Help for Statin Myalgia

[WyldOrchid5150]

Hey y'all
New to the boards and was looking for some suggestions for my state of affairs. I have aggresive heart disease, diabetes, nerve myopathy, severe statin myalgia, and unstable angina for the last four years. Two heart attacks and 3 stents, a big fat mess to put it mildly. The main issue is for the last few years, I cannot get any doctor to treat my muscle pains from the statin drugs, which have made me almost an invaild. We have switched them around and tried several different meds, but they all have the same result. I had one cardiologist script me thirty 5/500 hydros a month,for three months, but we have moved and I'm back on the ground floor again. Everytime I have a flare, I wind up in the ER. Usually very nice with a couple of pain shots and back out the door. I'm currently having to use a free clinic for my medical needs due to no insurance and they are unable to prescribe addictive drugs. What should I do? Go to a pain clinic? I smoke cannabis as a form of pain managment, will they refuse to treat me when that shows up in their DTs? I eat tylenol and asprin like candy with no relife. Hydrocodone 10/500 worked well, as does dilaudid, but if you mention this to a doctor, they get all twitchy that you might actually have a clue about what you need for making your life a tad more bearable. Any suggestions or experience y'all have, I would truly appreciate.

 

[NeighborhoodThreat]

I don't know the specifics of pain clinics accepting patients without insurance. It does sound like you need something more powerful than Tylenol though! (Just a side note, be wary of the 4000mg a day Tylenol limit, the last thing you want to be doing is hurting your liver).

I do think you should see a pain clinic, but telling you what to tell a doctor to get pain meds is sort of dodgy and not really harm reduction, which is the point of this forum. However, it sounds like you really really need them anyway so that shouldn't be an issue.

Some pain clinics drug test, others don't. Cannabis is an effective pain medicine for some people, its a shame you can't just get a script for that!*

*Well, you can in certain places, where are you located?

 

[WyldOrchid5150]

The tylenol is a big concern of mine, but so far, my liver panals are ok. I've given myself sialic acid posioning twice, to many goody powders. I know, its a grey area... I just don't understand how they work, and if its worth the money to spend to go to one. You can self refer yourself here, pay your money, and a doctor looks you over and I guess decides how to treat your specific ailment. Now if they start you off with a script for Tylenol3, well...gads. Sorry to be sucha noob...oh! and I live in Norfolk.

 

[NeighborhoodThreat]

No worries on being a noob, but I'm not really an expert in pain management, I don't even know if you can self-refer yourself to a pain clinic (I'm thinking you can't but who knows).

Again, the laws regarding pain clinics vary widely from state to state (assuming you're in the United States, Bluelight is a worldwide forum) and from country to country.

 

[WyldOrchid5150]

Thanks for the input I guess I just need to break down and call and see how much this is gonna cost. I'm averaging about 2000mg on the tylenol a day, and benadryl for sleep. I was in the hospital 4 days ago with 2.5 mg morphine every two hours for a heart blockage (they couldn't fix it) and it was sweet relief.

 

[NeighborhoodThreat]

Heart blockage sounds pretty serious...and 2000mg of Tylenol a day is still pretty high of a dose to be using chronically...

I'm thinking you may want to go to another hospital!

 

[WyldOrchid5150]

LOL! I've been thru more than I can count, this is an area that the medical community is seriously lacking. I've ever had a rather portly MD tell me he quit taking Lipator because he hurt so bad. *shakes head* Its madding.