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Coming off Invega/Xeplion (paliperidone) injections v 12

demileigh said:
Okay are you taking it in the morning and with food? If you take it too late in the day it can mess your sleep up.

On and coming off invega I lost interest in sex, the mere thought of it made me cringe so yeah I lived without it and it wasn’t the end of the world, I let it be the least of my worries and it resolved. If you’re 25 then you have plenty of time to find love/ love someone, I think you might be creating problems in your mind for no reason man… you may be shut off from your emotions or at least positive ones right now, that’s just what invega does to you so if you were capable of loving someone before invega, you will be able to once you recover from it.
I understand how distressing it is when your emotions are shut off as I was mentally aware that I loved my son more than life itself but I couldn’t feel it and that itself was just horrible to sit with but now I am back to knowing I love that child more than anything and I can deeply feel it too not to mention the torture from continuous negative thought loops telling me I was a horrible mother and that the state is was in was equivalent to failing my child which is absolutely far from the truth.
I used to say I love my son so much that I’d die for him but choosing to live for him even if I were to never fully recovered is the bravest thing I’ve ever done.
It wouldn’t be fair to escape your own suffering just to leave it behind for your family and friends to endure even if they may never understand what you’re going through.

If you’re having nightmares about dying, my opinion is that you’re having stress dreams because your cortisol it too high. Try having a cold shower before bed, practice self care and be calm… stop reading shit on the internet that’s stressing you out, maybe listen to nature sounds on YouTube and try to meditate instead.
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There are so much things going on with me, my brain is not capable of being relaxed, I can’t really be relaxed , I can’t sit somewhere and be relaxed and not think about anything, it’s like my brain is keep doing something wouldn’t let me to have peace of mind, man it’s so hard to explain the mental torture that I’m going through right now, I take benzos like 4 of them everyday but I still don’t get calm or relaxed, my mom took one of the lorazepams and she was sleeping whole day like I can see there is something wrong with me, how can I not be negative when my brain is always in the fight mode and I have no control on it even pills don’t work, my brain is like empty and it’s like someone is torturing me in brain
I swear I don’t wanna be negative but guys dealing with everything at the same time without any positive symptoms for almost 6 months is something that makes me exhausted
 
moerez said:
There are so much things going on with me, my brain is not capable of being relaxed, I can’t really be relaxed , I can’t sit somewhere and be relaxed and not think about anything, it’s like my brain is keep doing something wouldn’t let me to have peace of mind, man it’s so hard to explain the mental torture that I’m going through right now, I take benzos like 4 of them everyday but I still don’t get calm or relaxed, my mom took one of the lorazepams and she was sleeping whole day like I can see there is something wrong with me, how can I not be negative when my brain is always in the fight mode and I have no control on it even pills don’t work, my brain is like empty and it’s like someone is torturing me in brain
I swear I don’t wanna be negative but guys dealing with everything at the same time without any positive symptoms for almost 6 months is something that makes me exhausted
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Dude you take zopiclone everyday that means you have a tolerance to benzos to. Ive taken 20mg of ativan and barely felt tired. It does knock some people out though. Imo try clonazepam instead
 
moerez said:
There are so much things going on with me, my brain is not capable of being relaxed, I can’t really be relaxed , I can’t sit somewhere and be relaxed and not think about anything, it’s like my brain is keep doing something wouldn’t let me to have peace of mind, man it’s so hard to explain the mental torture that I’m going through right now, I take benzos like 4 of them everyday but I still don’t get calm or relaxed, my mom took one of the lorazepams and she was sleeping whole day like I can see there is something wrong with me, how can I not be negative when my brain is always in the fight mode and I have no control on it even pills don’t work, my brain is like empty and it’s like someone is torturing me in brain
I swear I don’t wanna be negative but guys dealing with everything at the same time without any positive symptoms for almost 6 months is something that makes me exhausted
Click to expand...
Have you got akathisia?
 
Tinnitus went almost away monday, the day after worsened a little bit, but since yesterday it returned strong as usual, damn, i was really hoping it was fading and going away.. I was wrong..
 
Akathesia is the absolute worst. Makes going to the doctor unfathomable; or the ER, or anywhere. Cant sit down for days till your legs fall off. I get it from Benzo or Pregabalin withdrawal. I feel dang sorry for anyone who gets it. Pure torture, hang in there if you have it.
 
My “Good morning” is tinnitus that wake me up at 5-6AM then severe anxiety then a panic attack, that’s severe torture.. Then i have constant muscle rigidity and tension all over my shoulders, back and neck..
 
Akathisia is hell.
When I first got put on Invega and the akathisia began I also started sleep walking with no prior history of sleepwalking so was walking into walls and doors while asleep and then non stop moving and marching in place while awake.

Idk if the akathisia and sleepwalking was 2 separate issues but the sleep walking did stop once I was given benzotropine for the akathisia.

Just a gentle reminder to anyone here experiencing akathisia to see your doctor or psychiatrist so they can prescribe you something for it ASAP.
 
