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Mental Health Coming off Invega (paliperidone) injections, v 5.0
- Thread starter n3ophy7e
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Jabberwocky
Frumious Bandersnatch
I got through another day of training today. Wasn't as good as yesterday but still good enough & proud of myself for getting through the day. Last night I had really bad insomnia I couldn't get to sleep until midnight even though I went to bed at 10pm. I couldn't shut my mind off even though there's not much that goes on in there. I was trying not to let myself feel frustrated. I was still able to get up at 7:30 this morning okay enough but had no energy or motivation. I'm devestated because the unit I had my heart set on has been taken off the market today. It's really hard to find a good enough place at the right price, in a good enough area especially since I have 3 cats. So I'm frustrated because it's probably going to be a while before I come across another place I like. I wanted to do an exercise dvd again yesterday after work & really was going to but then it got too late & decided not to. I even had a tiny bit of motivation to do it. I was going to do it today but don't feel like it at all really & it's gotten too late again. I'm feeling abit blah I'm trying to stay positive but I just want to start losing weight & look like myself again & I want to find my own place again. I also really want to start feeling things again & feel the effects of coffee again
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dirtyinvega
Bluelighter
I know it’s hard the anhedonia it will get better for you I just don’t know when everyone is different. What do you mean you can’t walk? Weakness in the legs? Loss of strength? If you can’t walk definitely sounds like me which is “drug induced parkinson” but I could be wrong which was the worse for me I couldn’t even stand up in the shower complete nightmare which takes awhile to improve but the good news is anhedonia and sleep will improve first. I haven’t forgot about making a new YouTube video I had to delay my leave into today was meant to be last week but working in a online delivery hub for a supermarket and Covid been a problem still and people needing to isolate for 7 days has been a nightmare so later today I’ll make a video and upload it.
It’s funny about two or so years so I got offered to take levodopa and carbidopa to help when I seen a specialist but I declined that. but it would be interesting to see if it did improve the symptoms of drug induced Parkinson’s but mmmmm.
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Weakness in the legs. I have to walk at small steps.I know it’s hard the anhedonia it will get better for you I just don’t know when everyone is different. What do you mean you can’t walk? Weakness in the legs? Loss of strength? If you can’t walk definitely sounds like me which is “drug induced parkinson” but I could be wrong which was the worse for me I couldn’t even stand up in the shower complete nightmare which takes awhile to improve but the good news is anhedonia and sleep will improve first. I haven’t forgot about making a new YouTube video I had to delay my leave into today was meant to be last week but working in a online delivery hub for a supermarket and Covid been a problem still and people needing to isolate for 7 days has been a nightmare so later today I’ll make a video and upload it.
It’s funny about two or so years so I got offered to take levodopa and carbidopa to help when I seen a specialist but I declined that. but it would be interesting to see if it did improve the symptoms of drug induced Parkinson’s but mmmmm.
But what to do when you have severe anhedonia?
Looking forward watching your video
pikachu_69
Greenlighter
- Joined
- Apr 2, 2022
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- 9
I know it’s hard the anhedonia it will get better for you I just don’t know when everyone is different. What do you mean you can’t walk? Weakness in the legs? Loss of strength? If you can’t walk definitely sounds like me which is “drug induced parkinson” but I could be wrong which was the worse for me I couldn’t even stand up in the shower complete nightmare which takes awhile to improve but the good news is anhedonia and sleep will improve first. I haven’t forgot about making a new YouTube video I had to delay my leave into today was meant to be last week but working in a online delivery hub for a supermarket and Covid been a problem still and people needing to isolate for 7 days has been a nightmare so later today I’ll make a video and upload it.
