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Coming off Invega/Xeplion (paliperidone) injections v 12

demileigh said:
Hey there. Congratulations on your recovery and I think that putting in work to reconnect with life again is solid advice.

I had no idea what akathisia was when I first tried to bring it to the attention of the nurses in the psych ward, they just treated me like I was crazy so no doubt it can be easily overlooked. Lucky for me, once I brought it to the attention of the treating team that I was assigned to I was immediately given the benzotropine which is Parkinson’s medication and that brought me relief.

Finding a doctor that takes you seriously is important and it is definitely best to try the medications available that are used to treat akathisia before attempting to self medicate.

So sorry to hear that you had such a fucked experience re akathisia. I think I can recall another user saying that an akathisia medication wasn’t bringing them a great deal of relief so I do believe there is truth to what you’re saying about some people having no success treating it and I can understand how frustrating it would be to be told otherwise when you’re the one living it. Thank you for sharing your experience so we can have a broader understanding 🙂

I think what makes akathisia a medical emergency is that not only is it fucking torturous and enough to send anyone mad, it can also cause the person experiencing it to become suicidal which is an emergency and needs to be treated as such so moving forward I hope users that experience either or both seek support and take in what you’ve said about it eventually passing and that they will be okay 🙏
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My akathesia doesn’t get fix with anything, I’ve tried many different medications and different doctors and I still have akathisia, that makes me suicidal that I can’t stay without having pace in my brain and body, I don’t know what else to do , I’m really on edge of ending it it’s so hard to tolerate that shit I swear a god
 
Matthew01 said:
I think maybe you should try a new doctor? There have to be rare ones who know how to properly handle this issue. Also do you remember that supplement list I posted before?
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There is no knowledge about “why sympthoms lastings months or years after discontinuation” in the medical system (or worse, they know but they use that against us to be able to label us crazy).

There won’t be a Doctor Who will help us to create an antidote to restore ourselves back, forgot about that, i pushed for almost 20 months in that way and i have nothing in return, it just costed me 3 month into a psych ward where out of pure lucky i had a very kind doctor.
 
IOSIP said:
In watching a documentary from 1973 on YouTube called Awakenings, bit of a tangent from nature documentary and very much a sad depressing tale, but for anyone suffering invega, perhaps it could provide a small amount of perspective.

Since I doubt anyone suffering invega wants to do much of anything but stare at walls and wish they were dead, I will summarise.

In the early 1920s a worldwide disorder swept accross everywhere, essentially something coined "sleepy sickness" its super interesting in relation to Invega, because some people became essentially catatonic for 50 years, some people had involuntary movement disorders, some people outright died, some people managed the condition until it overtook there whole body.

In the 1970s, i think someone decided to try L Dopa, and the people that were catatonic began to wake up, after 30 to 50 years (or so), im recalling facts from a Joe Scott video i watched the other night on the condition.

Why its so interesting to me, is ive talked extensively abput my Akathisia i had for months on end, but dear fucking god these people never recovered the L Dopa stopped being effective due to tolerance and they went back to where they started.

People talk about heaven an hell, part of my brain wonders if its a constant re incarnation, behave badly in one life, who knows maybe karma gives you a lifetime of being catatonic.

In fact, I swear @InvegaAnon, was it you who once talked on here about locked in syndrome? I mean none of thus matters in the heat of Acute Invega torture, now that i recovered i think its fascinating and it gives some perspective

Anyways just thought I'd share for anyone Interested
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Yeah, I think I remember a conversation about it. I think locked in syndrome is probably worse than invega and a few people were able to still write in that state, and they could still listen and see. They made the best of their lives. Life is a gift, even if it's hard.
 
InvegaAnon said:
Yeah, I think I remember a conversation about it. I think locked in syndrome is probably worse than invega and a few people were able to still write in that state, and they could still listen and see. They made the best of their lives. Life is a gift, even if it's hard.
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What if this gift puts you in agony that you can’t enjoy single moment of your life and can’t even be relax in It? I’m so close to lose this gift unfortunately
I did everything u say, gym ,TMS, acupuncture, nothing helped, some of us are really unlucky
 
moerez said:
What if this gift puts you in agony that you can’t enjoy single moment of your life and can’t even be relax in It? I’m so close to lose this gift unfortunately
I did everything u say, gym ,TMS, acupuncture, nothing helped, some of us are really unlucky
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sexual disfunction, cognitive impairment, memory issue, severe DR, Lost of emotions, Lost of the connection with your biological clock, insomnia, tinnitus, severe anxiety, panic attacks, and goes on..

