Mental Health Coming off Invega (Paliperidone, Xeplion) injections v 6.0

[Bobskitchen]

Holy crap Eligiu, your signature down at the bottom, 'Captain of the transgender revolution, lieutenant colonel of the cultural Marxist infiltration of Judeo-Christian Western society.'..Is this just a joke or a trolling attempt or are you for real?

Stop flooding the thread with your bs it’s annoying dude

 

[CFC]

Hey folks, can y'all calm down a little please? There's been quite a bit of completely unnecessary nasty/hateful language in here lately. You may think such thoughts, and you're free to do so, that's entirely your choice. But we all know this place, and this thread in particular, is about supporting and helping each other deal with Invega.

So please only share QUERIES, EXPERIENCES and POSITIVE or HELPFUL comments and suggestions to others if you feel inclined to share any at all, keep the nastier ones to yourself. People are relying on you all for help and support in their recovery, not to knock them back down.

Peace and love to all

 

[Forum Moderator]

Thank you @CFC for your post.

In addition to what CFC said above, we ask that all participants in this thread read the Bluelight User Agreement and The Dark Side posting guidelines again before proceeding with any further posts in this thread.

We do not tolerate bigotry of any kind on Bluelight, and we do not tolerate any posts that condone violence of any description.

I will also remind all participants in this thread that this thread is reserved for discussion of paliperidone (Invega/Xeplion), patient's side effects, recovery experiences, and for helpful and safe advice and support for recovering from Invega.

This thread is NOT for any discussion on anti-psychiatry movements, advising people to suddenly stop taking their medication without seeking medical advice, inciting violence or revenge of any description on the medical professionals who prescribed Invega, any unhelpful or dangerous advice about using illicit drugs to overcome the side effects of Invega, or any content that violates the BLUA or the TDS posting guidelines.
Any posts containing the above material in bold text will be deleted and you will receive an official warning. If you continue to post any off-topic or unhelpful/dangerous content after receiving an official warning you will receive a 1-point infraction, and you will continue to accrue infraction points for repeated offences.

This is a particularly sensitive thread due to the nature of the medication we are discussing. As such it is closely monitored and heavily moderated. If you have any concerns about any of the content you see in this thread please use the Report function to alert staff and we will attend to it.

Thank you.

 

[Bigsmoke420]

2 years fully off haldol which is similar to invega injections i was scared worse. i feel pretty normal now!! its crazy hang in there as ahedonia and lame it is its not worth u guys giving up

Same bro. Only problem I have is I get random muscle twitches and my feet or fingers will jerk. TD mostly.but it's very mild and truly don't care I have it

 

[HelpMeInvega]

I asked a question on Reddit how much weight did you gain from antipsychotics and the average was 70 pounds. I got like 50 replies. I also read that you lose muscle when you’re on antipsychotics and it turns into fatty tissue and it’s harder to gain muscle while on antipsychotics and turn your fatty tissue into muscle and get lean. So you’re kind of screwed!

 

[UnluckyXeplion]

I asked a question on Reddit how much weight did you gain from antipsychotics and the average was 70 pounds. I got like 50 replies. I also read that you lose muscle when you’re on antipsychotics and it turns into fatty tissue and it’s harder to gain muscle while on antipsychotics and turn your fatty tissue into muscle and get lean. So you’re kind of screwed!

Muscle doesn't turn into fat or vice versa.

 

[OLDTIDEN]

A lot of people say the high comes back around the 5 month mark.

It still has not for me

 

[prinzfrost]

Hi all, I'm currently working towards trying to achieve good news, in spite of how far off it seems:
Yes, the systematic injustice seems insurmountable
Yes, severe paliperidone syndrome appears all but irreversible, unbearable and untreatable.

Yet, I'm taking some important steps in the right direction towards a few causes near and dear to my heart, i.e. issues central to my suffering and related directly and indirectly to some of our experiences.

First, I'm conducting treatment networking (looking for the cure), that is, networking to try and find doctors and psychiatrists who may have the knowledge and insight to help alleviate and treat this paliperidone syndrome. As I've said before, my conventional insurance doctors and psychiatrists have known and still know nothing about this syndrome (nor did they warn me) and I suspect this to be a widespread problem.

Second, I'm exploring what my (and our) options are for legal actions and remedies: what the outlook is, how much scientific and robust data and evidence we might have to have, statutes of limitation, etc.

Third, I'm exploring actions that will advance our strategy and strength as a group. It's a combination of:
a. the prospect of forming alliances with sympathetic and loyal doctors, psychiatrists and researches, individuals of various walks of life with power and influence, and independent, investigative and mainstream media.
b. protecting and collecting the evidence, data and testimony of ourselves and others who have suffered these severe adverse effects, with methods, warehousing, systems, databasing, etc. beyond the reach and corruption of those within psychiatry, medicine, and pharma, and those without it, who would unjustly, falsely and maliciously seek to damage our cause, discredit it, and cheat us, defame us, intimidate us, repress us, divide, scatter and conquer us, etc.
so that all our voices may ultimately be heard.

