Hi Everyone!

[CushieSandy]

So I'm still taking my time looking around and getting to know the site. I honestly do not know how much I will be participating, but when I do it will be to help whenever I can and ask for help when needed.

Currently I am chronic pain patient being treated for Scoliosis, Herniated Discs in Lumbar and Thoracic regions, Nerve damage including Sciatic nerve pain, possible Fibromylagia (but doc believes it's a symptom of Cushing's Disease - more further down), and finally spinal stenosis.

In addition to all of the above, I also suffer from horrendous menstrul pain from Ovarian Cysyts (3 ruptures in 2 years)

Anxiety and Panic attacks and my doctor suspects I have Cushing's Disease or syndrome (same symptoms different glands) OR Poly Cysytic Ovarian Syndrome but those symptoms just don't match up to what's been going on with my body. The symptoms I experience include strange blood pressure readings which are very high (I used to have perfect blood pressure and still get random normal readings), constant sweating in the head, neck, stomach and back, growth of a buffalo hump (google it you know you want to lol), acne worse than ever before in my life, heart palpitations of I exert myself in any way including this and shortness of breath from walking up a single flight of stairs, headaches that I rarely got before and in less than a year I gained SEVENTY pounds all in my stomach face neck back and butt WHILE exercising and eating better. I don't even own a car so I have to walk everywhere. There's no reason on this earth that I should have even gained a single pound. The only symptoms I don't have are big red stretch marks (yet) and loss of periods (could be offset by cysts).

So, needless to say, I have zero quality of life. I live in bed most days and only go out when I absolutely have to. I thank God for my boyfriend and his son whom I live with and my parents because I could not survive without any of their help. If it weren't for my extreme fear of dying, I don't think I could on living this way in so much pain. I'm not depressed, I'm just exhausted from having felt this awful so long. A sentiment I'm sure many of you can relate to.

im sorry this was SO long lol! If you got this far, thank you for taking the time to read about me. If you have any questions for me please feel free to ask and thank you for having me! :D

 

[Bearlove]

Hi there and welcome to the site.

I'm sorry to hear that your in so much pain and are going through all of this but its good that you have support from your boyfriend and family. We have a few sections where you may find information or you may be able to offer some help to others.

Mental Health, The Darkside, Healthy Living (for pain Management) to name a few.

Have a read over some of those sections, maybe break down your symptoms into 'mental health' issues and make a post saying what your going through - coping strategies etc. Same would go for the Pain section over in Healthy living etc

Good luck and if you need any help with navigating the site etc please feel free to ask.

Bear

 

[CushieSandy]

Thank you, Bear, and also thank you for listing those forum headings...I'll definitely be checking them out! ?

 

[DixiChik]

WELCOME Sandy...You're not alone here. Many of us understand chronic pain.

 

[d0wN]

Hi Sandy. Wow...I feel so badly for you. There's too much pain in the world as it is, and knowing what you have to deal with every day will make me feel a little less sorry for myself. I'm new here myself, so hope to see ya around!

My wife had ovarian cysts as well, so I know it's no picnic. She ended up having a complete hysterectomy and has been on estrogen patches since. Is this an option for you?

 

[CushieSandy]

Thank you D0wN and DixiChik!

Ironically, I just got home from the ER because my 6.5cm cyst burst Saturday Night and it's the first time it's caused bleeding. I'm on bed rest for the next couple days because if it doesn't stop they'll have to remove the ovary.

Ill check with with my doctor, but until everything is sorted with the CUSHINGS I don't think it's possible. I really SHOUDLNT even have any surgery because my blood pressure fluctuates rapidly from low to high. Within 3 hours at the ER I had two readings of 145/110 and 130/54. It's not normal to have a 54 with 130 the numbers are usually closer together like 110/70 and 120/80 which are considered normal BP. Fluctuations like this could mean life and death when on an operating table. And since CUSHINGS is a hormone disease, adding HRT (estrogen) could be very bad for me. But thank you for the suggestion because it's still worth talking to my doctor once the CUSHINGS is cured or at least under control