Neuropathic1
Greenlighter
- Joined
- Sep 29, 2011
- Messages
- 27
New here, and happy to have found this site of open minded people.
I have had a hell of an experience regarding doctors and my illness with complications. I visited my family doctor to try and see what could be done with a nerve disease that has bothered me since 1988, I have Neuropathy that has spread throughout my body. 3 years ago I approached my doc to see if they could help with the pain in my legs and back. I was prescribed a myriad of meds that unfortunately all prompted bad side effects and reactions. My doc gave me Oxycontin 5 mg tabs and 1 per day held spectacular results for me. When I saw my doc for a refill I told her this was a miracle drug for me. I was able to walk long distances and felt really good. For a time. I soon worked my way up to 6-8 pills per day and I always seemed to need more. My doc said I needed to get into a pain clinic for safety and better refinement by a pain specialist. I waited for 2 and a half years to finally see a doctor and he didn't exactly hold any bedside manners. He asked me to give him a quick synopsis of my pain then started grilling me for personal information regarding my disease and if I had any addictions I should notify him I had/have. I told him I experimented with various drugs and I watched his entire demeanor flip from empathy to apathy. He wrote a few scripts and had started to shove me out the door with a requisition for lab blood work. He wanted everything done, every possible illegal drug and various STD's, alongside a Hemoglobin A!c and Creatine tests. Being an occasional pot smoker I started to get serious anxiety as to what labels and stigmas would be applied to me, not to mention all that info going to every specialist I currently see and have a good rapport with (all 5 of them). I bit the bullet and was lucky nothing showed up positive.
I kinda felt like I was under the gun after my doc mentioned that if I tested positive for any illegal substance he had the legal authority to stop scripting me narcotics for pain as I would be a liability and they wish to avoid any potential lawsuits if something happened like an OD. They handed me a contract that they wanted me to sign that I would not see any other doc for my prescription pain meds, I would have to use a pharmacy of thier choice and I was to be drug tested once a month. In addition, they will only give me enough meds for 1 week. I have to phone the pharmacy to fax the clinic a week in advance, and the pain clinic faxes back a refill for 7 days. I do this routine every week. There have been many mistakes by one or the other in that chain and I have had 10 episodes where I run out of meds sometime for up to 3 days. The WD's are iinsanely hard. I find it ironic that they never do this type of nazi-regime of schedule for persons with cancer. I have equivalent or higher pain issues than most cancers. I literally have to fight for meds, and increasing doses is a royal pain and battle of atrition.
I have asked my doc for 2 weeks of meds at a time and his reply was...they have too high a street value, and I may get mugged for the meds. If I could just switch docs that would be awesome, but I have to get a referal from family doc and I will be on a waiting list for a least 3 yrs befor I can get a new pain specialist...
anyone else experience this and have any ideas or suggestions?
I have had a hell of an experience regarding doctors and my illness with complications. I visited my family doctor to try and see what could be done with a nerve disease that has bothered me since 1988, I have Neuropathy that has spread throughout my body. 3 years ago I approached my doc to see if they could help with the pain in my legs and back. I was prescribed a myriad of meds that unfortunately all prompted bad side effects and reactions. My doc gave me Oxycontin 5 mg tabs and 1 per day held spectacular results for me. When I saw my doc for a refill I told her this was a miracle drug for me. I was able to walk long distances and felt really good. For a time. I soon worked my way up to 6-8 pills per day and I always seemed to need more. My doc said I needed to get into a pain clinic for safety and better refinement by a pain specialist. I waited for 2 and a half years to finally see a doctor and he didn't exactly hold any bedside manners. He asked me to give him a quick synopsis of my pain then started grilling me for personal information regarding my disease and if I had any addictions I should notify him I had/have. I told him I experimented with various drugs and I watched his entire demeanor flip from empathy to apathy. He wrote a few scripts and had started to shove me out the door with a requisition for lab blood work. He wanted everything done, every possible illegal drug and various STD's, alongside a Hemoglobin A!c and Creatine tests. Being an occasional pot smoker I started to get serious anxiety as to what labels and stigmas would be applied to me, not to mention all that info going to every specialist I currently see and have a good rapport with (all 5 of them). I bit the bullet and was lucky nothing showed up positive.
I kinda felt like I was under the gun after my doc mentioned that if I tested positive for any illegal substance he had the legal authority to stop scripting me narcotics for pain as I would be a liability and they wish to avoid any potential lawsuits if something happened like an OD. They handed me a contract that they wanted me to sign that I would not see any other doc for my prescription pain meds, I would have to use a pharmacy of thier choice and I was to be drug tested once a month. In addition, they will only give me enough meds for 1 week. I have to phone the pharmacy to fax the clinic a week in advance, and the pain clinic faxes back a refill for 7 days. I do this routine every week. There have been many mistakes by one or the other in that chain and I have had 10 episodes where I run out of meds sometime for up to 3 days. The WD's are iinsanely hard. I find it ironic that they never do this type of nazi-regime of schedule for persons with cancer. I have equivalent or higher pain issues than most cancers. I literally have to fight for meds, and increasing doses is a royal pain and battle of atrition.
I have asked my doc for 2 weeks of meds at a time and his reply was...they have too high a street value, and I may get mugged for the meds. If I could just switch docs that would be awesome, but I have to get a referal from family doc and I will be on a waiting list for a least 3 yrs befor I can get a new pain specialist...
anyone else experience this and have any ideas or suggestions?