Fourth, I'm investigating remedies to the issue and trauma of misdiagnosis. It's a common and traumatic frustration and problem. I'm trying to see if there are legal remedies for misdiagnosis. At the very least, we need to hold the profession to much more honest, good faith and stringent and consistent adherence to diagnostic standards. In my experience, psychiatrists all over the spectrum,
from the antagonistic government ones prone to sadistic abuse of power and flagrant law-breaking and outright lying (yes, I have personal experience and the wounds never healed... indeed I looked the Devil in the eye)
to the conventional insurance ones,
play fast and loose with diagnosing psychiatric and particularly psychotic or other "abnormal psychology" mental disorders.
When I consider my own experience, I've experienced a spectrum of misdiagnosis (from most severe to least severe):

a. (forgive me for the excess of words here, I did not intend to share so much but once I got going, I felt it was necessary to share these worries and contextualize them in the wider issues of society)
In the most severe case, a rogue (sadistic and corrupt) psychiatrist who worked for a sadistic and corrupt D.A., many years ago (2010-2011), conducted an evaluation, 30m-60m, with his budding doctor son in the room as a witness (to the father's evil, no shame on his part). I told my story and complained about the treatment I had received at a psych ward (3-day emergency commitment). For instance, I had my medical privacy, photographic privacy (they surreptitiously and without my permission took an inflammatory, unflattering photo of me for distribution purposes) and my procedural rights clearly and grossly violated. He must have spent all of fifteen minutes typing up his report on me and after I received it a few days later, I was in for the shock of my life and immediately wished I had recorded the conversation via tech I easily possessed at the time. I had an instinct to do it before hand but I decided not to. I maintain I have never had delusions nor hallucinations. This guy absolutely made up the most egregious lies about me and about what he claimed I said. He claimed that I claimed to him that I was hearing voices, special messages in the radio and the tv, etc. I swear on all that is holy I never even said anything remotely close to that, nor even mentioned radio or tv at all. I was a Communicative Disorders major at the time, which my University has a specialty for: it's speech, language and hearing. The guy, in a deliberate insidious twist of words, claimed I told him my major was "communicative disordering," not only insulting my major and the entire discipline, but suggesting I took relish in truly crazy and disorganized speech. It's been a long time since then and I think the DSM has changed their criteria for such things, as I forget the exact terms, but there were canonical examples of truly crazy speech, where there is no grammatical structure, syntax, etc. or coherence whatsoever. But I definitely never committed those nor met those requirements. He said I was an extreme danger (something nobody else voiced or agreed with at all) and that I was paranoid, too, which I was not. (i.e. true paranoia, back in the older days of DSM, had strict requirements--making valid criticism of a psych ward, of the psychiatric profession and of having ones' rights violated is NOT even remotely canonical diagnostic paranoia. But one can imagine how false trumped up charges can be used to immediately suppress any dissent or criticism). It occurred to me, then, how a rogue psychiatrist in a matter of minutes, without any oversight or accountability, could lie and immediately influence a judge or a court of law--who lack expertise on psychiatry--bypassing due process, bypassing defendant testimony or the ability to even contest the report/diagnosis. I still believe such rogue psychiatrists are a great and continual threat to our nation, our law, our Western traditions of the social contract, fairness, separation of powers, rights, you name it. We may be looking at a future where certain Western societies and maybe all societies become like Rome in its waning years: lobbying and interest groups corrupting the imperial capital, bread and circuses and distractions, armies fighting against each other and ravaging the empire in civil war, innocent Christians slaughtered in human sacrifice and vulgar entertainment, chaos and anarchy, etc. We may be looking at a future where our professions and institutions, the pillars of our society, run amok in corruption and wrongdoing, along with bad powerful corporate actors and unscrupulous power-wielders. Psychiatry may be the weapon of the future utilized by any interest group, organization or power to crush dissent, destroy free speech and artistic expression, discredit truth and fairness, etc, and figure into a dystopian totalitarian or oligarchic future. Anyway, back to this rogue psychiatrist. I later found out that this psychiatrist had a perfect track record of getting every one of his victims (his opponents, meaning all the defendants) involuntarily committed for an extended period of time. A perfect record of corruption, like a devilish version of the Devil's Advocate! He did not succeed with me, thankfully. This rogue psychiatrist diagnosed me with paranoid schizophrenia.

b. the psychiatrist who first prescribed paliperidone to me in July 2021 said I had schizophrenia.

c. the psychiatrist I saw from October 2021 to September 2022 believed I had schizoaffective disorder but made no conclusive decision

d. a psychiatrist who saw me in the psych ward in 2010 said I had a temporary psychotic episode, and I was discharged from the ward with psychotic disorder not specified (from other psychs in the ward).

Looking specifically at the DSM-V, but also the DSM at the time (2010), it's clear I did not meet the criteria for any single one of those disorders on the entire spectrum. The most accurate thing one could say, if I had a mental disorder at all, was that
I had a temporary mental disorder with strange behavior and, in my recent June 2021 time, also irritability.