It’s funny about two or so years so I got offered to take levodopa and carbidopa to help when I seen a specialist but I declined that. but it would be interesting to see if it did improve the symptoms of drug induced Parkinson’s but mmmmm
Hi could you please tell me your youtube channel or link me your videos? I would love to see them. Cheers!I know it’s hard the anhedonia it will get better for you I just don’t know when everyone is different. What do you mean you can’t walk? Weakness in the legs? Loss of strength? If you can’t walk definitely sounds like me which is “drug induced parkinson” but I could be wrong which was the worse for me I couldn’t even stand up in the shower complete nightmare which takes awhile to improve but the good news is anhedonia and sleep will improve first. I haven’t forgot about making a new YouTube video I had to delay my leave into today was meant to be last week but working in a online delivery hub for a supermarket and Covid been a problem still and people needing to isolate for 7 days has been a nightmare so later today I’ll make a video and upload it.
It’s funny about two or so years so I got offered to take levodopa and carbidopa to help when I seen a specialist but I declined that. but it would be interesting to see if it did improve the symptoms of drug induced Parkinson’s but mmmmm.
Jerry Atrick
Bluelight Crew
No worries. I apologize if it seemed like I was coming down too hard on you. And I did not intend to minimalize the harm Invega has done to you and others in this thread. I have also seen in this thread that there is hope for people coming off Invega albeit sometimes it can take a while.
I agree with you that a lot of people feel terrible on APs. However I would also add that many of them, if they stick it out, can experience a reduction in side effects after enough time has passed. Not all, but many. Like I said before, we are all different and what works for one person may not work for another and vice versa. Although I think we can all agree that Invega is an exception and is quite awful.
Pff I'm still gutted theyve put me on antypsychotics. Normal people shouldn't have their dopamine receptors reduced if they don't fit the schizophrenia,bipolair disorder,etc diagnosis. To put a normal person who has nothing wrong with him suddenly on ap's. I'm actually jealous of the people who still have their thoughts,cognition,planning abilities,intelligence,etc
Even if I might/must be recovered, have improvemts for a part (its difficult to measure as I don't even remember how I felt before the ap's). I mean you ask: did I feel like this even before ap's, is it just the exam stress? Idk its definetely out of my system but I'm still worried if the ap's left me some after effects.
Even if I know can read again,watch video's there's still that 'ocd' in me who still doubts/asks if I'm FULLY recovered (which what you finally expect/want after the discontinuation). I mean I learned to drive a car recently and I drive great (compared to where I felt on ap's, but driving a car isn't difficult). I mean I see tons of evidence which might suggest Ive recovered but there theres that guilt/doubt in me which still convinced its all fake or that surely things have improved (due enough evidence/proof: eh reading,etc) but not like it was fully before Invega. I actually feel guilty, because you normally don't ever take ap's (if you're healthy) and should not feel what I felt.
Really you ask: is it the exams Just? Is it because I'm lonely? I mean the ap's shouldn't be on my mind. Also because of covid everything was closer, so you couldn't cope as before the pandemic (you werent as free as before, so you we where isolated).
I mean I feel the need to go out, to shop,to buy clothes (things which interesses me before Invega), but there's that guilt I shouldn't do that (Because of the exams too). Its like you get that dopamine again and suddenly should experience as the Invega stripped it out of me. But yeah I'm kinda homeschooled, and isolation doesn't do you good sometimes (its temporary I know that's what I remind myself)
End of the rant. Idk maybe writing it out kinda seems theurapheutic.
But idk might be the exam stress as I'm homeschooled and its different than normal school where you het help from teachers,etc I have to do shit alone.
Even if I might/must be recovered, have improvemts for a part (its difficult to measure as I don't even remember how I felt before the ap's). I mean you ask: did I feel like this even before ap's, is it just the exam stress? Idk its definetely out of my system but I'm still worried if the ap's left me some after effects.
Even if I know can read again,watch video's there's still that 'ocd' in me who still doubts/asks if I'm FULLY recovered (which what you finally expect/want after the discontinuation). I mean I learned to drive a car recently and I drive great (compared to where I felt on ap's, but driving a car isn't difficult). I mean I see tons of evidence which might suggest Ive recovered but there theres that guilt/doubt in me which still convinced its all fake or that surely things have improved (due enough evidence/proof: eh reading,etc) but not like it was fully before Invega. I actually feel guilty, because you normally don't ever take ap's (if you're healthy) and should not feel what I felt.
