Mental Health Coming off Invega (paliperidone) injections, v 5.0

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By the 6 month mark, I was able to enjoy music and watch tv a little. Anhedonia was still slightly present but goes away by the 8-9 month mark.
Insomnia is something people struggle with while coming off antipsychotics for a long time, so I can’t give you an exact time frame for when that will get better.
But I will suggest to not get hooked on any sleeping pills, even melatonin or Benadryl. Those are only meant for one time use on the rare occasions, not to be had long term.
I made the mistake of taking sleeping pills regularly and that backfired when I tried to quit, because my insomnia had become worse than ever. I slowly tapered from sleeping pills and now don’t take anything for insomnia, except for 1mg melatonin on the rare occasion.
How was your anhedonia?
For me, everything is boring and I lost my patience almost completely to even watch YouTube videos I like, to the point that I feel an urge to stop watching it all together.
Did you suffer from the same thing?
 
Are you sure ability is helping you? Do you actually need anhedonia for your problems? You seem level headed to the point where you don’t need APs.
Thank you for the observation. Yeah, I'm not trying to come across as a shill for mainstream psychiatry but I have often thought that the reason I am level headed is because of the APs.

When I was bad, I walked around a rambling mess talking about nonsense and wandering off and becoming homeless for no serious reason other than I was too paranoid to stay with family. I guess that was a serious reason for choosing homelessness but I've seen many people become homeless for far worse reasons like drug addiction, losing their job and house, other forms of physical and emotional trauma, etc.

At my worst, I was completely catatonic meaning I couldn't speak or communicate at all, just sat their silent doing nothing. I was still aware of what was going on around me but unable to do anything about it. Like being trapped in a glass box with no way to tell anyone why you can't talk. Luckily I wasn't homeless at that period in time, I was with family again. But that was also when I was ordered on Risperidone injections in the state hospital.

Back full circle, I don't entirely know what would happen if I quit APs. If I did, I would certainly do it under doctor supervision and taper off very slowly. My doc told me Abilify is currently the weakest of all APs. So who knows? I'm afraid if I did come off then I might slide back to how I used to be and I definitely don't want that to happen again. I don't feel like I have anhedonia as bad as I did when on Risperidone injections and later pills. I certainly no longer have the brain fog, can mostly hold a job, and am able to drive and have romantic relationships (at least before covid). Maybe I've just grown used to mild anhedonia where it doesn't bother me as much anymore. After enough time on these drugs, we begin to forget our old selves and become accustomed to our new selves for better or worse. I wonder if that's what they mean when they talk about being institutionalized.

I know I talk a lot about being med compliant but I'm still trying to figure this stuff out too. Being med compliant has helped me gain traction in life after recovering from the injections but I also need to remember that med compliance doesn't mean the same thing for everyone. Especially after reading a book by Dr Joanna Moncrieff, I feel that many people don't need to take APs long term. At this point, I'm relatively happy where I am and will likely continue taking them unless something major in my life changes. Anyways, I'll get off my soap box. Y'all stay safe out there.
 
Thank you for the observation. Yeah, I'm not trying to come across as a shill for mainstream psychiatry but I have often thought that the reason I am level headed is because of the APs.

When I was bad, I walked around a rambling mess talking about nonsense and wandering off and becoming homeless for no serious reason other than I was too paranoid to stay with family. I guess that was a serious reason for choosing homelessness but I've seen many people become homeless for far worse reasons like drug addiction, losing their job and house, other forms of physical and emotional trauma, etc.

At my worst, I was completely catatonic meaning I couldn't speak or communicate at all, just sat their silent doing nothing. I was still aware of what was going on around me but unable to do anything about it. Like being trapped in a glass box with no way to tell anyone why you can't talk. Luckily I wasn't homeless at that period in time, I was with family again. But that was also when I was ordered on Risperidone injections in the state hospital.

Back full circle, I don't entirely know what would happen if I quit APs. If I did, I would certainly do it under doctor supervision and taper off very slowly. My doc told me Abilify is currently the weakest of all APs. So who knows? I'm afraid if I did come off then I might slide back to how I used to be and I definitely don't want that to happen again. I don't feel like I have anhedonia as bad as I did when on Risperidone injections and later pills. I certainly no longer have the brain fog, can mostly hold a job, and am able to drive and have romantic relationships (at least before covid). Maybe I've just grown used to mild anhedonia where it doesn't bother me as much anymore. After enough time on these drugs, we begin to forget our old selves and become accustomed to our new selves for better or worse. I wonder if that's what they mean when they talk about being institutionalized.

