InvegaFreak1
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Yes I have probs cos the estrogen effects it has
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Mental Health Coming off Invega (Paliperidone, Xeplion) injections v 6.0
- Thread starter Jerry Atrick
- Start date
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iridescentblack
Bluelighter
I had memory problems from Risperdal and Invega.
Ended up purchasing a book from Amazon on how to develop a "brilliant memory". It was really helpful.
Yeah, I remember one of my biggest struggles was memorizing phone numbers.
Turns out the secret to a "brilliant memory" is in something that some call image streaming, whereby the user remembers details about virtually anything by piecing things together in a series of vivid images created by the mind.
Downside to this, for me, was developing an excellent memory while struggling to imagine something even as simple as a paper clip.
Now that I think about it, maybe the problem is related somehow. Since it's difficult to visualize things on Invega and Risperdal, maybe that could explain the memory issues.
Anyway, the harder you try to picture things, eventually you'll get it down.
ExStonerExDrinker
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Has anyone that got off invega and relapsed into psychosis again been able to tell?
ExStonerExDrinker
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Fuck man I'm starting to think my brother didn't blow weed into my room
ExStonerExDrinker
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- Aug 28, 2021
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I can't tell if my mind is playing tricks on ms or not
Merek
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- Nov 20, 2022
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You think you’re going back into psychosis?
Kaatrina
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- Apr 23, 2019
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I start getting obsessed with good & evil and a spiritual world that is like parallel and can't be seen but felt, start throwing a lot of stuff away, and start thinking that numbers runes sigils and symbols have real and significant meaning, I feel like maybe after the third time it's easier to recognize the patterns
Yes, but my hair is fine now. This month will mark my fourth year off of invega
Thank you for the update. I'm glad you were able to stabilize. Month five is still really early. I think you could expect to feel better in the next few months.
We can make a lot of plans when we have manic energy aha but it's what we really accomplish that matters. You will get that spark and desire to accomplish things once again. Keep up hope, your old self is still you, a chemical just isn't allowing him to surface right now!
UnluckyXeplion
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- Sep 3, 2022
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- 1,278
i hope you're right, it's just a chemical after all, it's impossible that a little chemical altered me for life. I simply can't accept it.
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Yes, from what I have read in these threads over the years, numerous people have experienced this. As Kaatrina posted above, your hair can return to normal with time
Risingson8
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- Dec 10, 2021
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My hair was basicly fine before 2020 and then i had one shot at may 2020 ,after that i ve experienced hair loss at the frontal area...fortunately ive found a hair serum and then it stopped...but i ve lost a lot of hair on frontal area :/, but its hard to notice nowadays thanks to the serum...f...in drug is so toxic on the looks too..Yes, from what I have read in these threads over the years, numerous people have experienced this. As Kaatrina posted above, your hair can return to normal with time
prinzfrost
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- Dec 5, 2022
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- 57
I've been working pretty hard lately, emailing psychiatric experts from leading hospitals around the country, as well as emailing a few news outlets/investigative journalists. While I have scores and scores more to contact (as well as lawyers to contact), the results have been terrible: nobody has responded.
We have a serious, serious multifold problem, aside from our individual suffering, which quite frankly needs to be discussed more frequently on these threads:
First, I would like to suggest that there are probably thousands of people suffering from what we all are suffering from, since most people will likely not post on internet forums or even find them, much less this forum with its 6 threads on paliperidone. Second, our 6 threads on paliperidone suggest that the severe depression/anhedonia and severe sexual dysfunction, that constitutes what I call "paliperidone syndrome" is the overwhelmingly reported major side effect, to the exclusion of almost all other side effects, and that's cumulative! The drug label for paliperidone makes no mention whatsoever of "severe depression/anhedonia," but given the reports of users on these threads (where, mind you, the threads are for all side effects), it's clear that since it is orders of magnitude more common than all other known side effects cumulatively, that makes it likely that there are tens of thousands of people suffering from this syndrome in the Western English speaking world alone, and much more world wide. Consider, also, that it is estimated that between a million to a few million people are on antipsychotics annually in the United States.
