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Hi, my name is Tom and here is my story

TOMMAX

Greenlighter
Joined
Mar 28, 2012
Messages
3
Hi bluelight

Im currently 29yr old male and am a chronic pain patient.

My pain problems all started in march 2005 after I dislocated my kneecap in martial arts. I tore the medial ligament strutures (MPFL) during this time and was sent to the ER where they popped my kneecasp back into place.

I eventually managed on my own to strech and strengthen the knee to the point where I was able to resume body building and some sports. I only took extra strengh tylenol to rehab from my original injury.

I few years later I damaged my back and shoulder from boxing and developed a condition called winging scapula and long thoracic nerve palsy. This was the end of my bodybuilding career.

I had lived with the pain for awhile until my dad had a sciatic nerve problem and got a perscription for percocets. I treid these and found them amazing for pain relief so eventully went around asking doctors to perscribe me this for my pain. Some of them would perscribe for awhile but evtually cut me off. They told me to go to an orthopedic surgeon.

I went to the surgeon, told him of my problems and he said surgery was more logical than taking the pain meds (10 percocets per month). Big mistake. Surgeons only want to cut and make money. He was only supposed to clean up my knee but ended up doing a procedure called a "lateral release" which cuts the ligaments on the outside of the kneecap to properly algin it. This surgery basically crippled me and has left me in tremendous pain from mid thigh down to the bottom of my foot. THe srugery was done in april 2010.

After about 1 year of physcial distress from the pain and being bed ridden (yes, I grinded through physiotherapy as well for 1 year) I had finally been refered to the pain clinic at a local hospital. They started me off with oxycontin 10mg 2x per day and percocet for break through pain. This was not helpful. I eventually after a month said the pain releif was not adequete and they put me to 20mg oxy 2x per day. This still was not very helpful but I was scared to ask for more pain killers and was worried of addicition so I just stuck with it.

A year later, I am in even more extreme pain, I went back to the pain clinic (today) and they perscribed me hydromorph contin 9 mg x2 per day (or it might be once per day, cant remember) and hydropmorphone 2mg 2 to 3 times per day for break through pain. I have not tried this yet. I tried hyrdomorphone 2mg last month which didnt seem to help much with the pain but made me feel really high.

I am supposed to have a lateral reconstruction of the ligaments that were cut during the surgery in May 2012 but am worried that it may not help or make things worse. There are alot of risks involved with knee surgery and can really make things worse as terrible as they are right now.

Life is hell right now. I used to be relatively active, going for long walks, bike rides, doing bodyweight exercises, some jogging, etc. etc. Now I am bed ridden and can barely limp around the hosue and go to the washroom. I am stressed, my family is stressed. I dont know what the future holds but it dosent look good to be honest.

nyway, that is my story and thanks for reading.
 
Welcome to BL Tommax!

As a CPP myself, I completely understand what you are going through. Doctors that are scared to properly dispense meds that work effectively, surgeons who fuck up your surgeries, the stresses that come with chronic pain (anxiety, depression, frustration, lack of hope for a promising future, lack of sleep, etc...), and the feeling of knowing you cant do what you want to do anymore and having to work around your injuries everyday. Its a battle and there are many of us who can relate to you. If you need an ear to talk to, dont be shy to contact me via PM or over AIM. I will be more than happy to listen.

Have you taken up any new hobbies to replace your old ones? That, I find, is fairly crucial to helping get thru day to day. Just have something to look forward to doing and get out of bed for.

Hope you get some relief soon! If you think yo need some support from the forum, The Dark Side is a wonderful place to start as well. There are some good people over in that forum with good advice. There is a link for it in my signature. Just remember that your not alone!

Also, if you have any questions regarding your meds, then the Basic Drug Discussion forum is a good place to ask and also the social thread in there is a pretty jumpin' spot too ;)

Lastly, dont be afraid to come say hello in the NMI Social thread in this forum!

Take care!
 
Welcome!!! :D

WOW! I feel for you so much. I had a similar knee surgery in jan 2006 from a near fatal car accident 2 age 29,I was texting and driving and speeding in a work zone. I hit a stopped 18 wheeler going at least 70 and never hit the breaks. My knee was shoved in the dash-they called it dashboard knee,how clever :) and I also broke sm bones in my foot/ankle. But I had a transected aorta and they just put a wound vac on it while I they waited for me to be strong enough for open heart surgery. i was in a medically induced coma for a month. A couple of weeks after heart surgery and waking up they operated on ankle and knee. Went to a rehabilitation facility and then did outpatient PT for a year. Then my ankle started to swell and that is when things got worse. I had a 2nd clean up surgery on my ankle to remove fluid,inflamation,hardware-2 titanium screws-in march 07. I had PT for a few months again after the cast came off. I thought I could be the extremely physical person I was before my accident...as time went by,both got worse.
I lost my job and insurance and since I was addicted to opiates-2nd time for me-I started getting street opiates. BIG mistake. Everything got worse. I finally got clean and decided pain was a better life. I had applied for disability a year before I got clean and I just won my appeal last month after 3 years of waiting-the last year has been hell for me too. 4 ankle sprains-which I had to use crutches,then a walking boot and crutches,then the boot,then I would put weight on it for 2 days and I'd be back in the same position. before I got the crutches,I tried my OLD walking boot from 06. It put awful strain on my knee and now I have bone spurs and the hardware-3 screws-are coming loose. They said it is degenerative and w/o surgery will only get worse.
Since I finally won my disability case I'm now insured I am looking for the best ankle surgeon and the best knee surgeon in the city. We have an AMAZING medical college here whose orthopedic team is top notch.I swear,would rather have a knee replacement every 10 years than take pills and still be in bed bc I can't walk!

So,yeah...I can certainly sympathize with you. I can also tell you that Bluelight has a large pain management/chronic pain community. Check out The Dark Side(TDS). You will find more similar stories from people who understand and with that comes a HUGE support community.
Have you tried something like pregabalin or neurontin by chance? They are neurological pain inhibitors and while they are no high powered opiate,they do help. I am on neurontin now. It is better than nothing!


Sorry to be so lengthy. I just really identified with your post and wanted to not only welcome you but share my story with you as well. <3

I look forward to seeing you around the site. I think it will be very helpful for you!
If you have any questions,feel free to PM me or ANY staff member. We are here to help.

Much peace and love.........................skillz =D
 
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