I know I talk a lot about being med compliant but I'm still trying to figure this stuff out too. Being med compliant has helped me gain traction in life after recovering from the injections but I also need to remember that med compliance doesn't mean the same thing for everyone. Especially after reading a book by Dr Joanna Moncrieff, I feel that many people don't need to take APs long term. At this point, I'm relatively happy where I am and will likely continue taking them unless something major in my life changes. Anyways, I'll get off my soap box. Y'all stay safe out there.
It's probably acting as a placebo for you. You think it's doing something to help you when it's not. Doctors are not perfect. They have no experience with APs since they don't take them. Someone here got an invega shot because of having C-PTSD for serving in the war which makes absolutely no sense. C-PTSD doesn't affect brain chemistry for a doctor to prescribe a powerful anti-psychotic.

Psychiatrists just communicate with you for 90 seconds and quickly diagnose and prescribe. They don't put in the effort to really understand the patient. That's what happened to me, and that's why I got injected with this poison.

I wish you'd be less trusting of doctors for your own sake. You don't come off as a shill but you have to take into account that the misdiagnosing rate is very high.

the 6 month mark, I was able to enjoy music and watch tv a little. Anhedonia was still slightly present but goes away by the 8-9 month mark.
Insomnia is something people struggle with while coming off antipsychotics for a long time, so I can’t give you an exact time frame for when that will get better.
But I will suggest to not get hooked on any sleeping pills, even melatonin or Benadryl. Those are only meant for one time use on the rare occasions, not to be had long term.
I made the mistake of taking sleeping pills regularly and that backfired when I tried to quit, because my insomnia had become worse than ever. I slowly tapered from sleeping pills and now don’t take anything for insomnia, except for 1mg melatonin on the rare occasion.
Thanks for the advice. Yeah, I’ve avoided sleeping pills and all that. I guess I will slowly wait for the 6 month mark. This is taking such a long time and I’m suffering. I hope things go well for you though. Sorry you’ve had to experience the poison 3 times. Good luck,
 
I don't see any other reason than APs.
Boy, the way they mess you up is insane.
I had my first psychosis in May of 2019, got put on oral zyprexa (olanzapine) for 2 months and then cold turkeyed. I gained 25 pounds in 2 months but recovered very quickly. Only took me 5 months after stopping oral to lose the weight and feel better.
But then I relapsed at 12 months off, and got shot with invega for the first time during my second hospitalization. I recovered completely at 12 months off and also managed to lose all the weight gained by 13 months off, but got caught by the cops for breaking a red light and got shot with invega for the second time.
During my third hospitalization, I got shot with invega for the second time and gained 40 pounds, I was at my heaviest. But managed to lose 30 pounds and felt better at 8 months off.
But my parents decided to hospitalize me again due to severe insomnia and not eating properly, which resulted in getting shot up with invega for the third time during my fourth hospitalization.
I am now 8 months off, only gained 10 pounds this time but not able to lose it. I am sleeping well and everything else is back to normal but I still miss my pre-invega self.
What does a normal day look to you and what do u think of to get done earlier?
 
I weigh 115lbs…but I have to literally starve to get there and my face is so much fatter than it used to be and my body completely changed from antipsychotics it’s totally different. Far cry from 100lbs to 106lbs I used to be before antipsychotics. It’s so annoying.
 
Luckily for me when I was put on invega I was very underweight from drug use and I stopped gaining weight once I reached my goal weight.
 
Then get off the meds? Take Ativan daily instead. Benzos do a good enough job in controlling psychosis if you have that so called mental illness. There’s no need to experience long term anhedonia to get rid of temporary psychosis. But if I recall, you’re very pro medication, which makes little sense that you complain. You like the toxic trash.
I disagree taking benzos everyday is not the right approach they are addictive asf and benzo withdrawal can cause psychosis id suggest no meds at all unless you absolutely need it if so take the lowest dose of ap pills possible.
 
I just really hope I experience improvement at the 6 month mark. If I didn’t feel so heavy standing up, I could be reasonably improved. I don’t know why this drug is doing this to me. It’s so toxic.
 