We have a serious problem because from all indicators, the psychiatric establishment has utterly failed us. The drug companies want to sell as many of these medications as possible with complete disregard for human safety. Lawsuits against the drug companies involved in the manufacture of antipsychotics (Eli Lily, zyprexa; Bristol Myers Squib, abilify; Janssen (Johnson & Johnson) paliperidone) for millions, to billions of dollars! suggest a repeated course of misconduct. Every psychiatrist and even standard doctor I have spoken to have basically not accepted responsibility for poisoning and destroying the lives of individuals like us with "paliperidone syndrome," they do everything to deny the existence of these adverse side effects, they have zero cure for us, and, worst of all, they make no effort and have no system of reporting our cases of adverse side effects to any database, to the public, to the rest of the medical community. That means there is no effort underway to collect our data and try to solve this terrible syndrome, much less to acknowledge it, which is the most flagrant fundamental violation of the essence and tenets of medicine that I can think of.
The only approximation to this syndrome that the psychiatric establishment has acknowledged, itself is terribly insufficient. In 1992, they coined the term "Neuroleptic Induced Deficit Syndrome." However, this syndrome does not include the common severe sexual dysfunction. It covers some aspects of antipsychotic induced depression and anhedonia, but it does not, with any seriousness, acknowledge the full extent of terrible effects and anhedonia. Finally, to add insult to injury, in the 30 years since this term was coined, I have, with thorough investigation, only found a grand total of TWO papers discussing the treatment of people suffering from "Neuroleptic Induced Deficit Syndrome." The two papers are both Japanese (published in English), covering a grand total of a measly FOUR people. For the record, none of these individuals had sexual dysfunction, and they seemed to be the fortunate ones, who recovered very quickly after discontinuing antipsychotics (none of which were paliperidone). Two of them tried ECT, one tried mirtazipine and another tried venlafaxine. It is my opinion that the depression treatments in these cases were irrelevant and the key factor was discontinuing the antipsychotics. For those of us with the most severe version of "paliperidone syndrome," in that, we've had it for over a year and we've been off paliperidone for over a year and, that we've tried numerous antidepressant therapies and sexual dysfunction low libido no sexual pleasure therapies, and nothing has worked, these two papers, covering a measly total of four people, are pretty much useless.
We on these threads owe it to ourselves, to each other,
and to the probably thousands and thousands of others suffering what we are suffering from (alone, without help) worldwide and accumulating over decades and decades--
we must take more extensive action than simply waiting around.
We need to talk to our doctors and psychiatrists and press them to take this problem seriously, to try to find a cure, and to most of all, report our cases to databases and share our cases to the wider medical community.
We also must take action and at least press the media and make as many contacts as we can, to gain notoriety for our plight and all its aspects. Without public and media pressure, the corruptions in psychiatry will not be held accountable and nothing will change, and this situation is precisely that: systemic corruption, unacceptable violations of medicine, sheer callousness and deliberate ignorance, and a completely unacceptable situation which must be discussed and remedied.
We need public pressure to force the psychiatric and medical community to make studies and collect the real-world patient data on adverse effects of antipsychotics and those suffering from "paliperidone" syndrome. If this does not occur, then we are doomed. We will never have a cure and we will never have justice and thousands and thousands of innocents will needlessly continue to suffer and have their lives destroyed (besides the endless thousands that in many decades have probably already had their lives destroyed).
As soon as I find an investigative journalist/organization willing to help us, and the more the merrier, I will put their contact information/s here so we all can contribute. I am also, as I've said, contacting psychiatric experts nationwide to help us in finding a cure, acknowledging the problem and conducting data collection and research--this will likely be a complete failure (on their part) even after contacting hundreds, but if I attain any success, I will also report back here.
However, I strongly urge all of you to take the initiative and not merely "wait" around. I urge you yourselves to contact media outlets; I urge you yourselves to get in touch with your treating doctors and psychiatrists; I urge you yourselves to contact psychiatric experts nationwide (or wherever you may be); I urge you yourselves to even contact lawyers for free consultation about this problem.
Thank you
We have a serious, serious multifold problem, aside from our individual suffering, which quite frankly needs to be discussed more frequently on these threads:
First, I would like to suggest that there are probably thousands of people suffering from what we all are suffering from, since most people will likely not post on internet forums or even find them, much less this forum with its 6 threads on paliperidone. Second, our 6 threads on paliperidone suggest that the severe depression/anhedonia and severe sexual dysfunction, that constitutes what I call "paliperidone syndrome" is the overwhelmingly reported major side effect, to the exclusion of almost all other side effects, and that's cumulative! The drug label for paliperidone makes no mention whatsoever of "severe depression/anhedonia," but given the reports of users on these threads (where, mind you, the threads are for all side effects), it's clear that since it is orders of magnitude more common than all other known side effects cumulatively, that makes it likely that there are tens of thousands of people suffering from this syndrome in the Western English speaking world alone, and much more world wide. Consider, also, that it is estimated that between a million to a few million people are on antipsychotics annually in the United States.
