleep, oh well whats better than looking at interesting youtube videos and stories on the internet right?! hahahah just making light of a shitty situation

 

[ShortTermExpert]

Along with 19 other symptoms, I used to experience what I noted as "an uncomfortable awareness of heartbeat" during my 'LTC,' and it was chronic, and it was at its worst whenever I'd try to get some sleep. It was also the last symptom to go away for good.

I too saw two different cardiologists for extensive heart testing because for a time I was convinced that I had done damage to the aforementioned muscle. And after at least 8 tests in total, which all came back as 'negative,' I finally had the peace of mind I needed to accept that my heart was functioning properly and without any damage.

Should you wish to accept it, I have some advice for you: I know you're probably going through what may be the most difficult health-related issue in your life, however, it sounds like you're making good progress towards 'normal' (whatever your 'normal' is). And so, I urge you to maintain a healthy lifestyle consisting of a healthy diet, adequate cardio-based exercise daily, avoidance of stressful situations as much as possible, avoidance of friends or places which would compel you to consume some more recreational drugs (including alcohol), plenty of rest, and above all, lots of patience.

Should you wish to partake in the future, know that there will always be another party; another rave; another good batch of your drug(s) of choice.

In contrast, your body will not regenerate a damaged vital organ (with the exception of the liver to a certain point). Your health always should come first - fuck the partying/clubbing/etc. for now.

I apologize if I sound like your parents, or condescending in general, but the goal is to get you back to normal more than anything else.

In the end, it's your choice what you decide to do, and I have no right to challenge that, and I don't mean to.

Best wishes for a speedy recovery and also that you do not recover and then experience a 2nd so called 'LTC' - take care.

On the contrary, you don't sound condescending at all. Your post made me smile. It's good to know someone can relate to the cardiological symptoms, and I'm happy to know that it cleared up for you in the end.

It seems like in my case as well, this heartbeat thing will also be the last to go. It's not entirely dependant on mood either. Of course when I am anxious it's more noticeable, but sometimes even when I am relaxed (feels good to even say I CAN feel relaxed recently, compared to 3 months ago), it's still there.

As for partaking again, not for a while. I've told some friends I'm clean until summer at the earliest, and then perhaps longer. Tbf, it's symptom specific. Once each and every last symptom has gone, then I'll give it 3 months, and then I'll go back to the 0.1 bomb that I used to drop for the whole night and then leave it at that. No more consecutive 0.2 lines lol. Lesson = learned.

ro4eva, I'm aware you went the medication route. Did this effect your heartbeat issue? I'm contemplating perhaps going the medication route myself it it will help. Not for my mood, because my mood is so much more manageable now, and in my off periods I can cope much better. It's better all round. However, if there is the possibility that medication can help rectify this weird nervous/hormone/cardivascular issue, I might consider taking it.

EDIT: I'm so curious to know what causes the heatbeat thing. If it's not the heart itself, then is it hormones? Nervous system? I can't think of any lifestyle modification I've done that's affected it other than time and just waiting it out. The only thing that seems to calm it down is lots of sleep. When I wake up, it's normally much more reduced, and then by night time it's far more noticeable again.

 

[me2point0]

The only theory that I could come up with after 11 months of this, is that it's not the mdma itself that started this. I think mdma just opened a door that isn't normally reachable. A door that only psychedelics can open and that we messed part of our consciousness and thought pattern while in it. I trully believe that the door closed after the experience and can only the mind can only heal by re-learning the old state of mind we had before. I honnestly feel like that's why some people considered rolling again, they think they can open that door again and fix themselves to return, healed. As much as I like the thought of it, I would advise against it. Unless it's some assisted psychoterapy with mdma wich is basically impossible to get, I think you can only get worse if you go into that alone. Wait it out man.

 

[nnzo]

Pro tip guys, DONT SMOKE WEED, most of us, sadly, can never smoke weed again... Ive read online people with similiar issues to ours and the affects of weed on it... WELLLL, pretty much your guaranteed a 'pazz' (paranoia attack) in the form of what i like to call, a chest pazz. The weed once ingested/smoked will elevate your heart beat to the point in which you can see it ripping out from your shirt and even jacket. I know this firsthand as i went on a modest bender of smoking weed 3 days straight .... FELT HORRIBLE, every trip if i didnt lead up to it was a mess. the first night with a joint was A ok. the second with a bong, hard to manage and annoying as i kept asking for the ghosts of the bong, then the third was borderline start of LTC bad, but i got through it sipped some coke and watched my heart slowly but steadily go back into a resting beat. I REPEAT, do not smoke weed, if you do lead up to the high and see how you feel! please i want no one to endure this pazz.

