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Hello from Ohio/chronic pain my story

Chronicpainlife

Greenlighter
Joined
Apr 28, 2016
Messages
6
Hello I am 37 with 3 teens my oldest boy almost 18 he's so special to me and makes me smile daily ,he happens to be Autistic. My 16 yr old daughter ,is beautiful ,smart and a little 2 much like her mom we recently started homeschooling her for a few reasons the main reason she has symptoms of Fibromyagia & was missing school due to lack of sleep & pain & my kid's don't miss school so we done what we thought was best.

Then my youngest son he's 14 and cute, smart as ever love's video games and the outdoors & making money oh & starting to really take interest in girls,I should say one girl got his attention. He's a true gentleman like his father.

Speaking of father's my husband and I have been together almost 18yrs in October & just celebrated our 16th anniversary on January 7th , he's my best friend & sole mate, he truly is the best not sure what I'd do without him or my kid's!! They are what makes me wanna get outta bed every day. I live in chronic pain & have been since 2007.

I had a cervical fusion & long story short it didn't help ended up with nerve damage and went down hill from that horrible day in June of 07" & now I have fibromyalgia, chronic pain syndrome, DDD,osteoarthritis in hips,knees,back & shoulders. I'm pretty sure I have arthritis in hands too.

I have 2 new herniated disc above my plate in neck,anxiety & depression from the pain..I mean heck who wouldn't after spending my mid to late 20s till now in chronic everyday pain. I have no energy ,have crazy sleeping hour's & get heated easy to the point of fainting. So cold showers and rarely getting to enjoy the things I once did,walking on bike path, family & friend's cookouts ( I go to family ones ,it tradition but don't stay long).

Going to the store wipes me out,simple things I use to do I just either can't or can only do in spurts. I miss the happy go lucky gal who always loved being around people , but find myself not answering phone calls, turning down friends who invite us to hang out. I honestly have tried most everything to get better from shots/injections , PT , acupuncture & a thing called cupping, tens units, chiropractic care , massage therapy ( I think I'll try again I just think I had a sucky one, I want to try tenderpoint massage therapy & injections ) water therapy etc . ..now at one point I was on methadone & I didn't have the arthritis and DDD & the new herniated disc ,so when I was on that after about a year of going to a great team ,a pain management doctor ( she changed insurance company so I couldn't afford to pay cash) a physical therapist , chiropractor & great nurse in one building.

So after about a year on the methadone with a great team I started to be able to exercise slowly by taking home what I learned and watching YouTube videos, I had a membership at the YMCA, I honestly was doing good well good enough to function at my own pace and in 3 mths lost almost 20 lbs but the great part was I went from a size 18 to a size 14 ( believe me I'm curvy and wouldn't look good smaller than a 12/13 women ) but ended up a few things happen , personal stress, Lyrica, loss of doctor ( did find new but I was freaking out cause of what I've been through with Dr's. in past) then found new PM Doctor and ended up having a cysts on ovaries & ended up getting my tubes tied ( laparoscopicly ) & I think with having Fibromyalgia it put me down for 3 mths??

Should've been way less healing time. All in all stress,medication & small procedure I ended up gaining my weight back plus some in turn more depression & more pain due to the Fibromyalgia. Fast forward I'm no longer on methadone nor at a pain clinic ,finally found a family doctor who'd take me was put on oxycodone 10mg ×4 a day in 2013 & the beginning of April 2016 was called in for random pill count and UA, state of Ohio randomly picked 7 people from his office to get this done. He told me that the new law is changing & he took me off the oxycodone 40 mg a day because he said I can't be on a short acting med. for acute pain and needed to be put on an ER pain med because I'm in chronic pain. So he put me on morphine sulfate ER capsules 60mg once a day.

I know for a fact the Kadien does not help for my pain, the oxycodone helps way more. Honestly the methadone was the best but being on them 6 yrs , when I came off those cause my PM doctor was taking everyone in her clinic off so I left and had withdrawals for 3 mths till found my family doctor in 2013. At the time he didn't even believe in prescribing nothing over oxycodone 10mg 4× a day..but I think he was over prescribing oxycodone and being looked into.idk?? He could be just scared!! We'll sorry so long & ty for reading I'm not trying to whine just trying to get story over with. I was actually starting to meet with a neurosurgeon and see what he could do and was slowly starting to lose weight and doing more outside this apartment ,then this bomb hit. I start morphine later today ( It's 7:30am & I'm just getting ready to sleep so when I get up will start) & I know what I'll be facing ,hoping for a miracle! I'm so scared to feel 100% of this pain & from being on b4, I know that's what's up...frustrating! Okay I'm done.

Thanks again in advance.
 
Last edited by a moderator:
Hey Chronicpainlife and welcome to BL. :)

Sorry to hear you are struggling with this. I know they tell you it's incurable, but as they don't know what they are talking about I would not pay that much heed. I struggled hard with this for six years. Im now completely healed for over five years. Here is a little bit of that story. You can heal fully. :) Im living proof.

An article I wrote on help with withdrawal, inspired by the Thomas Recipe
 
Thanks neversickanymore, I really appreciate your feedback. I've read the Thomas recipe years ago,I also read your post.I think it's really great information. When I got took off the methadone in 2013 I used some things I knew like pepto & Imodium for the the tummy issues. I lived off DayQuil & NyQuil. I also tried vitamins ,music therapy ( it's amazing) and I have 2 wonderful dogs & a great support system. I also used prescription valum,now on klonopin... and nurotin helped.

My worry now is my pain is high and well documented and my doctor changed me from oxycodone 10 mg ×4 a day to Morphine sulfate ER capsules 60mg once a day & I just started today & so far no withdrawal symptoms just they don't work and I'm in high amounts of pain. I go see my doctor next week hopefully we can find something else that helps. I can't just live in this kinda pain. I have an Autistic son to take care of an 2 other children,plus we'll be moving. So much on my plate to live with this chronic pain without no relief. Ya know.

So was you living in chronic pain then decided to come off pain medication?? And you feel better now you're off any pain medication ,after going through withdrawal & detoxing?
 
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