Really you ask: is it the exams Just? Is it because I'm lonely? I mean the ap's shouldn't be on my mind. Also because of covid everything was closer, so you couldn't cope as before the pandemic (you werent as free as before, so you we where isolated).
I mean I feel the need to go out, to shop,to buy clothes (things which interesses me before Invega), but there's that guilt I shouldn't do that (Because of the exams too). Its like you get that dopamine again and suddenly should experience as the Invega stripped it out of me. But yeah I'm kinda homeschooled, and isolation doesn't do you good sometimes (its temporary I know that's what I remind myself)
End of the rant. Idk maybe writing it out kinda seems theurapheutic.
But idk might be the exam stress as I'm homeschooled and its different than normal school where you het help from teachers,etc I have to do shit alone.
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Jabberwocky
Frumious Bandersnatch
Does anyone else here struggle with showering? Before invega I always showered everyday sometimes twice a day I couldn't imagine going a day without showering. Now I can only shower every second day. Washing my hair is such a chore. When I was at my worst sometimes I went up to a week without washing my hair now I wash it every 4 days
I had the same issue as you've described. I still struggle but at least I feel the motivation to do it. What I also felt was lack of caring in hair,looks,etc it was way less than before. I couldn't care if Ive showered or not, or did my Hair,etc
Micah444
Bluelighter
- Joined
- Jun 28, 2021
- Messages
- 90
Well, I suspect it’s because those psychiatrists aren’t educated in the severity of the possible side effects of antipsychotic withdrawal. You can google the side effects and there are several informative resources that show it is indeed from the Invega. This website here has a whole list of possible withdrawal symptoms you can show your psychiatrist if you need to.
https://psychscenehub.com/psychinsights/antipsychotic-withdrawal-syndrome-tapering/
If you scroll a ways down the page, you will find a helpful picture describing the withdrawal symptoms.
Micah444
Bluelighter
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- Jun 28, 2021
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- 90
I can relate to how you feel, Invega really distributed fat in disproportionate places. Around 13 months off is when I started doing 1 hour light walks and then 14 months I started doing the rowing machine 6 days a week. I know it sucks but you’ll get there eventually. It just is a very slow recovery process. I remember being worried it would last forever but it’s slowly recovering now and will keep getting better. You have hope, you will make progress. Sending you healing vibes and positivity.
Micah444
Bluelighter
- Joined
- Jun 28, 2021
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- 90
I’d like to be a beacon of light and hope for those of you struggling through this…keep going it is hard it is brutal but you will make progress and you will recover. I cannot guarantee you a specific timeframe but for myself I’m approaching 15 months off the Invega Injection and am still making slow but sure recovery. It will happen for you too…sending healing love and positive vibes to everyone in here. Keep fighting…each day that passes is one more day closer to the victory. Not if, but when. You are all champions.Hi @Kaatrina Thank you so much for posting an update! It's great to hear from you, and so good to hear you're doing so well! There are a few people in this thread who are really struggling at the moment so I really hope they can find hope from your experiences
It is not the withdrawal, I had the effects while being under the medication. I was forced by my family to get injections and now they think I am psychotic for blaming a good medicine
Micah444
Bluelighter
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- Jun 28, 2021
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I’ve had 7 shots and still recovering slowly at month 15 of no injections.
Micah444
Bluelighter
- Joined
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- 90
Yes the effects while under the medication are very similar to when coming off the medication. The medication can also cause something called tardive psychosis which you may want to google. Are you still on the medication?
Damn 15 months later and still recovering? Thats a long time. Are you on disability?
Micah444
Bluelighter
- Joined
- Jun 28, 2021
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- 90
Yeah I can relate…it has to do with the blockage of dopamine in the brain. Sometimes I would take hot baths and it took every ounce of my strength and willpower just to be able to get out. It will improve just is a very slow process.
I had 6 but lost all sleep and can do literally nothing
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