 

[ro4eva]

On the contrary, you don't sound condescending at all. Your post made me smile. It's good to know someone can relate to the cardiological symptoms, and I'm happy to know that it cleared up for you in the end.

It's good to know that (it seems that) I've been able to provide you with some peace of mind regarding this annoying symptom.

If I've been able to help you in any way regarding your 'LTC' then I'm happy as well

ro4eva, I'm aware you went the medication route. Did this effect your heartbeat issue? I'm contemplating perhaps going the medication route myself it it will help. Not for my mood, because my mood is so much more manageable now, and in my off periods I can cope much better. It's better all round. However, if there is the possibility that medication can help rectify this weird nervous/hormone/cardivascular issue, I might consider taking it.

Yes, the medication did indeed positively affect my "uncomfortable awareness of heartbeat" symptom.

At first, it was the Xanax (Alprazolam) that proved to be very effective at reducing the severity of the symptom in question. And after the Zoloft (Sertraline) finally kicked in after ~2 months (yes, it really took that long in my case), I noticed that it too aided in reducing the severity of symptom, and this slowly but surely improved as time passed afterwards. As a result, once I had been on the Xanax (Alprazolam) + Zoloft (Sertraline) for ~7 months, the symptom had decreased in severity to the point that I was only experiencing it when really stressed out or anxious for whatever reason, or after a very intense cardio-exercise session. Other than those two cases however, it was no longer a problem (e.g. it stopped rearing its ugly head altogether when I would try to sleep).

That said however, if you do decide that you wish to resort to prescription medications to address your 'LTC' symptoms, I highly recommend that you research the potential short and long term adverse effects associated with such drugs (Benzodiazepines, SSRIs, DNRIs, etc.) before making a final decision on the matter.

EDIT: I'm so curious to know what causes the heatbeat thing. If it's not the heart itself, then is it hormones? Nervous system? I can't think of any lifestyle modification I've done that's affected it other than time and just waiting it out. The only thing that seems to calm it down is lots of sleep. When I wake up, it's normally much more reduced, and then by night time it's far more noticeable again.

As stated in my previous post, I was convinced that I had done damage to my heart, which turned out to be false. And I also thought it had to do with adrenal fatigue/exhaust, hyperthyroidism, diaphragm damage, high or low blood pressure, or even that someone had cursed me (among other things).

The sad truth is that even after all these years, I still don't know what exactly was responsible, but I'm leaning towards mental issues which are so severe that they cause such extreme manifestations as a result. Because if some of us are so mentally sick that we can see people who aren't really there, it shows just how powerful our minds can be with respect to mental health issues.

In the end, I gave up looking because I recovered, and also because I found that it was negatively affecting my mood in general. "Can't win them all."

Perhaps you'll succeed in finding some concrete objective evidence regarding the root cause - I wish you luck.

 

[Strangestuff]

I may have said this before but I feel like the root cause of it is stressing during the initial "normal" comedown. You have thrown your body off balance totally and stressing exhausts it further and it then becomes an LTC. If you don't panic then the chances of a LTC are far less. Although this theory does bring into question how some people can take MDMA without any comedowns.

 

[nnzo]

Feel so shit today, pains feel like they are at the start of LTC again...

 

[kracke]

Do you also have the feeling in the morning like shit, exhausted, like having no sleep altough you have slept 9 hours?
I also look really sick the first 3 hours after waking up?

 

[kracke]

some of you claim hangovers are horrible for us. No idea why but for me i am feeling the same next day or even a little bit better because i had fun the day before

 

[Deltronpedro]

Hey guys, wanted to give a quick update.
Nearly all LTC symptoms diminished gradually after the last 8-9 months(I dont count the weeks anymore). Depression is still there, but has more to do with realtionship stuff happened to me in the recent past. On weekends I go out drinking, having a good time.
If there is no huge setback Im at the tail end of this shit! Feels like all problems I have now are more life induced. I gained a lots of coping skills and new opportunities for life. Before that LTC I was a stoner, not very diligent at university and 10 kg too much.
Now I have a part time job, am more confident about life and social things, I am busy with uni stuff, joined a basketball and a football team, have lost 10kg, can run up to 20-25km and my muscles are growing. These are the things, which gave me the power to feel gradually better. I should mention the Valdoxan I take since 6 months, but I dont know if they helped me much. Red that they dont do their job for smokers and I am one.
Im not 100%, but TBH I dont give a fuck.