The DSM-V lists four criteria for Schizophrenia:
Hallucinations
Delusions
grossly disorganized or catatonic behavior
negative (psychotic symptoms)
as well as the requirement that it affect one's life and continue for an extended period of time.
Psychiatrists cannot play loose with these! There is a canonical standard for them. I never ever had any of these at any time.

Schizoaffective disorder is the same but includes a mood disorder like depression, bipolar episodes, etc. I never had any of those previous criteria and never experienced any depression, etc. even near to the time when I was having strange behavior and irritability. My strange behavior and irritability never lasted any longer than what could be considered well within the cutoff for a "temporary/brief psychotic episode," and upon further and rigorous inspection, my strange behavior and irritability, though problematic and arguably a mental health disorder, could not have been considered to be canonical psychotic symptoms. My only impaired perception in June 2021 was a simple lapse in memory--I forgot that four years prior I had moved my paternal grandparents' photos, and later I wrongly blamed my Mom.

These psychiatrists all played fast and loose. With what I told them and with what information was available about me, they could never have legitimately checked off any of these criteria and reached any of these diagnoses. The problem is often times political and not scientific/fair and legal. If you disagree with a diagnosis, you could be seen as being noncompliant, totally rejecting care/voluntary care, lacking self-awareness, delusional, etc. Of course those would be fast and loose, inaccurate characterizations. A patient may simply want a more fair and scientific/legal diagnosis, to reduce harm. Our legal system includes the adversarial model, which will mean, inevitably, that government, the public office and trust, will often be vicious and excessive. Unfortunately, this invites a certain type of person--precisely the type of people we don't want in power, in positions of public office and trust, running institutions that our the pillars/foundations of our society--that is, people who love power, like to abuse it, and like to abuse others (sociopaths and psychopaths, in other words). When faced with the authorities unfairly and excessively coming after individuals, the convenient option is often to comply with excessive treatment and excessive diagnoses, to avoid inflaming said authorities. However, this is not truth, this is not medicine, and this is not fair. Additionally, patients are very much of sound mind and justified in wanting to avoid excessive medication and excessive inaccurate diagnoses, because we know the truth about how dangerous antipsychotic medications are. If there were truly safe and effective antipsychotics, patients would be much less reticient to take them.

Fifth, I'm making efforts to address injustices in Emergency Detention.
I've experienced a 72-hour (involuntary) emergency detention twice in my life: March 2010 and July 2021. Thankfully, I've managed to avoid being involuntarily committed for any longer period. As I mentioned just before, my first time in a psych ward was miserable: I had my medical privacy, photographic privacy (they surreptitiously and without my permission took an inflammatory, unflattering photo of me for distribution purposes) and my procedural rights clearly and grossly violated. The second time, I believe the authorities broke the law and procedure regarding Emergency Detention as mandated, with strict and necessary conditions, under my region's law, the law of the land in my region. I was shocked to recently discover that at least four (and counting) regional police and government legal agencies, as well as a regional law firm, all have an incorrect understanding of the requirements for Emergency Detention. Our region's law stipulates three conditions that all have to be met, and the third condition is not mentioned by any of the five. This certainly means that many area police departments and authorities are playing fast and loose with Emergency Detention criteria. I realize that also, in my case in June 2021, the police did not meet the third condition when carrying out an Emergency Detention on me. I'm exploring right now whether there are legal remedies for their misconduct and breaking of the law. The ultimate goal is to curb their excesses, protect the rights of citizens and achieve justice and reform, not only for the benefit of citizens into the future but for the satisfaction of those who have suffered from the excesses, misconduct and evils often present in Emergency Detentions and involuntary commitments. These evils and misconduct have received very little attention from anyone, but there are a few good lawyers out there who have indeed labored in this specific cause of fighting against wrongdoing in Emergency detentions and involuntary commitments.

Sixth, in the background, is the goal to make psychiatry safer, more accountable, more responsible and hold them to high traditional medical standards. As much as mental health issues are a growing issue for our societies, so also is the devastating, sometimes irreversible and life-destroying consequences of adverse reactions to depression medications and, specifically, antipsychotics. Real world patient data and adverse reactions are not being collected, considered nor reported. Many people suffer from terrible experiences with incompetent and/or callous psychiatrists. Many are misdiagnosed, many have their rights violated, many have no help to turn to. Clearly, if classical high values of the medical profession, like caring and sifting and investigating, were shared by most of the psychiatric profession (as should be the way), then psychiatrists in the community of their own accord would be databasing/submitting to databases the outcomes of their patients in the real world (rather than just a pre-drug approval sample size study extrapolated to the wider population), that is, they would demonstrate they care about adverse reactions, new previously unknown adverse reactions and truly advancing the treatment of all diseases and conditions. There are repeated patterns of misconduct and incompetence in psychiatry that must be addressed. Lack of safety is endemic to depression medications and, most severely, antipsychotic medications. The pharmaceutical companies behind these medications have already been proven to have repeated patterns of misconduct: in influencing, tampering with and misrepresenting safety and efficacy studies and their conclusions, in inappropriate marketing, in causing harm and damage, in their monetary and political influence on regular practice psychiatrists, on researchers, in academia and professional schools, in professional organizations and in concealing and repressing dissent and fair, truthful criticism. Biased influences on medicine undermine its integrity. If we are to advance medicine and safety, in general and psychiatry and antipsychotics, specifically, then not only must we promote sharing and reporting of information and adverse effects but we must protect these good faith measures from being corrupted or hijacked by biased powerful interests. If they have a pattern of misconduct, including with pre-approval research studies, then when they get a chance, they will very likely collect and twist data from real world patients too and interfere with others collecting such data, to suit their own interests. That's why we need public awareness and powerful allies. These, along with legal actions and perhaps, I suggest, a semi-governmental semi-civilian-civic Oversight Committee, will help hold psychiatry and big pharma accountable.

