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DixiChik

DixiChik

Bluelighter
Joined
Apr 27, 2015
Messages
972
Hey Y'all.  I'm DixiChik.

I'm new here and keep "losing" my introductory post...duh...user failure maybe?

I am 21 years post TAH/BSO (gutted of female parts) due to Stage IV Endometriosis

I guess I'm looking for other ladies who are dealing/coping with this disease for decades now.  I have resisted PM out of fear. I always made Darvocet "work" for me, along with epidural/facet injections in my neck and lower back.  However, Darvocet was taken off market AND my lifelong GP retired around the same time. My life spiralled downward as I reached the "mid-century" mark.

I reached out for help in January 2014 from a PM doctor through a nearby hospital.  I have failed several drug trials of opiates. I have endured horrid My body doesn't process opiates properly, causing more problems than solutions. I got SHINGLES in my eye and face a YEAR AGO from the stress of all of this stuff. The virus continues to rage in my bloodstream and has affected my eyesight.

Currently, I am awaiting genetic testing for metabolism of meds.  It SHOULD BE easy...but we are rural and access to such "forward thinking" is not readily available. My PM refused to order the test, saying it's too expensive..."We can keep trying til we find what works". Well...It's not his body face down in the floor...It's mine It's also dragging my depression into deep dark places.  My new GP is researching labs for the swab test and will hopefully be able to perform it soon.

Until then, I am hurting and hopeless. I would welcome sincere input from anyone.

Thanks=)
 
Last edited by a moderator:
Hi,

I'm sorry you are suffering so very much. I have been on most opiates out there in my past inclusive of Darvon.
Anyways, please feel free to ask me any questions about the site. In the meantime you might find some support in The Dark Side for starters. You mentioned Shingles? Have you tried Lidocaine patches?

Good to have you here. Best, Smoky. :P)
 
Very sad hope you find what you need! My fiance suffered from endometriosis so I do know about other methods of pain relief that don't involve opiates good luck!
 
Thanks, Smoky and joeglow...Can y'all advise me as to how to make my introductory post more legible? I don't understand the gibberish. I'm sure it's user failure on my part!

Yes, I've used various modalities for endometriosis. It was in advanced stages and my life almost ended when the disease shut down my GI system. Thankfully, extensive abdominal surgery saved my so-called life. It was followed by chemo therapy of Lupron (several series). I've done everything I can surgically and I'm basically viewed as psychotic, pointed to PM by 8 specialists in 3 states in the Fall of 2013. They think adhesions are causing pain, but won't touch me to investigate surgically.

As for the SHINGLES, the virus seemed to onset after my PM doctor went batshit crazy and swore he didn't know me! Huh? Are you self-prescribing? The stress of his outburst sent me into a death spiral. My GP told me that if I couldn't get control of the stressors in my life, my coffin lid will soon slam shut! She prescribed steroid injections, dosepak of Methylprednisone, along with Acyclovir for 3 separate series, a month each time. Yet the virus will not go dormant. It's antibodies are raging in my BC, even though I've taken 2 series of Valtrex in the past month. My immune system is non-existent. I am weak and don't absorb nutrients or supplements that my body needs.

I'm a trainwreck, with spinal injuries and a body broken by a near-fatal car crash way back in high school. I was airlifted, along with my mom and pregnant sister. None of us were expected to live. We were shattered like china dolls.
 
Thanks, Smoky and joeglow...Can y'all advise me as to how to make my introductory post more legible? I don't understand the gibberish. I'm sure it's user failure on my part!

Yes, I've used various modalities for endometriosis. It was in advanced stages and my life almost ended when the disease shut down my GI system. Thankfully, extensive abdominal surgery saved my so-called life. It was followed by chemo therapy of Lupron (several series). I've done everything I can surgically and I'm basically viewed as psychotic, pointed to PM by 8 specialists in 3 states in the Fall of 2013. They think adhesions are causing pain, but won't touch me to investigate surgically.

As for the SHINGLES, the virus seemed to onset after my PM doctor went batshit crazy and swore he didn't know me! Huh? Are you self-prescribing? The stress of his outburst sent me into a death spiral. My GP told me that if I couldn't get control of the stressors in my life, my coffin lid will soon slam shut! She prescribed steroid injections, dosepak of Methylprednisone, along with Acyclovir for 3 separate series, a month each time. Yet the virus will not go dormant. It's antibodies are raging in my BC, even though I've taken 2 series of Valtrex in the past month. My immune system is non-existent. I am weak and don't absorb nutrients or supplements that my body needs.

I'm a trainwreck, with spinal injuries and a body broken by a near-fatal car crash way back in high school. I was airlifted, along with my mom and pregnant sister. None of us were expected to live. We were shattered like china dolls.
 
I'm going to attempt to post an update. I saw my PM doctor today. He said that my metabolism testing shows that I am not fully processing the Oxycodone. He says that explains my needed increase for dosing schedule to 4xday. However, he says he cannot write for 120 per month. He will only write for 100 per month.

Can anyone help me to understand this? Would I be better off going back to Lortab, OR would it be limited, too? I don't fully understand the requirement to enroll in pain "management" if the doctor is afraid to actually "manage" the pain. He said he'd have no problem increasing the milligrams, but not the number of pills. Huh? Why would I want to increase mg? He suggested 30 mg to break in half and take every 4 hours during the day. The broken pills upset my surgically altered stomach. What do I do?

Thx for your responses!
 
Thanks...I've been here a few weeks. I just can't seem to iron out the proverbial wrinkles of posting. I continue to try.
 
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