 

[ciramatik]

like many of you guys ,I get depressed and anxious after and even during using mdma,I think I have a major case of hypochondria......my MOD is banging,i love it,i spoil my neurons to the heavenly rush ,and man is it a rush?no need to get off subject.anyway I think that started with shooting coke,id freakout after every shot and think id have a heart attack everytime.I only enjoy the intial rush beacause well you cant really focus on your bosy or anything else during it.when I first started slamming mdma or methylone to be exact ...I was in heaven because I didn't worry much about what was going on in my body,i guess because I wwas having fun and around a lot of friends that did the same thing.but as soon as I started being loner junkie ,I started paying more and more attention to my bosy and doing a lot of research online about heart attacks and high blood pressure and the like....I guess I fucked my self up doing that,it became a behavioral pattern with every shot..my doctor is sick of my complaint every month blood test and fucking E.G.Gs.....but my main problem is recklessness and impulsivity to do the same thing again and again in part due to my bipolar disorder....and being irresponsible..sometimes when that happens I say fuck it ,im not afraid to die at the age of 27.but the picture of my family finding out I died make me so paranoid....I guess that must be it!because im away from home....I would kinda be less anxious or paranoid about dying back home,around loved ones.and not being just a corpse to be reported to them....well not really.i try to take care of myself as much as possible ,I take breaks btween binges.eat good,sleep good,workout....reject drug offers....resist urges,take my bipolar meds etc .I become that mature,responsible person that I always am off drugs..until I fall into the trap of talking myself into doing a dose or too and then stopping, boy do I stop.

 

[hoketus]

Kracke - that is what my psych diagnosed me as having when I had my LTC. She explained that depersonalization/derealization falls under the anxiety bracket of mental disorders and is very often co-morbid with general acute anxiety that is triggered by a stressful/traumatic event (drugs).

I, along whit many others who have recovered, treated my LTC as an anxiety based mental health disorder with great success.

Correct!

Hi guys, thought I'd drop in for an update. Coming up on month 6 soon. If you recall I posted a list of about 40 symptoms - most of them have cleared. That's not to say I don't feel anxious, depressed, and I don't dissociate - I do. But my life is generally MUCH more manageable. I'm back to work. I have a girlfriend. I'm making music again. I'm doing things. Truth be told, a lot of the time I just feel like a guy with screwy vision. That said if this vision snow would fuck off, I think I could honestly speed up my recovery 4x over.

Dawglaw is correct in that you need to STOP thinking about drugs. You will ruminate and feel guilty and that will lead to more feelings of hopelessness and panic. You have a mental health issue. Drugs are not on your radar and should never be again (if you ask me).

It is EXTREMELY rare to experience DP/DR without a co-morbid illness such as anxiety, depression, bipolar, schizophrenia, etc. Do you have the latter 2? No, you probably don't. Maybe 1-2% of you might.

In my case, the DP/DR was set off by my first time taking methylone. The dissociative side effects set off a paradoxical reaction which in hyper-vigilant characters such as myself inflames the amygdala, in turn causing DP/DR. At least, this is the theory proposed to me by a frontline trauma specialist.

I have seen no less than 15 mental health professionals during my recovery. Only the trauma specialist and my therapist were able to help with the dissociation. The rest had great advice regarding the depression/anxiety - but that's actually more liveable in my opinion. I can be sad, and I can be scared - but I have to be ME.

So what did I do?

I stopped obsessively searching Bluelight and Dr. Google. I spent a few months in bed to work through the worst of it. And then I decided that was enough. I got out and kept living my normal life. It was fucking terrifying. And I did it. I go to work. I socialize. I make music. Busy, busy, busy. A panic attack can't get in edgewise. And when it does, I have benzos and meditation to quell that right away. I am prepared.

I stopped wasting money on these bullshit 'herbal remedies' and vitamins - lion's mane mushroom, ginkgo biloba, alpha lipoic acid, piracetam, ibogaine root. I've seen some of you with a 'stack' of remedies/medications running some 40 items - are you serious!? It's all a crock. At least, I didn't see any difference.

Get off the motherfucking internet and get yourself to a motherfucking doctor or psychiatrist. You need to stop being afraid to try SSRI's - you have down-regulated 5HT receptors and depleted serotonin activity. Guess what SSRI's fix? Exactly motherfucking that.


