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Hello from Australian Pain Patient

DJNJax

Greenlighter
Joined
Jan 16, 2012
Messages
31
Location
Australia
Hello everyone. thanks for having me here.

DJNJax is my DJ Nick name. Been into it for years now. Iam a disabled pensioner now. Daily life is hard to deal with. I hope i can some useful info here to help me


Ive been on opiate type medications for over 8 years now. Before i had major spinal surgery i was ok. well enough to exersice and walk daily. Now iam in real trouble with my health and it seems to me the health department does not care. I would like to tell my story and i think over time i will.

I have Kyposis (Hunch Back) condition from birth. not until i was 20 years old did i expirience pain enough to need medication. i was on tramadol for 4 years before surgery.

then after 16 screws and 2x 30cm rods called Harrington Rods they screwed up the surgery. bad mrsa infection. If you google Spinal Fusion Harrinton Rods you will see its pretty much the biggest Surgery 1 can almost have.

had just moved to Brisbane City i didnt have a GP/Doctor apon leaving hosptial. My new GP put me on Oxycontin. 80mgs x2 per day. then in stead of presscribing another dose amount she told me to cut the 80's in half and take half during the night if needed. After about 12months of this i had no problems but then started to gain a tolerance

i was 84kgs walking into Brisbane Hospital.

After i got into trouble with Oxycontin they put me onto methadone. The nightmare of Oxycontin withdrawl was bad. I know that first hand. However, Methadone does not work for all Pain Patients and iam 1 of them. In Australia they only prescribe Methadone/Biodone once a day.

Iam now on 190mg or 38mls. I started on 90mg and in the past 18months doubled. Its been nothing less then a nightmare. Iam now 170kgs from the issues i face daily. i think when i was transffered from Oxy to Methadone i was under-dosed for 2 years. bad withdrawls daily and real high pain levels


I had never been into Herion drugs in my life. i used it 5-6 times when i got into my Oxy problem. I never dreamed that if the hospital could stuff up your spine then at least they would treat you the right way afterwoods. Ive been made to feel like a lepor from the very begining.


While i was on oxycontin they moved me back and forward to MS Contin, MS Mono and i found Morphine Sulphate to be less usefull then Oxy


i just found this site and was hoping i could find some answers. I don't want to die living like this. My family has already suffered enough over the past 20 years with my brother and sister passing. My Identical Twin Brother passed when i was 13 in 1991 from Asthma and my sister aged 16 1989 from Herion overdose. (ran away from home and got involved with the wrong people, she was not an addict) Herion can kill from your first time using it. All my life i have never liked anyone or anything to do with it.

I live with my father who is my Carer. Yet he is sick himself after pancreatic cancer and now bad diabeaties. Its just me and him and even though he has been through Cancer and the rest I still have less quality of life then he does. How can people be treated like this>

I have bad stomach ulcers now. each day iam sick and need to settle before i can even think about taking the dose. For those people who think Methadone is great for pain. All pain is different and does react differently then the next from all medications.

Before surgery i had serious pain. But now i know it was nothing compared to what i go through daily now.



hope to chat with some of you peeps here. i think it could really help me with my issues. Doctors know that iam in alot of trouble health wise yet Australian Laws with Methadone they just want to keep me on it. I hate it.

last thing i was to say here is this. 190mg each day and as soon as i take it i know iam High as a YOU KNOW WHAT... Being High does not equate to Pain Releif/Management. They say its got a long half life etc.. But i shit you not, ive been on Methadone for 5 plus years and its been the same thing every single day. 3-4 Hrs after i have this medication and iam in all sorts of shit. Pain that is.. Then even 2 hrs sometimes.

They call it Breakthrough pain? Its just not working and never has, nor will it. I can't keep going up and up in dose.

The best drug ive found for pain is Oxycontin. I went from 160mg per day Oxy to 240/320 per day and down again. It has been crazy yet i know its just Magic when it comes to real pain relief. however its also evil.
 
HI!!! Welcome! :D
A fellow, "thirty something" member! nice! I am 35...still a kid at heart!

Sorry to hear about all your pain issues-that is something VERY close to my heart. I had a near fatal car accident 6 years ago and am STILL trying to get my health and physical ability and pain worked out.
You might enjoy The Dark Side. It is a GREAT forum for discussing painful issues...no pun intended! Check it out. You will find a lot of understanding and WONDERFUL support there.
Also the Aussie&Asia forums will probably interest you as well.