In conclusion, Justice can be done for all these issues, with proper alliances and power moves and remedies, diligent evidence and record-keeping, teamwork amongst victims, public awareness and tireless advocacy.

I'm trying to use myself as a vehicle for positive change, professional and institutional reform, public welfare, fairness and justice.

 

[CFC]

Muscle doesn't turn into fat or vice versa.

I think what they're trying to say is that because the metabolism slows and muscle gets lost, less calories are burnt and so fat is gained even faster in a negative feedback cycle. So it looks like muscle is being replaced by fat though, as you say, from a physiological point of view muscle isn't literally turned in to fat.

 

[UnluckyXeplion]

Hi all, I'm currently working towards trying to achieve good news, in spite of how far off it seems:
Yes, the systematic injustice seems insurmountable
Yes, severe paliperidone syndrome appears all but irreversible, unbearable and untreatable.

Yet, I'm taking some important steps in the right direction towards a few causes near and dear to my heart, i.e. issues central to my suffering and related directly and indirectly to some of our experiences.

First, I'm conducting treatment networking (looking for the cure), that is, networking to try and find doctors and psychiatrists who may have the knowledge and insight to help alleviate and treat this paliperidone syndrome. As I've said before, my conventional insurance doctors and psychiatrists have known and still know nothing about this syndrome (nor did they warn me) and I suspect this to be a widespread problem.

Second, I'm exploring what my (and our) options are for legal actions and remedies: what the outlook is, how much scientific and robust data and evidence we might have to have, statutes of limitation, etc.

Third, I'm exploring actions that will advance our strategy and strength as a group. It's a combination of:
a. the prospect of forming alliances with sympathetic and loyal doctors, psychiatrists and researches, individuals of various walks of life with power and influence, and independent, investigative and mainstream media.
b. protecting and collecting the evidence, data and testimony of ourselves and others who have suffered these severe adverse effects, with methods, warehousing, systems, databasing, etc. beyond the reach and corruption of those within psychiatry, medicine, and pharma, and those without it, who would unjustly, falsely and maliciously seek to damage our cause, discredit it, and cheat us, defame us, intimidate us, repress us, divide, scatter and conquer us, etc.
so that all our voices may ultimately be heard.

Fourth, I'm investigating remedies to the issue and trauma of misdiagnosis. It's a common and traumatic frustration and problem. I'm trying to see if there are legal remedies for misdiagnosis. At the very least, we need to hold the profession to much more honest, good faith and stringent and consistent adherence to diagnostic standards. In my experience, psychiatrists all over the spectrum,
from the antagonistic government ones prone to sadistic abuse of power and flagrant law-breaking and outright lying (yes, I have personal experience and the wounds never healed... indeed I looked the Devil in the eye)
to the conventional insurance ones,
play fast and loose with diagnosing psychiatric and particularly psychotic or other "abnormal psychology" mental disorders.
When I consider my own experience, I've experienced a spectrum of misdiagnosis (from most severe to least severe):