Regimen:

0.5mg-1mg Clonazepam
150mg Wellbutrin
200mg Sertraline (Zoloft)
Fish Oil Pills when I remember (rare)
Healthy eating and living
Bi-weekly CBT

The end.

 

[damnone]

Anyone heared about Eosinophilia-myalgia syndrome ?

 

[ro4eva]

some of you claim hangovers are horrible for us. No idea why but for me i am feeling the same next day or even a little bit better because i had fun the day before

The fact of the matter is this: Alcohol is neurotoxic (kills brain cells), cardiotoxic (also kills heart cells), and hepatotoxic (as well as liver cells). And furthermore, it is also carcinogenic - meaning that consuming it increases the risk of developing cancer.

The World Health Organization (WHO) and the International Agency for Research on Cancer (IARC) both have fairly recently completed long term studies regarding the short and long term effects of Ethyl Alcohol / Ethanol consumption, which is the type of Alcohol present in Alcoholic Beverages around the world (where it's legal and regulated at least). And they have concluded that it is a 'Group 1 Carcinogen,' which places it in the same list of cancer-causing agents which includes Arsenic, Asbestos, Formaldehyde, and Radioactive Isotopes (also known as a Radionuclides) such as Americium-241, Plutonium-239, and Cobalt-60.

The results of their studies have been published for approximately 4 years now, and the World Health Organization has sent copies (and followup memorandums) to the FDA, NHA, Health Canada, and other 1st world nations with commensurate healthcare infrastructure throughout each nation's urban centers.

They have all been repeatedly urged by healthcare experts to make it mandatory for Alcoholic Beverages sold in each respective country to contain a new health risks section printed on each can, bottle, or box detailing the risks to one's health if consumed. Yet here we are 4 years later, and still, the only vague health-related "warning" that usually comes with Alcoholic Beverages is as follows: "Please drink responsibly."

My point in telling you all this is due to the possibility that your 'LTC' symptoms may (or may not) be a result of MDMA-induced neurotoxicity (brain damage). And by choosing to consume Alcoholic Beverages soon afterwards, in my opinion it's a bad idea because your brain needs time to patch itself up, and consuming booze will not aid in that whatsoever. On the contrary, it may make things worse (or may not).

As Bluelight is primarily a Harm Reduction-oriented/based website, I felt it was important to let you know of this. And as far as hangovers go, your body is hungover because the booze increases the release of a hormone which regulates how frequently your kidneys eliminate water from your body, which in turn increases the number of times that you have to take a piss, which means that you've lost a lot of water by choosing to drink Alcoholic Beverages and are basically dehydrated plus certain electrolytes are either abnormally high or low, which is not good because there's a remote chance that it might lead to further health-related complications on top of your 'LTC' symptoms, and the carcinogenic + toxic effects of Ethyl Alcohol on the three aforementioned vital organs.

In the end however, what you choose to do with your body is none of my business, and I will always accept and respect without prejudice or condemnation whatever route you decide to take with respect to the recreational consumption of Alcoholic Beverages and other mind altering substances.

Forgive me please if I've upset you in any way, as it was not intended, and I sincerely hope that you have a speedy recovery and a wonderful day sir, take care

 

[elepantonfire]

Hi everyone. I've been lurking on this site for quite some time now - reading a plethora of posts about mdma and the recovery of multiple individuals - trying to find some insight into how my own personal struggle will play out. I just now decided to become a member in order to specify my exact conundrum and possibly get some support/advice and I'd really appreciate any kind of responses.

My prior drug experiences include weed on a consistent basis for about 5 years, lsd, RC's, mushrooms, and a variety of pills. None of the experiences with these drugs have made me feel as awful as I do now.

On Feb. 5, 19 days agao, I took mdma for the first time. My dosage was half of a gold bar (which i was told the bar was a double dosage) so i assume it was around 100 - 150 mg. When I was coming up on it i had a moment where i panicked for about 20 min but then I went to have an absolutely amazing time, a totally typical mdma trip.
The next day I felt tired and a little depressed but I knew this was normal and shrugged it off. At about the third day, I started having intense anxiety, chest pain, along with a feeling that fluid was leaking inside of my chest and just overall strange sensations in my body. Over the next week I went to the ER twice because I had horrible anxiety/depression and was crying basically all day and I still felt like I had something physically wrong with me and might die at any minute. The doctors there told me that it was just the drug, and I had nothing to worry about because my EKG, chest x-ray, and blood tests all came back perfectly fine. After this news, I began to feel pretty normal and was optimistic that I was out of this horrible phase of my life. At the 2 week mark of taking the drug I began to feel "off" again. I would feel fine and then all off a sudden I'd get a huge rush in my head feeling like a mixture of confusion and terror, and I thought I was going to lose my mind. Every night I would wake up with my heart racing and in a state of confusion. It is day 19 now and I constantly feel hopeless, along with moments of confusion. The anxiety has gotten a lot better albeit. I got prescribed buspar today and am hoping this will help my feelings of depression and the weird confusion phases I go through. I'm worried that I have seriously fucked up this time. All of my friends that did it with me, at the same dosage, felt fine after 3 days max and I don't know why I'm reacting so strangely. I'm in my first year of college and I hope this doesn't last because it is hindering my test taking skills. If anyone has any advice or explanation as to why this is affecting me this way I would be greatly appreciative.

