I just found this but don't have the energy atm, to give you the full story. I recently posted on a Sjogren's Disease support group on Facebook, so I copied it and will edit a little for now. --I’m 73, and have suffered through many things on your list, including your frustration with medical professionals. My Rheumatologist finally diagnosed me around 5 years ago. That, and prescribing Hydroxychloroquine, were his main contributions to helping me. I also had Mono. A long case of it where I could drag myself to classes most days my first year of college. Massive fatigue and weakness- too similar to this THING to ignore. My best help has come from researching on the internet. I’ve improved a good bit after 2 hip joint replacements. I take about 30 supplements a day. The soles of my feet are numb and on and on and on. Amanita Muscaria mushroom powder- micro-dosing has helped tremendously and serendipitously with the oral dryness. I’ve shared that often with fellow SJD sufferers, but never received any feedback. Felt I should make the attempt again here. I take a pinch every other day or so. Takes a while but it did this for me. It has MANY medicinal properties. There’s a book about it (w/o my discovery) by a Russian Dr—- Baba Mosha - or something like that.----I posted that but left out my too brief psilocybin experience. Someone sent me a small caviar jar with psilocybin powder in it. She heard about my difficulties from a family member and gave microdosing info. She claimed she'd been bedbound for 3 years with resistant Zika Virus and microdosing with this powder cured it. I was desperate. It took over a month before I noticed my energy level increasing. It eventually increased by about 20%, which was HUGE! I couldn't reach her after that when I ran out. I've searched for alternatives and started the Amanita Muscaria 2 or 3 years ago. It has helped other ways but not the big one-the massive fatigue and weakness. I take many supplements as I know my body doesn't process nutrients efficiently, read as much as I can on studies, etc. I need to get back on it to have a decent quality of life. Right now, the only legal way is through being a research subject, and I am ready, willing, and able to be a useful candidate.