If you have any questions,feel free to PM me or ANY staff member. We are here to help! :D

Much peace and love.........................skillz <3
 
thanks Skillz i will look into that mate. pain is really a sickness for me and leading me to a shorter life. uncontrolled pain can be as bad as anything else people go through yet if you havnt been through it or living with it everyday its not possible for people to really understand. Some think its like having a sore back. lol.. I think suffering is almost not as descriptive enough word.. Australia has some very hard rules for pain killers. Yet, you can walk into a Public Hospital here, a Surgeon can stuff you up and there are no rules for him. he has just turned up into an opiate addict for life and now iam the 1 who looks bad. this subject is very close to my heart also as its really destroyed my Soul, Heart, Beliefs', any Quality of life, work, dreams, girlfriends, bankruptcy, the list really does go on but I wont. check out those sites as you mentions


iam interested in knowing about Drugs and effects from this place. it’s a nice forum to have available man


anyhow thanks for info
 
Pain can be a beast, this I knows. I am a chronic pain patient myself and have had my struggles but you learn to cope. I know all the pitfalls that come with chronic pain as well so if you need an ear that will listen to you, feel free to shoot me a PM or hit me up on AIM (my handle is the same there as here). Its a long road, but not one walked alone. This I can assure you of :)

Dont hesitate to talk to me, I am nice, I promise :)
 
sure aveoturbo i will. not knowning many people with real pain is another thing. your facebook mates don't want to hear about it. Each and every single day you wake up on what normal people say the wrong side of the bed. its hard to turn that head/mindset off from being upset/angry/depression/ you are like this. a constant mind duck mate. stay in touch
 
Welcome to bluelight. You should come check out The Dark Side, we actually have a member there I'm sure that you will meet who suffers from really bad chronic pain, and I'm sure she would love to share her story with you (the name is Doomed2pain). It's really amazing when I read both of your stories because it's something that I could never imagine myself going through, and then I remember you didn't either. I guess it's a good reason to be happy with what we have yeah? Anyway, feel free to PM me if you have any questions. Take care!
 
Yeh, its hard man, I know. There was a point where I was just getting mean to everybody in my life, even those who were just trying to help me. Its difficult to try and put on a smile and try to just be social with people. It can also be frustrating when people forget that you are suffering and expect you to be able to do what they do.
Depression, anxiety, fear, sadness, fatigue, it all catches up and kicks ya square in the chin. Im here for ya dude :)
 
thanks guys your words are well revieved. there are so many people in my life i come across who don't understand. i don't just have a sore back, i can't explain how bad it is thats how bad it is. sore, bad, painful, not descriptive enough
 
Oh damn, bad MRSA infections are never good :( - I am sorry you have serious pain on a daily basis. Feel free to PM me any time if you want to talk about it. For the first half of 2011, I was in severe acute pain and it was horrible, but I have since recovered (I broke two bones by slipping on a very small patch of ice - had surgery as a cast wasn't an option).
 
Idiots, they should have never done that surgery at your age. I was scheduled for one when I was 14 but had to cancel because of the war. Once in Germany I was 18 they told me I was too old. I am your age and my biggest curve is 75 degrees. Here in us they tried to talk me into surgery...thankfully I said no. Can you find a new doc? Yours obviously has little compassion. Most ppl who are not in pain will not understand. Just tell them you have an allergic reaction to methadone, can't breathe whatnot research it. Look up Opana ER and see if they have it there, it is also long acting. I found that ibuprofen 800mg along with an opiate will kick it up to the point of total relief for at least 4 hrs. Yes, I understand I will always be in pain, but you can give yourself a break once in a while. :-)
 
thank you Alma. There are heaps of things they shouldnt have done mate. its just upsets me the more and more i hear about stuff they would have known about before hand but didnt tell me. not like you would think anyhow. thanks for your advice champ. shit has been real hard to the point of ending it. i can't do that to my father. i need to battle on. but like you said, a break once in a while for my own person well being and mindset. its a very heartless country and mate it don't matter what doctor i see here. they are all the same. its a bullshit way to pass the buck
 
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