 

[onemonthsnake]

The below I posted in early June.

Hi everyone. I thought I would share my story of my (semi) LTC. Since around 2008 I have used MDMA maybe 3 times a year in small doses, gradually doing it less until maybe once per year for the last 3 years. I never experienced any problems with it. I would enjoy the high and as soon as the effects wore off would become very tired, go to sleep and wake up with practically no negative effects (maybe a slight slight bit of 1 day long depression).

This pattern changed recently. In late MAY between Saturday and Sunday from 6 PM -6 AM, myself and 3 others bombed and sniffed about 3.5g of untested MDMA crystal between us. So I would say just under a gram each. The others are all fine after this, but not me. The effects felt were similar to MDMA, except not as strong to what I remember the feeling to be like. I still got the "rushes" but less empathetic effects were felt than would usually be. I know its stupid to re-dose more than once, but the others and their desire to keep doing more led to me doing more. I cant really remember much past 6 hours as it destroys your short term memory I find.

Anyway. So after smoking lots of weed and sniffing alot of MD, I eventually got really tired and went to sleep at about 6 AM. Woke up around 10 AM to find the others still up and complaining how they cant sleep. Smoked a blunt with them then went back to half sleeping half awake until 6 PM. Drove 100 miles back to my home and felt fairly normal, just quite tired. Fell asleep with no problem and went to work the next day.

24 HR after: At work I felt very nauseous and went home after a few hours. The Nausea wasn't too bad but was very uncomfortable. I found lying on my side helped it go away. Ate normally, talked wiht my family, but definitely noticed myself being quite emotional. I had much trouble sleeping on this night. Had a few of these "brain zaps" and found that when I was drifting off to sleep, I would suddenly jolt awake and find my heart beating very quickly. After an hour or so i managed to get to sleep.

48 HR after: Felt incredibly dizzy and head foggy. Felt very distressed and emotional. I believe I had very low blood pressure, hence the dizzy feeling of light headedness. No nausea but felt far worse this day than the previous. Got to sleep fairly easily I believe.

72 HR after: Similar symptoms to the previous day, but far less severe. Managed to go to work and finish the day - but still with the light headed feeling.

4 days later: No more dizziness or light headed-ness. Now experiencing head pressure on the back of my brain / top of neck. This gets worse when I look down (part of the job). Not really painful but very distracting and worrying. Cue much reading on bluelight and other forums.

5 days later: Had an job interview. Feel a strange head pressure / headache in the car, but I am focused on the interview. Interview goes fairly well. Stop at my friends house on the way home and stay there for the weekend. Felt fine all weekend. Probably distracted from the symptoms by friends and having a few drinks.

No symptoms from this Friday, across the weekend and into the next week.

Middle of 2nd week: On the odd say I felt fine. On others day I got the head pressure on the rear of skull/brain when looking down too much. Depending on whether I felt the head pressure, my anxiety levels would be higher, leading to greater awareness of the temporal artery in the right temple when sleeping.This means I can feel the pillow twitch to my pulse when going to sleep. Very frustrating and worrying. As is the head pressure. Apart from this I have no depression or any mental side effects apart from feeling tired randomly (on a few days) and feeling a slight amount of brain fog. I am feeling this brain fog this evening.


Middle of 3rd week: The most recent symptoms begun again on Friday (it is now Tuesday night). These begun with head pressure from looking down at work too much. Usually this feeling would subside after I left work, but this weekend I felt headaches over my right temple and a far more severe occurrence of "brain fog". These symptoms gradually went away by the end of Sunday and resurfaced today (Tuesday) from my looking down at work.

Still always getting the awareness of the temporal artery (mainly when sleeping, sometimes when awake). I am soon leaving this old job for a few month break before starting my new job. Hopefully I can recover in this time.