A wonderful gift, some people win lottery and others gets this awesome gift, we should be happy that we got our lifes mutilated and we have to gloryfy the pain and agony as we are some martyr i guess
 
RisperdalConsta50mg said:
sexual disfunction, cognitive impairment, memory issue, severe DR, Lost of emotions, Lost of the connection with your biological clock, insomnia, tinnitus, severe anxiety, panic attacks, and goes on..

A wonderful gift, some people win lottery and others gets this awesome gift, we should be happy that we got our lifes mutilated and we have to gloryfy the pain and agony as we are some martyr i guess
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My honest question is what you really gonna do now?
 
anonymoususer777 said:
Any tips for people traumatized by the psychiatric experience and these injections?
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I guess we gotta go to them to treat it again, psychiatry literally ruined my life and now everyday i cry because of the pain im going through. Life is not fair ffs
 
moerez said:
What if this gift puts you in agony that you can’t enjoy single moment of your life and can’t even be relax in It? I’m so close to lose this gift unfortunately
I did everything u say, gym ,TMS, acupuncture, nothing helped, some of us are really unlucky
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The drug might not be out of your system yet. It will take time, but please, please at least wait a year and a few months at least.
 
InvegaAnon said:
The drug might not be out of your system yet. It will take time, but please, please at least wait a year and a few months at least.
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As stranger I appreciate your kindness , I mean it, the pain is too much for me, I keep having akathesia and literally no interest for anything during a day, I have to stare at walls, how can I cope like that for a year? Every single day I wake up and tell my family is my last day and they get so upset, I fucked up my self by my mistakes by doing fucking shitty ass weed when I had a great life, all these make me think that I never gonna be myself again, I can’t forgive my self for what I’ve done to myself and when I see myself in misery, I’m like I used to have a character and respect but now everybody look at me as a crazy person, it’s like my life is over , I have nothing literally nothing to cope with my pains:(
 
RisperdalConsta50mg said:
There is no knowledge about “why sympthoms lastings months or years after discontinuation” in the medical system (or worse, they know but they use that against us to be able to label us crazy).

There won’t be a Doctor Who will help us to create an antidote to restore ourselves back, forgot about that, i pushed for almost 20 months in that way and i have nothing in return, it just costed me 3 month into a psych ward where out of pure lucky i had a very kind doctor.
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This is horrible,they ruined our lives,there should be a doctor that can at least help,at least there are some individuals who are aware of this issue. Maybe you can try buying drugs online? Some people in the previous thread got drugs by buying them.
 
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moerez said:
As stranger I appreciate your kindness , I mean it, the pain is too much for me, I keep having akathesia and literally no interest for anything during a day, I have to stare at walls, how can I cope like that for a year? Every single day I wake up and tell my family is my last day and they get so upset, I fucked up my self by my mistakes by doing fucking shitty ass weed when I had a great life, all these make me think that I never gonna be myself again, I can’t forgive my self for what I’ve done to myself and when I see myself in misery, I’m like I used to have a character and respect but now everybody look at me as a crazy person, it’s like my life is over , I have nothing literally nothing to cope with my pains:(
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Have you tried standing under a cold shower for a few minutes?
 
anonymoususer777 said:
Have you tried standing under a cold shower for a few minutes?
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Yeah I do that some times, literally no change, I still don’t know why i haven’t got any headaches or can’t feel substances or at least something to enjoy to do? I really don’t wanna live like this and I guess I can’t do that more than few weeks, everyday I cry about my situation and akathisia, I loved my life, now I have nothing to fight for , pssd, no emotion, nothing literally nothing, I hope everyone recovers , but my situation need a miracle to be better
 
InvegaAnon said:
Yeah, I think I remember a conversation about it. I think locked in syndrome is probably worse than invega and a few people were able to still write in that state, and they could still listen and see. They made the best of their lives. Life is a gift, even if it's hard.
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hey how long did it take for ur emotions to come back
 
Is it really worth it to wait ? I lost so many things my soulmate my dreams my athlete body my penis my wise brain and why would i continue? When I see low chances of recovery and suffering daily, I feel like being non existent is better at least for me, I think I will do my self on Saturday with Fent, wish me luck
 
moerez said:
Is it really worth it to wait ? I lost so many things my soulmate my dreams my athlete body my penis my wise brain and why would i continue? When I see low chances of recovery and suffering daily, I feel like being non existent is better at least for me, I think I will do my self on Saturday with Fent, wish me luck
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Most people recover. Your life is worth the wait. I myself am waiting. Based on the data collected in the forum, the chances of your recovery are high.
 
anonymoususer777 said:
Most people recover. Your life is worth the wait. I myself am waiting. Based on the data collected in the forum, the chances of your recovery are high.
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I developed pssd, I have 0 emotion 0 interest in anything I really wanna stay alive but I swear I can’t bare with that anymore, whatever happens I can’t back to my old self and that’s killing me
 
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