a. (forgive me for the excess of words here, I did not intend to share so much but once I got going, I felt it was necessary to share these worries and contextualize them in the wider issues of society)
In the most severe case, a rogue (sadistic and corrupt) psychiatrist who worked for a sadistic and corrupt D.A., many years ago (2010-2011), conducted an evaluation, 30m-60m, with his budding doctor son in the room as a witness (to the father's evil, no shame on his part). I told my story and complained about the treatment I had received at a psych ward (3-day emergency commitment). For instance, I had my medical privacy, photographic privacy (they surreptitiously and without my permission took an inflammatory, unflattering photo of me for distribution purposes) and my procedural rights clearly and grossly violated. He must have spent all of fifteen minutes typing up his report on me and after I received it a few days later, I was in for the shock of my life and immediately wished I had recorded the conversation via tech I easily possessed at the time. I had an instinct to do it before hand but I decided not to. I maintain I have never had delusions nor hallucinations. This guy absolutely made up the most egregious lies about me and about what he claimed I said. He claimed that I claimed to him that I was hearing voices, special messages in the radio and the tv, etc. I swear on all that is holy I never even said anything remotely close to that, nor even mentioned radio or tv at all. I was a Communicative Disorders major at the time, which my University has a specialty for: it's speech, language and hearing. The guy, in a deliberate insidious twist of words, claimed I told him my major was "communicative disordering," not only insulting my major and the entire discipline, but suggesting I took relish in truly crazy and disorganized speech. It's been a long time since then and I think the DSM has changed their criteria for such things, as I forget the exact terms, but there were canonical examples of truly crazy speech, where there is no grammatical structure, syntax, etc. or coherence whatsoever. But I definitely never committed those nor met those requirements. He said I was an extreme danger (something nobody else voiced or agreed with at all) and that I was paranoid, too, which I was not. (i.e. true paranoia, back in the older days of DSM, had strict requirements--making valid criticism of a psych ward, of the psychiatric profession and of having ones' rights violated is NOT even remotely canonical diagnostic paranoia. But one can imagine how false trumped up charges can be used to immediately suppress any dissent or criticism). It occurred to me, then, how a rogue psychiatrist in a matter of minutes, without any oversight or accountability, could lie and immediately influence a judge or a court of law--who lack expertise on psychiatry--bypassing due process, bypassing defendant testimony or the ability to even contest the report/diagnosis. I still believe such rogue psychiatrists are a great and continual threat to our nation, our law, our Western traditions of the social contract, fairness, separation of powers, rights, you name it. We may be looking at a future where certain Western societies and maybe all societies become like Rome in its waning years: lobbying and interest groups corrupting the imperial capital, bread and circuses and distractions, armies fighting against each other and ravaging the empire in civil war, innocent Christians slaughtered in human sacrifice and vulgar entertainment, chaos and anarchy, etc. We may be looking at a future where our professions and institutions, the pillars of our society, run amok in corruption and wrongdoing, along with bad powerful corporate actors and unscrupulous power-wielders. Psychiatry may be the weapon of the future utilized by any interest group, organization or power to crush dissent, destroy free speech and artistic expression, discredit truth and fairness, etc, and figure into a dystopian totalitarian or oligarchic future. Anyway, back to this rogue psychiatrist. I later found out that this psychiatrist had a perfect track record of getting every one of his victims (his opponents, meaning all the defendants) involuntarily committed for an extended period of time. A perfect record of corruption, like a devilish version of the Devil's Advocate! He did not succeed with me, thankfully. This rogue psychiatrist diagnosed me with paranoid schizophrenia.

b. the psychiatrist who first prescribed paliperidone to me in July 2021 said I had schizophrenia.

c. the psychiatrist I saw from October 2021 to September 2022 believed I had schizoaffective disorder but made no conclusive decision

d. a psychiatrist who saw me in the psych ward in 2010 said I had a temporary psychotic episode, and I was discharged from the ward with psychotic disorder not specified (from other psychs in the ward).

Looking specifically at the DSM-V, but also the DSM at the time (2010), it's clear I did not meet the criteria for any single one of those disorders on the entire spectrum. The most accurate thing one could say, if I had a mental disorder at all, was that
I had a temporary mental disorder with strange behavior and, in my recent June 2021 time, also irritability.

The DSM-V lists four criteria for Schizophrenia:
Hallucinations
Delusions
grossly disorganized or catatonic behavior
negative (psychotic symptoms)
as well as the requirement that it affect one's life and continue for an extended period of time.
Psychiatrists cannot play loose with these! There is a canonical standard for them. I never ever had any of these at any time.

Schizoaffective disorder is the same but includes a mood disorder like depression, bipolar episodes, etc. I never had any of those previous criteria and never experienced any depression, etc. even near to the time when I was having strange behavior and irritability. My strange behavior and irritability never lasted any longer than what could be considered well within the cutoff for a "temporary/brief psychotic episode," and upon further and rigorous inspection, my strange behavior and irritability, though problematic and arguably a mental health disorder, could not have been considered to be canonical psychotic symptoms. My only impaired perception in June 2021 was a simple lapse in memory--I forgot that four years prior I had moved my paternal grandparents' photos, and later I wrongly blamed my Mom.

These psychiatrists all played fast and loose. With what I told them and with what information was available about me, they could never have legitimately checked off any of these criteria and reached any of these diagnoses. The problem is often times political and not scientific/fair and legal. If you disagree with a diagnosis, you could be seen as being noncompliant, totally rejecting care/voluntary care, lacking self-awareness, delusional, etc. Of course those would be fast and loose, inaccurate characterizations. A patient may simply want a more fair and scientific/legal diagnosis, to reduce harm. Our legal system includes the adversarial model, which will mean, inevitably, that government, the public office and trust, will often be vicious and excessive. Unfortunately, this invites a certain type of person--precisely the type of people we don't want in power, in positions of public office and trust, running institutions that our the pillars/foundations of our society--that is, people who love power, like to abuse it, and like to abuse others (sociopaths and psychopaths, in other words). When faced with the authorities unfairly and excessively coming after individuals, the convenient option is often to comply with excessive treatment and excessive diagnoses, to avoid inflaming said authorities. However, this is not truth, this is not medicine, and this is not fair. Additionally, patients are very much of sound mind and justified in wanting to avoid excessive medication and excessive inaccurate diagnoses, because we know the truth about how dangerous antipsychotic medications are. If there were truly safe and effective antipsychotics, patients would be much less reticient to take them.