This is a very helpful thread and it's reassuring to read other's accounts of their own symptoms.

I am curious as to whether anyone has experienced rear head pressure (usually triggered by looking downwards at steep angles for extended amounts of time), and awareness of the temporal artery / pulse in one's head.

I have found nothing on the internet about awareness of pulse in the head. Thanks.

 

[onemonthsnake]

Its been 9 months since the above.

My symptoms are greatly improved. No brain fog and I don't think about the LTC very much apart from recently when going to sleep.

Feeling my heartbeat from each temple (stronger in the right) as I go to sleep is frustrating until I try to forget about it. I keep thinking I'm likely to have a stroke as a result which increases anxiety and makes sleeping hard.

2 other symptoms.

1) Looking at the monitor at work after a while, I start to feel a general "light pressure" sort of feeling / headache in my head. I get this at home every so slightly occasionally. It definitely something to do with enjoying myself or not whilst using a computer.

2) Watching a presentation at say a training course. Watching something not particularly exciting makes me incredibly (unreasonably) tired for no reason even after plenty of rest. This effect has become less pronounced as time goes on. Today it was slightly different, I did not feel this wave of tiredness and a desire to yawn and fight to keep my eyes open. I instead just felt pressure in my head. Not very nice considering this training course (simply watching a very interesting presentation by 3 people with plenty of good jokes) went on for 3 hours. Since then, even to this evening I have felt the pressure on the right temple. A few beers has helped a lot (reducing anxiety).

Just thought I'd let everyone know. It seems most people have anxiety problems and problems with increased heartbeats. Head pressure less so, and nobodoy it seems with feeling their pillow move with heartbeat as they try to go to sleep.

I'm going to see the GP and possibly will print these 2 posts off to show them. I imagine they'll have no experience at all of similar symptoms and it will most likely be a waste of time.

Good luck to everyone's recovery. It definitely happens, slowly. You may have to learn to forget about your symptoms if they aren't particularly intrusive during your day to day life.

 

[jusjenn21]

Hi guys. Thank you all to who responded to my last post. i posted a reply but i guess it didnt go thru. i do tend to obsess over my first initial panic attack. i wanna train myself that it will not happen again... I left something out. I think i read some BL reporting this symptom but not sure. Past 2 weeks i have had this weird tingle sensation back of head. like above my neck. its tingle numb sensation. it feels really strong. and making my anxiety worse. Any advice. Is it just anxiety.

 

[ShortTermExpert]

Its been 9 months since the above.

My symptoms are greatly improved. No brain fog and I don't think about the LTC very much apart from recently when going to sleep.

Feeling my heartbeat from each temple (stronger in the right) as I go to sleep is frustrating until I try to forget about it. I keep thinking I'm likely to have a stroke as a result which increases anxiety and makes sleeping hard.

2 other symptoms.

1) Looking at the monitor at work after a while, I start to feel a general "light pressure" sort of feeling / headache in my head. I get this at home every so slightly occasionally. It definitely something to do with enjoying myself or not whilst using a computer.

2) Watching a presentation at say a training course. Watching something not particularly exciting makes me incredibly (unreasonably) tired for no reason even after plenty of rest. This effect has become less pronounced as time goes on. Today it was slightly different, I did not feel this wave of tiredness and a desire to yawn and fight to keep my eyes open. I instead just felt pressure in my head. Not very nice considering this training course (simply watching a very interesting presentation by 3 people with plenty of good jokes) went on for 3 hours. Since then, even to this evening I have felt the pressure on the right temple. A few beers has helped a lot (reducing anxiety).

Just thought I'd let everyone know. It seems most people have anxiety problems and problems with increased heartbeats. Head pressure less so, and nobodoy it seems with feeling their pillow move with heartbeat as they try to go to sleep.

I'm going to see the GP and possibly will print these 2 posts off to show them. I imagine they'll have no experience at all of similar symptoms and it will most likely be a waste of time.

Good luck to everyone's recovery. It definitely happens, slowly. You may have to learn to forget about your symptoms if they aren't particularly intrusive during your day to day life.

I have quite an awareness of my temporal artery. Especially if I put a finger on it. The main area for me at the moment is my stomach artery.

I also can feel my pulse in my fingers, feet, and neck quite a bit of the time.

Increased awareness at night especially.

I would like to update though that in the last few days this awareness is subsiding massively. Coinciding with increased mood.

I honestly feel like, if this trend continues, I'll be symptom free in a month or less.