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Mental Health Coming Off Invega Sustenna (Paliperidone) v.2

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Invegasucks said:
That is exactly how I feel I can't do anything anymore i can barely get out of bed and I stopped taking this poison 3 1/2 months ago and I only had the 234mg loading shot and 156mg starting dose. Did you have to quit your job? I did because I can't function at all physically or mentally, I can't exercise anymore either when I used to 5 times a week. I don't feel like the same person down to the cellular level.
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Hey buddy, keep your head up. I know it's a generic, probably overused saying, but I'm being serious. I had to quit my job AND drop out of school at the same time. And for the first 8 months I couldn't imagine going back to work or school. Now at 9 months and 1 week off Invega I am pursuing a professional mma career full time. So it gets better. I'm not 100% better, but it does get significantly better.
 
Don't lose sight of the recovery stories that people are posting on here.
 
invegauser I have been trying to private message you for a few days but it won't go through. Not sure what I am doing wrong.
 
invegauser said:
@Lmr: i have sent you a message and it has all of the details concerning private messages on BL.

@Aiden21: they have toned down electro shock therapy (treatment) since they first started using it in the barbaric ways they did. meaning it is more precise. there are some in the medical community who believe it still should be used as a alternative to medications and other therapeutic techniques, so it might be hard to get any one to sign off on it. you'll have to forgive me, i don't remember if you have tried CES. it seems to have a positive effect on some of us. i would like to suggest looking into this before EST. my personal opinion: i have thought about it once or twice myself. i opted not to. i would suggest humbly that you might comfort yourself with such thoughts but not actually go through with them. imho don't do EST.

@Invegasucks: i have felt that way numerous times. you are not alone. i am sure that is just one part of what we all refer to as suffering. hold onto whatever is most valuable to you and don't let go of it no matter what.

@AbleArcher83: you have a plan and it will work, keep to it. break a leg buddy.

To everyone here; past, present and future: my words are not as up lifting and reassuring as most of yours can be. i know exactly what you are all going through. this is one of the worst experiences any one will ever go through. as long as we continue to live our lives the best we can, do everything we can when we can and hold out hope that one day we will make a recovery; then there will be a time when we all look back on this and realize how ridiculous this all really was. how much stronger and better as individuals and together we are. how far we have come and how far we have left these moments behind us to live our lives again and enjoy this experience we call life. @Koz26 is right. his words have truth, hope and are good reminders of what we lose sight of when times get to be the hardest to deal with. Thank You Koz26. heal quickly and godspeed.
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Thanks Invegauser. I admire you man, you've been through a lot with Invega and Invega Sustenna. Might I ask, how did you come off Invega Sustenna? Did you stop it cold turkey or did you taper off? I'm wondering because I'm stopping Invega Sustenna after 5 months and I'm experiencing a few withdrawal symptoms. What withdrawal symptoms did you have my friend? Great to know that you're almost recovered.
 
invegauser said:
@Lmr: i have sent you a message and it has all of the details concerning private messages on BL.

@Aiden21: they have toned down electro shock therapy (treatment) since they first started using it in the barbaric ways they did. meaning it is more precise. there are some in the medical community who believe it still should be used as a alternative to medications and other therapeutic techniques, so it might be hard to get any one to sign off on it. you'll have to forgive me, i don't remember if you have tried CES. it seems to have a positive effect on some of us. i would like to suggest looking into this before EST. my personal opinion: i have thought about it once or twice myself. i opted not to. i would suggest humbly that you might comfort yourself with such thoughts but not actually go through with them. imho don't do EST.

@Invegasucks: i have felt that way numerous times. you are not alone. i am sure that is just one part of what we all refer to as suffering. hold onto whatever is most valuable to you and don't let go of it no matter what.

@AbleArcher83: you have a plan and it will work, keep to it. break a leg buddy.