InvegaAnon said:
I'm just sitting here watching nature documentaries on my computer and appreciating our planet just like I used to. You'll at least get to where I'm at, I promise. Most people go back to normal. A lot of people still struggle at month 5.
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In watching a documentary from 1973 on YouTube called Awakenings, bit of a tangent from nature documentary and very much a sad depressing tale, but for anyone suffering invega, perhaps it could provide a small amount of perspective.

Since I doubt anyone suffering invega wants to do much of anything but stare at walls and wish they were dead, I will summarise.

In the early 1920s a worldwide disorder swept accross everywhere, essentially something coined "sleepy sickness" its super interesting in relation to Invega, because some people became essentially catatonic for 50 years, some people had involuntary movement disorders, some people outright died, some people managed the condition until it overtook there whole body.

In the 1970s, i think someone decided to try L Dopa, and the people that were catatonic began to wake up, after 30 to 50 years (or so), im recalling facts from a Joe Scott video i watched the other night on the condition.

Why its so interesting to me, is ive talked extensively abput my Akathisia i had for months on end, but dear fucking god these people never recovered the L Dopa stopped being effective due to tolerance and they went back to where they started.

People talk about heaven an hell, part of my brain wonders if its a constant re incarnation, behave badly in one life, who knows maybe karma gives you a lifetime of being catatonic.

In fact, I swear @InvegaAnon, was it you who once talked on here about locked in syndrome? I mean none of thus matters in the heat of Acute Invega torture, now that i recovered i think its fascinating and it gives some perspective

Anyways just thought I'd share for anyone Interested
 
demileigh said:
Akathisia is hell.
When I first got put on Invega and the akathisia began I also started sleep walking with no prior history of sleepwalking so was walking into walls and doors while asleep and then non stop moving and marching in place while awake.

Idk if the akathisia and sleepwalking was 2 separate issues but the sleep walking did stop once I was given benzotropine for the akathisia.

Just a gentle reminder to anyone here experiencing akathisia to see your doctor or psychiatrist so they can prescribe you something for it ASAP.
Click to expand...

Adding my 2 cents* and a caviat to what you've said.

Yes seek support i agree, but also be prepared for the possibility no mediation will help.

Despite paranoid android multiple assertions that its a medical emergency and is treatable.

Be prepared to get laughed put the fucking door by Emergency rooms and Psychiatry because they don't give a fuck. Be prepared that the best relied to akathisia is an attempt to sedate yourself and sleep

Dont believe me? I have taken Pregabalin, baclofen and seroquel for years, Pregabalin and baclofen both muscle relaxants didn't do fucking thing and all seroquel does is knock you out, but my cunt doctor didn't believe me I had akathisia but also, there is literally only so much you can sleep even with trying to activiley sedate yourself

Wouod benzos help? Yes sure for the anxiety, but if you akathisia 24 hours a day 7 days a week from the moment your brain is conscious and it lasts for 5 to 6 months (as in my case) I wpuld caution benzos as all you'll get is an addiction on top of akathisia (10 year benzo addiction here)

There is another drug, people claim works for parkinson's cant recall the name, it definitely works for some people in my case it did absolutely sweet fuck all.

Whats next opiates???

Respectfully i felt like telling people who told me this was a treatable condition to shut the fuck up, they dont know what they are on about. Ie Mr Android. I know he was just trying to help , but in my case and others id suggest just trying to sedate yourself with something like seroquel if a doctor is willing to prescribe it. I think long term seroquel would be the least of your problems.

I also took massive doses of phenergan (promethazine) and restart, also did sweet fuck all.

The only thing that worked temporarily i took insane doses of a blood pressure mediation clonadine, it was the only drug I temporarily had access to. That ran out and obviously is a terrible fucking idea.

So @paranoidandroid Respectfully Akathisia is not always treatable and if you want my 2 cents, banging on about how its a treatable condition when for some people it really isnt does more harm then good. Better to listen and to empathise, you can offer suggestions but bold face saying its treatable for everyone is a pile of shit, ive done evry chemical in existence, all they wpuld provide is a bandaid, and some an addiction. Because you cant sustain some of the drugs that reduce the distress (i.e benzos)

Anyways not to shit on anyone, it still promote that it will pass eventually and you will be ok, but it is hell on earth for the sufferer and you have deepest sympathy 🙏 if you ever have the pleasure of dealing with this nightmare

Peace ✌️
 
IOSIP said:
In watching a documentary from 1973 on YouTube called Awakenings, bit of a tangent from nature documentary and very much a sad depressing tale, but for anyone suffering invega, perhaps it could provide a small amount of perspective.

Since I doubt anyone suffering invega wants to do much of anything but stare at walls and wish they were dead, I will summarise.

In the early 1920s a worldwide disorder swept accross everywhere, essentially something coined "sleepy sickness" its super interesting in relation to Invega, because some people became essentially catatonic for 50 years, some people had involuntary movement disorders, some people outright died, some people managed the condition until it overtook there whole body.

In the 1970s, i think someone decided to try L Dopa, and the people that were catatonic began to wake up, after 30 to 50 years (or so), im recalling facts from a Joe Scott video i watched the other night on the condition.

