Ummm, I have a neurological disorder that is a rare form of myocolonic epilepsy. The specific issue I have is that I don't know if is the benign version or the fatal version. Over time, if nothing gets worse, they'll confirm it as juvenile myoclonic epilepsy. If things get worse, it will be classified as Progressive Myocolonic Epilepsy. If it is progressive, I'm looking at no more than 15 more years, tops. I'm also looking at dementia setting in sooner rather than later. I know the vomiting thing has nothing to do with this, but I've been having more shakes than ever before, and my myoclonus that was being treated, has come back. So this has been on my mind for the last few weeks.
This whole disease thing turned me from a party king to a reclusive and secretive addict. I started drinking, doing opiates, coke, and RC's, and so much more, because of the original diagnosis. I forgot, until recently, that there is still a chance it's progressive.... and if I get that new diagnosis. Oh man. I would never let myself turn into a vegetable. I'm 26, next year is 27. If this turns out to be PME, I think I'll be forever 27