To everyone here; past, present and future: my words are not as up lifting and reassuring as most of yours can be. i know exactly what you are all going through. this is one of the worst experiences any one will ever go through. as long as we continue to live our lives the best we can, do everything we can when we can and hold out hope that one day we will make a recovery; then there will be a time when we all look back on this and realize how ridiculous this all really was. how much stronger and better as individuals and together we are. how far we have come and how far we have left these moments behind us to live our lives again and enjoy this experience we call life. @Koz26 is right. his words have truth, hope and are good reminders of what we lose sight of when times get to be the hardest to deal with. Thank You Koz26. heal quickly and godspeed.
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Its been 2 years. 2 years of nothing. I fucking hate myself. If i go braindead from it, ill have my family pull the plug. It's an option worth gambling
 
Aiden, are you still taking the Invega? Or, have you been off of it for 2 years?
 
If you were off the Invega for 2 years with no improvements I'd say there might be a chance something else is wrong...considering we've had multiple people say they started feeling almost fully recovered after around 10 months. Although it wouldn't surprise me if it was still the Invega. I suppose everyone reacts differently to it to a certain extent.
 
I have ocd so i notice every thing. Its definetly still in my system. I still get involuntary muscle movements/insomnia/burping...everyday.

Before invega i had none of these problems, honestly invega is a tool to create side effects for bigpharma to get more money.
 
This sucks balls.
Before I was on Invega I just felt anxiety and was tired all the time, I dont know why I got to this in the first place. I think it was because I thought this could give me more life quality but I was sane. Nowadays I feel like everything I say is crazy and I have to be careful with what I say so I dont get more medicated ...

I tried to quit it cold turkey...I did. I got headaches as if the brain was settling down once again but I couldn't resist and I took the medicins again.

Is it safe to change from 9mg daily pill to 3mg pill to wear off? my plan is to do that, I dont want to live my life without a soul.

thanks...best of luck to all
 
I definitely agree with you that Invega is an unnecessary way for big pharma to generate money. I remember when I was in the hospital the psychiatrist told me that invega would be essentially a godsend for me...because its just one shot a month and you dont need to remember to take meds every day. What he didnt tell me was that the shot costs roughly 2k each and most insurances dont cover it. Yet risperidone, which is basically the same drug, is like 99% cheaper than Invega. I think a lot of doc's get kickbacks for administering shots of invega and thats why so many people get them when they dont truly need to.
 
Also, Aiden, are there any meds the docs have you taking for ocd that might be contributing to these side effects?
 
Spiralspider said:
This sucks balls.
Before I was on Invega I just felt anxiety and was tired all the time, I dont know why I got to this in the first place. I think it was because I thought this could give me more life quality but I was sane. Nowadays I feel like everything I say is crazy and I have to be careful with what I say so I dont get more medicated ...

I tried to quit it cold turkey...I did. I got headaches as if the brain was settling down once again but I couldn't resist and I took the medicins again.

Is it safe to change from 9mg daily pill to 3mg pill to wear off? my plan is to do that, I dont want to live my life without a soul.

thanks...best of luck to all
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Is your pdoc on board with you getting off the invega pills? If so then you can ask him to prescribe you 1.5mg pills and 6mg pills and drop from 9mg to 7.5mg for like 2weeks. Then go to 6mg for 2weeks. Then get a script for 3mg pills and 1.5mg pills and drop from 6mg ED to 4.5mg for another 2weeks. Then 3mg for 2weeks followed by 1.5mg for two weeks and then come off of the pills for good.

This way would take much longer than a drop from 9mg to 3mg or CT but it should make the withdrawal symptoms much less severe. It might not need to be done this slowly depending on how long you have been on the pills. The 2week tapering plan is just an idea of what an alternative method of getting off invega while minimizing withdrawals might look like. Hope this helps buddy.
 
@SpiralSpide

For what it's worth, I read on survivingantidepressants.org that Invega pills should be tapered by decreasing the dose by 10% every 2weeks. Although its worth noting that 1) They recommend this same exact tapering method for basically every psych med and 2) The invega pills can't be cut ul into smaller pieces...so in order to taper by 10% I would think shots would be a requirement. I doubt that's a route you would want to go considering all the negative experiences people have had with the shots, but it's another idea that I found for tapering off invega while reducing withdrawal symptoms.
 