We have a serious problem because from all indicators, the psychiatric establishment has utterly failed us. The drug companies want to sell as many of these medications as possible with complete disregard for human safety. Lawsuits against the drug companies involved in the manufacture of antipsychotics (Eli Lily, zyprexa; Bristol Myers Squib, abilify; Janssen (Johnson & Johnson) paliperidone) for millions, to billions of dollars! suggest a repeated course of misconduct. Every psychiatrist and even standard doctor I have spoken to have basically not accepted responsibility for poisoning and destroying the lives of individuals like us with "paliperidone syndrome," they do everything to deny the existence of these adverse side effects, they have zero cure for us, and, worst of all, they make no effort and have no system of reporting our cases of adverse side effects to any database, to the public, to the rest of the medical community. That means there is no effort underway to collect our data and try to solve this terrible syndrome, much less to acknowledge it, which is the most flagrant fundamental violation of the essence and tenets of medicine that I can think of.
The only approximation to this syndrome that the psychiatric establishment has acknowledged, itself is terribly insufficient. In 1992, they coined the term "Neuroleptic Induced Deficit Syndrome." However, this syndrome does not include the common severe sexual dysfunction. It covers some aspects of antipsychotic induced depression and anhedonia, but it does not, with any seriousness, acknowledge the full extent of terrible effects and anhedonia. Finally, to add insult to injury, in the 30 years since this term was coined, I have, with thorough investigation, only found a grand total of TWO papers discussing the treatment of people suffering from "Neuroleptic Induced Deficit Syndrome." The two papers are both Japanese (published in English), covering a grand total of a measly FOUR people. For the record, none of these individuals had sexual dysfunction, and they seemed to be the fortunate ones, who recovered very quickly after discontinuing antipsychotics (none of which were paliperidone). Two of them tried ECT, one tried mirtazipine and another tried venlafaxine. It is my opinion that the depression treatments in these cases were irrelevant and the key factor was discontinuing the antipsychotics. For those of us with the most severe version of "paliperidone syndrome," in that, we've had it for over a year and we've been off paliperidone for over a year and, that we've tried numerous antidepressant therapies and sexual dysfunction low libido no sexual pleasure therapies, and nothing has worked, these two papers, covering a measly total of four people, are pretty much useless.
We on these threads owe it to ourselves, to each other,
and to the probably thousands and thousands of others suffering what we are suffering from (alone, without help) worldwide and accumulating over decades and decades--
we must take more extensive action than simply waiting around.
We need to talk to our doctors and psychiatrists and press them to take this problem seriously, to try to find a cure, and to most of all, report our cases to databases and share our cases to the wider medical community.
We also must take action and at least press the media and make as many contacts as we can, to gain notoriety for our plight and all its aspects. Without public and media pressure, the corruptions in psychiatry will not be held accountable and nothing will change, and this situation is precisely that: systemic corruption, unacceptable violations of medicine, sheer callousness and deliberate ignorance, and a completely unacceptable situation which must be discussed and remedied.
We need public pressure to force the psychiatric and medical community to make studies and collect the real-world patient data on adverse effects of antipsychotics and those suffering from "paliperidone" syndrome. If this does not occur, then we are doomed. We will never have a cure and we will never have justice and thousands and thousands of innocents will needlessly continue to suffer and have their lives destroyed (besides the endless thousands that in many decades have probably already had their lives destroyed).
As soon as I find an investigative journalist/organization willing to help us, and the more the merrier, I will put their contact information/s here so we all can contribute. I am also, as I've said, contacting psychiatric experts nationwide to help us in finding a cure, acknowledging the problem and conducting data collection and research--this will likely be a complete failure (on their part) even after contacting hundreds, but if I attain any success, I will also report back here.
However, I strongly urge all of you to take the initiative and not merely "wait" around. I urge you yourselves to contact media outlets; I urge you yourselves to get in touch with your treating doctors and psychiatrists; I urge you yourselves to contact psychiatric experts nationwide (or wherever you may be); I urge you yourselves to even contact lawyers for free consultation about this problem.
Thank you
iridescentblack
Bluelighter
I agree with everything you wrote. As objective as you are in your post here, it baffles me that you've received no responses so far. If I were a journalist, I'd be happy to take up your case--considering how well-informed and intelligent you seem.
