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Coming off Invega/Xeplion (paliperidone) injections v 12

anonymoususer777 said:
Any tips for people traumatized by the psychiatric experience and these injections?
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There in the psych ward, in these 3 months they did full of test to see if I have any sort of trauma linked to the experience, they find nothing, they also wanted to test if I have personality disorders or any psychological issue, and they find nothing again..
 
moerez said:
As stranger I appreciate your kindness , I mean it, the pain is too much for me, I keep having akathesia and literally no interest for anything during a day, I have to stare at walls, how can I cope like that for a year? Every single day I wake up and tell my family is my last day and they get so upset, I fucked up my self by my mistakes by doing fucking shitty ass weed when I had a great life, all these make me think that I never gonna be myself again, I can’t forgive my self for what I’ve done to myself and when I see myself in misery, I’m like I used to have a character and respect but now everybody look at me as a crazy person, it’s like my life is over , I have nothing literally nothing to cope with my pains:(
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Please don't give up. You are very likely to get better, you need to ride it out.
 
I don’t understeand why this “derealization-like” feeling of being inside a dream just wont go away after 19 months, i would know the scientific cause behind that
 
InvegaAnon said:
Yeah, I think I remember a conversation about it. I think locked in syndrome is probably worse than invega and a few people were able to still write in that state, and they could still listen and see. They made the best of their lives. Life is a gift, even if it's hard.
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Last night I watched the 1991 movie awakening, would highly recommend. Robert Deniro portrays a guy wirh severe involuntary movement in his body and he does it masterfully.

And yeah locked in syndrome, I thought you mentioned a while ago, god knows how I remember but at the time you mentioned it to even consider things like that was to torturous because of suffering at the time. So scary 😨

The amaz8ng part of the movie Awakenings is the portrayal of a medical professional who cares and wants desperately to help those thay are clearly suffering. Its tragic in the end, but heart warming that someone had a soul to try.

The positive news about the movie Awakenings and I hope its factual in the sense that when they awoke they could only describe there reality to that point as a dream. Locked in syndrome is fucked in the sense that you may of mentioned or i already knew they are fully conscious. An utterly terrifying thought.

My ex, her uncle is lead researche rin motor neurons disease in Australia, he had MND , he willing chose to have an operation to save his life that meant he would be fully paralysed for the rest of his life dependent on others, and communicates like Steven Hawkibg does.

The thing that got me about this fella is he had 2 girls and they have a 50 percent chance of inheriting the condition. I feel like that's not ok 😕 just my opinion why bring someone into the world if there is an opportunity they are going to have to live with the reality there body is a potential ticking time bomb. Fucking tragic
 
Trueart2 said:
@RisperdalConsta50mg is still in the psychiatric ward. He lied to us about leaving Monday.
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Why does it matter? This is a place full of lunatics. I would be placing to much energy on others. I mean I know its hard because some people on this forum used to drive me fucking insane. To the extent I dare speak there name and yet at the same time now that im healing myself I actually just dont care anymore about some crazy person on this forum. Sorryyyyy my opinion on this probably doesnt count for fuck all ahahahah

Peace ✌️
 
demileigh said:
Hey there. Congratulations on your recovery and I think that putting in work to reconnect with life again is solid advice.

I had no idea what akathisia was when I first tried to bring it to the attention of the nurses in the psych ward, they just treated me like I was crazy so no doubt it can be easily overlooked. Lucky for me, once I brought it to the attention of the treating team that I was assigned to I was immediately given the benzotropine which is Parkinson’s medication and that brought me relief.

Finding a doctor that takes you seriously is important and it is definitely best to try the medications available that are used to treat akathisia before attempting to self medicate.

So sorry to hear that you had such a fucked experience re akathisia. I think I can recall another user saying that an akathisia medication wasn’t bringing them a great deal of relief so I do believe there is truth to what you’re saying about some people having no success treating it and I can understand how frustrating it would be to be told otherwise when you’re the one living it. Thank you for sharing your experience so we can have a broader understanding 🙂

I think what makes akathisia a medical emergency is that not only is it fucking torturous and enough to send anyone mad, it can also cause the person experiencing it to become suicidal which is an emergency and needs to be treated as such so moving forward I hope users that experience either or both seek support and take in what you’ve said about it eventually passing and that they will be okay 🙏
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Heyyyy that's the medication I had forgotten the name of!!! Benztropine, it certainly helps people i won't argue that point at all, because there were members on here who it helped that had encouraged me to ask doctors about it. But yeah it did absolutely sweet fuck all.

But in truth, I have some unknown condition / yet to be officially diagnosed condition that has been and is still chronically affecting my whole muscularskeletal system, I think I have a form of EDS Ehlers-Danlos Syndrome thay affects my muscles. I could be wrong, but its in line with my recent adult Autsim diagnosis at age 39.