Fifth, I'm making efforts to address injustices in Emergency Detention.
I've experienced a 72-hour (involuntary) emergency detention twice in my life: March 2010 and July 2021. Thankfully, I've managed to avoid being involuntarily committed for any longer period. As I mentioned just before, my first time in a psych ward was miserable: I had my medical privacy, photographic privacy (they surreptitiously and without my permission took an inflammatory, unflattering photo of me for distribution purposes) and my procedural rights clearly and grossly violated. The second time, I believe the authorities broke the law and procedure regarding Emergency Detention as mandated, with strict and necessary conditions, under my region's law, the law of the land in my region. I was shocked to recently discover that at least four (and counting) regional police and government legal agencies, as well as a regional law firm, all have an incorrect understanding of the requirements for Emergency Detention. Our region's law stipulates three conditions that all have to be met, and the third condition is not mentioned by any of the five. This certainly means that many area police departments and authorities are playing fast and loose with Emergency Detention criteria. I realize that also, in my case in June 2021, the police did not meet the third condition when carrying out an Emergency Detention on me. I'm exploring right now whether there are legal remedies for their misconduct and breaking of the law. The ultimate goal is to curb their excesses, protect the rights of citizens and achieve justice and reform, not only for the benefit of citizens into the future but for the satisfaction of those who have suffered from the excesses, misconduct and evils often present in Emergency Detentions and involuntary commitments. These evils and misconduct have received very little attention from anyone, but there are a few good lawyers out there who have indeed labored in this specific cause of fighting against wrongdoing in Emergency detentions and involuntary commitments.

Sixth, in the background, is the goal to make psychiatry safer, more accountable, more responsible and hold them to high traditional medical standards. As much as mental health issues are a growing issue for our societies, so also is the devastating, sometimes irreversible and life-destroying consequences of adverse reactions to depression medications and, specifically, antipsychotics. Real world patient data and adverse reactions are not being collected, considered nor reported. Many people suffer from terrible experiences with incompetent and/or callous psychiatrists. Many are misdiagnosed, many have their rights violated, many have no help to turn to. Clearly, if classical high values of the medical profession, like caring and sifting and investigating, were shared by most of the psychiatric profession (as should be the way), then psychiatrists in the community of their own accord would be databasing/submitting to databases the outcomes of their patients in the real world (rather than just a pre-drug approval sample size study extrapolated to the wider population), that is, they would demonstrate they care about adverse reactions, new previously unknown adverse reactions and truly advancing the treatment of all diseases and conditions. There are repeated patterns of misconduct and incompetence in psychiatry that must be addressed. Lack of safety is endemic to depression medications and, most severely, antipsychotic medications. The pharmaceutical companies behind these medications have already been proven to have repeated patterns of misconduct: in influencing, tampering with and misrepresenting safety and efficacy studies and their conclusions, in inappropriate marketing, in causing harm and damage, in their monetary and political influence on regular practice psychiatrists, on researchers, in academia and professional schools, in professional organizations and in concealing and repressing dissent and fair, truthful criticism. Biased influences on medicine undermine its integrity. If we are to advance medicine and safety, in general and psychiatry and antipsychotics, specifically, then not only must we promote sharing and reporting of information and adverse effects but we must protect these good faith measures from being corrupted or hijacked by biased powerful interests. If they have a pattern of misconduct, including with pre-approval research studies, then when they get a chance, they will very likely collect and twist data from real world patients too and interfere with others collecting such data, to suit their own interests. That's why we need public awareness and powerful allies. These, along with legal actions and perhaps, I suggest, a semi-governmental semi-civilian-civic Oversight Committee, will help hold psychiatry and big pharma accountable.

In conclusion, Justice can be done for all these issues, with proper alliances and power moves and remedies, diligent evidence and record-keeping, teamwork amongst victims, public awareness and tireless advocacy.

I'm trying to use myself as a vehicle for positive change, professional and institutional reform, public welfare, fairness and justice.

Your posts are too long to read for my post-invega brain, sorry pal lol

 

[CFC]

Neurogenesis within the hippocampus after chronic methylphenidate exposure - PubMed

Methylphenidate is a psychostimulant used to treat attention deficit hyperactivity disorder. Neurogenesis occurs throughout adulthood within the dentate gyrus of the hippocampus and can be altered by psychoactive medications; however, the impact of methylphenidate on neurogenesis is not fully...

pubmed.ncbi.nlm.nih.gov

Not to say there aren't downsides
I'd be cautious about making conclusion about what it means for your average ex-invega user.