Spiralspider said:
This sucks balls.
Before I was on Invega I just felt anxiety and was tired all the time, I dont know why I got to this in the first place. I think it was because I thought this could give me more life quality but I was sane. Nowadays I feel like everything I say is crazy and I have to be careful with what I say so I dont get more medicated ...

I tried to quit it cold turkey...I did. I got headaches as if the brain was settling down once again but I couldn't resist and I took the medicins again.

Is it safe to change from 9mg daily pill to 3mg pill to wear off? my plan is to do that, I dont want to live my life without a soul.

thanks...best of luck to all
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Don't ever go cold turkey. I have done that with the shot and now I'm experiencing insomnia on a next level and tachycardia. Please don't risk it. I only slept three hours last night and they were broken up, not continuous.
 
Spiralspider said:
Is there any country in the world where these psychiatric drugs are illegal?
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I doubt that country would be as great as you think it'd be. Psychiatric meds help a lot of people. Many of whom I know personally. And certain psychiatric meds actually help me as well. Invega Sustenna is the enemy here, not all psychiatric meds in general. I'm sure you would find tons of people who would share your perspective, myself included, on why Invega Sustenna should be taken off the market. But as soon as the sentiment that all psych meds are bad is brought up then the argument would most likely become null and void.
 
Spiralspider said:
Is there any country in the world where these psychiatric drugs are illegal?
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But just in case you were just curious as to whether or not any countries have made psych meds illegal and aren't implying that you yourself think that they should be....then the answer is no. Sorry :/
 
I just want to make a point clear to any outliers following/reading this thread, looking for advice and hope, that psychiatry doesn't need to be avoided altogether. Psychiatry has helped countless people. And as much as I have suffered from Invega sustenna....and believe me, I have suffered from borderline suicidality for 8 months because of this shot....the truth is that I did need an antipsychotic to bring me out of my psychosis. I was delusional, engaging in reckless behavior that put myself in danger, and spiraling out of control more and more with each passing day. I have ZERO qualms with the fact that the doctors decided to administer me an antipsychotic to break my psychosis when I came to them for help. It was the fact that they chose such an insanely long-lasting antipsychotic like Invega Sustenna that I disagreed with in hindsight. I think if they just put me on an oral AP like Abilify or Risperidone for a week or two while I titrated up to a therapeutic dose on a mood stabilizer then I could have carried on with my life normally as soon as I got out of the hospital. I don't think any AP should last in your system for 8+ months. Simply put, it's dangerous because if people have adverse reactions then there sometimes isn't anything you can to do reverse them...That being said, there is most certainly, IMHO, a time a place for Psychiatry to play an important and beneficial role in our society today.
 
Koz26 said:
I just want to make a point clear to any outliers following/reading this thread, looking for advice and hope, that psychiatry doesn't need to be avoided altogether. Psychiatry has helped countless people. And as much as I have suffered from Invega sustenna....and believe me, I have suffered from borderline suicidality for 8 months because of this shot....the truth is that I did need an antipsychotic to bring me out of my psychosis. I was delusional, engaging in reckless behavior that put myself in danger, and spiraling out of control more and more with each passing day. I have ZERO qualms with the fact that the doctors decided to administer me an antipsychotic to break my psychosis when I came to them for help. It was the fact that they chose such an insanely long-lasting antipsychotic like Invega Sustenna that I disagreed with in hindsight. I think if they just put me on an oral AP like Abilify or Risperidone for a week or two while I titrated up to a therapeutic dose on a mood stabilizer then I could have carried on with my life normally as soon as I got out of the hospital. I don't think any AP should last in your system for 8+ months. Simply put, it's dangerous because if people have adverse reactions then there sometimes isn't anything you can to do reverse them...That being said, there is most certainly, IMHO, a time a place for Psychiatry to play an important and beneficial role in our society today.
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Bro, I am having severe withdrawal insomnia... I cannot sleep at all. Any suggestions?
 
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