When I got shot up either antipsychotics, I had just lost my job because of a physical health implosion after almost 40 years of masking major autistic traits. So in essence my body was really fucked up, and i suspect antipsychotics revved up my internal tension and discomfort by rates of knotts.

My brain body connection is so twisted that for a really long time physical discomfort has manifested itself as mental health issues.

Anyways im super happy that you got relief. I just wanted to share my story because honestly it was hell on earth, something I'll never really forget. The feeling everyday when I woke up was just pure terror at the fact I had lost complete control of my motor functions. I was living and am living at my dads house. He expressed recently it was one of the worst things hes ever experienced just living with me, and that probably says it all. He and I had so many arguments, because what people dont understand about the condition is, there is simply no escape, it doesnt matter if pace my hallway for 13 hours a day, or if I go for a walk to the park, I still wanted to die every waking moment of the day. It wouod get to dinner time I would smash my food, pop seroquel and pray for 12 hours of sleep.

I want to state for the record its 100 percent a medical emergency. But in my country Australia no one was willing to help with giving me any additional pills. Its absolutely fucked to be honest because they think you will try kill yourself

The absolute monster of a psychiatrist at the emergency ward, who quizzed me like we were playing some sort of game, where if I didn't answer correctly, it must just be a figment of my imagination labelled it as Anxiety, if I wish harm on any person in this world its people like that, for 12 fucking hours I was outside the hospital emergency room walking up and down unable to stop, the cunt called anxiety prescribed 25mg seroquel tablets. No one was willing to help me. Including the government psych they assigned me post psychosis, and my private psychiatrist discharged post psychosis refusing to see me. Absolute fucking cunts. Sorry makes me super emotional reflecting on all this, I shouldn't talk about it anymore 😢
 
moerez said:
My akathesia doesn’t get fix with anything, I’ve tried many different medications and different doctors and I still have akathisia, that makes me suicidal that I can’t stay without having pace in my brain and body, I don’t know what else to do , I’m really on edge of ending it it’s so hard to tolerate that shit I swear a god
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Hey mate, 👋 hang in there I promise it will stop. Mine did and I felt like it never would. You need to pass the half-life and then some and it will go away. So long as the injections have stopped. Sorry you're suffering. Its a nightmare.
 
RisperdalConsta50mg said:
How much is “enough time”? Because i’am approaching 20 months without recovering.
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What are your symptoms???? My issues were related to my body being ina state of chronic tension and muscle contraction

I have found relief with Electrical Massage Stimulation of my muscles. Then I found relief in my brain
 
Struggling through it all right now. The anhedonia is the worst. I miss emotions and joy and interest in things a lot. Still been doing some reading and doing my best to participate in classes. It's tough to stay attentive and engaged with the content- I don't think I get engaged in the content at all which is rough. Sending sympathies and strength to all still struggling. @RisperdalConsta50mg you should probably leave the psych ward, I don't know if you're going to find solutions there. I have seen some people in the neuroleptic recovery spread that recovered after 3 & 4 years. It may take a long time but isn't hopeless I don't think.
 
@IOSIP As someone with autism, I really empathize with your struggle. I'm so sorry you were horrifically misdiagnosed and glad you have the correct diagnosis now. I hope you are able to find some relief of your condition. Are you having pain?
 
dopamineClippedAngel said:
Struggling through it all right now. The anhedonia is the worst. I miss emotions and joy and interest in things a lot. Still been doing some reading and doing my best to participate in classes. It's tough to stay attentive and engaged with the content- I don't think I get engaged in the content at all which is rough. Sending sympathies and strength to all still struggling. @RisperdalConsta50mg you should probably leave the psych ward, I don't know if you're going to find solutions there. I have seen some people in the neuroleptic recovery spread that recovered after 3 & 4 years. It may take a long time but isn't hopeless I don't think.
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Yeah man anhedonia is also hell on earth, how does one explain a total loss of any joy in life. And any positive feelings. So fucked.
 
dopamineClippedAngel said:
@IOSIP As someone with autism, I really empathize with your struggle. I'm so sorry you were horrifically misdiagnosed and glad you have the correct diagnosis now. I hope you are able to find some relief of your condition. Are you having pain?
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Heyooo thanks for that i really appreciate it. Broadly stokes im on the right path in life. I come to this forum mainly to try send positivity for others struggling. Because I did try killing myself a few times there.

I have found relief in Electrical stimulus of my muscles , like after 40 years I have a treatment. Over the last 20 years its not like I havent a remedial massage or a Thai massage etc, but they dont even begin to scratch ghe surface of my physical tension.