Definitely, though one thing that the science shows repeatedly is that a certain level of functionally relevant neuroplasticity appears to be retained - even for people with comparatively advanced dementias. Most people who've been on Invega are much younger, and much less damaged, so their capacity to experience regeneration would be expected to be substantially enhanced over time.

And I think the time issue is one that's very relevant to many of the experiences shared here, in that recovery necessarily takes quite a bit of time for many people, and feeds into the frustration and feelings of hopelessness that many experience. But if they can hold the longer-term prospect of recovery in mind (ie mindfully), they have very good reason to be hopeful. And that positive feeling itself will help boost some of the recovery factors (eg BDNF) in a positive self-reinforcing recovery cycle.

 

[UnluckyXeplion]

4 months have passed and still impotent has if its day 1. At that rate it will take a year before it goes alive again.

 

[Merek]

I have been able to build muscle on invega just not as much pre invega I would hit the gym 6 days a week I was able to bench 275 squat 300 and deadlift 365. Some good ways to build muscle are too be on nofap as it increases testosterone which builds muscle, do drop sets your last set to the point where you can’t even move your arms no more, and eat a lot of protein after your workouts and drink a protein shake I consume 50+ gs of protein post workout.

 

[CFC]

I have been able to build muscle on invega just not as much pre invega I would hit the gym 6 days a week I was able to bench 275 squat 300 and deadlift 365. Some good ways to build muscle are too be on nofap as it increases testosterone which builds muscle, do drop sets your last set to the point where you can’t even move your arms no more, and eat a lot of protein after your workouts and drink a protein shake I consume 50+ gs of protein post workout.

Have you been able to get any blood tests since you came off Invega? Particularly hormones like prolactin, estrogen and testosterone?

As you may know, one of the ways Invega can cause harm to some is by messing up the feedback loop that controls dopamine and prolactin levels, as the two usually work to balance each other out.

And unfortunately elevated prolactin downregulates the system that controls testosterone production in men. Which has a whole complex set of negative consequences of the type generally experienced by men with low testosterone levels (including poor mood, apathy, loss of muscle mass, reduction in libido etc).

 

[Merek]

Have you been able to get any blood tests since you came off Invega? Particularly hormones like prolactin, estrogen and testosterone?

As you may know, one of the ways Invega can cause harm to some is by messing up the feedback loop that controls dopamine and prolactin levels, as the two usually work to balance each other out.

And unfortunately elevated prolactin downregulates the system that controls testosterone production in men. Which has a whole complex set of negative consequences of the type generally experienced by men with low testosterone levels (including poor mood, apathy, loss of muscle mass, reduction in libido etc).

I have only gotten blood tests to see how much invega is in my system I haven’t tested for prolactin or anything but one thing I have to my advantage is I’m on nofap which ejaculation increases prolactin and decreases testosterone so that’s not a problem for me I’m also 3 months 23 days off invega and recovering at a fast pace.

 

[Afernandes1]

It usually takes about 8-10 months for prolactin levels to return to normal after 2 invega shots.
I did blood tests the first time I was shot up.

 

[prinzfrost]

It still has not for me

Neither for me. I'm at the 11 month mark (off of paliperidone). My psychiatrist kept me on paliperidone for a whole extra month even after my syndrome (side effects) emerged, so I've been experiencing these things for 12 months, while being 11 months off paliperidone.

4 months have passed and still impotent has if its day 1. At that rate it will take a year before it goes alive again.

Yep, I had that same experience at the 4 month mark. And at the 11 month mark, I too, am still as impotent as day 1, sadlol.

I have been able to build muscle on invega just not as much pre invega I would hit the gym 6 days a week I was able to bench 275 squat 300 and deadlift 365. Some good ways to build muscle are too be on nofap as it increases testosterone which builds muscle, do drop sets your last set to the point where you can’t even move your arms no more, and eat a lot of protein after your workouts and drink a protein shake I consume 50+ gs of protein post workout.

First off, those are really impressive numbers. Your bench is out of control good. Since squat and deadlift in a balanced body are supposed to be significantly higher than bench, I think your squat and deadlift ceiling is way higher than that.

You guys have the right ideas and ask the right questions. Measures like continuing to work out and nofap are very wise and should, by conventional wisdom, work. However, I just wanted to share, for anyone who cares, that exercise and nofap has not worked for me at all. I do, admittedly, have a severe form of this paliperidone syndrome. Seems like the metabolism and the fish downstairs are totally dead, lol.

Have you been able to get any blood tests since you came off Invega? Particularly hormones like prolactin, estrogen and testosterone?

As you may know, one of the ways Invega can cause harm to some is by messing up the feedback loop that controls dopamine and prolactin levels, as the two usually work to balance each other out.

And unfortunately elevated prolactin downregulates the system that controls testosterone production in men. Which has a whole complex set of negative consequences of the type generally experienced by men with low testosterone levels (including poor mood, apathy, loss of muscle mass, reduction in libido etc).