Why its so interesting to me, is ive talked extensively abput my Akathisia i had for months on end, but dear fucking god these people never recovered the L Dopa stopped being effective due to tolerance and they went back to where they started.

People talk about heaven an hell, part of my brain wonders if its a constant re incarnation, behave badly in one life, who knows maybe karma gives you a lifetime of being catatonic.

In fact, I swear @InvegaAnon, was it you who once talked on here about locked in syndrome? I mean none of thus matters in the heat of Acute Invega torture, now that i recovered i think its fascinating and it gives some perspective

Anyways just thought I'd share for anyone Interested
Click to expand...
Further to this rant, if its of interest, consider that L Dopa helped the symptoms, does that mean these people not only were catonic virtually there whole lives but they also experienced anhedonia from no dopamine???? Is that why some became living atatues and some had movement disorders?

Fuck that for a joke. Anyways. Lol just sharing if we think weve had it bad , I genuinely think most people given enough time should recover from invega , not to say that its a guarantee but I think its a strong possibility.
 
IOSIP said:
Further to this rant, if its of interest, consider that L Dopa helped the symptoms, does that mean these people not only were catonic virtually there whole lives but they also experienced anhedonia from no dopamine???? Is that why some became living atatues and some had movement disorders?

Fuck that for a joke. Anyways. Lol just sharing if we think weve had it bad , I genuinely think most people given enough time should recover from invega , not to say that its a guarantee but I think its a strong possibility.
Click to expand...
How much is “enough time”? Because i’am approaching 20 months without recovering.
 
IOSIP said:
Adding my 2 cents* and a caviat to what you've said.

Yes seek support i agree, but also be prepared for the possibility no mediation will help.

Despite paranoid android multiple assertions that its a medical emergency and is treatable.

Be prepared to get laughed put the fucking door by Emergency rooms and Psychiatry because they don't give a fuck. Be prepared that the best relied to akathisia is an attempt to sedate yourself and sleep

Dont believe me? I have taken Pregabalin, baclofen and seroquel for years, Pregabalin and baclofen both muscle relaxants didn't do fucking thing and all seroquel does is knock you out, but my cunt doctor didn't believe me I had akathisia but also, there is literally only so much you can sleep even with trying to activiley sedate yourself

Wouod benzos help? Yes sure for the anxiety, but if you akathisia 24 hours a day 7 days a week from the moment your brain is conscious and it lasts for 5 to 6 months (as in my case) I wpuld caution benzos as all you'll get is an addiction on top of akathisia (10 year benzo addiction here)

There is another drug, people claim works for parkinson's cant recall the name, it definitely works for some people in my case it did absolutely sweet fuck all.

Whats next opiates???

Respectfully i felt like telling people who told me this was a treatable condition to shut the fuck up, they dont know what they are on about. Ie Mr Android. I know he was just trying to help , but in my case and others id suggest just trying to sedate yourself with something like seroquel if a doctor is willing to prescribe it. I think long term seroquel would be the least of your problems.

I also took massive doses of phenergan (promethazine) and restart, also did sweet fuck all.

The only thing that worked temporarily i took insane doses of a blood pressure mediation clonadine, it was the only drug I temporarily had access to. That ran out and obviously is a terrible fucking idea.

So @paranoidandroid Respectfully Akathisia is not always treatable and if you want my 2 cents, banging on about how its a treatable condition when for some people it really isnt does more harm then good. Better to listen and to empathise, you can offer suggestions but bold face saying its treatable for everyone is a pile of shit, ive done evry chemical in existence, all they wpuld provide is a bandaid, and some an addiction. Because you cant sustain some of the drugs that reduce the distress (i.e benzos)

Anyways not to shit on anyone, it still promote that it will pass eventually and you will be ok, but it is hell on earth for the sufferer and you have deepest sympathy 🙏 if you ever have the pleasure of dealing with this nightmare

Peace ✌️
Click to expand...
Hey there. Congratulations on your recovery and I think that putting in work to reconnect with life again is solid advice.

I had no idea what akathisia was when I first tried to bring it to the attention of the nurses in the psych ward, they just treated me like I was crazy so no doubt it can be easily overlooked. Lucky for me, once I brought it to the attention of the treating team that I was assigned to I was immediately given the benzotropine which is Parkinson’s medication and that brought me relief.

Finding a doctor that takes you seriously is important and it is definitely best to try the medications available that are used to treat akathisia before attempting to self medicate.

So sorry to hear that you had such a fucked experience re akathisia. I think I can recall another user saying that an akathisia medication wasn’t bringing them a great deal of relief so I do believe there is truth to what you’re saying about some people having no success treating it and I can understand how frustrating it would be to be told otherwise when you’re the one living it. Thank you for sharing your experience so we can have a broader understanding 🙂

I think what makes akathisia a medical emergency is that not only is it fucking torturous and enough to send anyone mad, it can also cause the person experiencing it to become suicidal which is an emergency and needs to be treated as such so moving forward I hope users that experience either or both seek support and take in what you’ve said about it eventually passing and that they will be okay 🙏
 
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