Voice any complaint to a psychiatrist about drugs like this and you're likely to see them look away and avoid eye contact, playing the victim as if none of it is their fault. I still don't understand what the fascination is with dispensing long-acting antipsychotics. Logically, one might think that there's more danger in doing so.
iridescentblack
Bluelighter
It's day 10 or so after quitting drinking and the bags under my eyes--from Invega Sustenna--are gone.
This was one of my goals for recovery, and now 7 and a half years later, it's about time.
Still waiting for the redness in my eyes to go away, but since my sleep continues to improve (issues with sleep were caused when doctors combined Wellbutrin and Risperdal Consta), it feels like I'll be sleeping like a dog in no time.
People have made comments about my lengthy recovery. I don't really care. I've had physical issues in and around my recovery that have been dismissed by those people. Still, the true date of one's recovery--though markedly different from one individual to the next--is something that you can only decide for you. It's something that cannot be measured in a person's affect over the internet, anyway.
This was one of my goals for recovery, and now 7 and a half years later, it's about time.
Still waiting for the redness in my eyes to go away, but since my sleep continues to improve (issues with sleep were caused when doctors combined Wellbutrin and Risperdal Consta), it feels like I'll be sleeping like a dog in no time.
People have made comments about my lengthy recovery. I don't really care. I've had physical issues in and around my recovery that have been dismissed by those people. Still, the true date of one's recovery--though markedly different from one individual to the next--is something that you can only decide for you. It's something that cannot be measured in a person's affect over the internet, anyway.
HelpMeInvega
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- Jan 22, 2021
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I’m surprised more people don’t talk about athletics on antipsychotics, I’ve been searching the internet for information and get little to nothing. It’s like people just give up when they’re put on antipsychotics. I bought an Apple Watch to track my calories burned and it’s way harder to burn calories since being on antipsychotics. If you’re basing your calories by the machines at the gym they are totally wrong even if you’re inputting all your information. I’m officially one year off Invega Sustenna and I still can’t imagine when falling asleep and I still have chest pain everyday and still workout through it and just try my best to ignore the pain.
Merek
Bluelighter
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- Nov 20, 2022
- Messages
- 1,345
Most people who gotta take anti psychotics aren’t usually athletes pre invega I used too workout everyday at the gym and I ran cross country and track i have also worked out after getting the shots if you have any questions feel free to ask.
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Senior Staff Account
I wholeheartedly applaud you on your huge efforts to raise awareness of this issue and to advocate for not only yourself but for the thousands of other sufferers of the adverse effects of Invega. Huge respect to you and well done so far. It is immensely disappointing that you have not received much of a response yet...
May I suggest, if you have any steam left, to go straight to the source and to contact the manufacturers of the drug? They are required to log, report and investigate all adverse effects, and although they would only be able to act on YOURS because you can only do so on your own behalf, it will be interesting to see how they respond. Then perhaps, given the result, other people will be encouraged to follow suit.
Keep up the good fight
NoMoreInvegaPls
Bluelighter
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- Aug 13, 2022
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5 months and a couple days since my last shot. I can hardly tolerate any cold and I feel flat - I assume I'm withdrawing. On the plus side, I was able to genuinely laugh a couple of times.
This stuff is nasty, man. I was feeling a little better then it just starts kicking my butt again. God's been great to me though, life is good and I'm more than happy. Im just getting impatient for these physical and mental deficits to subside. Any1 here can DM me if you want to talk about faith, ultimately my Invega problems have felt like a minor annoyance compared to the eternal life God promises.
I have seen all the works that are done under the sun; and indeed, all is vanity and grasping for the wind. Ecclesiastes 1:14
This stuff is nasty, man. I was feeling a little better then it just starts kicking my butt again. God's been great to me though, life is good and I'm more than happy. Im just getting impatient for these physical and mental deficits to subside. Any1 here can DM me if you want to talk about faith, ultimately my Invega problems have felt like a minor annoyance compared to the eternal life God promises.
I have seen all the works that are done under the sun; and indeed, all is vanity and grasping for the wind. Ecclesiastes 1:14
Do you enjoy dreaming?
StrawHatLuffy
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- May 1, 2022
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I once found on Reddit the posts of a military veteran who was discharged because he had psychosis and was put on Invega. Apparently he worked out so much that the Invega was getting metabolized too fast and he was falling back into psychosis.
NoMoreInvegaPls
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Eh, I dream sometimes. Most of the time I don't remember it. I have had a few pleasant ones over the past few months. Why do you ask?
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