Ive also been through 10 years of daily benzo dizziness use ending in 2017, then 2018 to 2024 I absolutely unintentionally severely physically disabled myself in a sense my overtraining in the gym with this uet to be diagnosed muscular condition

I really appreciate your empathy ❤️ 💛 💗

I just hope one day someone here who is desperately seeking answers may stumble accross some wisdom I can impart here for others. Up until 2024. Ive been a fully functioning member of society I can only describe what happened to me as Autistic burnout from masking for 40 years with pills 💊 😳 in hindsight its quite jarring to think what my life could be.

Tens of thousands of dollars spent on mental health, when primarily I have reasonable suspicion that I have a significant physical disability along with my mental disability. I see autism as my super power though, considering I got diagnosed at a level 2 40 years later, I sure gave it a good crack to be a fully functioning member of society for a while there.

Ive been unemployed for over a year running low on funds, but ive got hope, I got drive, im like dog with a bone and full currently my energy is invested in fixing my body. So that I can uave a good life one day soon.
 
dopamineClippedAngel said:
Struggling through it all right now. The anhedonia is the worst. I miss emotions and joy and interest in things a lot. Still been doing some reading and doing my best to participate in classes. It's tough to stay attentive and engaged with the content- I don't think I get engaged in the content at all which is rough. Sending sympathies and strength to all still struggling. @RisperdalConsta50mg you should probably leave the psych ward, I don't know if you're going to find solutions there. I have seen some people in the neuroleptic recovery spread that recovered after 3 & 4 years. It may take a long time but isn't hopeless I don't think.
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Yeah i know i won’t get any help in the psych ward but it was necessary to stay that long in order to delete the “psychotic” label over my medical records, they also dont find any psychological issues on me, ant this long stay was necessary to me to “clean” my psychiatric medical records. As now i don’t have any mental or psychological issues. There is a lot more that stay was necessary for me but i don’t want to share these things here as they have nothing to do with the context “recover from antipsychotic injections”.

I will leave the nex week according to the main psychiatrist.
 
IOSIP said:
Heyooo thanks for that i really appreciate it. Broadly stokes im on the right path in life. I come to this forum mainly to try send positivity for others struggling. Because I did try killing myself a few times there.

I have found relief in Electrical stimulus of my muscles , like after 40 years I have a treatment. Over the last 20 years its not like I havent a remedial massage or a Thai massage etc, but they dont even begin to scratch ghe surface of my physical tension.

Ive also been through 10 years of daily benzo dizziness use ending in 2017, then 2018 to 2024 I absolutely unintentionally severely physically disabled myself in a sense my overtraining in the gym with this uet to be diagnosed muscular condition

I really appreciate your empathy ❤️ 💛 💗

I just hope one day someone here who is desperately seeking answers may stumble accross some wisdom I can impart here for others. Up until 2024. Ive been a fully functioning member of society I can only describe what happened to me as Autistic burnout from masking for 40 years with pills 💊 😳 in hindsight its quite jarring to think what my life could be.

Tens of thousands of dollars spent on mental health, when primarily I have reasonable suspicion that I have a significant physical disability along with my mental disability. I see autism as my super power though, considering I got diagnosed at a level 2 40 years later, I sure gave it a good crack to be a fully functioning member of society for a while there.

Ive been unemployed for over a year running low on funds, but ive got hope, I got drive, im like dog with a bone and full currently my energy is invested in fixing my body. So that I can uave a good life one day soon.
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Glad to hear you have something that gives you some relief. I know the hell that is Autistic burnout all too well- I'm glad you have your diagnosis and the masking is over. Glad you have motivation and energy and drive, those are so important, you've absolutely got this and I'm sure you will find answers and solutions. Things will improve for you, keep looking up! You've been through a lot.
 
RisperdalConsta50mg said:
Yeah i know i won’t get any help in the psych ward but it was necessary to stay that long in order to delete the “psychotic” label over my medical records, they also dont find any psychological issues on me, ant this long stay was necessary to me to “clean” my psychiatric medical records. As now i don’t have any mental or psychological issues. There is a lot more that stay was necessary for me but i don’t want to share these things here as they have nothing to do with the context “recover from antipsychotic injections”.

I will leave the nex week according to the main psychiatrist.
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Ah, i see. I wish you the best with your other affairs then. Glad you were able to get all that stuff cleared off your records, these labels certainly carry a heavy stigma in all aspects of medicine. Best of luck with leaving next week as well, hope it all goes smoothly.
 
InvegaAnon said:
Please don't give up. You are very likely to get better, you need to ride it out.
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How do you know that I will get better ? All the symptoms I have shows I won’t get better and everyday is struggle, I can’t take it anymore I want my old life back which is impossible, so why do I even suffer more and at the end nothing changes
 
moerez said:
How do you know that I will get better ? All the symptoms I have shows I won’t get better and everyday is struggle, I can’t take it anymore I want my old life back which is impossible, so why do I even suffer more and at the end nothing changes
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How many months has it been for you?
 
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