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Come and meet me friends...I need help and I will give what wisdom I can lovingly

Painful One

Bluelighter
Joined
Jan 18, 2017
Messages
4,225
Hello Bluelight!!

I feel as if I know you since I have been a long time lurker.
You all will have to get used to being told that I love you and I mean what I say.
it is an honor to be among you all. Hugs to everyone.
 
Hmmm. Sorry guys, I'm still learning how to use this site but most my message did not come across or maybe the admin edited it.
IDK.
I want you all to know that I am here if anyone needs to talk. I understand about opiate/ opioid withdrawal and dependence very well.
I live with severe chronic pain and several chronic conditions that leave me with MUCH disability.
I would love to talk to some others who have experience with chronic pain.

Much Love to you all.
 
Guys,
in particular I need an answer to the following situation- at the end of December I started throwing up violently, black gritty stuff and had a major headache with vision loss (those are common for me) but after that I awoke in the night with my arms having seizures and both arms became paralyzed from the shoulders down for half the day. For about one week, I awoke every night to these arm seizures that feel like child birth labor pain contractions in your arms and in both legs. My feet and hands have been burning, pins and needles, stabbing pain (in feet) and sometimes numbness every day now. I have had strange feeling, very sharp pain in my head that lasts only for a few seconds (thank God) on and off for a few minutes. My memory got knocked out and I could not remember words or speak very well. That function is just returning now. My entire body feels like I was beat with a hammer. I'm experiencing major depression too. Way worse than normal.

The worst thing that happened though is that my spine went out. My back would not hold me up at all. I had to prop myself up with pillows. It came back now so I can sit/stand but still feels very weak and I am leaning to the side a lot.

I went to my pain specialist as I have been diagnosed with chronic pain- left upper leg, back injuries, migraine headaches, REM sleep behavior disorder, hypoglycemia and some other things I can't remember right now and I told my doctor what had happened (I doubled up on my prescribed M.S Contin, Ambian, and Clonazepam during this time due to major pain and that it stopped the seizures and I could move my arms some again).

I was expecting to be referred to a movement disorder center/neurologist or something but my doctor said that I am causing this and nothing will help. No neurologist, psychiatrist, physical therapy, I even asked if rehab would help wondering if it could be the medication I have been taking for 9 years (M.S Contin 75 mg a day (never increased in 9 years) Clonazepam 1mg at night,
ambian 10 mg at night- never had any problems like this from the medicine) the doctor said no it would not help. He said that I have chronic pain and the only thing I can do is to take the medicine to manage the chronic pain condition and I also have to manage the medicine. He got pretty mad at me for doubling up on it but I did not know what to do and got into him ASAP.

Does that sound right? Nothing or nobody can help? I am causing this?? not on purpose but my brain is causing this?
I have no idea what to do. Can anyone help? Has anyone had this happen? Could this be caused by the medicine?
i took no extra medicine until the arm seizure paralyzation happened. Any advise?? Anyone? Please!
 
Hi there and welcome to the site :)

I can't answer your question and I tried to move it over to the 'Healthy Living' section where a lot of medical questions/pain related subjects get discussed. If you want you can simply copy and paste your question into a new thread either in HR or even Basic Drug Discussions.

I hope that you get some answers as your situation sounds awful - it is a pretty familiar story though. Once the doctors have announced chronic pain they just try to manage that with a variety of drugs.

Nearly forgot - hugs to you also :)
 
Okay guys- I called the patient advocates at my health insurance company and told them what was going on and they got me an appointment on Monday with a different Doctor. They also got me an appointment in March with a neurologist. That was the soonest available date a neurologist could see me.

But at least I managed to get two new doctors to have a look at me and hear what has been happening to me! Without a referral from my Pain Management Specialist! That is fantastic! The patient advocates even offered to help me find a new pain management doctor if I want. I'm thinking about it.

Pray for me my friends. I am scared badly.
Thanks to all whom answered here.
I appreciated it more than you will ever know.
God bless.

Ps: I am here for anyone who needs to talk about their problems also. I'm a good listener.
I know we are all dealing with a lot in one way or another here.
Love and hugs to you all.
 
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