keeponkeepnon
Bluelighter
- Joined
- Sep 8, 2008
- Messages
- 149
I apologize if this is in the wrong section but I'm battling Lyme disease and babesia for seven years now. Babesia is fatal if not treated. I've tried three different treatments I can't tolerate them the pain goes from a five to a ten in days to the point of bedridden but I only continue to get sicker. I got dependent upon Kratom and had to go on subs to get off it which I had initially started using because I was in such pain and no one would help me because it's lyme and everyone is so ignorant.
Well I saw a specialist who got me off the Kratom in five days and in off the subs but his immediate suggestion for the pain over the forty my of oxycodone I've been scripted for two and a half years would be to switch to methadone. My eyes immediately lit up he wouldn't write it I guess because it's a dea red flag but has a pain specialist he could send me to who would if my LLMD will refer me. So I've started the treatment for the babesia so I don't drop over dead from heart failure and I can barely put any weight on my right leg it hurts so much. Everything is screaming and stabbing the joint pain from babesia feels exactly like arthritis but without inflammation and then ur nerves goes nuts.
The predicament I'm in is the oxy does nothing he won't up it he keeps dragging his feet on he methadone (which I know for fact works MIRACLES in me at doses as low as twenty Mgs.) I literally nearly cried the first time I took it because it was the first time I felt semi human since I was twenty. Well my dr was supposed to calls he psych wh got me off the Kratom over three weeks ago mind u I have a great doctor but he's a flake. He lost the hand written note with the doctors information on it and an explanation of what went on what should be done etc. So in three weeks. He never mentioned Otto my parents myself in person or on the phone he has seen and talked to allof us in the meantime. So I go into day under the impression I'm being switched the done. He calls the dr when I giv him the number no answer. Surprise.
So he wouldn't script me the done well I didn't come out and ask but he knows that's what I should be on. So then I ask if I may have permission to exceed the forty mg daily if he won't up it for he time being and he said well let me talk to ur other dr first. Ummmmm you've had a month and about eight reminders I can't keep living like this his script will last me six days it's supposed to last two weeks and it's not because I'm abusing it it's just the only way it does anything literally anything.
So then I say we'll think my other Drs whole notion was I needto be on a longer acting med and my doctor says well you've tKen OxyContin before right ? And I said no (tKen ops but they are awful I wish OxyContin was still around) and he says well I think OxyContin will be the next step. Noooooooooooooooo like that's fucking moving backwards.
Basically I'm just at my wits end because I'm feeling worse y the day I can't treat it and I'm going to die if I dont. If. Cancer patient had to undergoe chemo and said it hurt too much to do do you think there would be any hesisitation ? I think not. Silent victim FTW!!! So I absolutely do not want to go on OPS I know they don't do shit to me. If be open to OPANA does anyone have any suggestions ?
The pain I expirince includes, myofacial displasia, neuropathy, and arthritic ayndrome that feels exactly like it but without inflammation directly from the babesia, skeletal, and stabbing pains everywhere and CHARLIE horses and knots that wrap up my nerves and make me nearly pass out and burning in my thighs and buttocks and back.
I have tried, legally and illicitly morphene all forms, ops, roxi, dilaudid, fent, Demerol, methadone, Vicodin, tramadol, lyrica and Kratom. Only real success with roxi and done and dilaudid worked great haven't taken Demerol in twelve years but back in the day it worked wonders. That who,efamily demerol methadone and im medium all work great. It seems like complete synthetics work best. Ugh any thoughts I don't want to die.
Well I saw a specialist who got me off the Kratom in five days and in off the subs but his immediate suggestion for the pain over the forty my of oxycodone I've been scripted for two and a half years would be to switch to methadone. My eyes immediately lit up he wouldn't write it I guess because it's a dea red flag but has a pain specialist he could send me to who would if my LLMD will refer me. So I've started the treatment for the babesia so I don't drop over dead from heart failure and I can barely put any weight on my right leg it hurts so much. Everything is screaming and stabbing the joint pain from babesia feels exactly like arthritis but without inflammation and then ur nerves goes nuts.
The predicament I'm in is the oxy does nothing he won't up it he keeps dragging his feet on he methadone (which I know for fact works MIRACLES in me at doses as low as twenty Mgs.) I literally nearly cried the first time I took it because it was the first time I felt semi human since I was twenty. Well my dr was supposed to calls he psych wh got me off the Kratom over three weeks ago mind u I have a great doctor but he's a flake. He lost the hand written note with the doctors information on it and an explanation of what went on what should be done etc. So in three weeks. He never mentioned Otto my parents myself in person or on the phone he has seen and talked to allof us in the meantime. So I go into day under the impression I'm being switched the done. He calls the dr when I giv him the number no answer. Surprise.
So he wouldn't script me the done well I didn't come out and ask but he knows that's what I should be on. So then I ask if I may have permission to exceed the forty mg daily if he won't up it for he time being and he said well let me talk to ur other dr first. Ummmmm you've had a month and about eight reminders I can't keep living like this his script will last me six days it's supposed to last two weeks and it's not because I'm abusing it it's just the only way it does anything literally anything.
So then I say we'll think my other Drs whole notion was I needto be on a longer acting med and my doctor says well you've tKen OxyContin before right ? And I said no (tKen ops but they are awful I wish OxyContin was still around) and he says well I think OxyContin will be the next step. Noooooooooooooooo like that's fucking moving backwards.
Basically I'm just at my wits end because I'm feeling worse y the day I can't treat it and I'm going to die if I dont. If. Cancer patient had to undergoe chemo and said it hurt too much to do do you think there would be any hesisitation ? I think not. Silent victim FTW!!! So I absolutely do not want to go on OPS I know they don't do shit to me. If be open to OPANA does anyone have any suggestions ?
The pain I expirince includes, myofacial displasia, neuropathy, and arthritic ayndrome that feels exactly like it but without inflammation directly from the babesia, skeletal, and stabbing pains everywhere and CHARLIE horses and knots that wrap up my nerves and make me nearly pass out and burning in my thighs and buttocks and back.
I have tried, legally and illicitly morphene all forms, ops, roxi, dilaudid, fent, Demerol, methadone, Vicodin, tramadol, lyrica and Kratom. Only real success with roxi and done and dilaudid worked great haven't taken Demerol in twelve years but back in the day it worked wonders. That who,efamily demerol methadone and im medium all work great. It seems like complete synthetics work best. Ugh any thoughts I don't want to die.
