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Mental Health Coming off Invega Sustenna (paliperidone)

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Symbolicone, im still healing. Almost 4 months out. Im still impotent and havent really noticed any improvements yet.. Im struggling with depression and still feel emotionless. How are you doing though? I hope u r close to fully recovered.
 
Hey sorry for the delay ... im still improving not 100% yet but i will be able to recover... at the moment tho i still feel disconnected from the world but its kinda coming back
 
I have posted this info in the Drug Studies sub-forum, and it seems to get very few views so thought Id try here...
I have previously found two American studies on the drug Paliperidone and how it effects people with brain damage. I deleted the info I collected after not being able to act on the problems at the time, but after 2 and a half years of being off the drug I am still a chronic insomniac. Ive spent a couple of hours searching today and havnt been able to find Uni studies which contain this information. Can some one give me tips on the best way to find the info im after (Studies on how Palaperidone effects people who have suffered server brain damage before consuming the drug forcefully...)?
For years now I am awake inconsistently.. Sometimes for a fortnight at a time lol.. (not laughing myself...).. I want research to take on the doctors for negligence.. I had enough info before but it was ignored and I deleted all the links.. Any one know where I can find the links or similar ones easily?? (I even had 40 or so electrodes attached to my head, and monitor my sleep.. I was classified as a insomniac for taking say 4 hours to get to sleep, but then when "asleep" my brain activity was the same as a normal person playing a video game or doing maths problems.. I want to both not be a chronic insomniac, as well as sue, and destroy the doctors chances of practicing medicine due to utter incompetence.. Any info will be appreciated thankx!
 
Gandog, im sorry to hear about your insomnia man. Maybe someone else knows but im not sure i can help you with that info bud. Symbolicone and others: i took two lortabs yesterday and felt a little chilled out. Maybe thats a start???
 
Symbolicone i read where you had 3 monthly injections, but did u get the loading dose 234mg followed by another initial dose of 156mg to begin with. These would have been your first doses followed by routine monthly injections of 117mg.
 
Im just scared to death that i wont ever feel again. I got a much higher dose than you guys did, except for nathan. Idk man. I wanna feel again. Im so scared :'(
 
you just have to be very patient red. It takes time for recovery to happen. I have been off for about 11 months now and just starting to see signs of recovery. Just dont worry it feels like it never ends but every 5 months you can notice that you have improved a lot. I am still not fully recovered but I have improved so just be patient until you start feeling better and then days will pass easier.
 
redmanone said:
Symbolicone i read where you had 3 monthly injections, but did u get the loading dose 234mg followed by another initial dose of 156mg to begin with. These would have been your first doses followed by routine monthly injections of 117mg.
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i did have the initial dose... im not certain if it was 234mgs however but ill have to double check.... in total i had 4 shots (all in the arm)
 
When it comes to emotions, I dont know.. Havnt been in situations where I can realize if they have come back properly or not. When you average 5-10 hours asleep a week if that, I dont do much with my self these days. Have no friends, and cant think about working (logically no will tell any one other wise if they "try" and stay up for 3 nights and days as I do regularly), so emotions aint normal. But can laugh and fell emotional responses watching movies or TV shows etc..
Not normal for most, and I shouldnt have been put in this position to begin with and even found over whelming evidence to get me off the drug. But apparently it wasnt worth taking me off it, even though I was becoming a chronic insomniac. There is a few government programs which can now help me take the doctor to court, but I have to re-find the info I had previously which I am having problems doing. Once thats addressed I can get a normal lawyer for 10% of the price of some trained as a doc and lawyer. Ill live, but I believe I need this information to see how people placed on the drug (After suffering brain damage), managed to cure there problem, or if they could?
Has any found in-depth studies conducted including minority groups such as peps with brain damage prior to taking the drug??
The two previous studies I had info on where from American Universities, I dont recall where, but they where very similar and addressed the info I need now, but that was probably 3 years ago now, and trying to use similar search's doesnt seem to be working in finding either of the studies.
 
Thanks amro. What you have said gives me hope. Is your sexual function returning? Right now im able to climax sometimes and thats the only time when i can "feel". My penis feels like its numb and made of rubber. Its been like this for 4 months now. What other things have improved for u? Ur feelings? Please elaborate fully as i need some hope of returning to my old self.
 
As I said, I have been off Invega tablets for about 11 months now. I took them for 4 months at 6 mg dose everyday. Before that I was on Zyprexa for about 4 months as well at a 15 mg dose. I do believe though that the Invega caused the most side effects. I can get a perfect erection, and I also have a very decent amount of discharge. However, since I am suffering from the apathy and anhedonia caused by this med, I still do not have very pleasurable orgasms like I used to before being on meds. My feeling of discomfort and suicidal thoughts have decreased greatly. I am not constantly thinking about my suffering. I do realize though that I still have some symptoms and side effects. The only one that really annoys me is anhedonia and I really with that it could go away. It has improved slightly but not yet recovered.
 
Ive read the majority of the paliperidone usages are pill based.. I was jabbed each month with a needle. Was it a different consumption method, or have I been given the wrong name for the meds I was on??
 
I was also given the shot. I still cant feel my penis although it can get erect. I guess there is normal discharge but orgasm is nothing like it used to be. My anhedonia hasnt really improved, i constantly dwell on my condition all day. Does the sexual function ever improve? I feel like once that improves so will my anhedonia.
 
Symbolicone, i was also wondering when like drugs started working for you like the ritalin? And when did your sexual feelings come back? Im 4 months out and no improvementt.. :(
 
redmanone said:
Symbolicone, i was also wondering when like drugs started working for you like the ritalin? And when did your sexual feelings come back? Im 4 months out and no improvementt.. :(
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Ritalin worked instantly .... it didnt effect my mood but it gives me great concentration and i was able to get done what i needed to get done when i was going threw that hell.... i noticed sexual improvement 5 months in at 7 months in most of my sexual ptoblems where gone and i had my sexual arousal bavk in full effect .
 
That's good news red. Six or seven months in things got a bit better for me too. I really think you will start seeing some improvement soon but I think it will be significantly better around 8 months. No one is exactly the same but at 10 months in for me I am doing ok and a lot better than I was.
 
Has anyone tried cabergoline to treat the increase in prolactin levels caused by Invega? Apparently the cabergoline will restore sexual function immediately but I am skeptical as I have read that cabergoline can cause aggression and psychosis
 
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