Hormone and blood tests--the right ideas and the right questions. I did want to share that at just 1-2 months off paliperidone, I, also, did a prolactin and testosterone test. My levels were normal (much to my disappointment, hoping for a smoking gun leading to a direct cure). Whether my prolactin and testosterone levels were not affected at all by paliperidone or whether they leveled off right away, either way, in my situation, it seems to suggest that these terrible adverse side effects/symptoms can persist and exist in spite of normal prolactin and testosterone levels. Abnormal hormones have been implicated in the "man-boobs" problem (Gynecomastia) and in some forms of sexual dysfunction, low libido, sexual anhedonia. However, if my case is any indication, it may be that paliperidone achieves all these horrible life-devastating effects by some other mechanism or pathway we don't understand.

 

[CFC]

Hormone and blood tests--the right ideas and the right questions. I did want to share that at just 1-2 months off paliperidone, I, also, did a prolactin and testosterone test. My levels were normal (much to my disappointment, hoping for a smoking gun leading to a direct cure). Whether my prolactin and testosterone levels were not affected at all by paliperidone or whether they leveled off right away, either way, in my situation, it seems to suggest that these terrible adverse side effects/symptoms can persist and exist in spite of normal prolactin and testosterone levels. Abnormal hormones have been implicated in the "man-boobs" problem (Gynecomastia) and in some forms of sexual dysfunction, low libido, sexual anhedonia. However, if my case is any indication, it may be that paliperidone achieves all these horrible life-devastating effects by some other mechanism or pathway we don't understand.

I think it's important to bear in mind a couple things.

First, unless you had a few (same time of day) blood hormone tests in the years/months before you got paliperidone, you may never be sure if your prolactin and testosterone levels actually have returned to your normal baseline. While they are obviously regarded as normal to a physician, the bell-shaped (normal distribution) curve they use to determine 'normal' covers a huge range of values. Your natural level(s) may have been quite different to what you have now, and so that may account for some of your subjective recovery issues.

Second, the testosterone (and prolactin) issue is only ever secondary (ie indirect) to Invega's primary mechanism (or blocking) of action on neurochemical signalling and the various long-term downstream/upstream effects that may have had on the brain's neural connections and CNS. And as you probably know, the neurochemical milieu that controls libido is very complex, not all about sex hormones, and something we know very little about.

We do know, however, that dopamine and norephinephrine appear to play a significant role in elevating libido, and serotonin in modulating it. We also know, for instance, that targeting the D3 receptor with drugs like Pramipexole, or D2 (and 5-HT2B, GLT-1 etc), as drugs like Bromocriptine do, can cause substantial elevations in libido, even in the absence of testosterone recovery (though long term, activation of D2/D3 can dampen or suppress prolactin signalling, leading to elevations in HPTA activity and thus testes output. Though it can also be harmful to GH and IGF-1 signalling, which have positive neuromodulatory effects, so swings and roundabouts!!!) Even drugs like bupropion can be helpful depending on the person, and that has quite a range of targets in the CNS that it modulates.

So what I'm trying to say, in a long roundabout way, is that the mechanism you're experiencing probably isn't really that mystifying. It's just that it still hasn't recovered, and may need some (temporary or long-term) pharmacological interventions by your doctors/specialists to kick it back into action and allow a more subjectively natural recovery

 

[Gdvffh]

So i took injections for a year due to a community treatment order. Ive been off since may. I feel pretty normal now, exercising working, keeping busy. I dont really think of antipsychotics or theeds anymore since it dosnt appear to be effecting me anymore. Now im just focused on my life.


I imagine ill get psychosis again in the future, when i do i plan to take meds until psychosis goes away and then stop. I avoid weed and alcohol to help prevent a relapse.

I was worried if i would recover after taking meds for a year but i seem to have.

 

[bignastyctg]

From what i see almost everyone on here recovers.

3 month mark exactly from being off invega:

Still feel anhedonia, restlessness, have trouble showering, changing, and brushing my teeth. I can feel the effects of nicotine. I haven’t tried alcohol or weed yet. Blankness of mind is terrible. Can’t communicate to family members.

I have noticed the restlessness easing up. They say the first 3 months are hell months. I’m just waiting for all this to ease up and hope I get better around the 7 month mark

Is anyone else codependent? I can’t seem to go anywhere without the help of my parents. I had to move back in wry them since getting injected. By far the worst experience of my life. Didn’t know it would be like this when the doctor told me it leaves my system in a month. Was anyone else lied to while getting this medication?

Nice to know people are in the same boat as me. We are in this together!

I’m 24 & I’m dependent on my grandparents, I live with them, only leave the house when my grandma takes me somewhere. I’ve got no job & there’s no way I could work in the condition I am in. She makes or buys all of my food. She also buys my nicotine & thc. I try to help around the house, but it’s really taxing on me, so it’s usually just simple things like doing a load of laundry or washing the dishes. They’re really supportive, but I wish I could do more.