Benzos every once in a while aren’t bad but taking them daily is a bad idea cause the withdrawals can cause psychosis anyways if you’re on invega taking Ativan is worthless cause I took it and didn’t feel anything.
 
Benzos every once in a while aren’t bad but taking them daily is a bad idea cause the withdrawals can cause psychosis anyways if you’re on invega taking Ativan is worthless cause I took it and didn’t feel anything.
Yeah, Invega causes dopamine receptor damage which is why we can’t feel anything, but I’m assuming the person recovered from the poison so other drugs may begin to work.
 
Forget the half life theory. What we are experiencing is a drug induced traumatic brain injury. The drug is too potent and put the dopamine receptors “offline”. That is what’s happening. There is no key in lock at the receptor sites, they are instead damaged. Recovery from TBI is 6 months to 2 years. This is the truth.

So why is the half life theory unreliable? Assuming you took the loading doses, after 4 months, based on 49 day half life, you have gotten rid of like 83% of the poison. That’s substantial and you should in theory feel very improved, but you don’t. So what the hell is going on then? Brain damage / brain injury - due to the high potency of the drug.
 
The Ki values for the different types of receptors for this poison are all 0 due to the damage this garbage causes to the brain. It doesn’t even bind to the receptors, it puts them “offline” and then your brain works to get them to baseline. That’s of course going to take a long ass time.
 
And that explains the high variability in recovery. We all have unique brains. The damage can be undone because the brain has the power to repair itself.
 
Also sexual function is the best indication of recovery since it produces the most dopamine from the orgasm. If you can have sex like pre-invega, you’re 100% recovered. I would assume taking a drug like meth would be dangerous in this situation since the dopamine surges from meth is like 5 times more than orgasming.
 
Then get off the meds? Take Ativan daily instead. Benzos do a good enough job in controlling psychosis if you have that so called mental illness. There’s no need to experience long term anhedonia to get rid of temporary psychosis. But if I recall, you’re very pro medication, which makes little sense that you complain. You like the toxic trash.
Please refrain from telling people what meds to take and what not to take. I understand you have had bad experiences with APs as many of us have but you are still not a doctor. Like others have said, taking benzos daily can introduce a whole other set of problems.

It's okay to share what has worked or hasn't worked for you as these are your subjective experiences but simply saying "Get off the meds" is not sharing your subjective experience and does not meet our criteria of Harm Reduction.

I don't know the person's situation or whether they are under court order to take meds, so saying "you like toxic trash" can be perceived as very insulting especially if they have no choice. Just be cognizant of who we are talking to and try to be more empathetic that we are all fighting our own battles and what we share in this thread could just be the tip of the iceberg of what is going on. Everyone is here for support and understanding not generalizations and insults.
 
Please refrain from telling people what meds to take and what not to take. I understand you have had bad experiences with APs as many of us have but you are still not a doctor. Like others have said, taking benzos daily can introduce a whole other set of problems.

It's okay to share what has worked or hasn't worked for you as these are your subjective experiences but simply saying "Get off the meds" is not sharing your subjective experience and does not meet our criteria of Harm Reduction.

I don't know the person's situation or whether they are under court order to take meds, so saying "you like toxic trash" can be perceived as very insulting especially if they have no choice. Just be cognizant of who we are talking to and try to be more empathetic that we are all fighting our own battles and what we share in this thread could just be the tip of the iceberg of what is going on. Everyone is here for support and understanding not generalizations and insults.
I never commanded her to get off the meds. My statement also ended with a question mark. Also, why do you glorify doctors so much when they prescribe this poison and ruin peoples' lives? You're your best doctor in this situation. What has your doctor done for you other than chatting with you for a few minutes and expediting a diagnosis and putting you on pills, or God forbid, an injection?

I know the individual's history and whether or not she is on court order. She is not. She praised invega at one point then complains about side effects.
 
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You should send that private message to that other person too. I’m innocent here just aggravated that I’m not recovering from one of the worst injections known to man. It’s a semi-lethal injection.
 
And why in the world do you insist on people quitting tapering or continuing with doctor supervision? One of narshe’s posts like a decade ago was about a person who went against his doctor’s recommendation to stop the maintenance doses and he did really well after a while.

Doctors are not gods.
 
Damn, I felt really good for a few minutes like three days ago but it went away really quickly. That was kind of my normal. I'm hoping to get it back.

How have you all been doing?
 
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